Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Low-gluten Host

dbates

By dbates
in Introduce Yourself / Share Stuff

Recommended Posts

dbates Newbie
dbates
Posted

Hi this is my first time making a post on this forum. I was diagnosed as a Celiac about a month and a half ago. I have had some very bad symptoms without realizing where they came from for a really long time. I have been free from Gluten for about a month, and one thing I wanted to ask about is if I am maybe getting a little overboard. I am a Roman Catholic and since I learned I am a Celiac I have been trying to use low-gluten hosts from some Benedictine nuns that contain 100 ppms or 37 micrograms of gluten. I have come to understand that these have such a small amount of gluten in them that they should not bother Celiacs, but I am pretty sure I am having a reaction to them. I know that thirty minutes after receiving one I had bad migraines and then I was fatigued all the next day. I have had one person comment saying I am making myself believe I am going to get sick, so I start to feel symptoms, but I am pretty sure I can't think up migraines. My question is has anyone had a similar experience with the hosts, and is it possible to be that sensitive to such a low amount of Gluten?

I am trying to make sure that I am not getting gluten from anywhere else, so that I can test it, but since I don't know if it is even possible I am wondering if maybe I can think and thus feel Celiac Symptoms. Any comments would be great.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


jerseyangel Proficient
jerseyangel
Posted

Hi and welcome to the board! :)

It is entirely possible that you are reacting to the small amount of gluten in the low-gluten hosts. I know I would react which is why I've never tried them. The person who said you could not possibly be reacting to such a small amount was incorrect.

If you feel comfortable, you can receive Communion by taking the wine only. It is perfectly acceptable. Talk to your priest--perhaps you could get your own small chalice for your wine or he can use one for you that has not had any crumbs from the large Host mixed in.

Best of luck, and I'm glad you found us.

dbates Newbie
dbates
Posted
  • Author
Hi and welcome to the board! :)

It is entirely possible that you are reacting to the small amount of gluten in the low-gluten hosts. I know I would react which is why I've never tried them. The person who said you could not possibly be reacting to such a small amount was incorrect.

If you feel comfortable, you can receive Communion by taking the wine only. It is perfectly acceptable. Talk to your priest--perhaps you could get your own small chalice for your wine or he can use one for you that has not had any crumbs from the large Host mixed in.

Best of luck, and I'm glad you found us.

Thank you, I am pretty happy I found this site as well. =) That is good to know that it is possible, now I don't feel like I am slightly crazy. I am still new to this whole thing so it is hard to know what does and does not have adverse affects. I think I will try first to recieve a smaller amount of the host and see how that goes, but if not I will talk to my priest about the wine option. Thanks so much for your response.

tarnalberry Community Regular
tarnalberry
Posted

You can definitely "think yourself" into a migraine. (I have chronic migraines, and have experienced this. It's annoying, because just because you can 'think' yourself into one, doesn't mean you can 'think' yourself out of one. And it's kind of misleading to phrase it as "thinking" into a migraine, because it has more to do with the idea that you might get one causing a physiologic stress reaction which does alter chemistry and physiology.)

BUT, you can most definitely react to small amounts of gluten. There's a debate about it on another thread, but I'll summarize what I've seen here and in published studies: *most* people don't react to gluten in doses less than around 20ppm (the exact amount in studies varies, and this conclusion is verified by intestinal biopsy), but some people DO react. We have plenty of representatives of the "really really trace amounts cause a reaction", and plenty who don't. Perhaps you can try having just a sliver of the wafer (an eighth of a piece or something like that) and see if you're in a grey zone, but perhaps you're better off with just the wine/juice instead.

Can you ever definitively prove if your reaction is psychosomatic in origin or not? Not really. But you have a good reason to think it might not be, so, IMHO, why not eliminate that reason?

  • 2 weeks later...
Cait6799 Rookie
Cait6799
Posted

Is it simply possible that the gluten is cross contaminating from the priest holding the other hosts first?

I know the issues behind being Catholic and their stance on the host. It was a disaster for my daughter's first communion.

While her sensitivity level is not one that is bothered by the trace amounts in the host I purchased, my concern is that because hers is separate - and she goes last - that there would be some left on his hands by the time he got to her.

  • 3 months later...
Squidge Newbie
Squidge
Posted

There are Catholic approved gluten FREE host wafers, supposedly. I'm sorry, I get really upset about situations such as this. Jesus never once commanded that the bread be made using wheat, rye, or barley. He also never commanded us to make ourselves sick trying to properly worship him. You do also need to have a serious talk with your priest about cross-contamination. Tell your priest the wafers are still making you sick and see what he can do. And 100 ppm is still a lot of gluten for someone with Celiac's.

  • 1 month later...
Nightingale8472 Rookie
Nightingale8472
Posted

It's definitely possible to think yourself into a migraine. I have chronic migraines and do it to myself all the time. Walking out of the house without my migraine meds is a surefire trigger. I start thinking "OMG, I don't have my meds... what if I get a migraine. I just know I'm gonna get a migraine, and I don't have my meds... OMG I'm gonna get a migraine." and BAM, I have a migraine because I've stressed myself into one.

I have no idea about the gluten in the hosts, though. I'm new at this gluten free thing.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


kareng Grand Master
kareng
Posted

I have a positive blood test for Celiacs but have been eating gluten until I get my biopsy Wed. Then I plan to go gluten-free. Sunday, I realized this was my last communion host & I started to tear up. Suddenly, an eyelash fell in my eye & it was watering from it. I think God is trying to tell me its OK take the wine.

Brenda Bell Newbie
Brenda Bell
Posted

I have a positive blood test for Celiacs but have been eating gluten until I get my biopsy Wed. Then I plan to go gluten-free. Sunday, I realized this was my last communion host & I started to tear up. Suddenly, an eyelash fell in my eye & it was watering from it. I think God is trying to tell me its OK take the wine.

Most likely it is cross contamination... At our parish... the host is served first for Gluten Sentitive people at the handicap alter... The person who serves the Low_Gluten host does not touch the other host... Since they are following the precautions we are fine.... except sometime if I have the wine I get a reaction... maybe cross contamination there but I dont want think about that... Good Luck... We also keep Kinnicks Donuts in the freezer so the Celiacs in the parish can have coffee hour too.... just a thought

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Churley
      - Churley replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      10

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      Have you tried Pure Encapsulations supplements? This is a brand my doctor recommends for me. I have no issues with this brand.
    2. asaT
      - asaT replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      48

      Supplements for those Diagnosed with Celiac Disease

      plant sources of calcium, such as spinach, have calcium bound to oxalates, which is not good. best source of calcium is unfortunately dairy, do you tolerate dairy? fermented dairy like kefir is good and or a little hard cheese. i do eat dairy, i can only take so much dietary restriction and gluten is hard enough! but i guess some people do have bad reactions...
    3. asaT
      - asaT replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      48

      Supplements for those Diagnosed with Celiac Disease

      i take b12, folate, b2, b6, glycine, Nac, zinc, vk2 mk4, magnesium, coq10, pqq, tmg, creatine, omega 3, molybdnem (sp) and just started vit d. quite a list i know. I have high homocysteine (last checked it was 19, but is always high and i finally decided to do something about it) and very low vitamin d, 10. have been opposed to this supp in the past...
    4. nanny marley
      - nanny marley replied to hjayne19's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      20

      Insomnia help

      Great advise there I agree with the aniexty part, and the aura migraine has I suffer both, I've also read some great books that have helped I'm going too look the one you mentioned up too thankyou for that, I find a camomile tea just a small one and a gentle wind down before bed has helped me too, I suffer from restless leg syndrome and nerve pain hence I...
    5. David Blake
      - David Blake commented on Scott Adams's article in Product Labeling Regulations
      1

      FDA Moves to Improve Gluten Labeling—What It Means for People With Celiac Disease

      My question I have proposed to the FDA through their website is why Prescription and OTC drug manufacturers are not required to list what binding ingredients were used to bine the drug? They list this on Capsules which are made of cellulose but not on pills? As it stands I or my pharmacist must contact the manufacturer to find out and my list is long from...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,345
    • Most Online (within 30 mins)
      7,748
    Scottweath
    Newest Member
    Scottweath
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • Churley
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Churley · Posted

      Have you tried Pure Encapsulations supplements? This is a brand my doctor recommends for me. I have no issues with this brand.
    • asaT
      Supplements for those Diagnosed with Celiac Disease

      By asaT · Posted

      plant sources of calcium, such as spinach, have calcium bound to oxalates, which is not good. best source of calcium is unfortunately dairy, do you tolerate dairy? fermented dairy like kefir is good and or a little hard cheese. i do eat dairy, i can only take so much dietary restriction and gluten is hard enough! but i guess some people do have bad reactions to it, so different for everyone.  
    • asaT
      Supplements for those Diagnosed with Celiac Disease

      By asaT · Posted

      i take b12, folate, b2, b6, glycine, Nac, zinc, vk2 mk4, magnesium, coq10, pqq, tmg, creatine, omega 3, molybdnem (sp) and just started vit d. quite a list i know.  I have high homocysteine (last checked it was 19, but is always high and i finally decided to do something about it) and very low vitamin d, 10. have been opposed to this supp in the past, but going to try it at 5k units a day. having a pth test on friday, which is suspect will be high. my homocysteine has come down to around 9 with 3 weeks of these supplements and expect it to go down further. i also started on estrogen/progesterone. I have osteoporosis too, so that is why the hormones.  anyway, i think all celiacs should have homocysteine checked and treated if needed (easy enough with b vit, tmg). homocysteine very bad thing to be high for a whole host of reasons. all the bad ones, heart attack , stroke, alzi, cancer..... one of the most annoying things about celiacs (and there are so many!) is the weight gain. i guess i stayed thin all those years being undiagnosed because i was under absorbing everything including calories. going gluten-free and the weight gain has been terrible, 30#, but i'm sure a lot more went into that (hip replacement - and years of hip pain leading to inactivity when i was previously very active, probably all related to celiacs, menopause) yada yada. i seemed to lose appetite control, like there was low glp, or leptin or whatever all those hormones are that tell you that you are full and to stop eating. my appetite is immense and i'm never full. i guess decades or more ( i think i have had celiacs since at least my teens - was hospitalized for abdominal pain and diarrhea for which spastic colon was eventually diagnosed and had many episodes of diarrhea/abdominal pain through my 20's. but that symptom seemed to go away and i related it to dairy much more so than gluten. Also my growth was stunted, i'm the only shorty in my family. anyway, decades of malabsorption and maldigestion led to constant hunger, at least thats my theory. then when i started absorbing normally, wham!! FAT!!!    
    • nanny marley
      Insomnia help

      By nanny marley · Posted

      Great advise there I agree with the aniexty part, and the aura migraine has I suffer both, I've also read some great books that have helped I'm going too look the one you mentioned up too thankyou for that, I find a camomile tea just a small one and a gentle wind down before bed has helped me too, I suffer from restless leg syndrome and nerve pain hence I don't always sleep well at the best of times , racing mind catches up I have decorated my whole house in one night in my mind before 🤣 diet changes mindset really help , although I have to say it never just disappears, I find once I came to terms with who I am I managed a lot better  , a misconception is for many to change , that means to heal but that's not always the case , understanding and finding your coping mechanisms are vital tools , it's more productive to find that because there is no failure then no pressure to become something else , it's ok to be sad it's ok to not sleep , it's ok to worry , just try to see it has a journey not a task 🤗
    • nanny marley
      nothing has changed

      By nanny marley · Posted

      I agree there I've tryed this myself to prove I can't eat gluten or lactose and it sets me back for about a month till I have to go back to being very strict to settle again 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.