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Strange Facial Sensations

beth67

By beth67
in Coping with Celiac Disease

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beth67 Rookie
beth67
Posted

I was diagnosed last July. Went gluten free for two months. Two weeks ago I had an endoscopy and biopsy which confirmed diagnosis. Ate gluten for three days before biopsy. Had the cramps and body pain. In the last few days I've developed strange sensations in my cheeks, mostly the left one. First they felt hot but when I touched them they were cool. Now my left cheek feels like there is icy hot bengay cream on it. My cheek still feels cool to the touch like the other one. It also feels a little numb. I'm wondering if this is part of the neuropethy side effect some people have eating gluten. It's been two weeks since eating gluten again and the biopsy. I feel yucky still. The intestinal cramps are gone and my bathroom stuff is back to normal. I feel achy all over and have low back pain and I feel like I'm in a fog and my ears are ringing horribly. Does anyone know if this weird cheek sensation can be a gluten symptom.

Beth

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Jamesheff Newbie
Jamesheff
Posted

Hi Beth

Yes i think this maybe a symptom of celiac.. I also get weird sensations like tingling and twitching allover my face,right eye and ears.. its gotten alot worse since going gluten free but i believe that this is a sign that the damage nerves are starting to heal..

Hope your symptoms improve soon :)

ang1e0251 Contributor
ang1e0251
Posted

Both of you would probably benefit from some supplemental vitamins. I have had great success with the twitching and neuropathy from adding extra magnesium and sublingual B12 (methyl). Dr. Carolyn Dean recommends 600 mg's of magnesium for an average size adult. Don't start with that much. Start with a low dose and add to it every few days. I take a little more than that. The B12 is simple because you can't take too much, it will just wash out if you have extra. I take 2000 mcg's in the morning. I started with an afternoon dose in the beginning but after a few weeks felt I only needed one dose. Both can be increased on a day when you feel stressed, glutened or have a lot of physical activity.

beth67 Rookie
beth67
Posted
  • Author

Thank you both for replying. Makes me feel a little better knowing this is normal. I actually stopped taking all my vitamins before my endoscopy and haven't taken them for the last two weeks so maybe it's time to start taking them again.

Beth

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    • par18
      Is it gluten?

      By par18 · Posted

      Thanks for the reply. 
    • Scott Adams
      nothing has changed

      By Scott Adams · Posted

      What you’re describing is actually very common, and unfortunately the timing of the biopsy likely explains the confusion. Yes, it is absolutely possible for the small intestine to heal enough in three months on a strict gluten-free diet to produce a normal or near-normal biopsy, especially when damage was mild to begin with. In contrast, celiac antibodies can stay elevated for many months or even years after gluten removal, so persistently high antibody levels alongside the celiac genes and clear nutrient deficiencies strongly point to celiac disease, even if you don’t feel symptoms. Many people with celiac are asymptomatic but still develop iron and vitamin deficiencies and silent intestinal damage. The lack of immediate symptoms makes it harder emotionally, but it doesn’t mean gluten isn’t harming you. Most specialists would consider this a case of celiac disease with a false-negative biopsy due to early healing rather than “something else,” and staying consistently gluten-free is what protects you long-term—even when your body doesn’t protest right away.
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      Is it gluten?

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