Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Trying Not To Panic


OBXMom

Recommended Posts

OBXMom Explorer

My son, who has chronic constipation despite daily miralax, has had diarrea the past couple of days. This morning he called me to see a worm at least 1 inch long swimming in the toilet after he used the bathroom. It was black, flat, with lots of feetish things and a fabulous swimmer. It didn't occur to him that it came from him, and he went happily off to school, but I am horrified. Is this an emergency? It definitely feels like it to me, but we are going to see his new doctor tomorrow, and it seems silly to go to the doctor today. What would you do?

And I just have to mention that I was worm phobic as a child and I am finding I did not grow out of it as well as I thought I did!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Jestgar Rising Star

catch it and take it with you tomorrow

OBXMom Explorer

I know I should have done that, but I was just too horrifed, and flushed . . .

Jestgar Rising Star

well... write down everything you can remember about it.

Not an emergency, people live with parasites all the time.

taweavmo3 Enthusiast

Oh my!!!! I have to admit, just reading your post gave me shivers. I can't imagine seeing one that had come out of my kiddo! On the bright side though, at least now you know he has parasites and with targeted treatment he may finally get some relief. Keep us updated after your appointment tomorrow!

mommida Enthusiast

You will probably be sent home with a stool test. You will have to catch and take stool samples. (If you find any more you are going to have to catch it.)

It is not an emergency and this can be treated.

The things we end up doing when we are parents/caregivers.

Juliebove Rising Star

Yikes! I think I would freak.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,564
    • Most Online (within 30 mins)
      7,748

    Anne65
    Newest Member
    Anne65
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • petitojou
      Thank you so much for sharing your experience and I found myself giggling with happiness as I read how your body reached such spring! And I hope that your current journey is also successful!! Definitely starting the food diary! So many amazing advices. And it’s very scary. It really hits all our soft spots as well as our confidence system. Most doctors I went thought I was underage despite being in my late 20s. Right now I look like am I twelve, but is also this body that’s taking so much, so I might as well love it too! Going to make the necessary changes and stay in this path. Thank you again! 🫶
    • petitojou
      Thank you so much for the information and kind message! Reading this transformed how I’ve been viewing my efforts and progress. Guess there’s still a lot to celebrate and also heal 😌  Yes, I’ve been taking it! Just recently started taking a multivitamin supplement and separated vitamin D! I also took chewable Iron polymaltose for ferritin deficiency 2 months ago but was unable to absorb any of it.  Thank you again! Hearing such gentle words from the community makes my body and heart more patient and excited for the future. 
    • ckeyser88
      I am looking for a roomie in Chicago, Denver or Nashville! 
    • Scott Adams
      Your post demonstrates the profound frustration and isolation that so many in the Celiac community feel, and I want to thank you for channeling that experience into advocacy. The medical gaslighting you endured for decades is an unacceptable and, sadly, a common story, and the fact that you now have to "school" your own GI specialist speaks volumes about the critical lack of consistent and updated education. Your idea to make Celiac Disease a reportable condition to public health authorities is a compelling and strategic one. This single action would force the system to formally acknowledge the prevalence and seriousness of the disease, creating a concrete dataset that could drive better research funding, shape medical school curricula, and validate the patient experience in a way that individual stories alone often cannot. It is an uphill battle, but contacting representatives, as you have done with Adam Gray, is exactly how change begins. By framing it as a public health necessity—a matter of patient safety and protection from misdiagnosis and neglect—you are building a powerful case. Your voice and your perseverance, forged through thirty years of struggle, are exactly what this community needs to ensure that no one else has to fight so hard just to be believed and properly cared for.
    • Scott Adams
      I had no idea there is a "Louisville" in Colorado!😉 I thought it was a typo because I always think of the Kentucky city--but good luck!
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.