Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Hunger Finally Going Away?


CGally81

Recommended Posts

CGally81 Enthusiast

Okay, I went gluten-free on August 6, and shortly afterwards, the withdrawal symptoms, intense hunger in particular, set in.

For nearly a week I had to eat like every 1-2 hours, then it got down to every 2 hours, including 2 evening snacks and something big before or during bedtime (or else I wouldn't be able to sleep), and eventually got down to 1 evening snack plus big late night snack, to slightly less than that.

Anyway, weekends tend to be my worst times, due to the fact that I get up around noon during the weekends. On Friday, I tried to prepare for that, by eating a large meal late at night so I could sleep well, and I ended up waking up at 11:30am the next day!

Well, yesterday (Saturday), the following happened:

I ate a large lunch at noon.

I had a massive BM maybe an hour after.

I started to get very hungry (dizzy, kinda shaky, you know) around 2pm, and so I made a large snack.

I didn't feel like I really had to eat again that badly, so I made dinner and had it by 6:30pm.

I had another very large BM maybe an hour after.

I ate a big snack at 8:30pm or so.

I didn't feel the strong desire to eat again, and I didn't! I even went to bed at 3am and woke up today at 11:30am!

I mean, 4 meals in a day. And a weekend no less, which is usually my worst day for hunger! (Just 3 weekends ago, I had to eat big like every hour. And I made the mistake of going for a long 70-minute bike ride going real fast without drafting, which of course only made my body crave more calories I bet)

So what happened? I feel like I may be almost out of the woods as far as this constant hunger thing is going. Did the bathroom breaks have anything to do with it? Has anyone else experienced this - having their collossal hunger problem suddenly drop down in a day?

This seems almost too good to be true, and I'll of course continue eating as necessary, and pack large snacks for work. But wow, is this a big change from, say, last Saturday!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



JNBunnie1 Community Regular

Well, either you've started absorbing more nutrients and your digestive system is thus working better, or you've changed something about the food you're eating and so getting more of what you need. Either way, good for you! Glad you're getting some relief, I know what it's like to be that hungry all the time. I kinda broke my hungry? It sounds wierd, but I think I was hungry for so long that now sometimes I won't feel hungry for way too long and then my body shuts down, shaky and weak. I can't really depend on my hungry signals anymore, I just eat at set times now.

CGally81 Enthusiast
Well, either you've started absorbing more nutrients and your digestive system is thus working better, or you've changed something about the food you're eating and so getting more of what you need. Either way, good for you! Glad you're getting some relief, I know what it's like to be that hungry all the time. I kinda broke my hungry? It sounds wierd, but I think I was hungry for so long that now sometimes I won't feel hungry for way too long and then my body shuts down, shaky and weak. I can't really depend on my hungry signals anymore, I just eat at set times now.

Actually, I didn't change my food at all, as far as I can tell.

How long has it been that your body won't send out hungry signals? I think there's more than one kind of hungry signal, so it might have been sending out a different kind.

Like, today I ate at 12:30pm, and also "bathroomed" an hour later in a big way - twice in a row. I'm starting to feel hungry now in the sense that I'm feeling it in my head, like... I don't know how to describe, but it's one type of hunger.

In fact, for the first few weeks, I'd feel a craving for food and rush to get it. Then after a while, I still felt hungry, or like my body needed the food (losing ability to concentrate, etc.), but not the same "craving" sensation. A different type of "you're hungry, go eat" type of message instead. Weakness and shakiness, if I don't address the problem soon enough, would still show up. It's just that instead of "inability to stay focused, craving feeling, weakness and shakiness" it's "inability to stay focused, weakness and shakiness".

And that's actually what it's been like for a long time for me anyway. That is, if I don't eat enough, I wouldn't always get cravings, but I'd get other signals saying I needed food.

Gfresh404 Enthusiast
Well, either you've started absorbing more nutrients and your digestive system is thus working better, or you've changed something about the food you're eating and so getting more of what you need. Either way, good for you! Glad you're getting some relief, I know what it's like to be that hungry all the time. I kinda broke my hungry? It sounds wierd, but I think I was hungry for so long that now sometimes I won't feel hungry for way too long and then my body shuts down, shaky and weak. I can't really depend on my hungry signals anymore, I just eat at set times now.

I feel the same way! I think for the most part my extreme hunger has gone away. But if I try to rely on my hunger signals I'll go way too long without eating. I have to just try and eat at regular intervals too.

CGally81 Enthusiast

I may have spoken too soon. Today is being a typical Sunday, even if yesterday felt like a breakthrough. Still, hopefully this is a sign of things to come later? After all, it's better than it was a month ago, and especially when I first started!

EDIT at 5:17pm: Maybe not. I still didn't have to eat as much as on all the other Sundays I'd been having nearly the past 2 months. I went for a 30-minute bike ride and didn't feel super hungry or anything when I got back, nor have I eaten since then. Maybe I don't need as much as food as before after all, and maybe I had reached a breakthrough.

I'm thinking this may be a "halfway point". Counting calories, I easily ate over 3000 of them yesterday, yet still only had to eat 4 big meals (lunch, large afternoon snack, dinner, not-as-large evening snack). So maybe in 2 months I'll be totally back to normal?

JNBunnie1 Community Regular
Actually, I didn't change my food at all, as far as I can tell.

How long has it been that your body won't send out hungry signals? I think there's more than one kind of hungry signal, so it might have been sending out a different kind.

Like, today I ate at 12:30pm, and also "bathroomed" an hour later in a big way - twice in a row. I'm starting to feel hungry now in the sense that I'm feeling it in my head, like... I don't know how to describe, but it's one type of hunger.

In fact, for the first few weeks, I'd feel a craving for food and rush to get it. Then after a while, I still felt hungry, or like my body needed the food (losing ability to concentrate, etc.), but not the same "craving" sensation. A different type of "you're hungry, go eat" type of message instead. Weakness and shakiness, if I don't address the problem soon enough, would still show up. It's just that instead of "inability to stay focused, craving feeling, weakness and shakiness" it's "inability to stay focused, weakness and shakiness".

And that's actually what it's been like for a long time for me anyway. That is, if I don't eat enough, I wouldn't always get cravings, but I'd get other signals saying I needed food.

By hungry, I mean my stomach getting the growly-burny feeling of 'feed me'. I don't mean a craving, or anything else. My stomach has been failing to signal that it's empty, and then my body gets pissed at lack of fuel and I'll be shaky and weak, but still no hungry feeling in my stomach. It used to be 24-7, so it's kinda wierd. That's why I put myself on a schedule. It's not like I NEVER get hungry, it just doesn't 'work' sometimes.

CGally81 Enthusiast
By hungry, I mean my stomach getting the growly-burny feeling of 'feed me'. I don't mean a craving, or anything else. My stomach has been failing to signal that it's empty, and then my body gets pissed at lack of fuel and I'll be shaky and weak, but still no hungry feeling in my stomach. It used to be 24-7, so it's kinda wierd. That's why I put myself on a schedule. It's not like I NEVER get hungry, it just doesn't 'work' sometimes.

To be honest, I don't consider a growling stomach to be the best indicator of hunger. There's other signals the body gives off that mean that you're hungry. I'd always felt hunger more "in the body" or "in the head".

Come to think of it, young children often complain that they're hungry because, well, they feel hungry, not because their stomach is making noise.

In fact, I get hungry more often than I hear my stomach growl. A growling stomach is really the sound of your stomach acid doing something or other in there, and is more related to things like what you ate, how it's digesting, and if there's too much empty space of some sort.

Well, I just ate for the 4th time (9 PM snack - started to get a bit weak/dizzy beforehand) today. Considering that the last few weekends have had me eating every 1-2 hours, this is an improvement. Let's see what the coming week is like, as weekdays tend to have their own hunger schedule. I can't wait to truly get back to normal, and just eat on schedule (breakfast, lunch, dinner, plus one snack perhaps) rather than because I strongly have to.

EDIT (Monday): Some "breakthrough". I had to eat again on Sunday late night, around 2 AM as I couldn't sleep. It's Monday now, and my body is acting just the same as, say, last Monday. I can't wait for this hunger to really drop, but Saturday was apparently just a pleasantly unexpected anomaly.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



JNBunnie1 Community Regular
To be honest, I don't consider a growling stomach to be the best indicator of hunger. There's other signals the body gives off that mean that you're hungry. I'd always felt hunger more "in the body" or "in the head".

Come to think of it, young children often complain that they're hungry because, well, they feel hungry, not because their stomach is making noise.

In fact, I get hungry more often than I hear my stomach growl. A growling stomach is really the sound of your stomach acid doing something or other in there, and is more related to things like what you ate, how it's digesting, and if there's too much empty space of some sort.

Well, I just ate for the 4th time (9 PM snack - started to get a bit weak/dizzy beforehand) today. Considering that the last few weekends have had me eating every 1-2 hours, this is an improvement. Let's see what the coming week is like, as weekdays tend to have their own hunger schedule. I can't wait to truly get back to normal, and just eat on schedule (breakfast, lunch, dinner, plus one snack perhaps) rather than because I strongly have to.

EDIT (Monday): Some "breakthrough". I had to eat again on Sunday late night, around 2 AM as I couldn't sleep. It's Monday now, and my body is acting just the same as, say, last Monday. I can't wait for this hunger to really drop, but Saturday was apparently just a pleasantly unexpected anomaly.

I didn't mean the noise of growling, I meant I used to get a mean, angry growly 'feeling' in my stomach, a truly empty feeling that meant 'feed me', sort of a cramping of the stomach, almost like heartburn. I rarely get that now, I didn't eat enough yesterday so I've been getting it today.

So how long have you been gluten free again? I ask because it can take some time for this particular symptom to pass, it took me almost a year after going gluten free, and had been happening for a few years before that.

CGally81 Enthusiast
I didn't mean the noise of growling, I meant I used to get a mean, angry growly 'feeling' in my stomach, a truly empty feeling that meant 'feed me', sort of a cramping of the stomach, almost like heartburn. I rarely get that now, I didn't eat enough yesterday so I've been getting it today.

So how long have you been gluten free again? I ask because it can take some time for this particular symptom to pass, it took me almost a year after going gluten free, and had been happening for a few years before that.

I've had the growly "feeling". It's definitely apparently silent (it seems as if the "noise" it makes is more the feeling of it than anything else, if that makse sense), and I've gotten it when not feeling hungry in other ways. I used to get it all the time for months, but don't get it as much now.

Anyway, I've had gluten-related issues since around March, at least when it comes to the overt symptoms (in my case, brain fog, and eventually, stomach acting up with certain movements every minute or two, even when lying in bed). But last year, I developed a reaction to fructose, in which eating any fruit other than bananas (which contain a mix of different sugar types instead of just fructose) would cause me to get intensely hungry. That may have been Celiac causing that - in fact, a test just a few weeks ago seems to indicate that the fructose problem may be gone, or at least going.

So I've had overt symptoms since March this year, but may have had "silent" symptoms, such as the "fruit makes me intensely hungry", for over a year. So I'd conservatively say I had gluten intolerance symptoms for at least a year.

When did I go gluten free? August 6. I remember that day as when I discovered the problem, and decided I was going to do something about it. Technically, it was actually the next day that I ate totally gluten free and felt great (before the withdrawal and hunger set in a few days later, and with it, a day of having a fever).

If age plays any role, I'm 28. I realize that the longer one has had symptoms, the longer the withdrawal and hunger will be. I've read people saying it took months, a year, or even 2 years for their hunger to go away. Some even mentioned eating 8 large meals a day for a year, which almost describes what it was like for me when the hunger first started. (I was eating every hour or two, loading up on anything gluten-free I could find, while frequently having difficulty concentrating due to hunger throughout most of the day. Good thing I was on vacation, because there's no way I could go like that at work!)

So it's been nearly two months. Only two accidentally glutenings, and both occurred in August - one was the frosting on otherwise gluten-free cupcakes, and the other was the crackers that fish was cooked in (in late August). Fortunately fish itself contains L-glutamine, and therefore the symptoms that time were very minor (mostly gastro, and were gone within an hour!), but still, it may have done internal damage anyway.

JNBunnie1 Community Regular
I've had the growly "feeling". It's definitely apparently silent (it seems as if the "noise" it makes is more the feeling of it than anything else, if that makse sense), and I've gotten it when not feeling hungry in other ways. I used to get it all the time for months, but don't get it as much now.

Anyway, I've had gluten-related issues since around March, at least when it comes to the overt symptoms (in my case, brain fog, and eventually, stomach acting up with certain movements every minute or two, even when lying in bed). But last year, I developed a reaction to fructose, in which eating any fruit other than bananas (which contain a mix of different sugar types instead of just fructose) would cause me to get intensely hungry. That may have been Celiac causing that - in fact, a test just a few weeks ago seems to indicate that the fructose problem may be gone, or at least going.

So I've had overt symptoms since March this year, but may have had "silent" symptoms, such as the "fruit makes me intensely hungry", for over a year. So I'd conservatively say I had gluten intolerance symptoms for at least a year.

When did I go gluten free? August 6. I remember that day as when I discovered the problem, and decided I was going to do something about it. Technically, it was actually the next day that I ate totally gluten free and felt great (before the withdrawal and hunger set in a few days later, and with it, a day of having a fever).

If age plays any role, I'm 28. I realize that the longer one has had symptoms, the longer the withdrawal and hunger will be. I've read people saying it took months, a year, or even 2 years for their hunger to go away. Some even mentioned eating 8 large meals a day for a year, which almost describes what it was like for me when the hunger first started. (I was eating every hour or two, loading up on anything gluten-free I could find, while frequently having difficulty concentrating due to hunger throughout most of the day. Good thing I was on vacation, because there's no way I could go like that at work!)

So it's been nearly two months. Only two accidentally glutenings, and both occurred in August - one was the frosting on otherwise gluten-free cupcakes, and the other was the crackers that fish was cooked in (in late August). Fortunately fish itself contains L-glutamine, and therefore the symptoms that time were very minor (mostly gastro, and were gone within an hour!), but still, it may have done internal damage anyway.

Hmmmm... I actually dealt with the 'horrible hungry' for quite some time before my other Celiac symptoms became apparent, I was only 'sick' for six months. I'm 5'7'' and was down to 105lbs at my sickest. After going wheat free (didn't know about gluten then) I immediately added on 15 lbs, and then when I figured out gluten a year or so later I added another 15 within 3 months, I actually have stretch marks! But the hungry stuck around a lot longer than the skinny, I'd say 9-12 months after total gluten free. Hopefully your system wasn't quite as far gone, I hope it clears up sooner for you, sounds like you're already on the path.

Wolicki Enthusiast

Yeah, isn't the hunger crazy? I have been gluten-free for 3 months. In the first 6 weeks or so, I was constantly hungry, and never left the house without a snack. I mean, crazy hungry. I felt like I needed to eat 20 minutes after every meal. Thankfully, it has subsisded. Now I eat 3 times a day, plus a small snack in the morning and right before bed, otherwise i can't sleep.

In the beginning, I would wake up 2-3 times each night starving! I thought I was losing it and imagining the hunger.

CGally81 Enthusiast

Okay, the hunger is now getting worse again. I thought Saturday was a breakthrough, but it was just an anomaly, or maybe it was "better before getting worse again". Because I ate today like I normally do during a weekday, and was getting lethargic and hungry only an hour and a half after dinner. Some "improvement"!

Okay, who else has gone through this? Does the hunger sometimes get better, then worse again, then better after that? Are there downs following the next big "up"? I seriously want something to look forward to, but my own body is disagreeing with me a lot.

Anyone who has been through the hunger phase, or is going through it, let me know if things really do get better, then worse, then better again. If this is normal, and I should just put up with it.

boysmom Explorer
Because I ate today like I normally do during a weekday, and was getting lethargic and hungry only an hour and a half after dinner. Some "improvement"!

You mentioned earlier in the thread that you aren't having typical hunger pangs in the stomach but you read other signs that your body is hungry again. If what you're talking about is the above lethargy, some brain fog, maybe even drowsiness an hour or so after eating, I've been doing that for several weeks now, but I had a different explanation for it. In my case anyway, I suspect it's just that my body is using more energy to digest my food at present, so if I can I try to rest or even nap for a short time after eating. It seems to help me get back to normal energy if I can even rest for 15-30 minutes.

You said it was waking you in the night, so maybe it's not the same thing, but I thought I'd throw it out for your consideration.

BTW, if it helps any, I've been gluten-free since the beginning of June and the tiredness doesn't hit every meal any more, but still does occasionally, especially after breakfast.

CGally81 Enthusiast
You mentioned earlier in the thread that you aren't having typical hunger pangs in the stomach but you read other signs that your body is hungry again. If what you're talking about is the above lethargy, some brain fog, maybe even drowsiness an hour or so after eating, I've been doing that for several weeks now, but I had a different explanation for it. In my case anyway, I suspect it's just that my body is using more energy to digest my food at present, so if I can I try to rest or even nap for a short time after eating. It seems to help me get back to normal energy if I can even rest for 15-30 minutes.

You said it was waking you in the night, so maybe it's not the same thing, but I thought I'd throw it out for your consideration.

BTW, if it helps any, I've been gluten-free since the beginning of June and the tiredness doesn't hit every meal any more, but still does occasionally, especially after breakfast.

You're right that I get the lethargy, some concentration problems, and drowsiness. I don't wake up at night, but I find it harder to sleep if I'm hungry and don't eat something big before going to bed.

You've been gluten-free since June, but how long have you had symptoms? I had overt symptoms 5 months, but possible "covert" symptoms longer than that, like maybe a year (fructose problem) or so.

boysmom Explorer
You've been gluten-free since June, but how long have you had symptoms? I had overt symptoms 5 months, but possible "covert" symptoms longer than that, like maybe a year (fructose problem) or so.

I'm not sure what to call overt and what to call covert, so here's a synopsis of my life. lol

I'm 47, and when I began researching celiac disease ... well, the more I read the farther back I could see possible signs. Mostly I think it fired up when I left home for college, but I had iron deficiency even in childhood and my baby book shows that I saw a doctor for a rash and vomiting a week after my mother introduced mixed cereal (I'm an oldest child, so I am blessed to have a mostly completed baby book ;) ). I've had joint and muscle pain most of my adult life, could not lose weight even on a diet, persistent water retention,ulcer my first year of college, hypothyroid diagnosed at 29. In the last 10 years I've had a recurring rash that I now suspect may have been DH, a lot of abdominal bloating, to the point that a tiny meal left me feeling like I'd eaten Thanksgiving dinner and my stomach muscles would HURT, thinning hair, and increasing exhaustion, inability to think clearly, and memory loss, fuzzy vision in spite of new glasses and annual eye exams.

What finally helped me pin down what was going on was when, this last April, I ended up in the ER because I thought I was having a heart attack, but was diagnosed with esophageal spasms. I guess April is when all the niggling 'little' (but not so little) symptoms culminated in an overt symptom that finally sent me searching for my own answer and brought it all into the open.

CGally81 Enthusiast
I'm not sure what to call overt and what to call covert, so here's a synopsis of my life. lol

I'm 47, and when I began researching celiac disease ... well, the more I read the farther back I could see possible signs. Mostly I think it fired up when I left home for college, but I had iron deficiency even in childhood and my baby book shows that I saw a doctor for a rash and vomiting a week after my mother introduced mixed cereal (I'm an oldest child, so I am blessed to have a mostly completed baby book ;) ). I've had joint and muscle pain most of my adult life, could not lose weight even on a diet, persistent water retention,ulcer my first year of college, hypothyroid diagnosed at 29. In the last 10 years I've had a recurring rash that I now suspect may have been DH, a lot of abdominal bloating, to the point that a tiny meal left me feeling like I'd eaten Thanksgiving dinner and my stomach muscles would HURT, thinning hair, and increasing exhaustion, inability to think clearly, and memory loss, fuzzy vision in spite of new glasses and annual eye exams.

What finally helped me pin down what was going on was when, this last April, I ended up in the ER because I thought I was having a heart attack, but was diagnosed with esophageal spasms. I guess April is when all the niggling 'little' (but not so little) symptoms culminated in an overt symptom that finally sent me searching for my own answer and brought it all into the open.

I had a fever (of the hot, not cold, kind) a few days before discovering the problem, but I'd known for months that something was wrong. I assumed it had to do with fat/protein/carbohydrate balance, but instead it was the specific food ingredient of gluten. Good thing I only had a handful of gluten foods in my daily diet (whole-wheat bread and granola bars, which are both supposedly healthy, but were messing me up). There was also the occasional pretzel, but that was it as far as common foods went, so at least going gluten-free meant removing very few foods from my diet. And not eating anything "special" (cake, cookies) on special occasions.

So you'd been gaining weight, so therefore I imagine you wouldn't have the hunger problem quite like someone losing weight would. Some people on here said they'd been gaining weight and were hungry all the time, but suddenly lost their appetite and felt satisifed more easily when they went gluten-free. For many others, including me, it's been the opposite. I'd been losing weight even when I ate more to deal with the hunger caused by having consumed gluten (that was one of the symptoms I suffered), and kept losing, down to 153 pounds. I'm hungry all the time, sometimes hearing or feeling my stomach make noises/"growls", and gaining weight (mostly muscle, but still a size 30, although a bit tighter).

It's possible that I may have had "silent" symptoms for a while. Again, the fructose problem (apples made me intensely hungry, a problem that began to occur only a few months after I'd added them to my diet, and got worse over time until I discovered the problem), milk causing headaches, but before that, I recall something from a few years ago. I had grand jury duty, and every day we had it (one day a week for 17 weeks), we had donuts. I'd eat one, and feel very sleepy and not really able to concentrate. Not the severe brain fog of later, but still, one donut was powerful stuff even back then. It's possible then that this was actually a symptom of Celiac even back then, but not as powerful, so therefore not as traceable as being related to Celiac. Therefore, I should extend my conservative estimate for how long I'd been suffering from this to 2 years.

boysmom Explorer

It is entirely possible that bodies that respond to gluten by losing weight would also respond differently in healing process than those that respond by conserving weight. I wanted to add, though, that from high school until the bloating started about 10 years ago I had a 'stock up' period every fall where I was ravenously hungry and had cravings I didn't usually deal with. I often gained 10 lbs going into winter, but would drop it again in the spring. Knowing what I know now, I suspect it may have been my body's way of coping either with the switch to winter foods or with 'knowing' that with winter coming on I was going to be eating more pasta, casseroles, breads, etc. where in the spring and summer we ate more meat and veggie meals. Either that or I'm part bear and was preparing for hibernation ;)

JNBunnie1 Community Regular
I had a fever (of the hot, not cold, kind) a few days before discovering the problem, but I'd known for months that something was wrong. I assumed it had to do with fat/protein/carbohydrate balance, but instead it was the specific food ingredient of gluten. Good thing I only had a handful of gluten foods in my daily diet (whole-wheat bread and granola bars, which are both supposedly healthy, but were messing me up). There was also the occasional pretzel, but that was it as far as common foods went, so at least going gluten-free meant removing very few foods from my diet. And not eating anything "special" (cake, cookies) on special occasions.

So you'd been gaining weight, so therefore I imagine you wouldn't have the hunger problem quite like someone losing weight would. Some people on here said they'd been gaining weight and were hungry all the time, but suddenly lost their appetite and felt satisifed more easily when they went gluten-free. For many others, including me, it's been the opposite. I'd been losing weight even when I ate more to deal with the hunger caused by having consumed gluten (that was one of the symptoms I suffered), and kept losing, down to 153 pounds. I'm hungry all the time, sometimes hearing or feeling my stomach make noises/"growls", and gaining weight (mostly muscle, but still a size 30, although a bit tighter).

It's possible that I may have had "silent" symptoms for a while. Again, the fructose problem (apples made me intensely hungry, a problem that began to occur only a few months after I'd added them to my diet, and got worse over time until I discovered the problem), milk causing headaches, but before that, I recall something from a few years ago. I had grand jury duty, and every day we had it (one day a week for 17 weeks), we had donuts. I'd eat one, and feel very sleepy and not really able to concentrate. Not the severe brain fog of later, but still, one donut was powerful stuff even back then. It's possible then that this was actually a symptom of Celiac even back then, but not as powerful, so therefore not as traceable as being related to Celiac. Therefore, I should extend my conservative estimate for how long I'd been suffering from this to 2 years.

It's easy to fall into the mindset of wanting your symptoms to match someone else's, or to match a list in a book. I don't think any two people have had the same recovery process. I only had outright symptoms for six months, but it took over a year for the hunger to go away. Don't worry, pretty much anything that happens is going to be perfectly normal, for you.

CGally81 Enthusiast
It's easy to fall into the mindset of wanting your symptoms to match someone else's, or to match a list in a book. I don't think any two people have had the same recovery process. I only had outright symptoms for six months, but it took over a year for the hunger to go away. Don't worry, pretty much anything that happens is going to be perfectly normal, for you.

Yeah, that's true. If your symptoms and/or recovery process match someone else's, then you know what to expect.

I am probably going through another phase now. I get tired sometimes right after eating. Yesterday, my hunger dropped enough that I ate less, and didn't have to eat any really big snack after dinner. I stayed up until 2am, and got up around noon today. I can't say I expect this 3-day weekend to be similar to yesterday or last Saturday, but I'm hoping for improvements.

I am trying to get a lot of fiber now. I think there is a relationship between using the bathroom and hunger.

Now, you say you had outright symptoms for 6 months? I had them for 5. But do you think you had "subtle" symptoms before that? Do you remember having any other food intolerances, such as milk, or fruit, or anything? I developed a fructose problem last year, before I got the obvious celiac symptoms, but I know it's been in my system for at least a year or more.

All diseases tend to be like that, in that once you've developed the obvious symptoms and are clearly feeling the effects of the disease, you've already had it for a while and it's done damage. So I think you and I both probably had it for a while, how long I'm not certain, before the distinctive symptoms showed up that signaled that something was wrong.

Also, I'm 28. I was able to eat gluten my whole life and not suffer problems that I knew of. I used to have graham crackers as part of my lunch at work. (This was a time when I was trying to lose weight) How about you? Do you think you may have had subtle problems possibly for years and not known about it? When the symptoms started to come, did they come on real strong?

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Wheatwacked replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      50

      Supplements for those Diagnosed with Celiac Disease

    2. - knitty kitty replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      results from 13 day gluten challenge - does this mean I can't have celiac?

    3. - knitty kitty replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      50

      Supplements for those Diagnosed with Celiac Disease

    4. - Florence Lillian replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      11

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,356
    • Most Online (within 30 mins)
      7,748

    JAGAPG
    Newest Member
    JAGAPG
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Wheatwacked
      Raising you vitamin D will increase absorption of calcium automatically without supplementation of calcium.  A high PTH can be caused by low D causing poor calcium absorption; not insuffient calcium intake.  With low D your body is not absorbing calcium from your food so it steals it from your bones.  Heart has priority over bone. I've been taking 10,000 IU D3 a day since 2015.  My doctor says to continue. To fix my lactose intolerance, lots of lactobacillus from yogurts, and brine fermented pickles and saurkraut and olives.  We lose much of our ability to make lactase endogenosly with maturity but a healthy colony of lactobacillus in our gut excretes lactase in exchange for room and board. The milk protein in grass fed milk does not bother me. It tastes like the milk I grew up on.  If I drink commercial milk I get heartburn at night. Some experts estimate that 90% of us do not eat Adequite Intake of choline.  Beef and eggs are the principle source. Iodine deficiency is a growing concern.  I take 600 mcg a day of Liquid Iodine.  It and NAC have accelerated my healing all over.  Virtually blind in my right eye after starting antihypertensive medication and vision is slowly coming back.  I had to cut out starches because they drove my glucose up into the 200+ range.  I replaced them with Red Bull for the glucose intake with the vitamins, minerals and Taurine needed to process through the mitochodria Krebs Cycle to create ATP.  Went from A1c 13 down to 7.9.  Work in progress. Also take B1,B2,B3,B5,B6. Liquid Iodine, Phosphatidyl Choline, Q10, Selenium, D and DHEA.     Choline supplemented as phosphatidylcholine decreases fasting and postmethionine-loading plasma homocysteine concentrations in healthy men +    
    • knitty kitty
      @catnapt, Wheat germ has very little gluten in it.  Gluten is  the carbohydrate storage protein, what the flour is made from, the fluffy part.  Just like with beans, there's the baby plant that will germinate  ("germ"-inate) if sprouted, and the bean part is the carbohydrate storage protein.   Wheat germ is the baby plant inside a kernel of wheat, and bran is the protective covering of the kernel.   Little to no gluten there.   Large amounts of lectins are in wheat germ and can cause digestive upsets, but not enough Gluten to provoke antibody production in the small intestines. Luckily you still have time to do a proper gluten challenge (10 grams of gluten per day for a minimum of two weeks) before your next appointment when you can be retested.    
    • knitty kitty
      Hello, @asaT, I'm curious to know whether you are taking other B vitamins like Thiamine B1 and Niacin B3.  Malabsorption in Celiac disease affects all the water soluble B vitamins and Vitamin C.  Thiamine and Niacin are required to produce energy for all the homocysteine lowering reactions provided by Folate, Cobalamine and Pyridoxine.   Weight gain with a voracious appetite is something I experienced while malnourished.  It's symptomatic of Thiamine B1 deficiency.   Conversely, some people with thiamine deficiency lose their appetite altogether, and suffer from anorexia.  At different periods on my lifelong journey, I suffered this, too.   When the body doesn't have sufficient thiamine to turn food, especially carbohydrates, into energy (for growth and repair), the body rations what little thiamine it has available, and turns the carbs into fat, and stores it mostly in the abdomen.  Consuming a high carbohydrate diet requires additional thiamine to process the carbs into energy.  Simple carbohydrates (sugar, white rice, etc.) don't contain thiamine, so the body easily depletes its stores of Thiamine processing the carbs into fat.  The digestive system communicates with the brain to keep eating in order to consume more thiamine and other nutrients it's not absorbing.   One can have a subclinical thiamine insufficiency for years.  A twenty percent increase in dietary thiamine causes an eighty percent increase in brain function, so the symptoms can wax and wane mysteriously.  Symptoms of Thiamine insufficiency include stunted growth, chronic fatigue, and Gastrointestinal Beriberi (diarrhea, abdominal pain), heart attack, Alzheimer's, stroke, and cancer.   Thiamine improves bone turnover.  Thiamine insufficiency can also affect the thyroid.  The thyroid is important in bone metabolism.  The thyroid also influences hormones, like estrogen and progesterone, and menopause.  Vitamin D, at optimal levels, can act as a hormone and can influence the thyroid, as well as being important to bone health, and regulating the immune system.  Vitamin A is important to bone health, too, and is necessary for intestinal health, as well.   I don't do dairy because I react to Casein, the protein in dairy that resembles gluten and causes a reaction the same as if I'd been exposed to gluten, including high tTg IgA.  I found adding mineral water containing calcium and other minerals helpful in increasing my calcium intake.   Malabsorption of Celiac affects all the vitamins and minerals.  I do hope you'll talk to your doctor and dietician about supplementing all eight B vitamins and the four fat soluble vitamins because they all work together interconnectedly.  
    • Florence Lillian
      Hi Jane: You may want to try the D3 I now take. I have reactions to fillers and many additives. Sports Research, it is based in the USA and I have had no bad reactions with this brand. The D3 does have coconut oil but it is non GMO, it is Gluten free, Soy free, Soybean free and Safflower oil free.  I have a cupboard full of supplements that did not agree with me -  I just keep trying and have finally settled on Sports Research. I take NAKA Women's Multi full spectrum, and have not felt sick after taking 2 capsules per day -  it is a Canadian company. I buy both from Amazon. I wish you well in your searching, I know how discouraging it all is. Florence.  
    • catnapt
      highly unlikely  NOTHING and I mean NOTHING else has ever caused me these kinds of symptoms I have no problem with dates, they are a large part of my diet In fact, I eat a very high fiber, very high vegetable and bean diet and have for many years now. It's considered a whole foods plant based or plant forward diet (I do now eat some lean ground turkey but not much) I was off dairy for years but recently had to add back plain yogurt to meet calcium needs that I am not allowed to get from supplements (I have not had any problem with the yogurt)   I eat almost no processed foods. I don't eat out. almost everything I eat, I cook myself I am going to keep a food diary but to be honest, I already know that it's wheat products and also barley that are the problem, which is why I gradually stopped eating and buying them. When I was eating them, like back in early 2024, when I was in the middle of moving and ate out (always had bread or toast or rolls or a sub or pizza) I felt terrible but at that time was so busy and exhausted that I never stopped to think it was the food. Once I was in my new place, I continued to have bread from time to time and had such horrible joint pain that I was preparing for 2 total knee replacements as well as one hip! The surgery could not go forward as I was (and still am) actively losing calcium from my bones. That problem has yet to be properly diagnosed and treated   anyway over time I realized that I felt better when I stopped eating bread. Back at least 3 yrs ago I noticed that regular pasta made me sick so I switched to brown rice pasta and even though it costs a lot more, I really like it.   so gradually I just stopped buying and eating foods with gluten. I stopped getting raisin bran when I was constipated because it made me bloated and it didn't help the constipation any more (used to be a sure bet that it would in the past)   I made cookies and brownies using beans and rolled oats and dates and tahini and I LOVE them and have zero issues eating those I eat 1 or more cans of beans per day easily can eat a pound of broccoli - no problem! Brussels sprouts the same thing.   so yeh it's bread and related foods that are clearly the problem  there is zero doubt in my mind    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.