Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Question About The Frequency Of Doctor Visits


Jeggs

Recommended Posts

Jeggs Newbie

Sorry if this question has been answered in the past, but I cannot seem to find the answer. I was diagnosed with celiac disease this past June. Before my diagnosis I had a blood test, colonoscopy, and endoscopy. Since these tests I have not seen my doctor (a digestive disease specialist) or had any other tests done. He has scheduled me for a visit for roughly a year from my previous visit. I was wondering if this is


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Roda Rising Star

Unfortunately I have heard others say the same thing. Did he order blood work to look at vitamin and minerals for a possible deficiency? If not you should have it done. I don't know what the norm is but my gi doctor has had me scheduled for appointments every 3-4 months since my diagnosis Oct. of last year. I had the ttg redone at 6 months and it went from 78 to 10! I never had the antigliadin antibodies done until 6 months gluten free and they were elevated, but since I didn't have a baseline I don't know if they were higher and coming down or from accidental ingestion. I have an appointment in December so I'll get it rechecked then. Every visit I have iron tests done since I have been chronically iron deficient since 2006. Have had my vitamin d checked 3x, first very low, second improving, and third one still pending. I have been on RX vitamin D 50,000 iu/weekly since Jan. Between my endocrinologist and gi doc I get what I need checked on a regular basis now. Just had my vitamin K tested and waiting on it also.

lizard00 Enthusiast
Sorry if this question has been answered in the past, but I cannot seem to find the answer. I was diagnosed with celiac disease this past June. Before my diagnosis I had a blood test, colonoscopy, and endoscopy. Since these tests I have not seen my doctor (a digestive disease specialist) or had any other tests done. He has scheduled me for a visit for roughly a year from my previous visit. I was wondering if this is
ravenwoodglass Mentor

Your regular doctor can order blood tests to check your levels if you want to. I had no followup myself because things resolved quite nicely gluten free and since I never tested positive on blood work any retesting for antibodies would have been useless anyway. I didn't see a doctor again until I had a 'yearly' physical at that point they checked my vitamin and mineral levels, did a CBC etc. My GI said I could see him in a year if I wanted to but there really was no need since all my symptoms resolved. I don't think the 'we'll see you in a year' is really unusual. If new issues crop up or symptoms don't resolve you could always ask for an earlier appointment.

Darn210 Enthusiast

My daughter had a follow-up at 6 months which included a blood test. Now we are at a once a year point which also includes a blood test - just to make sure we're doing a good job sticking with the diet.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to Trish G's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Fiber Supplement

    2. - Trish G posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Fiber Supplement

    3. - kpf replied to kpf's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      9

      ttg iga high (646 mg/dl) other results are normal

    4. - knitty kitty replied to Rejoicephd's topic in Related Issues & Disorders
      4

      Basic metabolic panel results - more flags


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,333
    • Most Online (within 30 mins)
      7,748

    jlcvt
    Newest Member
    jlcvt
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      Welcome to the forum, @Trish G! "Gluten free" does not necessarily equate to "no gluten". According to FDA standards it actually means that a food product contains no more than 20ppm of gluten. This is safe for most celiacs but would not be for those who are on the more sensitive end of the spectrum. So, it would depend on the individual celiac and their level of sensitivity to minor amounts of gluten. That's the long and nuanced answer. The short answer is that it is a product derived from wheat and so you can be certain it will contain some residual amounts of gluten. No gluten removal process is 100% effective. So, to be absolutely certain, stay away from it. Have you tried chia seeds? Very high in fiber and quickly turns into a gel when added to water. Make sure you get seeds that are gluten free if you decide to try it.
    • Trish G
      I was taking Benefiber for my IBS-C before my celiac diagnosis. It does say Gluten Free but lists Wheat Dextrin on the label. I really dont like psyllium fiber, so is there anything else I can take or is the Benefiber really ok for someone with Celiac disease?  Thanks!!!
    • kpf
      Abdominal pain and an itchy stomach were the symptoms I asked to see a GI about. Now I’ve learned these other symptoms—that I have but attributed to other issues—could also be related to celiac disease:  fatigue joint pain canker sores numbness or tingling in hands or feet difficulty with coordination anemia headaches neutropenia I never dreamed in a million years she would consider celiac disease. It was a shock to me. It’s definitely not what I went to her for. 
    • knitty kitty
      @Rejoicephd, I'm not a doctor, but I experienced severe thiamine deficiency.  Your symptoms seem really familiar.  Malabsorption is a real thing that happens with Celiac.  A multivitamin is not going to prevent nor correct nutritional deficiencies.    Doctors do not recognize nutritional deficiency symptoms.  Gastrointestinal Beriberi is not recognized often.  Caused by thiamine deficiency, high dose thiamine supplements or IV administration with other vitamins, minerals and glucose under doctor's care is needed.   Thiamine deficiency is found in anemia.  Thiamine deficiency in the kidneys can result in electrolyte imbalances and cloudy urine.  Thiamine deficiency can cause high blood sugar which can cause cloudy urine.  Dehydration can cause cloudy urine.   I'm linking some PubMed articles.  You see if your symptoms match.  Discuss the possibility of Gastrointestinal Beriberi with one of your specialists soon!  Just to rule it out.  I'm very concerned.   I'm linking some PubMed articles.  You see if your symptoms match.   Thiamine, gastrointestinal beriberi and acetylcholine signaling https://pmc.ncbi.nlm.nih.gov/articles/PMC12014454/#ref3 From Section 3: "In conclusion, TD limited to the gastrointestinal system may be an overlooked and underdiagnosed cause of the increasingly common gastrointestinal disorders encountered in modern medical settings. Left unattended, it may progress to wet or dry beriberi, most often observed as Wernicke encephalopathy.". . And... Refeeding Syndrome https://www.ncbi.nlm.nih.gov/books/NBK564513/
    • trents
      What are your symptoms? What has brought you to the point where you sought celiac disease testing?
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.