Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Question About The Frequency Of Doctor Visits


Jeggs

Recommended Posts

Jeggs Newbie

Sorry if this question has been answered in the past, but I cannot seem to find the answer. I was diagnosed with celiac disease this past June. Before my diagnosis I had a blood test, colonoscopy, and endoscopy. Since these tests I have not seen my doctor (a digestive disease specialist) or had any other tests done. He has scheduled me for a visit for roughly a year from my previous visit. I was wondering if this is


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Roda Rising Star

Unfortunately I have heard others say the same thing. Did he order blood work to look at vitamin and minerals for a possible deficiency? If not you should have it done. I don't know what the norm is but my gi doctor has had me scheduled for appointments every 3-4 months since my diagnosis Oct. of last year. I had the ttg redone at 6 months and it went from 78 to 10! I never had the antigliadin antibodies done until 6 months gluten free and they were elevated, but since I didn't have a baseline I don't know if they were higher and coming down or from accidental ingestion. I have an appointment in December so I'll get it rechecked then. Every visit I have iron tests done since I have been chronically iron deficient since 2006. Have had my vitamin d checked 3x, first very low, second improving, and third one still pending. I have been on RX vitamin D 50,000 iu/weekly since Jan. Between my endocrinologist and gi doc I get what I need checked on a regular basis now. Just had my vitamin K tested and waiting on it also.

lizard00 Enthusiast
Sorry if this question has been answered in the past, but I cannot seem to find the answer. I was diagnosed with celiac disease this past June. Before my diagnosis I had a blood test, colonoscopy, and endoscopy. Since these tests I have not seen my doctor (a digestive disease specialist) or had any other tests done. He has scheduled me for a visit for roughly a year from my previous visit. I was wondering if this is
ravenwoodglass Mentor

Your regular doctor can order blood tests to check your levels if you want to. I had no followup myself because things resolved quite nicely gluten free and since I never tested positive on blood work any retesting for antibodies would have been useless anyway. I didn't see a doctor again until I had a 'yearly' physical at that point they checked my vitamin and mineral levels, did a CBC etc. My GI said I could see him in a year if I wanted to but there really was no need since all my symptoms resolved. I don't think the 'we'll see you in a year' is really unusual. If new issues crop up or symptoms don't resolve you could always ask for an earlier appointment.

Darn210 Enthusiast

My daughter had a follow-up at 6 months which included a blood test. Now we are at a once a year point which also includes a blood test - just to make sure we're doing a good job sticking with the diet.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,372
    • Most Online (within 30 mins)
      7,748

    cianb4121
    Newest Member
    cianb4121
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Russ H
      There were some interesting talks, particularly Prof Ludvig Stollid's talk on therapeutics for coeliac disease.    https://www.youtube.com/playlist?list=PLRcl2mPE0WdigRtJPvylUJbkCx263KF_t
    • Rejoicephd
      Thank you @trents for letting me know you experience something similar thanks @knitty kitty for your response and resources.  I will be following up with my doctor about these results and I’ll read the articles you sent. Thanks - I really appreciate you all.
    • knitty kitty
      You're right, doctors usually only test Vitamin D and B12.  Both are really important, but they're not good indicators of deficiencies in the other B vitamins.  Our bodies are able to store Vitamin B12 and Vitamin D in the liver for up to a year or longer.  The other B vitamins can only be stored for much shorter periods of time.  Pyridoxine B 6 can be stored for several months, but the others only a month or two at the longest.  Thiamine stores can be depleted in as little as three days.  There's no correlation between B12 levels and the other B vitamins' levels.  Blood tests can't measure the amount of vitamins stored inside cells where they are used.  There's disagreement as to what optimal vitamin levels are.  The Recommended Daily Allowance is based on the minimum daily amount needed to prevent disease set back in the forties when people ate a totally different diet and gruesome experiments were done on people.  Folate  requirements had to be updated in the nineties after spina bifida increased and synthetic folic acid was mandated to be added to grain products.  Vitamin D requirements have been updated only in the past few years.   Doctors aren't required to take as many hours of nutritional education as in the past.  They're educated in learning institutions funded by pharmaceutical corporations.  Natural substances like vitamins can't be patented, so there's more money to be made prescribing pharmaceuticals than vitamins.   Also, look into the Autoimmune Protocol Diet, developed by Dr. Sarah Ballantyne, a Celiac herself.  Her book The Paleo Approach has been most helpful to me.  You're very welcome.  I'm glad I can help you around some stumbling blocks while on this journey.    Keep me posted on your progress!  Best wishes! P.S.  interesting reading: Thiamine, gastrointestinal beriberi and acetylcholine signaling https://pmc.ncbi.nlm.nih.gov/articles/PMC12014454/
    • NanceK
      So interesting that you stated you had sub clinical vitamin deficiencies. When I was first diagnosed with celiac disease (silent), the vitamin levels my doctor did test for were mostly within normal range (lower end) with the exception of vitamin D. I believe he tested D, B12, magnesium, and iron.  I wondered how it was possible that I had celiac disease without being deficient in everything!  I’m wondering now if I have subclinical vitamin deficiencies as well, because even though I remain gluten free, I struggle with insomnia, low energy, body aches, etc.  It’s truly frustrating when you stay true to the gluten-free diet, yet feel fatigued most days. I’ll definitely try the B-complex, and the Benfotiamine again, and will keep you posted. Thanks once again!
    • knitty kitty
      Segments of the protein Casein are the same as segments of the protein strands of gluten, the 33-mer segment.   The cow's body builds that Casein protein.  It doesn't come from wheat.   Casein can trigger the same reaction as being exposed to gluten in some people.   This is not a dairy allergy (IGE mediated response).  It is not lactose intolerance.  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.