Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Question About The Frequency Of Doctor Visits


Jeggs

Recommended Posts

Jeggs Newbie

Sorry if this question has been answered in the past, but I cannot seem to find the answer. I was diagnosed with celiac disease this past June. Before my diagnosis I had a blood test, colonoscopy, and endoscopy. Since these tests I have not seen my doctor (a digestive disease specialist) or had any other tests done. He has scheduled me for a visit for roughly a year from my previous visit. I was wondering if this is


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Roda Rising Star

Unfortunately I have heard others say the same thing. Did he order blood work to look at vitamin and minerals for a possible deficiency? If not you should have it done. I don't know what the norm is but my gi doctor has had me scheduled for appointments every 3-4 months since my diagnosis Oct. of last year. I had the ttg redone at 6 months and it went from 78 to 10! I never had the antigliadin antibodies done until 6 months gluten free and they were elevated, but since I didn't have a baseline I don't know if they were higher and coming down or from accidental ingestion. I have an appointment in December so I'll get it rechecked then. Every visit I have iron tests done since I have been chronically iron deficient since 2006. Have had my vitamin d checked 3x, first very low, second improving, and third one still pending. I have been on RX vitamin D 50,000 iu/weekly since Jan. Between my endocrinologist and gi doc I get what I need checked on a regular basis now. Just had my vitamin K tested and waiting on it also.

lizard00 Enthusiast
Sorry if this question has been answered in the past, but I cannot seem to find the answer. I was diagnosed with celiac disease this past June. Before my diagnosis I had a blood test, colonoscopy, and endoscopy. Since these tests I have not seen my doctor (a digestive disease specialist) or had any other tests done. He has scheduled me for a visit for roughly a year from my previous visit. I was wondering if this is
ravenwoodglass Mentor

Your regular doctor can order blood tests to check your levels if you want to. I had no followup myself because things resolved quite nicely gluten free and since I never tested positive on blood work any retesting for antibodies would have been useless anyway. I didn't see a doctor again until I had a 'yearly' physical at that point they checked my vitamin and mineral levels, did a CBC etc. My GI said I could see him in a year if I wanted to but there really was no need since all my symptoms resolved. I don't think the 'we'll see you in a year' is really unusual. If new issues crop up or symptoms don't resolve you could always ask for an earlier appointment.

Darn210 Enthusiast

My daughter had a follow-up at 6 months which included a blood test. Now we are at a once a year point which also includes a blood test - just to make sure we're doing a good job sticking with the diet.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to Mell2's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      13

      Rectal pain

    2. - Celiac and Salty replied to Mell2's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      13

      Rectal pain

    3. - Rogol72 replied to Butch68's topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      Guinness, can you drink it?

    4. - Scott Adams replied to Butch68's topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      Guinness, can you drink it?

    5. - MogwaiStripe replied to Midwestern's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      15

      Gluten Issues and Vitamin D


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,230
    • Most Online (within 30 mins)
      7,748

    BethA25
    Newest Member
    BethA25
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      I was suffering from PF just previous to being dx with celiac disease about 25 yr. ago but have not been troubled with it since. Not sure what the connection between the two is of if there is one. But I do know it is a very painful condition that takes your breath away when it strikes.
    • Celiac and Salty
      I have dealt with proctalgia fugax on and off for a year now. It feels almost paralyzing during an episode and they have started lasting longer and longer, sometimes 20+ minutes. I was recently diagnosed with celiac disease and wonder if the 2 are related. I did request a prescription for topical nitroglycerin for my PF episodes and that has helped tremendously!
    • Rogol72
      Hey @Butch68, I also have dermatitis herpetiformis but don't suffer from it anymore. I used to drink Guinness too but I drink Cider now when out on social occasions. I assume you are in Ireland or the UK. If it's any good to you ... 9 White Deer based in Cork brew a range of gluten-free products including a gluten-free Stout. I'm not sure if they are certified though. https://www.9whitedeer.ie/ I haven't come across any certified gluten-free stouts this side of the pond.
    • Scott Adams
      This is a very common question, and the most important thing to know is that no, Guinness is not considered safe for individuals with coeliac disease. While it's fascinating to hear anecdotes from other coeliacs who can drink it without immediate issues, this is a risky exception rather than the rule. The core issue is that Guinness is brewed from barley, which contains gluten, and the standard brewing process does not remove the gluten protein to a level safe for coeliacs (below 20ppm). For someone like you who experiences dermatitis herpetiformis, the reaction is particularly significant. DH is triggered by gluten ingestion, even without immediate gastrointestinal symptoms. So, while you may not feel an instant stomach upset, drinking a gluten-containing beer like Guinness could very well provoke a flare-up of your skin condition days later. It would be a gamble with a potentially uncomfortable and long-lasting consequence. Fortunately, there are excellent, certified gluten-free stouts available now that can provide a safe and satisfying alternative without the risk.
    • MogwaiStripe
      Interestingly, this thought occurred to me last night. I did find that there are studies investigating whether vitamin D deficiency can actually trigger celiac disease.  Source: National Institutes of Health https://pmc.ncbi.nlm.nih.gov/articles/PMC7231074/ 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.