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Jeggs

Question About The Frequency Of Doctor Visits

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Sorry if this question has been answered in the past, but I cannot seem to find the answer. I was diagnosed with celiac disease this past June. Before my diagnosis I had a blood test, colonoscopy, and endoscopy. Since these tests I have not seen my doctor (a digestive disease specialist) or had any other tests done. He has scheduled me for a visit for roughly a year from my previous visit. I was wondering if this is

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Unfortunately I have heard others say the same thing. Did he order blood work to look at vitamin and minerals for a possible deficiency? If not you should have it done. I don't know what the norm is but my gi doctor has had me scheduled for appointments every 3-4 months since my diagnosis Oct. of last year. I had the ttg redone at 6 months and it went from 78 to 10! I never had the antigliadin antibodies done until 6 months gluten free and they were elevated, but since I didn't have a baseline I don't know if they were higher and coming down or from accidental ingestion. I have an appointment in December so I'll get it rechecked then. Every visit I have iron tests done since I have been chronically iron deficient since 2006. Have had my vitamin d checked 3x, first very low, second improving, and third one still pending. I have been on RX vitamin D 50,000 iu/weekly since Jan. Between my endocrinologist and gi doc I get what I need checked on a regular basis now. Just had my vitamin K tested and waiting on it also.


Me:
Celiac disease(positive blood work/biopsy- 10/2008), gluten free oat intolerent, Hashimoto's Thyroiditis/Disease, Raynaud's Disease


DS2(age 9):
celiac disease(positive IgA tTG, no biopsy- 11/2010)


DS1(age 13):
repeated negative bloodwork and negative EGD/biopsy. Started on a gluten free trial(8/2011). He has decided to stay gluten free due to all of the improvements he has experienced on the diet.

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Sorry if this question has been answered in the past, but I cannot seem to find the answer. I was diagnosed with celiac disease this past June. Before my diagnosis I had a blood test, colonoscopy, and endoscopy. Since these tests I have not seen my doctor (a digestive disease specialist) or had any other tests done. He has scheduled me for a visit for roughly a year from my previous visit. I was wondering if this is

Be yourself, everyone else is taken.

Oscar Wilde

Gluten free November 2007

IgA Deficient, Neg Bloodwork, Double DQ2 Positive

Dietary and Genetic Diagnosis June 2, 2008

Soy free Jan 09

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Your regular doctor can order blood tests to check your levels if you want to. I had no followup myself because things resolved quite nicely gluten free and since I never tested positive on blood work any retesting for antibodies would have been useless anyway. I didn't see a doctor again until I had a 'yearly' physical at that point they checked my vitamin and mineral levels, did a CBC etc. My GI said I could see him in a year if I wanted to but there really was no need since all my symptoms resolved. I don't think the 'we'll see you in a year' is really unusual. If new issues crop up or symptoms don't resolve you could always ask for an earlier appointment.


Courage does not always roar, sometimes courage is the quiet voice at the end of the day saying

"I will try again tommorrow" (Mary Anne Radmacher)

Diagnosed by Allergist with elimination diet and diagnosis confirmed by GI in 2002

Misdiagnoses for 15 years were IBS-D, ataxia, migraines, anxiety, depression, fibromyalgia, parathesias, arthritis, livedo reticularis, hairloss, premature menopause, osteoporosis, kidney damage, diverticulosis, prediabetes and ulcers, dermatitis herpeformis

All bold resoved or went into remission in time with proper diagnosis of Celiac November 2002

 Gene Test Aug 2007

HLA-DQB1 Molecular analysis, Allele 1 0303

HLA-DQB1 Molecular analysis, Allele 2 0303

Serologic equivalent: HLA-DQ 3,3 (Subtype 9,9)

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My daughter had a follow-up at 6 months which included a blood test. Now we are at a once a year point which also includes a blood test - just to make sure we're doing a good job sticking with the diet.


Janet

Experience is what you get when you didn't get what you wanted.

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