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Advice Needed :)

EllieR

By EllieR
in Coping with Celiac Disease

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EllieR Newbie
EllieR
Posted

Hi

Hopefully somebody will be able to help me :)

I have just recently been tested for celiac and my results have come back positive.

I havnt got the the first clue what to do next.

What causes celiac?

What foods can/cant I eat?

Will I always have it ?

Thank you x

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lizard00 Enthusiast
lizard00
Posted

Hi and welcome to the forum!

I wanted to answer you, but have just a second, so sorry if it seems short.

Celiac is caused by a genetic predisposition that is triggered by some sort of stress. For me, it was pregnancy, for some it's a surgery, illness, etc.

Having celiac never goes away, but is managed by not eating the glutens found in wheat, barley and rye. This would include barley malt (like in beer :( or some chocolates). There is a list on this website of safe/unsafe ingredients that is a big help in the beginning, but learning to read labels will be the best thing you can do.

Please ask any questions!!! This forum was a huge help to me in the beginning, and I hope it can be for you too!

EllieR Newbie
EllieR
Posted
  • Author

Hey

Thanks for your reply .. Thats explains why I get ill everytime I eat ryvitas lol .

I definatly need to look into certain foods and what they contain .. I find wheat and gluten free foods are quite expensive though ?

KristyUK Newbie
KristyUK
Posted

Hi there.

Yes, they can be expensive. I don't buy them since I've found that I can manage quite happily without! I just eat meat, fish, fruit, veg... but that's just me! To be honest (and I think some other people might agree), it might be better to steer clear from all the gluten-free goodies for a little while, until your insides get back to being a bit more healthy. If you can eat dairy, great, go for it!

I'm surprised you didn't get any guidance from your healthcare provider?

momxyz Contributor
momxyz
Posted

you might want to look around for a food coop in your area, that can help, at least with some staple items. I buy brown rice and brown rice pasta from a coop. I get the best prices if I can buy it in bulk - 10 pounds. That's a lot and it will last us a long time. So I store both in smaller quantities in tightly sealed ziplock bags.

BKKloppenborg Newbie
BKKloppenborg
Posted

In the first week or two really look at the labels on food to see what it has in it. Don't assume anything this messed ne up twice. First was with vodkla with friends (thought vodkla are potatos) but it was really 100% wheat/grain. Found out the hard way. Keep a eye oN dairy also. I have never really had a bad issue with milk just sore throats, now I can't eat anything with glutten, dairy, or soy. Today did my experament with milk in cheese and eggs and got really sick at work. Still feel it also very tired stomich still hurts and slight dizzyess and buzzing on ears? (that's a new one) I wish you luck I myself also am still learning. Funney part was is went glutten free And now just today it's also soy and milk. So now I have to reshop again and drive my self nuts Again looking for food with none of these. (oh joy) :)

Good luck and hope you feel better! Brian

curlyfries Contributor
curlyfries
Posted

I agree that it is best to eat simply, but this website is very helpful when you need to check labels.

These companies will clearly label if wheat, barley or rye is in the product. Nothing hidden under things like 'natural flavors'.

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msmini14 Enthusiast
msmini14
Posted
Hi there.

Yes, they can be expensive. I don't buy them since I've found that I can manage quite happily without! I just eat meat, fish, fruit, veg... but that's just me! To be honest (and I think some other people might agree), it might be better to steer clear from all the gluten-free goodies for a little while, until your insides get back to being a bit more healthy. If you can eat dairy, great, go for it!

I'm surprised you didn't get any guidance from your healthcare provider?

You would be surpised what info you get or might not get. My doctor told me not to eat wheat and that was all he said. I asked for some more infomation and he said he would mail me a packet. I got the packet about a week later which I already pulled most of that info off the internet.

I agree with the other posts also, eat simple foods for right now and let your guts heal. And if you start eating gluten free bread, cookies, etc right now they might not taste as good because you are still used to wheatie products. All though the rice pastas are very tasty =)

This website is a huge help with everything, which also has an internal search engine. So if you want to search - gluten free candy - just put that in the search bar on the left top part of your screen and it will pull all posts with that information.

And welcome to the board :D

ranger Enthusiast
ranger
Posted

Hi and welcome to this board. The people on here have saved me on many occasions, and you will find the info you need.

It would help if you gave a little more info. Do you live alone, or share housing with gluten eaters? Do you have a kitchen? How skilled are you at cooking, and how much time do you have to cook? Post a little more info and tomorro, when I have more time, I can help you better. In the meantime, the advice already given is good. Stick to fresh naturally gluten-free foods like meat, fruit and veges till you get the hang of it. It's hard at first, and confusing, but you'll get it. Hope to hear from you.

Susan.

  • 2 weeks later...
tmbarke Apprentice
tmbarke
Posted

Getting used to it is really tough the first few days - I'm 9 days into it and am feeling some really odd withdrawls.

Shopping took me 3-1/2 hrs reading labels - I came home and lashed out like a mad woman! Just venting but so out of character for me.

I thought salads are a great choice (which I looooove!) so instead of dry salad, I looked to replace some top ingredients in my salad.

Kraft shredded cheese uses potato flour to keep the shreds from sticking - 1 down!

Bolthouse Farms salad dressings including the yogurt ones state they are gluten free - and I contacted the company (posted info under topic...Name Brand Foods Please) and they guarantee safe to cross contamination! I particularly love the classic ranch which is similar to Hidden Valley homemade ranch! - 2 down!

I replaced the marinated chicken breast with fresh chicken and natural herbs but am working on a marinade that is gluten free since some soy sauces are no no's! - 3 down!

The rest is veggies.

I can start there and work my way toward the things I love - Like wild rice and chicken breasts (makes a great wild rice and chicken soup with leftovers!) - stuffed mushrooms with herbs and veggies in a processor...plus cheese of course! - Rice pasta with Classico or Prego pasta sauces and chicken parmesan.

Keep looking at the labels to see if ingredients change - but if you've tried one and like it - you can save time going right to it and double checking the label.

Make a list of meals you'd like to prepare and shop for that.

Meijers is having a gluten free tasting / info event this saturday (if you have one)

Here's a link of what not to eat.........

https://www.celiac.com/articles/182/1/Unsaf...ents/Page1.html

You'll find yourself doing hours of research - but keep checking these forums - there are a lot of things to learn here too.

Like the withdrawls and re-glutened and tips.

Glad I am not alone or the only newbie either - this forum is my life-line - my support group! My sanity while I'm learning and withdrawling. Oh yeah - it's real!

Hugs!

Tena

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