Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Stange Sensations In Gut

Wandering Hermit

Recommended Posts

Wandering Hermit Contributor
Wandering Hermit
Posted

Something I have noticed for the past year or so, and I continue to have after being gluten-free for 3 weeks, is the following - sometimes after lunch I get a non-localized sensation from my guts of warmth. It reminds me of the feeling you get after drinking a big gulp of wine on an empty stomach. It will last for hours. Does anyone else every experience this? It is rather disturbing. It does not seem to correlate to any particular thing I have eaten.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


egardner Newbie
egardner
Posted

That happens to me too sometimes. While I am writing, I need advice. After years of GI problems I recently underwent extensive testing and one of my three celiac antiobdies tested positive. Based on all the research I can very easily agree that I have it. My GI dr wants to do the endoscopy, but because of school it would have to wait two weeks plus. They seem to be in no real rush however I have to continue to eat as normal, and I am plagued with stomach pain, nausea, headches, and fatigue. I am very busy and this is really affecting my quality of life. Should I proceed with the endoscopy and suffer it out or are the anibody tests an accurate indicator? I have read that lots of people with positive blood tests have negative biopsies but still respond well to the limited diet. So do this mean I could be holding out for nothing? Plus, endoscopies are not the cleanest procedures(the wands cant be entirely disinfected like other surgical instruments can) and the last thing I need is to get a virus, which I would be suceptible to due to my current health state. I am so torn, do I really need it to accuratly diagnose or should I take my blood tests and move on? Please help!

KaitiUSA Enthusiast
KaitiUSA
Posted

There are some blood tests that are very specific for celiac. I only had blood tests done the doctor didn't even want or need a biopsy because of the results. If you want that diagnosis then go with it but you have to realize it may come back negative if you do not have damage yet but you could still have it. It's really up to you. I think it is a pretty safe procedure so I wouldn't let that keep you from doing it if you want it.

I know what you are going through with feeling nausea and otehr symptoms all the time. They will go away with the diet(sooner or later depending on your body's time for healing). It's just a matter of when you start the diet....it has to be after all testing unless you want to go with an Enterolab. They send you a kit and you take a stool sample and send it and they test for the celiac gene, malabsorption in the intestine, gluten sensitivity and so forth. They do not make you be on the gluten free diet so you could go gluten free now and still get an Enterolab.... www.enterolab.com This is not widely accepted by the medical community but I think it is an awesome test.

If you have any questions let me know...feel better soon

And I recommend finding good enzymes, probiotics, and liquid vitamins right now if you are not on them.

skbird Contributor
skbird
Posted

I think I may have experienced that feeling. Right before going gluten-free I was having this sensation in my stomach when I ate wheat, especially whole wheat, where it would feel really warm in my stomach and sort of itchy, like I was having an allergic rash or something, and I would feel REALLY hungry though I would intellectually know I wasn't. It was a really weird feeling and as I stopped eating whole wheat products it went away. I had only been getting that about the last month before going completely gluten-free though...

Stephanie

Liquid Newbie
Liquid
Posted
There are some blood tests that are very specific for celiac. I only had blood tests done the doctor didn't even want or need a biopsy because of the results. If you want that diagnosis then go with it but you have to realize it may come back negative if you do not have damage yet but you could still have it. It's really up to you. I think it is a pretty safe procedure so I wouldn't let that keep you from doing it if you want it.

I know what you are going through with feeling nausea and otehr symptoms all the time. They will go away with the diet(sooner or later depending on your body's time for healing). It's just a matter of when you start the diet....it has to be after all testing unless you want to go with an Enterolab. They send you a kit and you take a stool sample and send it and they test for the celiac gene, malabsorption in the intestine, gluten sensitivity and so forth. They do not make you be on the gluten free diet so you could go gluten free now and still get an Enterolab.... www.enterolab.com This is not widely accepted by the medical community but I think it is an awesome test.

If you have any questions let me know...feel better soon

And I recommend finding good enzymes, probiotics, and liquid vitamins right now if you are not on them.

Why would you suggest Liquid vitamins? And are you referring to liquid forms of regular multivitamins or anything in particular?

Thanks

KaitiUSA Enthusiast
KaitiUSA
Posted

The reason why I recommend liquid vitamins is because of the way your body absorbs them. I especially recommend this at first, when the intestines are healing.

I like Liquid Vitamins Plus by Utrition. They say ultra absorbable on the front of the bottle.

Probiotics are great because they help fight infection and boost your immune system by giving good bacteria.

Enzymes help aid with digestion and are also a benefit to the body

Hope this helps you a bit

mommida Enthusiast
mommida
Posted

I get that too. I describe it like being scratched from the inside out.

L.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Liquid Newbie
Liquid
Posted
The reason why I recommend liquid vitamins is because of the way your body absorbs them. I especially recommend this at first, when the intestines are healing.

I like Liquid Vitamins Plus by Utrition. They say ultra absorbable on the front of the bottle.

Probiotics are great because they help fight infection and boost your immune system by giving good bacteria.

Enzymes help aid with digestion and are also a benefit to the body

Hope this helps you a bit

thx for the info

Now Im looking for a good liquid vitamin in canada. I take Calcium capsules (among other things), do you know if they come in liquid form as well?

KaitiUSA Enthusiast
KaitiUSA
Posted
thx for the info

Now Im looking for a good liquid vitamin in canada. I take Calcium capsules (among other things), do you know if they come in liquid form as well?

Calcium does come in liquid form...I take a calcium liquid form as well.

Do you have a Vitamin Shoppe up there?

You should be able to find these kinds of supplements at a health food store or a store similar to a Vitamin Shoppe.

If you can not find any where you live then I am sure you could call a store in the US that has something you are looking for and then have it shipped up there.

Liquid Newbie
Liquid
Posted

I usually order my vitamins from Open Original Shared Link

They do have quite a few liquid calcium bottles, so ill check that out next time I order. As for the multivitamins in liquid form, Ill prolly have to look around for any local stores or maybe order from US if they are too expensive :P

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. tiffanygosci
      - tiffanygosci posted a topic in Coping with Celiac Disease
      0

      New Celiac Mama in My 30s

      Hello all! My life in the last five years has been crazy. I got married in 2020 at the age of 27, pregnant with our first child almost two months later, gave birth in 2021. We had another baby in April of 2023 and our last baby this March of 2025. I had some issues after my second but nothing ever made me think, "I should see a doctor about this." After...
    2. knitty kitty
      - knitty kitty replied to klmgarland's topic in Dermatitis Herpetiformis
      8

      Help I’m cross contaminating myself,

      On the AIP diet, all processed foods are eliminated. This includes gluten-free bread. You'll be eating meats and vegetables, mostly. Meats that are processed, like sausages, sandwich meats, bacons, chicken nuggets, etc., are eliminated as well. Veggies should be fresh, or frozen without other ingredients like sauces or seasonings. Nightshade vegetables...
    3. Yaya
      - Yaya replied to Jhona's topic in Introduce Yourself / Share Stuff
      29

      Does anyone here also have Afib

      Thank you for responding and for prayers. So sorry for your struggles, I will keep you in mine. You are so young to have so many struggles, mine are mild by comparison. I didn't have Celiac Disease (celiac disease) until I had my gallbladder removed 13 years ago; at least nothing I was aware of. Following surgery: multiple symptoms/oddities appeared including...
    4. larc
      - larc replied to Jhona's topic in Introduce Yourself / Share Stuff
      29

      Does anyone here also have Afib

      When I accidentally consume gluten it compromises the well-being of my heart and arteries. Last time I had a significant exposure, about six months ago, I had AFib for about ten days. It came on every day around dinner time. After the ten days or so it went away and hasn't come back. My cardiologist offered me a collection of pharmaceuticals at the time...
    5. klmgarland
      - klmgarland replied to klmgarland's topic in Dermatitis Herpetiformis
      8

      Help I’m cross contaminating myself,

      So I should not eat my gluten free bread? I will try the vitamins. Thank you all so very much for your ideas and understanding. I'm feeling better today and have gathered back my composure! Thank you kitty kitty I am going to look this diet up right away. And read the paleo diet and really see if I can make this a better situation then it currently...
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,921
    • Most Online (within 30 mins)
      7,748
    Serena Rodriguez
    Newest Member
    Serena Rodriguez
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • tiffanygosci
      New Celiac Mama in My 30s

      By tiffanygosci · Posted

      Hello all! My life in the last five years has been crazy. I got married in 2020 at the age of 27, pregnant with our first child almost two months later, gave birth in 2021. We had another baby in April of 2023 and our last baby this March of 2025. I had some issues after my second but nothing ever made me think, "I should see a doctor about this." After having my last baby this year, my body has finally started to find its new rhythm and balance...but things started to feel out of sorts. A lot of symptoms were convoluted with postpartum symptoms, and, to top it all off, my cycle came back about 4m postpartum. I was having reoccurring migraines, nausea, joint pain, numbness in my right arm, hand and fingers, tummy problems, hives. I finally went to my PCP in August just for a wellness check and I brought up my ailments. I'm so thankful for a doctor that listens and is thorough. He ended up running a food allergy panel, an environmental respiratory panel, and a celiac panel. I found out I was allergic to wheat, allergic to about every plant and dust mites, and I did have celiac. I had an endoscopy done on October 3 and my results confirmed celiac in the early stages! I am truly blessed to have an answer to my issues. When I eat gluten, my brain feels like it's on fire and like someone is squeezing it. I can't think straight and I zone out easily. My eyes can't focus. I get a super bad migraine and nausea. I get so tired and irritable and anxious. My body hurts sometimes and my gut gets bloated, gassy, constipated, and ends with bowel movements. All this time I thought I was just having mom brain or feeling the effects of postpartum, sleep deprivation, and the like (which I probably was having and the celiac disease just ramped it up!) I have yet to see a dietician but I've already been eating and shopping gluten-free. My husband and I have been working on turning our kitchen 100% gluten-free (we didn't think this would be so expensive but he assured me that my health is worth all the money in the world). There are still a few things to replace and clean. I'm already getting tired of reading labels. I even replaced some of my personal hygiene care for myself and the kids because they were either made with oats or not labeled gluten-free. I have already started feeling better but have made some mistakes along the way or have gotten contamination thrown into the mix. It's been hard! Today I joked that I got diagnosed at the worst time of the year with all the holidays coming up. I will just need to bring my own food to have and to share. It will be okay but different after years of eating "normally". Today I ordered in person at Chipotle and was trying not to feel self-conscious as the line got long because they were following food-allergy protocols. It's all worth it to be the healthiest version of myself for me and my family. I would be lying if I said I wasn't a little overwhelmed and a little overloaded!  I am thankful for this community and I look forward to learning more from you all. I need the help, that's for sure!
    • knitty kitty
      Help I’m cross contaminating myself,

      By knitty kitty · Posted

      On the AIP diet, all processed foods are eliminated.  This includes gluten-free bread.  You'll be eating meats and vegetables, mostly.  Meats that are processed, like sausages, sandwich meats, bacons, chicken nuggets, etc., are eliminated as well.  Veggies should be fresh, or frozen without other ingredients like sauces or seasonings.  Nightshade vegetables (eggplant, potatoes, tomatoes, peppers) are excluded.  They contain alkaloids that promote a leaky gut and inflammation.  Dairy and eggs are also eliminated.   I know it sounds really stark, but eating this way really improved my health.  The AIP diet can be low in nutrients, and, with malabsorption, it's important to supplement vitamins and minerals.  
    • Yaya
      Does anyone here also have Afib

      By Yaya · Posted

      Thank you for responding and for prayers.  So sorry for your struggles, I will keep you in mine.  You are so young to have so many struggles, mine are mild by comparison.  I didn't have Celiac Disease (celiac disease) until I had my gallbladder removed 13 years ago; at least nothing I was aware of.  Following surgery: multiple symptoms/oddities appeared including ridges on fingernails, eczema, hair falling out in patches, dry eyes, upset stomach constantly and other weird symptoms that I don't really remember.  Gastro did tests and endoscopy and verified celiac disease. Re heart: I was born with Mitral Valve Prolapse (MVP) and an irregular heartbeat, yet heart was extremely strong.  It was difficult to pick up the irregular heartbeat on the EKG per cardiologist.  I had Covid at 77, recovered in 10 days and 2 weeks later developed long Covid. What the doctors and nurses called the "kickoff to long Covid, was A-fib.  I didn't know what was going on with my heart and had ignored early symptoms as some kind of passing aftereffect stemming from Covid.  I was right about where it came from, but wrong on it being "passing".  I have A-fib as my permanent reminder of Covid and take Flecainide every morning and night and will for the rest of my life to stabilize my heartbeat.   
    • larc
      Does anyone here also have Afib

      By larc · Posted

      When I accidentally consume gluten it compromises the well-being of my heart and arteries. Last time I had a significant exposure, about six months ago, I had AFib for about ten days. It came on every day around dinner time. After the ten days or so it went away and hasn't come back.  My cardiologist offered me a collection of pharmaceuticals at the time.  But I passed on them. 
    • klmgarland
      Help I’m cross contaminating myself,

      By klmgarland · Posted

      So I should not eat my gluten free bread?  I will try the vitamins.  Thank you all so very much for your ideas and understanding.  I'm feeling better today and have gathered back my composure! Thank you kitty kitty   I am going to look this diet up right away.  And read the paleo diet and really see if I can make this a better situation then it currently is.  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.