Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Stange Sensations In Gut


Wandering Hermit

Recommended Posts

Wandering Hermit Contributor

Something I have noticed for the past year or so, and I continue to have after being gluten-free for 3 weeks, is the following - sometimes after lunch I get a non-localized sensation from my guts of warmth. It reminds me of the feeling you get after drinking a big gulp of wine on an empty stomach. It will last for hours. Does anyone else every experience this? It is rather disturbing. It does not seem to correlate to any particular thing I have eaten.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



egardner Newbie

That happens to me too sometimes. While I am writing, I need advice. After years of GI problems I recently underwent extensive testing and one of my three celiac antiobdies tested positive. Based on all the research I can very easily agree that I have it. My GI dr wants to do the endoscopy, but because of school it would have to wait two weeks plus. They seem to be in no real rush however I have to continue to eat as normal, and I am plagued with stomach pain, nausea, headches, and fatigue. I am very busy and this is really affecting my quality of life. Should I proceed with the endoscopy and suffer it out or are the anibody tests an accurate indicator? I have read that lots of people with positive blood tests have negative biopsies but still respond well to the limited diet. So do this mean I could be holding out for nothing? Plus, endoscopies are not the cleanest procedures(the wands cant be entirely disinfected like other surgical instruments can) and the last thing I need is to get a virus, which I would be suceptible to due to my current health state. I am so torn, do I really need it to accuratly diagnose or should I take my blood tests and move on? Please help!

KaitiUSA Enthusiast

There are some blood tests that are very specific for celiac. I only had blood tests done the doctor didn't even want or need a biopsy because of the results. If you want that diagnosis then go with it but you have to realize it may come back negative if you do not have damage yet but you could still have it. It's really up to you. I think it is a pretty safe procedure so I wouldn't let that keep you from doing it if you want it.

I know what you are going through with feeling nausea and otehr symptoms all the time. They will go away with the diet(sooner or later depending on your body's time for healing). It's just a matter of when you start the diet....it has to be after all testing unless you want to go with an Enterolab. They send you a kit and you take a stool sample and send it and they test for the celiac gene, malabsorption in the intestine, gluten sensitivity and so forth. They do not make you be on the gluten free diet so you could go gluten free now and still get an Enterolab.... www.enterolab.com This is not widely accepted by the medical community but I think it is an awesome test.

If you have any questions let me know...feel better soon

And I recommend finding good enzymes, probiotics, and liquid vitamins right now if you are not on them.

skbird Contributor

I think I may have experienced that feeling. Right before going gluten-free I was having this sensation in my stomach when I ate wheat, especially whole wheat, where it would feel really warm in my stomach and sort of itchy, like I was having an allergic rash or something, and I would feel REALLY hungry though I would intellectually know I wasn't. It was a really weird feeling and as I stopped eating whole wheat products it went away. I had only been getting that about the last month before going completely gluten-free though...

Stephanie

Liquid Newbie
There are some blood tests that are very specific for celiac. I only had blood tests done the doctor didn't even want or need a biopsy because of the results. If you want that diagnosis then go with it but you have to realize it may come back negative if you do not have damage yet but you could still have it. It's really up to you. I think it is a pretty safe procedure so I wouldn't let that keep you from doing it if you want it.

I know what you are going through with feeling nausea and otehr symptoms all the time. They will go away with the diet(sooner or later depending on your body's time for healing). It's just a matter of when you start the diet....it has to be after all testing unless you want to go with an Enterolab. They send you a kit and you take a stool sample and send it and they test for the celiac gene, malabsorption in the intestine, gluten sensitivity and so forth. They do not make you be on the gluten free diet so you could go gluten free now and still get an Enterolab.... www.enterolab.com This is not widely accepted by the medical community but I think it is an awesome test.

If you have any questions let me know...feel better soon

And I recommend finding good enzymes, probiotics, and liquid vitamins right now if you are not on them.

Why would you suggest Liquid vitamins? And are you referring to liquid forms of regular multivitamins or anything in particular?

Thanks

KaitiUSA Enthusiast

The reason why I recommend liquid vitamins is because of the way your body absorbs them. I especially recommend this at first, when the intestines are healing.

I like Liquid Vitamins Plus by Utrition. They say ultra absorbable on the front of the bottle.

Probiotics are great because they help fight infection and boost your immune system by giving good bacteria.

Enzymes help aid with digestion and are also a benefit to the body

Hope this helps you a bit

mommida Enthusiast

I get that too. I describe it like being scratched from the inside out.

L.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Liquid Newbie
The reason why I recommend liquid vitamins is because of the way your body absorbs them. I especially recommend this at first, when the intestines are healing.

I like Liquid Vitamins Plus by Utrition. They say ultra absorbable on the front of the bottle.

Probiotics are great because they help fight infection and boost your immune system by giving good bacteria.

Enzymes help aid with digestion and are also a benefit to the body

Hope this helps you a bit

thx for the info

Now Im looking for a good liquid vitamin in canada. I take Calcium capsules (among other things), do you know if they come in liquid form as well?

KaitiUSA Enthusiast
thx for the info

Now Im looking for a good liquid vitamin in canada. I take Calcium capsules (among other things), do you know if they come in liquid form as well?

Calcium does come in liquid form...I take a calcium liquid form as well.

Do you have a Vitamin Shoppe up there?

You should be able to find these kinds of supplements at a health food store or a store similar to a Vitamin Shoppe.

If you can not find any where you live then I am sure you could call a store in the US that has something you are looking for and then have it shipped up there.

Liquid Newbie

I usually order my vitamins from Open Original Shared Link

They do have quite a few liquid calcium bottles, so ill check that out next time I order. As for the multivitamins in liquid form, Ill prolly have to look around for any local stores or maybe order from US if they are too expensive :P

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,200
    • Most Online (within 30 mins)
      7,748

    Elisa Stutsman
    Newest Member
    Elisa Stutsman
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Redanafs
      Hi everyone. Back in 2022 I had blood work drawn for iga ext gliadin. Since then I’ve developed worse stomach issues and all other health issues. My doctor just said cut out gluten. He did no further testing. Please see my test results attached. I just need some direction cause I feel so ill and the stomach pain is becoming worse. Can this test show indications for other gastrointestinal diseases?
    • Fayeb23
      Thank you. These were the results TTG ABS NUMERICAL: > 250.0 U/mL [< 14.99]  Really don’t understand the results!
    • Scott Adams
      Clearly from what you've said the info on Dailymed is much more up to date than the other site, which hasn't been updated since 2017. The fact that some companies might be repackaging drugs does not mean the info on the ingredients is not correct.
    • RMJ
      To evaluate the TTG antibody result we’d need to know the normal range for that lab.  Labs don’t all use the same units.  However, based on any normal ranges that I’ve seen and the listed result being greater than a number rather than a specific number, I’d say yes, that is high! Higher than the range where the test can give a quantitative result. You got good advice not to change your diet yet.  If you went gluten free your intestines would start to heal, confusing any further testing,
    • Bev in Milw
      Scott is correct….Thank you for catching that!      Direct link for info  of fillers.    http://www.glutenfreedrugs.com/Excipients.htm Link is on 2nd page  of www.glutenfreedrugs.com   Site was started by a pharmacist (or 2) maybe 15-20 yrs ago with LAST updated in  2017.  This makes it’s Drug List so old that it’s no longer relevant. Companies & contacts, along with suppliers &  sources would need to be referenced, same amount effort  as starting with current data on DailyMed      That being said, Excipient List is still be relevant since major changes to product labeling occurred prior ’17.           List is the dictionary that sources the ‘foreign-to-us’ terms used on pharmaceutical labels, terms we need to rule out gluten.    Note on DailyMed INFO— When you look for a specific drug on DailyMed, notice that nearly all of companies (brands/labels) are flagged as a ‘Repackager’… This would seem to suggest the actual ‘pills’ are being mass produced by a limited number of wholesaler suppliers (esp for older meds out of  patent protection.).      If so, multiple repackager-get  bulk shipments  from same supplier will all  be selling identical meds —same formula/fillers. Others repackager-could be switching suppliers  frequently based on cost, or runs both gluten-free & non- items on same lines.  No way to know  without contacting company.     While some I know have  searched pharmacies chasing a specific brand, long-term  solution is to find (or teach) pharmacy staff who’s willing help.    When I got 1st Rx ~8 years ago, I went to Walgreens & said I needed gluten-free.  Walked  out when pharmacist said  ‘How am I supposed  to know…’  (ar least he as honest… ). Walmart pharmacists down the block were ‘No problem!’—Once, they wouldn’t release my Rx, still waiting on gluten-free status from a new supplier. Re: Timeliness of DailyMed info?   A serendipitous conversation with cousin in Mi was unexpectedly reassuring.  She works in office of Perrigo, major products of OTC meds (was 1st to add gluten-free labels).  I TOTALLY lucked out when I asked about her job: “TODAY I trained a new full-time employee to make entries to Daily Med.’  Task had grown to hours a day, time she needed for tasks that couldn’t be delegated….We can only hope majorities of companies are as  conscientious!   For the Newbies…. SOLE  purpose of  fillers (possible gluten) in meds is to  hold the active ingredients together in a doseable form.  Drugs  given by injection or as IV are always gluten-free!  (Sometimes drs can do antibiotics w/ one-time injection rather than 7-10 days of  pills .) Liquid meds (typically for kids)—still read labels, but  could be an a simpler option for some products…
×
×
  • Create New...