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About To Be Diagnosed


madeyedchicken

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madeyedchicken Newbie

I'm about to maybe diagnosed with celiac's, after a year of hell. I would like to know what would be the best plan of action for if it is Celiac disease?

This time last year i went into hospital for a routine operation, and contracted a "super Bug", which decided it wanted to eat my stomach and gut. I very nearly died but i've be left in a bad way. I only weigh 7 stone, and find it difficult to find any energy.

hope you got some advise on what gluten free product taste good. :rolleyes:


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lovegrov Collaborator

You need to tell folks what country you live in. That would make a difference.

However, the best advice at first is to keep it simple -- fresh meat, fruit and vegetables are all naturally gluten-free.

richard

KaitiUSA Enthusiast

Have you had blood tests done? First get that done

After the diagnosis keep it simple as Richard said....fruits and veggies are without a doubt gluten free so stick with stuff you know is gluten free.

Get rid of anything in your house with gluten in it and get a new toaster and throw the old one out.

Some countries are different about what they consider gluten free so that info may help us out here in helping you.

tarnalberry Community Regular

Ditto all that - I highly recommend sticking with whole, naturally gluten-free foods. Produce, fresh (unmarinated and so forth) meats, rice/beans, and gluten-free dairy if you can have it.

Take a look around at the posts on here for ideas about what people eat and how people are handling the diet. It sounds scary at first, but with a little practice, it's really not bad. :-)

ianm Apprentice

I prefer simply prepared meat, veggies and fruits. I avoid fruits and veggies that are real high in starch like potatoes and bannanas or fructose like most tree fruits. I can't seem to stomach starch or sugar in great quantities. Also nuts and buckwheat (not a grain despite the name), flax seed meal, quinoa, millet are all good. It takes a while to get the hang of it but you will be glad you did.

Lesliean Apprentice

Assuming you are positive for Celiacs, and keep us posted :rolleyes: , you will learn the ropes quickly on what to watch out for and what to rely on. Medicines have to be checked out (like by googling it) individually and you check out each food that has natural flavorings, carmel coloring, and stay away from modified food starch... But you start getting a trust in certian foods and brands and expanding on that list over time. And some foods are quick and easy like avocato with salsa and a checked out brand corn chip (I eat Que Pasa in Alaska), or sweet potatoes and baked potatoes. gluten-free breads might be available in your store or you could request them. After a couple months you'll know enough to feel confident. And we are always here for you. :D

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    • par18
      Thanks for the reply. 
    • Scott Adams
      What you’re describing is actually very common, and unfortunately the timing of the biopsy likely explains the confusion. Yes, it is absolutely possible for the small intestine to heal enough in three months on a strict gluten-free diet to produce a normal or near-normal biopsy, especially when damage was mild to begin with. In contrast, celiac antibodies can stay elevated for many months or even years after gluten removal, so persistently high antibody levels alongside the celiac genes and clear nutrient deficiencies strongly point to celiac disease, even if you don’t feel symptoms. Many people with celiac are asymptomatic but still develop iron and vitamin deficiencies and silent intestinal damage. The lack of immediate symptoms makes it harder emotionally, but it doesn’t mean gluten isn’t harming you. Most specialists would consider this a case of celiac disease with a false-negative biopsy due to early healing rather than “something else,” and staying consistently gluten-free is what protects you long-term—even when your body doesn’t protest right away.
    • Scott Adams
      Yes, I meant if you had celiac disease but went gluten-free before screening, your results would end up false-negative. As @trents mentioned, this can also happen when a total IGA test isn't done.
    • Seaperky
      I found at Disney springs and Disney they have specialist that when told about dietary restrictions they come and talk to you ,explain cross contamination measures tsken and work with you on choices. Its the one place I dont worry once I've explained I have celiac disease.  Thier gluten free options are awesome.
    • Churley
      Have you tried Pure Encapsulations supplements? This is a brand my doctor recommends for me. I have no issues with this brand.
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