Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

When Will I Get Better?

savvysue

Recommended Posts

savvysue Rookie
savvysue
Posted

I've been on the gluten free diet for almost two months now, but I don't really feel better than I did before I was diagnosed. When people ask me if I feel like a new person now that I'm on the diet, I frown and want to say, "No. not really. I'm not." :( When will I get better?? I dont have alot of the stomach-related symptoms, I have more of the joint and autoimmune symptoms. I also have delayed growing. I'm 16, but I have the body of an 11 year old, and i'm skinny. When will I feel better? When will I look better, and have more energy?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


toni m Newbie
toni m
Posted
I've been on the gluten free diet for almost two months now, but I don't really feel better than I did before I was diagnosed. When people ask me if I feel like a new person now that I'm on the diet, I frown and want to say, "No. not really. I'm not." :( When will I get better?? I dont have alot of the stomach-related symptoms, I have more of the joint and autoimmune symptoms. I also have delayed growing. I'm 16, but I have the body of an 11 year old, and i'm skinny. When will I feel better? When will I look better, and have more energy?

i am sorry to hear u are not feeling better. my daugther (who is 19) was diagnosed with celiac disease one year ago - she had positive blood work and positive biopsy. she was gluten free and was not getting any better either. months went by and the dr kept saying it was going to take time because her villie were so far gone. we ended up switching doctors - he took one look at her and immediately ordered a colonoscopy. she was diagnosed with crohn's disease and well as the celiac. unfortunately the dr that did the biopsy for celiac saw the villie diagnosed the celiac and went no further to check for any other possibilities. it sounds like the same thing may have happened to u. by the time her crohn's disease was diagnosed her entire colon was diseased. she is doing much better now with her medication for crohn's and the gluten free for the celiac. i hope u feel better but i would suggest to your doctor to check and see if u have something else going on - good luck - if u need any advice just ask.

gftruck Newbie
gftruck
Posted

I know exactly how you feel. I've been gluten-free for a little more than 2 months now, but fortunately I was diagnosed early enough that I don't really have any malnutrition issues. I just get sick ALL the time. People ask me the same thing about "feeling better" and "eating right" when really all I want to do is eat an entire pizza. It can be depressing, watching friends eat grilled cheese and bagels and things like that, but you eventually learn to appreciate the smell more than anything! I just keep telling myself that it will all get better once I'm more used to what I can and can't eat and when I'm a more "experienced" Celiac, if you will. Good luck with everything, and just remember that you're not alone!

  • 2 weeks later...
Fitze082 Newbie
Fitze082
Posted
I've been on the gluten free diet for almost two months now, but I don't really feel better than I did before I was diagnosed. When people ask me if I feel like a new person now that I'm on the diet, I frown and want to say, "No. not really. I'm not." :( When will I get better?? I dont have alot of the stomach-related symptoms, I have more of the joint and autoimmune symptoms. I also have delayed growing. I'm 16, but I have the body of an 11 year old, and i'm skinny. When will I feel better? When will I look better, and have more energy?

Wow I'm sorry to hear that. I have read from people that suffered with the same type of issues as you that it took anywhere from 6 months to a year or so. It really depends on how bad your disease was before you were diagnosed. I suffered from the stomach issues so I dont have any personal issues. Just stay hopeful and stick to the diet

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. marlene333
      - marlene333 replied to Grace Good's topic in Gluten-Free Foods, Products, Shopping & Medications
      3

      Bee balm lipbalm not gluten free

      To play it safe, use Vasoline Lip Therapy. No questions as to it containing gluten.
    2. Mari
      - Mari replied to Jmartes71's topic in Coping with Celiac Disease
      4

      Related issues

      jmartes, Thank you for sharing more information with us. Most of us Celiacs whose problems do not clear up with in a few years have to decide what to do next. We can keep seeing DR.s and hope that we will get some medication or advice that will improve our health. Or we can go looking for other ways to improve our health. Usually Celiac Disease is...
    3. Scott Adams
      - Scott Adams replied to catsrlife's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      4

      Patiently Waiting to See Results

      It's unfortunate that they won't work with you on this, but in the end sometimes we have to take charge of our own health--which is exactly what happened to me. I did finally get the tests done, but only after years of going down various rabbit holes and suffering. Just quitting gluten may be the best path for you at this point.
    4. catsrlife
      - catsrlife replied to catsrlife's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      4

      Patiently Waiting to See Results

      My doctor didn't take the time to listen to anything. I don't even think she knows what it means. She is more concerned about my blood pressure that is caused by her presence than anything else and just wants to push pills at me. The so-called dermatologist wouldn't do a skin test. she prescribed all of these silly antihistamine skin meds. This lady...
    5. Jmartes71
      - Jmartes71 replied to Jmartes71's topic in Coping with Celiac Disease
      4

      Related issues

      I had the test done by one of the specialist through second pcp I had only a few months because he was saying I wasn't.Even though Im positive HLA-DQ2 .My celiac is down played.I am with new pcp, seeing another girl doctor who wants to do another breathe test next month though Im positive sibo this year.I have high blood pressure not sure if its pain from...
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,261
    • Most Online (within 30 mins)
      7,748
    Pbaentine
    Newest Member
    Pbaentine
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • marlene333
      Bee balm lipbalm not gluten free

      By marlene333 · Posted

      To play it safe, use Vasoline Lip Therapy. No questions as to it containing gluten.
    • Mari
      Related issues

      By Mari · Posted

      jmartes, Thank you for sharing  more information with us. Most of us Celiacs whose problems do not clear up with in a few years have to decide what to do next. We can keep seeing DR.s and hope that we will get some  medication or advice that will improve our health. Or we can go looking for other ways to improve our health. Usually Celiac Disease is not a killer disease, it is a disabling disease as  you have found out. You have time to find some ways to help you recover. Stay on your gluten-free diet and be more careful in avoiding cross contamination . KnittyKitty  and others here can give you advice about avoiding some foods that can give you the gluten auto immune reaction and advice about vitamins and supplement that help celiacs. You may need to take higher doses of Vit. B12  and D3.  About 20 years before a Dr. suggested I might have Celiac disease I had health problems that all other Dr said they could not identify or treat. I was very opposed to alternative providers and treatments. So many people were getting help from a local healer I decided to try that out. It was a little helpful but then, because I had a good education in medical laboraties she gave me a book  to read and what did I think. With great skeptism I started reading and before I was half way through it I began using the methods outlined in the book. Using those herbs and supplements I went from hardly able to work to being able to work almost fulltime. I still use that program. But because I had undiagnosed celiac disease by 10 years later some  of my problems returned and I started to loose weight.    So how does a person find a program that will benefit them? Among the programs you can find online there are many that are snake oil scams and some that will be beneficial. by asking around, as I did. Is there an ND in your area? Do they reccomend that person? If you would like to read about the program I use go to www.drclark.net   
    • Scott Adams
      Patiently Waiting to See Results

      By Scott Adams · Posted

      It's unfortunate that they won't work with you on this, but in the end sometimes we have to take charge of our own health--which is exactly what happened to me. I did finally get the tests done, but only after years of going down various rabbit holes and suffering. Just quitting gluten may be the best path for you at this point.
    • catsrlife
      Patiently Waiting to See Results

      By catsrlife · Posted

      My doctor didn't take the time to listen to anything. I don't even think she knows what it means. She is more concerned about my blood pressure that is caused by her presence than anything else and just wants to push pills at me. The so-called dermatologist wouldn't do a skin test. she prescribed all of these silly antihistamine skin meds. This lady didn't even know what she was talking about and said "they never turn out as celiac, they usually just say it's dermatitis so here's your meds," just like my regular quack. I'm trying to change insurance companies at the moment and that has been a battle because of red tape, wrong turns, and workers having wrong phone numbers. What a joke! The allergy blood days say I have a wheat allergy of .31. Hopefully it's just that and until I find a decent doctor and dermatologist, I'll just lay off the wheat anyway, since it gives me asthma, high blood sugar, and joint pain. So frustrated at this point. The rash on my back of arms/elbows is mostly gone. Both calves and chest have started up. smh. It comes and goes. It fades faster now, though, although my forearms still produce one or two bumps on each side. The itching has calmed down a lot except for the bump area. I have dry skin to begin with so anything affecting it just makes it crazy. i'm never going to eat wheat again. I don't care if they need it to produce results or if it is just an intolerance, allergy, or celiac. It gives me hell.
    • Jmartes71
      Related issues

      By Jmartes71 · Posted

      I had the test done by one of the specialist through second pcp I had only a few months because he was saying I wasn't.Even though Im positive HLA-DQ2 .My celiac is down played.I am with new pcp, seeing another girl doctor who wants to do another breathe test next month though Im positive sibo this year.I have high blood pressure not sure if its pain from sciatica or sibo, ibs or hidden gluten. Im in disability limbo and I should have never been a bus driver because im still suffering and trying to heal with zero income except for my husband. This isnt fare that my health is dictating my living and having ti beg for being revalidation of my disregarded celiac disease. Its an emotional roller coaster I don't want to be on and the medical made it worse.New pcp new gi, exhausted, tired and really fed up. GI doctor NOT girl..
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.