Shortness Of Breath (the "sighs")?

[knitty kitty]

Thiamine supplementation will help this "air hunger" .  It's known as "sailors' asthma" because sailors used to get thiamine deficiency at sea without fresh meat.  

Thiamine Hydrochloride supplements will help.  So will Allithiamine, so called because it is derived from plants in the Alum family, onions and garlic.  Benfotiamine will also help.  

[anjolen]

I had this for years!! It was Vocal Cord Dysfunction, I was diagnosed a year ago and did vocal therapy with great results. It is not totally gone but something I manage, and when it recurs, I know what to do. My allergist sent me to a speech/vocal therapist for testing and treatment. It is wonderful to know that I'm not crazy and there was something to be done for it. Please message if you have any questions: it was literally life-changing to get this figured out.

[Judith M]

On 10/26/2009 at 3:16 PM, soulcurrent said:

My GI said he didn't think it was related, but I'm not convinced. When I was 19 I started noticing that I was often having to take deep breaths to feel like I was getting any air. Now at 25 I feel it all the time, every day, and it's more like I have to sigh or yawn in order to feel like my lungs are getting what they need. I know that I'm not suffocating but it's not a comfortable feeling. It's not exactly a chest tightness but it's similar. I've had the pulmonary function and asthma tests, even went to a cardiologist for a while to rule out any heart conditions. Everyone says my lungs are working great but I still feel like it's not getting any better. I did smoke for a long time but I quit a little over 2 years ago (2 years, 9 weeks, 0 days, 14 hours and 12 mins and saved $3,410.79.. .but who's counting?) but doctors have ruled out complications from that. They almost all default to anxiety because I have a prescription for Xanax but I can tell you that it happens all the time, regardless of feeling anxious.

 

Sound familiar to anyone, or should I keep looking? I'm starting to wonder if another allergy might be the cause.

Before I was confirmed Celiac I had breathing problems. Sent me for the lung test and apparently I passed. But now that I am on track seem to be ok. One thing that was wrong at the time was my vitamin D was dangerously low so put on 10,000 iu every second day and then I started feeling more like my old self . Try 4000iu a day and see if it stops.

[Deana-D]

So glad to stumble onto this thread...thought I was crazy....glad I'm not alone with ith this breathing issue...

[Wheatwacked]

On 11/30/2022 at 6:36 AM, Judith M said:

my vitamin D was dangerously low so put on 10,000 iu every second day

I am taking 10,000 IU every day since 2015. It took until 2019 to raise my plasma to 47 ng/ml and another 2 to get to 80 ng/ml where it is holding steady. I stopped 3 weeks before a lab test and in those 21 days my plasma dropped to 72 ng/ml.  Although no one will come out and say it the homeostasis level for vitamin D is right around 80 ng/ml. That's what lifeguards not using absurd amounts of SPF and protective clothing have.

[LeighENC]

On 10/26/2009 at 3:16 PM, soulcurrent said:

My GI said he didn't think it was related, but I'm not convinced. When I was 19 I started noticing that I was often having to take deep breaths to feel like I was getting any air. Now at 25 I feel it all the time, every day, and it's more like I have to sigh or yawn in order to feel like my lungs are getting what they need. I know that I'm not suffocating but it's not a comfortable feeling. It's not exactly a chest tightness but it's similar. I've had the pulmonary function and asthma tests, even went to a cardiologist for a while to rule out any heart conditions. Everyone says my lungs are working great but I still feel like it's not getting any better. I did smoke for a long time but I quit a little over 2 years ago (2 years, 9 weeks, 0 days, 14 hours and 12 mins and saved $3,410.79.. .but who's counting?) but doctors have ruled out complications from that. They almost all default to anxiety because I have a prescription for Xanax but I can tell you that it happens all the time, regardless of feeling anxious.

 

Sound familiar to anyone, or should I keep looking? I'm starting to wonder if another allergy might be the cause.

My shortness of breath is connected to my Hashimoto’s diagnosis….and gluten makes it 1000x worse. I didn’t notice the connection until I stopped gluten completely….I never eat it intentionally. About 2 weeks post gluten-free, one of the many improvements in how I felt was getting rid of SOB. My endo and I speculate that gluten exacerbates my Hashimoto’s inflammation and specifically, causes inflammation in my diaphragm or my intracostal muscles. What I know for sure? No gluten = no SOB. 

[knitty kitty]

@LeighENC,

This article discusses Hashimoto's and thiamine ...

https://thyroidpharmacist.com/articles/thiamine-and-thyroid-fatigue/

This article explains how a high carbohydrate diet can deplete thiamine...removing gluten containing carbs would leave more thiamine available for improvement in health conditions like shortness of breath...

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8533683/

This article explains how thiamine deficiency can cause inflammation in intercostal muscles....

[PDF] Thoracic Rib Cage Lesions Caused by Thiamin Deficiency - 

http://www.google.com/url?q=https://austinpublishinggroup.com/nutritional-disorders/fulltext/andt-v6-id1057.pdf&sa=U&ved=2ahUKEwjPm8XijuT8AhWkk2oFHStlBikQFnoECAcQAg&usg=AOvVaw3M33vinyA2_hmKcxgE8kvj

Share with your doctor...

Knowledge is power.

[Baz]

On 11/29/2022 at 1:42 AM, anjolen said:

I had this for years!! It was Vocal Cord Dysfunction, I was diagnosed a year ago and did vocal therapy with great results. It is not totally gone but something I manage, and when it recurs, I know what to do. My allergist sent me to a speech/vocal therapist for testing and treatment. It is wonderful to know that I'm not crazy and there was something to be done for it. Please message if you have any questions: it was literally life-changing to get this figured out

@anjolen I have been having the same breathing issue for a month now. 

 

I first noticed it in the evening after a lot of loud singing, would this be relevent in the conxect that it is Vocal Cord Dysfunction ?

[NoMoreBreadForMe]

Hey, i have been diagnosed with celiac disease recently (like 4 days ago), did a tTG-IGA test and got a result superior to 250 U/ml so yhea i don't really know how to react to this, i feel like i can't fully breath and need to take deep breath

 

Did the symptoms disappeared after going gluten-free ?

[Baz]

@NoMoreBreadForMe

I havent had my endoscopy yet so i havent gone gluten free yet. But i will let you know once i do, did this shortness of breath come soon before geting diagnosed with celiac or have they always been present ? 

[NoMoreBreadForMe]

48 minutes ago, Baz said:

@NoMoreBreadForMe

I havent had my endoscopy yet so i havent gone gluten free yet. But i will let you know once i do, did this shortness of breath come soon before geting diagnosed with celiac or have they always been present ? 

It was after i was diagnosed with celiac, i talked with a doctor friend of mine and he said that eating gluten may have caused that shortness of mine

[Baz]

@NoMoreBreadForMe

ah okay, well that’s reassuring. I hope it gets better when I go gluten free. Let me know how you get on too and whether this symptom fades. 

[NoMoreBreadForMe]

7 minutes ago, Baz said:

@NoMoreBreadForMe

ah okay, well that’s reassuring. I hope it gets better when I go gluten free. Let me know how you get on too and whether this symptom fades. 

Yes of course,

i will also ask my gastroenterologist some question about this (appointment in 5 days)

[Jordan23]

On 10/26/2009 at 12:16 PM, soulcurrent said:

My GI said he didn't think it was related, but I'm not convinced. When I was 19 I started noticing that I was often having to take deep breaths to feel like I was getting any air. Now at 25 I feel it all the time, every day, and it's more like I have to sigh or yawn in order to feel like my lungs are getting what they need. I know that I'm not suffocating but it's not a comfortable feeling. It's not exactly a chest tightness but it's similar. I've had the pulmonary function and asthma tests, even went to a cardiologist for a while to rule out any heart conditions. Everyone says my lungs are working great but I still feel like it's not getting any better. I did smoke for a long time but I quit a little over 2 years ago (2 years, 9 weeks, 0 days, 14 hours and 12 mins and saved $3,410.79.. .but who's counting?) but doctors have ruled out complications from that. They almost all default to anxiety because I have a prescription for Xanax but I can tell you that it happens all the time, regardless of feeling anxious.

 

Sound familiar to anyone, or should I keep looking? I'm starting to wonder if another allergy might be the cause.

I would stop Xanax. It will eat away at your DAO enzymes needed to break down histamine . No energy drinks will do the same. I use to have all reactions in stomach now it's changed and started in my chest , which completely sucks and bummed. Maybe your reacting to high histamine foods. But it's hard to avoid cross contamination.  I would get pea milk made by ripples .it's a blue bottle . Ru getting cross reactions? Corn gets me. If it says gluten free it's probably not. Nibble at new foods and wait for reactions. Could be sudden or take 2 hours but some people think it hits 2 days later no way. Avoid coffee. Stick to free range chicken and steak or fish . Do lentils package by kroger works for me it doesn't even say gluten free but works for me just rinse well. Make big soups with sweet potatoes, cauliflower,  brocoli,  cucumbers, and add lentils or cook lentils separate taste better. If you can do potatoes add those inn huge plus. If you can do dairy yogurt try Noosa or a certified gluten free one. Don't smoke I had to quit creates heat and acid in your stomach which lowers your vitamins to break food down. Your reactions are in your chest . Do smoothies everymorning with apple.  🥒 cucumbers, arugula , oranges or add what you can tolerate with water. Try a peppermint tea certified gluten free that works for you. Watch out for spices like turmeric they add flour fillers to prevent caring. I got hit hard by that.  If you have a huge attack get the pin or eat oranges quick. If quinoa works for you get certified huge plus. I could go on and on . Just nibble first wait and see then continue eating it.  It's hard to find nuts that work for you. Maybe try nuts.com..... enter with caution

[DayaInTheSun]

I had shortness of breath so much so I went to a lung doctor. I told him I get short of breath wirh certain foods, he said “Food doesn’t affect hour breathing.” I told him maybe it was an allergy  he cut me off then said “Food allergies don’t cause shortness of breathe.” I beg to differ as soon as I figured out what foods were causing my shortness of breath it went away. I also never saw him again as he was rude, condescending? And refuse to listen to me kept dismissing my problems as “you’re young.” I cut out Soy, dairy, sesame, eggs, and of course gluten. I stopped being short of breath, going on a two years now. No thanks to the doctor I saw. Figured it out on my own. 

 

[Baz]

@DayaInTheSun what were the shortness of breath symptoms for you ? And did they come on all of a sudden or was it a gradual increase in said symptoms?

[DayaInTheSun]

On 1/31/2025 at 2:29 PM, Baz said:

@DayaInTheSun what were the shortness of breath symptoms for you ? And did they come on all of a sudden or was it a gradual increase in said symptoms?

It was gradual, just not being able to catch my breathe like I always had to take a deep breathe even taking a few steps I would be winded.