Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Gluten Free Diet And Relief Of Chronic Joint Pain

schicker45

By schicker45
in Sports and Fitness

Recommended Posts

schicker45 Newbie
schicker45
Posted

Hi,

I was diagnosed at the end of August and have started the gluten free diet on August 18th (about 2 months on the diet). I had thyroid cancer which may or may not be related to my celiac disease other then that my worst problems have been fatigue and joint pain. Since starting the diet I have experienced a huge improvement for the fatigue but the joint pain is still be unbareable. I take a steady dose of Lodene (anti-inflamatory) help manage the pain. I love playing hockey and the continued pain is very discourageing. I'm trying to be patient and and stay positive. If you have had a similiar experience to mine, how long did it take for your joint pain to improve?

Thanks,

Steve

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


dilettantesteph Collaborator
dilettantesteph
Posted

My joint pain improved - went away, but it took a long while. I can't remember exactly how long anymore. It's been two years now. Hang in there.

Wolicki Enthusiast
Wolicki
Posted

I had chronic joint pain, to the pornt wheres ometimes it hurt too much to get out of bed. I had immediate improvement(within a couple of days). iT's much better now at 4 months gluten-free, but it still hurts some. A contact sport like Hockey can really put a lot of pressure on your joints. Perhaps you could do something else for a bit til you improve more?

Shess0816 Apprentice
Shess0816
Posted
Hi,

I was diagnosed at the end of August and have started the gluten free diet on August 18th (about 2 months on the diet). I had thyroid cancer which may or may not be related to my celiac disease other then that my worst problems have been fatigue and joint pain. Since starting the diet I have experienced a huge improvement for the fatigue but the joint pain is still be unbareable. I take a steady dose of Lodene (anti-inflamatory) help manage the pain. I love playing hockey and the continued pain is very discourageing. I'm trying to be patient and and stay positive. If you have had a similiar experience to mine, how long did it take for your joint pain to improve?

Thanks,

Steve

Hello. I used to have horrible joint pain all the time. It was almost to the point sometimes where I could hardly walk or use my hands to do anything because it just hurt so bad to put any pressure at all on them. I would just lay awake in bed a lot of nights just crying because my knees and shoulders and wrists and fingers and ankles hurt so bad. I know exactly how you feel with that. After starting the gluten free diet (March 2009) I did notice a little improvement almost within a week. Then it kind of plateued and I was still experiencing a lot of pain probably 5 days a week or so. Now that I've been on the gluten free diet for almost 8 months now, I would say I only have one of those extreme pain episodes maybe once a month, if that. I haven't had one for over a month now. The last one I had was because I accidently glutened myself. Just so you know, though, the couple times I have accidently ingested gluten since going gluten free, the first three things I notice with my reaction to the gluten is 1) headache 2) brain fog 3) my joints start aching...(then comes all the fun stomach pain and other issues....). But, it DEFINITELY got better for me. It took months of diligently following the gluten free diet, but I can clearly tell a difference. Hopefully you start noticing also!

Fiddle-Faddle Community Regular
Fiddle-Faddle
Posted

Many people with rheumatoid arthritis react not only to gluten but to dairy: Open Original Shared Link

In addition, many celiacs find that their intestines do not heal until they stop consuming dairy as well as gluten. Apparently, the casein (the protein in dairy products) irritate the damaged villi (which are supposed to produce lactase, the enzyme that digests lactose, the sugar in milk), and then the damaged villi don't heal.

schicker45 Newbie
schicker45
Posted
  • Author
Hello. I used to have horrible joint pain all the time. It was almost to the point sometimes where I could hardly walk or use my hands to do anything because it just hurt so bad to put any pressure at all on them. I would just lay awake in bed a lot of nights just crying because my knees and shoulders and wrists and fingers and ankles hurt so bad. I know exactly how you feel with that. After starting the gluten free diet (March 2009) I did notice a little improvement almost within a week. Then it kind of plateued and I was still experiencing a lot of pain probably 5 days a week or so. Now that I've been on the gluten free diet for almost 8 months now, I would say I only have one of those extreme pain episodes maybe once a month, if that. I haven't had one for over a month now. The last one I had was because I accidently glutened myself. Just so you know, though, the couple times I have accidently ingested gluten since going gluten free, the first three things I notice with my reaction to the gluten is 1) headache 2) brain fog 3) my joints start aching...(then comes all the fun stomach pain and other issues....). But, it DEFINITELY got better for me. It took months of diligently following the gluten free diet, but I can clearly tell a difference. Hopefully you start noticing also!

Thanks... For giving me an idea of what to expect. Hopefully, my body reacts similiarly to yours as if it's another 3-4 months the end is in sight.

Swimmr Contributor
Swimmr
Posted
Hi,

I was diagnosed at the end of August and have started the gluten free diet on August 18th (about 2 months on the diet). I had thyroid cancer which may or may not be related to my celiac disease other then that my worst problems have been fatigue and joint pain. Since starting the diet I have experienced a huge improvement for the fatigue but the joint pain is still be unbareable. I take a steady dose of Lodene (anti-inflamatory) help manage the pain. I love playing hockey and the continued pain is very discourageing. I'm trying to be patient and and stay positive. If you have had a similiar experience to mine, how long did it take for your joint pain to improve?

Thanks,

Steve

I recently posted on a similar subject.

Started in 08 with an unexplained pain ON my knee, or rather on the bone it seemed. Very weird and was gone the next day.

Then the next one was my elbow.

Next it was my right hip just like 4 months ago and appeared overnight and so intense I fell to the floor when I got out of bed and cried. I could put NO pressure at all on my right leg all day long. I don't cry from pain unless I'm really hurt. I took an anti-inflammatory which made the constant pains subside...the only pain I would feel is if I had to walk or lay or move my leg.

Then I had it in my neck. It hurt SOOOO bad.

Then again in my hip. I was thinking it was migratory arthritis which is arthritis that literally migrates from one joint to the next. But since I have been MORE careful in my food intake I've had no more painful joint issues.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


GFinDC Veteran
GFinDC
Posted

So Steve, do still have your thyroid? I have a few thyroid issues and earlier this year found my joints were aching/sore. I ended up taking thyroid pills and my sore joints got a better after a little while. Hypothyroid can cause joint pain per the Mayo Clinic dudes:

Open Original Shared Link

schicker45 Newbie
schicker45
Posted
  • Author
So Steve, do still have your thyroid? I have a few thyroid issues and earlier this year found my joints were aching/sore. I ended up taking thyroid pills and my sore joints got a better after a little while. Hypothyroid can cause joint pain per the Mayo Clinic dudes:

Open Original Shared Link

Thyroid gland has been completely removed... Don't think it's thyroid related.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,143
    • Most Online (within 30 mins)
      7,748
    Tracy Williams
    Newest Member
    Tracy Williams
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • trents
      Headaches / Migraines and Hypoglycaemia

      By trents · Posted

      My migraines generally have their onset during the early morning hours as well. Presently, I am under siege with them, having headaches all but two days so far this month. I have looked at all the things reported to be common triggers (foods, sleep patterns, weather patterns, stress, etc.). Every time I think I start to see a pattern it proves not to pan out in the long run. I'm not sure it's any one thing but may, instead, be a combination of things that coalesce at certain times. It's very frustrating. The medication (sumatriptan or "Imatrix") is effective and is the only thing that will quell the pain. NSAIDs, Tylenol, even hydrocodone doesn't touch it. But they only give you 9 does of sumatriptan a month. And it doesn't help that medical science doesn't really know what causes migraines. They know some things about it but the root cause is still a mystery.
    • Scott Adams
      Tamale ingredients

      By Scott Adams · Posted

      These are labeled gluten-free: https://www.amazon.com/Corn-Husks-Tamales-Authentic-Flavorful/dp/B01MDSHUTM/
    • Wheatwacked
      GI DX celiac despite neg serology and no biopsy

      By Wheatwacked · Posted

      Just a gluten free diet is not enough.  Now you have to identify and replenish your malnutrition.  Celiac disease is co-morbid with malabsorption syndrome.  Low vitamin D, Low Thiamine caused Gastointeston Beriberi, low choline, low iodine are common the general population, and in newly diagnosed Celiacs in the western culture its is more likely.  It takes time to heal and you need to focus on vitamins and minerals.  Gluten free foods are not fortified like regular processed foods.  
    • Sarah Grace
      Headaches / Migraines and Hypoglycaemia

      By Sarah Grace · Posted

      Dear Kitty Since March I have been following your recommendations regarding vitamins to assist with various issues that I have been experiencing.  To recap, I am aged 68 and was late diagnosed with Celiac about 12 years ago.  I had been experiencing terrible early morning headaches which I had self diagnosed as hypoglycaemia.  I also mentioned that I had issues with insomnia, vertigo and brain fog.   It's now one year since I started on the Benfotiamine 600 mg/day.  I am still experiencing the hypoglycaemia and it's not really possible to say for sure whether the Benfotiamine is helpful.  In March this year, I added B-Complex Thiamine Hydrochloride and Magnesium L-Threonate on a daily basis, and I am now confident to report that the insomnia and vertigo and brain fog have all improved!!  So, very many thanks for your very helpful advice. I am now less confident that the early morning headaches are caused by hypoglycaemia, as even foods with a zero a GI rating (cheese, nuts, etc) can cause really server headaches, which sometimes require migraine medication in order to get rid off.  If you are able to suggest any other treatment I would definitely give it a try, as these headaches are a terrible burden.  Doctors in the UK have very limited knowledge concerning dietary issues, and I do not know how to get reliable advice from them. Best regards,
    • knitty kitty
      High DGP-A with normal IGA

      By knitty kitty · Posted

      @rei.b,  I understand how frustrating starting a new way of eating can be.  I tried all sorts of gluten-free processed foods and just kept feeling worse.  My health didn't improve until I started the low histamine AIP diet.  It makes a big difference.   Gluten fits into opioid receptors in our bodies.  So, removing gluten can cause withdrawal symptoms and reveals the underlying discomfort.  SIBO can cause digestive symptoms.  SIBO can prevent vitamins from being absorbed by the intestines.  Thiamine insufficiency causes Gastrointestinal Beriberi (bloating, abdominal pain, nausea, diarrhea or constipation).  Thiamine is the B vitamin that runs out first because it can only be stored for two weeks.  We need more thiamine when we're sick or under emotional stress.  Gastric Beriberi is under recognised by doctors.  An Erythrocyte Transketolace Activity test is more accurate than a blood test for thiamine deficiency, but the best way to see if you're low in thiamine is to take it and look for health improvement.  Don't take Thiamine Mononitrate because the body can't utilize it well.  Try Benfotiamine.  Thiamine is water soluble, nontoxic and safe even at high doses.  I thought it was crazy, too, but simple vitamins and minerals are important.  The eight B vitamins work together, so a B Complex, Benfotiamine,  magnesium and Vitamin D really helped get my body to start healing, along with the AIP diet.  Once you heal, you add foods back in, so the AIP diet is worth doing for a few months. I do hope you'll consider the AIP diet and Benfotiamine.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.