Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Some Interesting Things About B 12


Wolicki

Recommended Posts

Wolicki Enthusiast

So,I started having neuropathy pains about 2 months ago, after going gluten-free. THe doctors ruled out most causes, and said it "couldn't possibly" be due to b12 deficiency, because mine was at 450 ish. Well, thanks to my "team of doctors" through the internet, I found out via blood tests that my Methylmalmonic acid (I hope I spelled that right) is high, and that is an indicator that my body is not handling the B 12 properly. So, even though my levels are "normal" it's not getting everywhere it needs to be to prevent the neuro symptoms. I upped my sublingual B12 to 2000mcg per day, and after 2 days, I can already feel a difference in the neuropathy. They said it's probably due to Celiac. So, if you have similar issues, you may want to look into the MMA connection to B12.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ang1e0251 Contributor

Thanks for the feedback! B12 helped me a lot!

soulcurrent Explorer

Taking B12 keeps me from having restless legs at night. :D

Wolicki Enthusiast

For anyone who is taking B12 and had neuropathy, how long did it take to go away completely?

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      130,054
    • Most Online (within 30 mins)
      7,748

    Cathy246
    Newest Member
    Cathy246
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.3k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      It seems crazy to me that even when you call a manufacturer they can't, in this day and age, answer the simple question about what exactly is in their product!!
    • Stephanie Wakeman
      Thank you so much for your response! It's been a challenging journey with this condition! 
    • milana
      Thank you very much for your response. Since I got this advice I called Pepsid manufacturer and they could not give a definite answer. Basically,  there is no final testing and they do not guarantee anything. So I went and got farmotidine from Wagmans that was marked gluten-free and also our pediatrician gave us a prescription for farmotidine that was also gluten-free. So there are other options there thankfully. In case someone will come across of this dilemma.
    • Diana Swales
      A nutritionist typically focuses on general wellness, lifestyle guidance, and preventative health. A dietician allowed to provide medical nutrition therapy. When i was diagnosed there was zero support and few dieticians and Dr understood celiac disease.  I typically guide a newly diagnosed celiac to a whole food diet to easily transition to the gluten free lifestyle  
    • Scott Adams
      Your gluten-free journey sounds like a lot of trial and error—especially working in a deli where gluten exposure is constant! The eye-watering issue could be an airborne gluten sensitivity (like flour dust irritating your eyes) or even a mild wheat allergy, since you’re around it daily. A daily antihistamine (like Claritin or Zyrtec) might help if it’s allergy-related, but avoiding airborne gluten as much as possible (masking, washing hands/face often) is key. It’s great you’re tracking triggers—high-fiber foods and certain gluten-free substitutes (like those tortillas or PB pretzels) can sometimes cause similar symptoms due to additives or digestive adjustments. For travel, pack safe snacks (protein bars, nuts) and research gluten-free translation cards for Aruba. On flights, opt for packaged gluten-free meals or eat beforehand. Many gluten-free foods and baking mixes contain xanthan gum or other gums like guar gum. Although they are both gluten-free, they may cause IBS-type issues in some people with celiac disease or gluten sensitivity:   You’re doing all the right prep—trust your research and enjoy your trips! 
×
×
  • Create New...