Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Hair Loss

Brittany2

By Brittany2
in Related Issues & Disorders

Recommended Posts

Brittany2 Apprentice
Brittany2
Posted

Hello,

I've had an itchy scalp since a younger age, but its never been so much of a problem until this past year, especially back in March when I realized my hair was falling out! Has anyone else had this same occurrence, I know hair loss is a symptom, but out of curiosity, in what ways did yours manifest?

Thanks! Best to you!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


ravenwoodglass Mentor
ravenwoodglass
Posted

Just like you. Usually my scalp will itch, although only in the back for some reason. Even a small amount of gluten or for me soy also, will cause this. I also have to be very careful what shampoos etc I use on my hair. It has taken me a long time to find a safe shampoo but I now use Shikai, which seems to work well with no itchyness or hair loss. Something that has also helped stop the hair loss is taking the Stress vitamins which are high in B's and also an additional one with biotin. I have seen regrowth and the hair shaft itself is thicker near the roots.

There is also a vitamin mixed with chinese herbs that I used for a while which seemed to work well called Bao Shi 'I think that is the name but not sure' but after my soy intolerance came to the forefront I had to stop using because one of the herbs is processed with soy. Do NOT use Rogaine without checking first, unless they changed the formula recently it has wheat protein in it.

beanpot Apprentice
beanpot
Posted

I also have had an itchy scalp on and off for many years. didn't know that it was related to gluten but it makes sense. Not shampooing too much seems to help when I get flakes. I've been assuming its dandruff mostly and using Head and Shoulders. Had some stress-related hair loss years ago. I think Omega 3 oils help too.

  • 2 weeks later...
khennigan1 Newbie
khennigan1
Posted

hi!

could you tell me the brand names of the vitamins you took to help your hair? i'm having horrible problems with mine falling out/not growing and i'm desperate to fix it! also, i've been having itchy scalp too... does that mean i've eaten gluten?

Just like you. Usually my scalp will itch, although only in the back for some reason. Even a small amount of gluten or for me soy also, will cause this. I also have to be very careful what shampoos etc I use on my hair. It has taken me a long time to find a safe shampoo but I now use Shikai, which seems to work well with no itchyness or hair loss. Something that has also helped stop the hair loss is taking the Stress vitamins which are high in B's and also an additional one with biotin. I have seen regrowth and the hair shaft itself is thicker near the roots.

There is also a vitamin mixed with chinese herbs that I used for a while which seemed to work well called Bao Shi 'I think that is the name but not sure' but after my soy intolerance came to the forefront I had to stop using because one of the herbs is processed with soy. Do NOT use Rogaine without checking first, unless they changed the formula recently it has wheat protein in it.

DebNC84 Apprentice
DebNC84
Posted
Hello,

I've had an itchy scalp since a younger age, but its never been so much of a problem until this past year, especially back in March when I realized my hair was falling out! Has anyone else had this same occurrence, I know hair loss is a symptom, but out of curiosity, in what ways did yours manifest?

Thanks! Best to you!

i have issues with a itchy scalp and hair loss! I also have DH - do you? my itchy scalp seems to be aggravated by sweating.. like wearing a cap in the summer while outside makes me sweat and then comes the itch... washing my hair helps relieve the itch. I have read that increasing water intake during this time may help - My hair loss occurs each time i get glutened significantly - it seems.. handfuls come out while washing my hair - it's depressing to me.. I have long hair and know that it will be "forever" for that hair to grow back and be long again. Yes it does grow back .. at my forehead.. i see the new hair growth.. looks like thin bangs... sigh. Just have to quit taking chances with food. I do great at the house but then I will try to eat out and something always happens.

I have recently gone soy free - as well. Come to find out - soy has enzymes that block the absorption of many vitamins and minerals.. like anyone with celiac disease really needs that!

ravenwoodglass Mentor
ravenwoodglass
Posted
hi!

could you tell me the brand names of the vitamins you took to help your hair? i'm having horrible problems with mine falling out/not growing and i'm desperate to fix it! also, i've been having itchy scalp too... does that mean i've eaten gluten?

I generally buy Country Life, they have one mix that is specially for skin and hair that I have used for a long time. You should also check you shampoos and such for gluten ingredients as well.

sickchick Community Regular
sickchick
Posted

I began having hair 'shedding' in summer 2006. I wasn't diagnosed until Oct 2007. For me, I have scalp pain, sensitivity and hairloss. I had very thick hair and I have 1/4 of the hair I had.

getting thin. I also have cracks in the corners of my mouth (iron deficiency) so I think iron is a contributing factor for sure. I am going to have my iron lvels checked very soon.

good luck, Doll! B)

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Brittany2 Apprentice
Brittany2
Posted
  • Author

Hi all! :D Thanks for the replies. Luckily I've had a gluten free shampoo on hand that my grandma sent to me awhile ago, hoping the natural product would help my head.

Its Desert Essence Organics, I use the Volumizing Apple one specifically but I'm sure there are others. It specifically states gluten free on the back. It's been helping, my heads less itchy and irritated, I only scratch if I'm stressed, or dairy seems to also aggravate it.

For vitamins, my dermatologist recommended biotin and biosil, they said it doesn't make it grow faster or anything but makes it stronger and thicker when it grows, biosil is harder to find but Vitamin shops carry it, I know they've listed their product as gluten free as well, I'm not sure about the biotin yet, but I'm about to look into it soon. Hope that helps.

Felidae Enthusiast
Felidae
Posted

Very interesting topic. My scalp has been so itchy for the past year. It's not from gluten. I've tried many different shampoos without any great success. My hair is thinning at a faster rate for the past year also. It really sucks having a flaking scalp and thinning hair!

one more mile Contributor
one more mile
Posted

My massive hair loss was due to and underactive thyroid. If you are chilly more then usualy, or gaining weight please as your regular doctor to check it.

  • 1 month later...
clarkje20 Newbie
clarkje20
Posted

I began having hair 'shedding' in summer 2006. I wasn't diagnosed until Oct 2007. For me, I have scalp pain, sensitivity and hairloss. I had very thick hair and I have 1/4 of the hair I had.

getting thin. I also have cracks in the corners of my mouth (iron deficiency) so I think iron is a contributing factor for sure. I am going to have my iron lvels checked very soon.

good luck, Doll! B)

Your issues sound JUST like mine...Uggggg...I have low iron levels, but I take iron supplements 3 pills a day. Is your hair growing back?

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. knitty kitty
      - knitty kitty replied to Sarah Grace's topic in Related Issues & Disorders
      25

      Headaches / Migraines and Hypoglycaemia

      Excessive dietary tyrosine can cause problems. Everything in moderation. Sulfites can also trigger migraines. Sulfites are found in fermented, pickled and aged foods, like cheese. Sulfites cause a high histamine release. High histamine levels are found in migraine. Following a low histamine diet like the low histamine Autoimmune Protocol diet,...
    2. trents
      - trents replied to Sarah Grace's topic in Related Issues & Disorders
      25

      Headaches / Migraines and Hypoglycaemia

      Then we would need to cut out all meat and fish as they are richer sources of tyrosine than nuts and cheese. Something else about certain tyrosine rich foods must be the actual culprit.
    3. Scott Adams
      - Scott Adams replied to Russ H's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      KAN-101 Treatment for Coeliac Disease

      I agree that KAN-101 looks promising, and hope the fast track is approved. From our article below: "KAN-101 shows promise as an immune tolerance therapy aiming to retrain the immune system, potentially allowing safe gluten exposure in the future, but more clinical data is needed to confirm long-term effects."
    4. Scott Adams
      - Scott Adams replied to miguel54b's topic in Related Issues & Disorders
      1

      Body dysmorphia experience

      Thank you so much for having the courage to share this incredibly vivid and personal experience; it's a powerful reminder of how physical ailments can disrupt our fundamental sense of self. What you're describing sounds less like a purely psychological body dysmorphia and more like a distinct neurological event, likely triggered by the immense physical stress...
    5. Scott Adams
      - Scott Adams replied to Colleen H's topic in Related Issues & Disorders
      2

      Heat intolerant... Yikes

      The most common nutrient deficiencies associated with celiac disease that may lead to testing for the condition include iron, vitamin D, folate (vitamin B9), vitamin B12, calcium, zinc, and magnesium. Unfortunately many doctors, including my own doctor at the time, don't do extensive follow up testing for a broad range of nutrient deficiencies, nor recommend...
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,151
    • Most Online (within 30 mins)
      7,748
    Travis25
    Newest Member
    Travis25
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • knitty kitty
      Headaches / Migraines and Hypoglycaemia

      By knitty kitty · Posted

      Excessive dietary tyrosine can cause problems.  Everything in moderation.   Sulfites can also trigger migraines. Sulfites are found in fermented, pickled and aged foods, like cheese.  Sulfites cause a high histamine release.  High histamine levels are found in migraine.  Following a low histamine diet like the low histamine Autoimmune Protocol diet, a Paleo diet, helps immensely.    Sulfites and other migraine trigger foods can cause changes in the gut microbiome.  These bad bacteria can increase the incidence of migraines, increasing histamine and inflammation leading to increased gut permeability (leaky gut), SIBO, and higher systemic inflammation.   A Ketogenic diet can reduce the incidence of migraine.  A Paleo diet like the AIP diet, that restricts carbohydrates (like from starchy vegetables) becomes a ketogenic diet.  This diet also changes the microbiome, eliminating the bad bacteria and SIBO that cause an increase in histamine, inflammation and migraine.  Fewer bad bacteria reduces inflammation, lowers migraine frequency, and improves leaky gut. Since I started following the low histamine ketogenic AIP paleo diet, I rarely get migraine.  Yes, I do eat carbs occasionally now, rice or potato, but still no migraines.  Feed your body right, feed your intestinal bacteria right, you'll feel better.  Good intestinal bacteria actually make your mental health better, too.  I had to decide to change my diet drastically in order to feel better all the time, not just to satisfy my taste buds.  I chose to eat so I would feel better all the time.  I do like dark chocolate (a migraine trigger), but now I can indulge occasionally without a migraine after.   Microbiota alterations are related to migraine food triggers and inflammatory markers in chronic migraine patients with medication overuse headache https://pmc.ncbi.nlm.nih.gov/articles/PMC11546420/  
    • trents
      Headaches / Migraines and Hypoglycaemia

      By trents · Posted

      Then we would need to cut out all meat and fish as they are richer sources of tyrosine than nuts and cheese. Something else about certain tyrosine rich foods must be the actual culprit. 
    • Scott Adams
      KAN-101 Treatment for Coeliac Disease

      By Scott Adams · Posted

      I agree that KAN-101 looks promising, and hope the fast track is approved. From our article below: "KAN-101 shows promise as an immune tolerance therapy aiming to retrain the immune system, potentially allowing safe gluten exposure in the future, but more clinical data is needed to confirm long-term effects."  
    • Scott Adams
      Body dysmorphia experience

      By Scott Adams · Posted

      Thank you so much for having the courage to share this incredibly vivid and personal experience; it's a powerful reminder of how physical ailments can disrupt our fundamental sense of self. What you're describing sounds less like a purely psychological body dysmorphia and more like a distinct neurological event, likely triggered by the immense physical stress and inflammation that uncontrolled celiac disease can inflict on the entire body, including the nervous system. It makes complete sense that the specific sensory input—the pressure points of your elbows on your knees—created a temporary, distorted body map in your brain, and the fact that it ceased once you adopted a gluten-free diet is a crucial detail. Your intuition to document this is absolutely right; it's not "crazy" but rather a significant anecdotal data point that underscores the mysterious and far-reaching ways gluten can affect individuals. Your theory about sensory triggers from the feet for others is also a thoughtful insight, and sharing this story could indeed be validating for others who have had similar, unexplainable sensory disturbances, helping them feel less alone in their journey.
    • Scott Adams
      Heat intolerant... Yikes

      By Scott Adams · Posted

      The most common nutrient deficiencies associated with celiac disease that may lead to testing for the condition include iron, vitamin D, folate (vitamin B9), vitamin B12, calcium, zinc, and magnesium.  Unfortunately many doctors, including my own doctor at the time, don't do extensive follow up testing for a broad range of nutrient deficiencies, nor recommend that those just diagnosed with celiac disease take a broad spectrum vitamin/mineral supplement, which would greatly benefit most, if not all, newly diagnosed celiacs. Because of this it took me decades to overcome a few long-standing issues I had that were associated with gluten ataxia, for example numbness and tingling in my feet, and muscle knots--especially in my shoulders an neck. Only long term extensive supplementation has helped me to resolve these issues.      
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.