Home Tests

[KahleFamily]

I have completely taken gluten, dairy, eggs and soy out of my diet after a "You may have Celiac Disease" diagnosis. Let me tell you, I feel MUCH better since then. Most of my problems have all but completely vanished.

The problem is that my husband doesn't have gluten problems, and my kids are not diagnosed with having them either. My husband LOVES premade, easy to do type cooking, (You know the kind that is terrible for anyone ESPECIALLY gluten intollerant people) and my kids show signs of Celiac Disease, especialy my son who is tiny for his age and gets tummy aches and even heartburn (he is 5). My daughter has a constant rash which causes her doctor to just shrug and say "I don't know what it is, put some diaper rash cream on it" and she shows signs of celiac as well. I can't convince my husband that it is better to spend the extra time and money to completely redo my family's diet. I believe the only way to do so is to test my children.

Also, after speaking to my son's school, it sounds like they will not accommodate a gluten-free diet unless the child is confirmed to have an intollerance. Otherwise they just think of it as a personal preference, the parents wanting their kids to be treated special.

Are there any at home tests that are credible? I have heard of a few different ones, like enterolab. Is it worth looking into?

[iamgf]

I have completely taken gluten, dairy, eggs and soy out of my diet after a "You may have Celiac Disease" diagnosis. Let me tell you, I feel MUCH better since then. Most of my problems have all but completely vanished.

The problem is that my husband doesn't have gluten problems, and my kids are not diagnosed with having them either. My husband LOVES premade, easy to do type cooking, (You know the kind that is terrible for anyone ESPECIALLY gluten intollerant people) and my kids show signs of Celiac Disease, especialy my son who is tiny for his age and gets tummy aches and even heartburn (he is 5). My daughter has a constant rash which causes her doctor to just shrug and say "I don't know what it is, put some diaper rash cream on it" and she shows signs of celiac as well. I can't convince my husband that it is better to spend the extra time and money to completely redo my family's diet. I believe the only way to do so is to test my children.

Also, after speaking to my son's school, it sounds like they will not accommodate a gluten-free diet unless the child is confirmed to have an intollerance. Otherwise they just think of it as a personal preference, the parents wanting their kids to be treated special.

Are there any at home tests that are credible? I have heard of a few different ones, like enterolab. Is it worth looking into?

As far as Enterolab is concerned ... my older sister was considering the Enterolab testing for her three girls (because Celiac blood tests can produce false negatives) and after a tiny bit of research and talking with families who have used Enterolab, she believes it to be more accurate than blood testing. However, due to cost she did not do the Enterolab testing. That is the extent of the information I can provide on Enterolab.

You should know that your husbands resistance is not uncommon. Even the traditional, medically accepted method of Celiac diagnosis (blood testing and endoscopy for intestinal biopsy) might not be the driving force for his acceptance to change that you are hoping for. It is, after all, a life-long dedication to living gluten-free, and regardless of how you manage it at home it will affect him when you eat out and travel. This is not to say I support or agree with his position, just that I understand where it comes from, have dealt with this issue myself (with various loved ones) and believe it seldom comes from a lack of love.

Out of curiosity ...

1) Have you been tested for Open Original Shared Link or did you work with your Doctor on following an Open Original Shared Link?

2) Is your pediatrician unwilling to test the kids for Celiac, or are you hoping to avoid doing blood draws on the kids?

3) Who does most of the cooking at home?

[KahleFamily]

As far as Enterolab is concerned ... my older sister was considering the Enterolab testing for her three girls (because Celiac blood tests can produce false negatives) and after a tiny bit of research and talking with families who have used Enterolab, she believes it to be more accurate than blood testing. However, due to cost she did not do the Enterolab testing. That is the extent of the information I can provide on Enterolab.

You should know that your husbands resistance is not uncommon. Even the traditional, medically accepted method of Celiac diagnosis (blood testing and endoscopy for intestinal biopsy) might not be the driving force for his acceptance to change that you are hoping for. It is, after all, a life-long dedication to living gluten-free, and regardless of how you manage it at home it will affect him when you eat out and travel. This is not to say I support or agree with his position, just that I understand where it comes from, have dealt with this issue myself (with various loved ones) and believe it seldom comes from a lack of love.

Out of curiosity ...

1) Have you been tested for Open Original Shared Link or did you work with your Doctor on following an Open Original Shared Link?

2) Is your pediatrician unwilling to test the kids for Celiac, or are you hoping to avoid doing blood draws on the kids?

3) Who does most of the cooking at home?

I have not been tested for Celiac Disease, for many reasons. I am the only one currently working, and I do not have insurance. I had already been tested for lots of other "more immediate" things (thindgs that could hospitalize me). I wa spending so much money on myself, I couldn't bare it anymore. My doctor suggested it may be Celiac Disease, and told me to try the elimination diet.

My kids have been through many doctors, I have not found one willing to test the thory that my kids may haveany gluten intollerance (one, however called social services on me because my son is small).

I cook a big dinner every night when I get home which usually gets served for lunch the next day. My husband was laid off, so he does the breakfast and lunch.