Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

How Long Before I Can Do Things Again

NathanFS

Recommended Posts

NathanFS Newbie
NathanFS
Posted

Well I was diagnosed with gluten intolerance two weeks ago, the first week I ate as strictly gluten free as possible and I can only think of two times I made a mistake. The second week I have checked every label, gone to websites, checked the labels again. I don't know what I could possibly be doing wrong but I still am sleeping for 14 hours and when I am awake I have unbearable abdominal pain and muscle tightness. I want to be able to do things but I am so fatigued and have no energy. Is there anything I can do? How long was it before you started feeling normal again?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Lisa Mentor
Lisa
Posted

Hi Nathan and welcome!

Everyone is different so there is no specific answer to your question. I would keep a food diary and document everything you eat, to include meds, vitamins, toilettress, lotions...in other words, anything that can get into your mouth.

Eat simply. Fish, meat, rice, potato, fresh veggies in the simplest way are your friends. When you feel comfortable, add a little at a time.

Once you get over the hump, it's a lot easier. This is a great place to learn...take a walk around.

Wolicki Enthusiast
Wolicki
Posted

Have you had all your vitamins and minerals checked? I got much better faster when I started supplements for the things I was low on. You should test A, all the B's, D, Ferritin, magnesium, calcium, zinc to make sure your levels are up.

sunnybabi1986 Contributor
sunnybabi1986
Posted

I also wanted to chime in about the vitamin/mineral deficiencies. I'm getting checked this week and I suspect I'm deficient in several, due to my extremely low energy level.

I did read that deficiency in Vitamin D can cause stomach pain and muscle weakness/aches. Iron or B deficiency can cause fatigue. Get those checked out and see if you need to be supplementing. Good luck! Let us know how it goes!

Janie

redsidekick Apprentice
redsidekick
Posted

Sadly, it is different for each person. I know I used to get depressed reading how quickly some people felt better. That was not the case for me. Maybe it was because Im older (42), I dont know. I can tell you things improved each month, when I looked at improvement like that, instead of daily, I could see the difference even though I still felt horrible. It has now been nine months since going gluten free, around the seventh things got noticeably better, and now nine months in I still have some bad feelings, but nothing like it was in March. Hope that helps to encourage you.

sadeew Newbie
sadeew
Posted

Hi Nathan~

It was 2 weeks before I noticed improvement and another week before I felt like I was really feeling better.

Be patient. It is different for everyone becasue we all have different degrees of damage. Age, diet, health, etc. all play an important role.

Drink LOTS of water to help your body and make smoothies with good nutrition in them so you are giving yoru body what it needs to heal.

Probiotics are super important, too, especially if you have gut pain. I take PB8 - 4 caps 3x's/day.

Korwyn Explorer
Korwyn
Posted
Well I was diagnosed with gluten intolerance two weeks ago, the first week I ate as strictly gluten free as possible and I can only think of two times I made a mistake. The second week I have checked every label, gone to websites, checked the labels again. I don't know what I could possibly be doing wrong but I still am sleeping for 14 hours and when I am awake I have unbearable abdominal pain and muscle tightness. I want to be able to do things but I am so fatigued and have no energy. Is there anything I can do? How long was it before you started feeling normal again?

Hi Nathan. Several people posted here but I want to re-iterate, get your vitamin levels checked! D, B, K, A, E, Iron levels, etc. It is VERY rare to find someone with Celiac who doesn't have some type of deficiency, and if you have been diagnosed as gluten-intolerant, it is possible you actually have Celiac disease. There is also some substantial research showing that non-gene mediated gluten intolerance can still lead to systemic inflammatory response and nutrient issues.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Borky
      - Borky posted a topic in Dermatitis Herpetiformis
      0

      Gluten food test strips

      I just recently saw something on this. Has anyone tried test strips? Which brand is better? Not sure how they really work and if they really do work. Thank you, Nancy (aka Borky)
    2. Wheatwacked
      - Wheatwacked replied to Midwestern's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      17

      Gluten Issues and Vitamin D

      And more:
    3. Wheatwacked
      - Wheatwacked replied to Midwesteaglesfan's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Going for upper endoscopy today

      Hello @Midwesteaglesfan and welcome. A result greater than 10 U/mL is considered positive. Some labs use 15 as the cutoff, but 34 is in the positive. The endoscopy and biopsy is looking for damage to your small intestine. I don't don't think 5 days is enough to repair the damage. This comment is effectly your answer, regardless of your biopsy...
    4. Scott Adams
      0

      Gluten-Free Diet Burnout: Why It Happens and How to Get Your Motivation Back (+Video)

    5. Midwesteaglesfan
      - Midwesteaglesfan posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Going for upper endoscopy today

      At 41 years old I have been fighting fatigue and joint pain for a couple months. My family doctor kept saying nothing was wrong but I was insistent that I just didn’t feel right. Finally after running several blood labs, one came back showing inflammation in my body and I was referred to a rheumatologist. He was extremely thorough and sat with me and m...
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,268
    • Most Online (within 30 mins)
      7,748
    Cookie Monster13
    Newest Member
    Cookie Monster13
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Borky
      Gluten food test strips

      By Borky · Posted

      I just recently saw something on this.  Has anyone tried test strips?  Which brand is better?  Not sure how they really work and if they really do work.  Thank you, Nancy (aka Borky)
    • Wheatwacked
      Gluten Issues and Vitamin D

      By Wheatwacked · Posted

      And more:
    • Wheatwacked
      Going for upper endoscopy today

      By Wheatwacked · Posted

      Hello @Midwesteaglesfan and welcome. A result greater than 10 U/mL is considered positive. Some labs use 15 as the cutoff, but 34 is in the positive.  The endoscopy and biopsy is looking for damage to your small intestine.  I don't don't think 5 days is enough to repair the damage. This comment is effectly your answer, regardless of your biopsy results.  The endoscopy has been the Gold Standard diagnostic, and most healthcare providers won't diagnose celiac disease until your intestinal lining Marsh Score reaches stage 3. You don't really want to wait for the damage to get worse, especially since only five days mostly gluten free gave you relief.  Yes, migranes is one of the 200 symptoms that may be caused by Celiac Disease. Malabsorption Syndrome is often comorbid with celiac disease.  The western diet is deficient in many vitamins and minerals.  That's why gluten processed foods are fortified.  Gluten free processed foods are not; Vitamin D deficiency is a virtual given.  40 to 60% of the industrial population is deficient in vitamin D, Damage to the intestinal lining from celiac disease can decrease the number of vitamin D receptors.  So now you get no vitamin D from the sun (skin cancer scare) the major source of vitamin D, plus absorbtion from food is poor because of intestinal damage.   Low iodine intake is getting more of a concern because the major source of iodine used to be bread (dough conditioner with iodine was stopped in the US in the 1970s), dairy (lactose intolerance from eating quick pickles with vinegar instead of fermented pickles which supply lactase excreting lactobacillus to improve Lactose intolerance. Commercial Dairies have wheat, barley and rye added to the cow feed. Some say they are sensitive to milk protein, but it is the gluten added to supplement the cow feed to increase milk production that becomes part of the milk protein causing the problem.  And people use less iodized salt.  In the US intake of iodine dropped 50% from 1970 to 1984. Switch to Grass fed only milk and consider supplementing Liquid Iodine drops to your diet.  The omega 6 to omega 3 ratio of commercial milk is 5:1; Organic milk is 3:1 and grass fed milk is 1:1. The typical western diet is around 14:1, optimum for humans is 1:1.  Wheat flour is 22:1 omega 6:3.  Choose vegetables lower in omega 6, it is inflammatory. Eat fermented foods and switch to Grass fed only milk.  Some say they are sensitive to milk protein, but it is the gluten added to supplement the cow feed to increase milk production that becomes part of the milk protein.   
    • Midwesteaglesfan
      Going for upper endoscopy today

      By Midwesteaglesfan · Posted

      At 41 years old I have been fighting fatigue and joint pain for a couple months.  My family doctor kept saying nothing was wrong but I was insistent that I just didn’t feel right.  Finally after running several blood labs, one came back showing inflammation in my body and I was referred to a rheumatologist.  He was extremely thorough and sat with me and my family for a good hour asking questions and listening. He ordered X-rays of all my joints and more bloodwork.  He suspected some sort of reactive inflammatory arthritis.  My TTG (Tissue Transglutaminase) came back at 34. he told me to try going gluten free and out me on Salfasalzin to help the join inflammation.  Over the next couple days going gluten free and doing a lot of research and talking to people with celiacs,  we found that I should have an upper endoscopy for insurance purposes in the future.  I reached back out to my rheumatologist and expressed this concern and he got back to me stating I was correct and resume regular gluten diet and stop the medication until after that scope.     They were able to schedule me in for 2 days later.  I had been gluten free, or as close to it as I could be for about 5 days.  I know I ate some brats with it but wanted to use them up.  My symptoms had gotten slightly better in those 5 days.  I felt less fatigue and joint pain was slightly better(it had gotten really bad) so for these last 2 days I’ve gone crazy with wheat bread, pasta and such.  I’m hoping those 5 days didn’t screw this endoscopy up.  I can’t imagine after a life of gluten, my intestines healed in 5 days and after eating gluten again for these couple days,  my stomach hurts, joint pain is coming back up so I know the inflammation is there.   Hinesight after this diagnosis, I have had chronic migraines since my late teens.  Has that been a lingering symptom of celiacs all these years?  I’ve never really had the stomach issues, for me it came in heavy these last couple months as the fatigue, just always feeling tired and exhausted.  And the joint pain.     So getting in the car for the 2 hour drive to the hospital for this scope now.     Wish me luck!
    • marlene333
      Bee balm lipbalm not gluten free

      By marlene333 · Posted

      To play it safe, use Vasoline Lip Therapy. No questions as to it containing gluten.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.