Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Completely, Completely Overwhelmed :-(


Shess0816

Recommended Posts

Shess0816 Apprentice

I am just having a few days of self-pitying, so I was hoping you guys might understand where I'm coming from! I'm just so overwhelmed right now with everything! I've had such a tough year and I'm just ready for it to be over! Since January 2009 I have had pneumonia twice, strep throat twice, 3 other viral infections, an ovarian cyst, diagnosed with Celiac disease (which was a good thing actually), the flu three times, bronchitis, my asthma is getting worse, kidney stones, Fifths Disease, a few colds, and mono. It just seems like my body has not had enough time to recover from one thing before I'm hit with the next. It's just one thing after another, after another... I'm so tired, so worn out. My body is just screaming at me to just sleep for days and days and days at a time...but of course, I have to work full time! I'm so emotionally drained from all the doctors visits, tests, hospital visits, ER visits, labwork, missing work... It's just EXHAUSTING!!! In the month of November alone I had the flu for 5 days, kidney stones for a week and a half, and Fifths disease just this past week -- now I know Fifths disease isn't really a serious thing at all, but this rash ITCHES LIKE CRAZY!!!! I look like a dalmatian with pink spots!

I've started getting embarassed about the number of times I've been sick. I feel like I'm burdening my boyfriend with all my many illnesses. He's been wonderful about it all and has taken great care of me, but I still feel really bad about it all. I am sticking so strictly to the gluten free diet and pretty much all of my Celiac stomach symptoms have gone away -- and the joint pain, head fog...so I'm incredibly glad about that. I take vitamin supplements, eat tons of veggies and fruits. I don't eat red meat, hardly ever drink, and I don't smoke. But it's like my immune system realized it doesn't have to fight the Celiac anymore, so it decided to take a freaking vacation for a year!!!

I just really need some words of encouragement! Now yes, I realize it could be a TON TON worse! None of what I have could compare to some of the things some people on this board have to deal with on a daily basis, so in that sense, sorry for complaining! I'm just so overwhelmed and I feel like I'm an emotional breaking point with all these illnesses!

And not to mention the other emotional stressors -- mom is having some major blood pressure, diabetes issues. My parents divorced because my dad had an affair and he decided to leave the family to be with the other woman. Now he calls us or texts us to tell us how much better his life is now without us. Or the other thing he texts us about is whether we'll feel bad or sorry or feel like it's our fault when he decides to kill himself.... Those calls generally come during the middle of the night....

So anyway, thanks for listening!!!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



buffettbride Enthusiast

2009 has been tough all-around. I wish you the best in 2010 for a healthful recovery and that you can find some peace with your father (although, if he is so happy, why is he telling you he might kill himself??). Maybe you could meet with your dad and tell him how YOU feel about that. He sounds like a real attention-needer.

TrillumHunter Enthusiast

I hope that typing it all out helped some. You have had way more than the average person should have to deal within a very brief time. You're doing all the right things and you'll have to keep doing them until this passes. There aren't any easy answers during times like these. Be good to yourself, keep your head up, and have hope!

Don't be sorry for complaining; we all do it sometimes. It's necessary to keep from breaking down.\

You'll be okay. :)

ang1e0251 Contributor

You have had some major challenges! I know it is tough with all you're facing but keep plugging away every day. I've heard Royal Jelly is good for the immune system. I haven't taken it but what I have taken is honey and apple cider vinegar. When I was getting strep, I read about it's healing affects. I started taking twice a day and I've not had strep again.

You take a large spoon of honey and a large spoon of cider vinegar and stir it into a cup of hot water like a tea. Drink it down. Three times a day was recommended but I too worked full time so I did it two. If you feel something coming on, make a batch of it and sip it throughout your day. You can adjust the amount of honey and vinegar to your taste, I like it sweeter so I add extra honey.

Things will get better even though it's hard to believe when you are in the middle of a mess. What a great guy your boyfriend is!

Ahorsesoul Enthusiast

Glad to have you here where you can vent all you want. Scream and yell, I don't mind at all.

Please realize that you can not stop your father should he decide to attempt suicide. Encourage him to go see a doctor. He may just have a chemical imbalance that could be helped with a prescription. Do try to not feel guilty that him feeling bad about himself and the decisions he's made in his life. He is in control of his life, no one can make a person do anything. You can only be there to support him.

Please do take care of yourself. Are you totally gluten free? If not do so as soon as possible. It may help alot of your problems. At least it will make it easier to get healthier faster.

Pick on thing that you want to tackle at a time. Sometimes with so many problems to correct it is overwhelming. So pick one, do what you can before moving to the next one.

You can do this!

chiroptera Apprentice

First of all, you are NOT complaining! You have been in pain of different types this whole year. That just isn't good no matter how you look at it or what is happening to other people, should they be nice things or worse things. One thing I have learned (and I've had some really really bad years, this being one) is that what happens to other people truly shouldn't effect how we feel about ourselves. Meaning that, just because you haven't had "The Worse" happen, you have had trauma, you don't feel well and for you, you have had it rough. So don't beat yourself up about feeling frustrated, okay? :)

Two, you have a really great boyfriend, but you already know that!

And three, FEEL BETTER!!!!! Seems everyone has times where things hit them all at once, (again for me now) but in the end, it will work out!

Now go take a nap!!! :)

Karrin Rookie
I am just having a few days of self-pitying, so I was hoping you guys might understand where I'm coming from! I'm just so overwhelmed right now with everything! I've had such a tough year and I'm just ready for it to be over! Since January 2009 I have had pneumonia twice, strep throat twice, 3 other viral infections, an ovarian cyst, diagnosed with Celiac disease (which was a good thing actually), the flu three times, bronchitis, my asthma is getting worse, kidney stones, Fifths Disease, a few colds, and mono. It just seems like my body has not had enough time to recover from one thing before I'm hit with the next. It's just one thing after another, after another... I'm so tired, so worn out. My body is just screaming at me to just sleep for days and days and days at a time...but of course, I have to work full time! I'm so emotionally drained from all the doctors visits, tests, hospital visits, ER visits, labwork, missing work... It's just EXHAUSTING!!! In the month of November alone I had the flu for 5 days, kidney stones for a week and a half, and Fifths disease just this past week -- now I know Fifths disease isn't really a serious thing at all, but this rash ITCHES LIKE CRAZY!!!! I look like a dalmatian with pink spots!

I've started getting embarassed about the number of times I've been sick. I feel like I'm burdening my boyfriend with all my many illnesses. He's been wonderful about it all and has taken great care of me, but I still feel really bad about it all. I am sticking so strictly to the gluten free diet and pretty much all of my Celiac stomach symptoms have gone away -- and the joint pain, head fog...so I'm incredibly glad about that. I take vitamin supplements, eat tons of veggies and fruits. I don't eat red meat, hardly ever drink, and I don't smoke. But it's like my immune system realized it doesn't have to fight the Celiac anymore, so it decided to take a freaking vacation for a year!!!

I just really need some words of encouragement! Now yes, I realize it could be a TON TON worse! None of what I have could compare to some of the things some people on this board have to deal with on a daily basis, so in that sense, sorry for complaining! I'm just so overwhelmed and I feel like I'm an emotional breaking point with all these illnesses!

And not to mention the other emotional stressors -- mom is having some major blood pressure, diabetes issues. My parents divorced because my dad had an affair and he decided to leave the family to be with the other woman. Now he calls us or texts us to tell us how much better his life is now without us. Or the other thing he texts us about is whether we'll feel bad or sorry or feel like it's our fault when he decides to kill himself.... Those calls generally come during the middle of the night....

So anyway, thanks for listening!!!

I know how you feel in regards to feeling like a 'burden'. I went undiagnosed for years, nearly 5 of those I have been too sick too work and not knowing why. My poor husband has had to pick up all the slack and I feel awful about it. I'm very luck to have such an understanding man in my life. It can be extremely frustrating - the isolation and the complete lack of control over your own body. It's often like life is passing you by.

If you are still getting sick all the time I would be a little concerned, especially with the extreme fatigue you say you are still experiencing. Sometimes people with autoimmune disease have overtaxed immune systems - that is our immune system is so worn out fighting our own body that the stress makes us very prone to illness. In my case I had other undiagnosed autoimmune conditions beside celiac sprue that failed to turn positive in blood tests, my doctor had to go off of my symptoms, many of which improved or went away with the gluten-free diet - but not all. I was still very sick 6 months into the diet. I'm now on prednisone and having a period of remission - the best I've felt in at least 5 years! So be on the lookout, know your own body and don't be afraid to pester your doctor about all your options if you are still concerned something isn't right. Don't settle!

I hope you feel better! Here's hoping for a great 2010!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Scott Adams replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      IBS-D vs Celiac

    2. - Scott Adams replied to Amy Barnett's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Question

    3. - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      8

      how much gluten do I need to eat before blood tests?

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,321
    • Most Online (within 30 mins)
      7,748

    James Minton
    Newest Member
    James Minton
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Scott Adams
      What you’re describing really does not read like typical IBS-D. The dramatic, rapid normalization of stool frequency and form after removing wheat, along with improved tolerance of legumes and plant foods, is a classic pattern seen in gluten-driven disease rather than functional IBS. IBS usually worsens with fiber and beans, not improves. The fact that you carry HLA-DQ2.2 means celiac disease is absolutely possible, even if it’s less common than DQ2.5, and many people with DQ2.2 present later and are under-diagnosed. Your hesitation to reintroduce gluten is completely understandable — quality of life matters — and many people in your position choose to remain strictly gluten-free and treat it as medically necessary even without formal biopsy confirmation. If and when you’re ready, a physician can help you weigh options like limited gluten challenge, serology history, or documentation as “probable celiac.” What’s clear is that this wasn’t just random IBS — you identified the trigger, and your body has been very consistent in its response.
    • Scott Adams
      Here are some results from a search: Top Liquid Multivitamin Picks for Celiac Needs MaryRuth's Liquid Morning Multivitamin Essentials+ – Excellent daily choice with a broad vitamin/mineral profile, easy to absorb, gluten-free, vegan, and great overall value. MaryRuth's Liquid Morning Multivitamin – Classic, well-reviewed gluten-free liquid multivitamin with essential nutrients in a readily absorbable form. MaryRuth's Morning Multivitamin w/ Hair Growth – Adds beauty-supporting ingredients (biotin, B vitamins), also gluten-free and easy to take. New Chapter Liquid Multivitamin and New Chapter Liquid Multivitamin Orange Mango – Fermented liquid form with extra nutrients and good tolerability if you prefer a whole-food-based formula. Nature's Plus Source Of Life Gold Liquid – Premium option with a broad spectrum of vitamins and plant-based nutrients. Floradix Epresat Adult Liquid Multivitamin – Highly rated gluten-free German-made liquid, good choice if taste and natural ingredients matter. NOW Foods Liquid Multi Tropical Orange – Budget-friendly liquid multivitamin with solid nutrient coverage.
    • catnapt
      oh that's interesting... it's hard to say for sure but it has *seemed* like oats might be causing me some vague issues in the past few months. It's odd that I never really connect specific symptoms to foods, it's more of an all over feeling of unwellness after  eating them.  If it happens a few times after eating the same foods- I cut back or avoid them. for this reason I avoid dairy and eggs.  So far this has worked well for me.  oh, I have some of Bob's Red Mill Mighty Tasty Hot cereal and I love it! it's hard to find but I will be looking for more.  for the next few weeks I'm going to be concentrating on whole fresh fruits and veggies and beans and nuts and seeds. I'll have to find out if grains are truly necessary in our diet. I buy brown rice pasta but only eat that maybe once a month at most. Never liked quinoa. And all the other exotic sounding grains seem to be time consuming to prepare. Something to look at later. I love beans and to me they provide the heft and calories that make me feel full for a lot longer than a big bowl of broccoli or other veggies. I can't even tolerate the plant milks right now.  I have reached out to the endo for guidance regarding calcium intake - she wants me to consume 1000mgs from food daily and I'm not able to get to more than 600mgs right now.  not supposed to use a supplement until after my next round of testing for hyperparathyroidism.   thanks again- you seem to know quite a bit about celiac.  
    • trents
      Welcome to the celiac.com community, @SilkieFairy! You could also have NCGS (Non Celiac Gluten Sensitivity) as opposed to celiac disease. They share many of the same symptoms, especially the GI ones. There is no test for NCGS. Celiac disease must first be ruled out.
    • trents
      Under the circumstances, your decision to have the testing done on day 14 sounds very reasonable. But I think by now you know for certain that you either have celiac disease or NCGS and either way you absolutely need to eliminate gluten from your diet. I don't think you have to have an official diagnosis of celiac disease to leverage gluten free service in hospitals or institutional care and I'm guessing your physician would be willing to grant you a diagnosis of gluten sensitivity (NCGS) even if your celiac testing comes up negative. Also, you need to be aware that oats (even gluten free oats) is a common cross reactor in the celiac community. Oat protein (avenin) is similar to gluten. You might want to look at some other gluten free hot  breakfast cereal alternatives.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.