Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Mother Diagnosed, Wont Go On Diet


ratty89

Recommended Posts

ratty89 Rookie

Since being diagnosed, after reading alot of information about Celiacs I noticed some family members (mainly my mother, her sister, her brother, and my brother) having alot of symptoms/signs of celiacs. My mothers sister developed Type 1 diabeties in her 20s which the Drs said was bought on by stress. My mothers brother had bad stomach problems, they called it a 'nervous stomach'. My mother suffers from anxiety, brain fog, miagranes, skin reactions to food AND she was even postively diagnosed as having wheat/oat/barley/malt/nightshade allergy about 10 years ago. My brother has all the classic signs of celiacs. Hes been tested before through blood tests which were negative (same happened to me) and also a biopsy which was negative too but hes covinced hes got it from his symptoms etc.

The problem is, my mother wont stop eating wheat and so on. She says she tried it when she was first diagnosed, and her brain fog went away etc but it was too hard to do whilst bringing up kids. Shes got no children at home anymore but still says the diet would be too hard etc. Ive explaiined to her the dangers of continuing on with eating wheat etc when shes been medically diagnosed as intollerant but she still plays the 'its too hard' card....even though she manages to cook me lovely gluten/dairy/corn/soy free meals when I visit without too much effort.

My brother is currently living with other people and says its too hard for him to eat gluten-free at the moment because of CC etc it wouldnt be worth it. I was a bit sceptical of this excuse too, as Im sure no one is 100% gluten-free in the first stage of their new diets but he is going to be moving out in two months so he should be eating gluten-free pretty soon. Plus hes been experimenting with gluten-free flours is cooking which is cool.

I hope once my brother gets into the diet properly that his improvements will also help to convice my mother to stop eating wheat etc but Im not sure if that would work, or how long that would even take....

Does anyone have any suggestions about anything else I could do to convince my mother going on this diet is the right thing to do? She seems to be rather in denial...


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



mushroom Proficient

I am afraid we all have relatives in denial, one of my sisters being amongst them. Two sayings come to mind: "You can lead a horse to water but you can't make him drink", and "There are none so blind as those who will not see." Your mother seems a classic case. She probably figures if it hasn't killed her yet, why bother?? And really probably has no idea how much better she could feel, and values the gluteny foods more than feeling better, i.e., gluten addicted. All you can do is make sure she is informed (like give her printouts of what other horrible diseases celiac causes) and continue to express your concern for her.

GottaSki Mentor

I think the only thing you can do is continue to talk about the positive changes in your life since eating the correct food for your body.

If your Mom was diagnosed a long time ago, perhaps she doesn't understand the disease as well as you. She may not be absorbing information you are telling her -- sometimes we don't listen and learn from those closest to us.

Here's a link for a discussion about celiac from UCSD's celiac center. I found it very helpful when we were learning about what celiac disease is and can mean to our future heath.

Happy Thanksgiving to you!

jststric Contributor

ditto with the others. Just like alot of diabetics that eat too much bread or whatnot, they know what they are doing and making a conscious desicion. Most adult children cannot successfully "tell" their parents anything. It just goes against their grain to listen to their children as if they are children too. Do and live the way you choose and let her do her thing. I would quit telling her anything for awhile. If ANYTHING would get through to her, I would think it would be information on the higher-risk of digestive cancers. But if she's like my family, she will mouth off about "going to die of something someday anyway". Let her be.

nmlove Contributor

That stinks but until she's ready to change, nothing will do it. I like the idea of providing info and seeing improvements in you and your brother. But until she's ready, that's about it. I'm sure anyone can relate, celiac or no. I can share two off the top of my head. My dad diagnosed with type 2 diabetes managed for awhile but is now probably killing himself with his beer. And once my MIL told me that she feels so much better when she eats "healthier" but that it gives her so much energy and makes her feel so good, that she wants to go, go, go and do stuff. But my FIL doesn't so for her the extra energy "isn't worth it." Crazy.

Jennifer2 Explorer

I think, like almost anything, it's as easy or as hard as you make it. I'd personally try convincing her that it's not that hard.

For me at least, the change hasn't been all that hard. For me, the hardest part has been giving up the convenience of pre-processed, pre-prepared, and fast foods. But even that even has an upside, home-made food simply tastes better.

I think most people on here will tell you, there is virtually nothing you can't have with a few substitutions!

ang1e0251 Contributor

Sorry your mom won't make the change. I know the feeling. My sister won't even get tested. But I can only keep telling them how great I now feel. They know I have the info if they want it. If they want to slowly kill themselves, they are adults and able to make those choices. That hurts me as I feel they put little effort into their health but I cannot control what they do or think, only what I do. I choose to be proactive with my health.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



HS7474 Apprentice

I can relate- I'm almost positive my brother has celiac disease but won't get tested. However, even if he found out he had celiac disease I doubt he would go gluten free. He doesn't have the willpower or the care.

Juliebove Rising Star

Good luck with that! Although my mother doesn't have celiac, she was diagnosed with many food allerigies and was told to avoid wheat and nightshades because of arthritis. She pretty much eat what she wants and then complains when she is sick or hurting. She doesn't think the food that she eats could possibly have a thing to do with it and even makes snide comments about my daughter's and my own food allergies, saying we are too strict with our diets.

MindytheOrganist Enthusiast
Since being diagnosed, after reading alot of information about Celiacs I noticed some family members (mainly my mother, her sister, her brother, and my brother) having alot of symptoms/signs of celiacs. My mothers sister developed Type 1 diabeties in her 20s which the Drs said was bought on by stress. My mothers brother had bad stomach problems, they called it a 'nervous stomach'. My mother suffers from anxiety, brain fog, miagranes, skin reactions to food AND she was even postively diagnosed as having wheat/oat/barley/malt/nightshade allergy about 10 years ago. My brother has all the classic signs of celiacs. Hes been tested before through blood tests which were negative (same happened to me) and also a biopsy which was negative too but hes covinced hes got it from his symptoms etc.

The problem is, my mother wont stop eating wheat and so on. She says she tried it when she was first diagnosed, and her brain fog went away etc but it was too hard to do whilst bringing up kids. Shes got no children at home anymore but still says the diet would be too hard etc. Ive explaiined to her the dangers of continuing on with eating wheat etc when shes been medically diagnosed as intollerant but she still plays the 'its too hard' card....even though she manages to cook me lovely gluten/dairy/corn/soy free meals when I visit without too much effort.

My brother is currently living with other people and says its too hard for him to eat gluten-free at the moment because of CC etc it wouldnt be worth it. I was a bit sceptical of this excuse too, as Im sure no one is 100% gluten-free in the first stage of their new diets but he is going to be moving out in two months so he should be eating gluten-free pretty soon. Plus hes been experimenting with gluten-free flours is cooking which is cool.

I hope once my brother gets into the diet properly that his improvements will also help to convice my mother to stop eating wheat etc but Im not sure if that would work, or how long that would even take....

Does anyone have any suggestions about anything else I could do to convince my mother going on this diet is the right thing to do? She seems to be rather in denial...

My Mom was the same way with Type II diabetes. She refused to follow a decent diet and ate anything and everything she wanted, whenever she wanted. After many years, she has finally had it with feeling bad all the time, so she is in the process of consulting a dietician. Hopefully, your Mom will get fed up with feeling bad and take corrective actions. Hang in there and keep telling her how much better you feel.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,664
    • Most Online (within 30 mins)
      7,748

    Lkscot0uky
    Newest Member
    Lkscot0uky
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Inkie
      Thank you for the information ill will definitely bring it into practice .
    • Scott Adams
      While plain, pure tea leaves (black, green, or white) are naturally gluten-free, the issue often lies not with the tea itself but with other ingredients or processing. Many flavored teas use barley malt or other gluten-containing grains as a flavoring agent, which would be clearly listed on the ingredient label. Cross-contamination is another possibility, either in the facility where the tea is processed or, surprisingly, from the tea bag material itself—some tea bags are sealed with a wheat-based glue. Furthermore, it's important to consider that your reaction could be to other substances in tea, such as high levels of tannins, which can be hard on the stomach, or to natural histamines or other compounds that can cause a non-celiac immune response. The best way to investigate is to carefully read labels for hidden ingredients, try switching to a certified gluten-free tea brand that uses whole leaf or pyramid-style bags, and see if the reaction persists.
    • Scott Adams
      This is a challenging and confusing situation. The combination of a positive EMA—which is a highly specific marker rarely yielding false positives—alongside strongly elevated TTG on two separate occasions, years apart, is profoundly suggestive of celiac disease, even in the absence of biopsy damage. This pattern strongly aligns with what is known as "potential celiac disease," where the immune system is clearly activated, but intestinal damage has not yet become visible under the microscope. Your concern about the long-term risk of continued gluten consumption is valid, especially given your family's experience with the consequences of delayed diagnosis. Since your daughter is now at an age where her buy-in is essential for a gluten-free lifestyle, obtaining a definitive answer is crucial for her long-term adherence and health. Given that she is asymptomatic yet serologically positive, a third biopsy now, after a proper 12-week challenge, offers the best chance to capture any microscopic damage that may have developed, providing the concrete evidence needed to justify the dietary change. This isn't about wanting her to have celiac; it's about wanting to prevent the insidious damage that can occur while waiting for symptoms to appear, and ultimately giving her the unambiguous "why" she needs to accept and commit to the necessary treatment. This article might be helpful. It breaks down each type of test, and what a positive results means in terms of the probability that you might have celiac disease. One test that always needs to be done is the IgA Levels/Deficiency Test (often called "Total IGA") because some people are naturally IGA deficient, and if this is the case, then certain blood tests for celiac disease might be false-negative, and other types of tests need to be done to make an accurate diagnosis. The article includes the "Mayo Clinic Protocol," which is the best overall protocol for results to be ~98% accurate.    
    • Scott Adams
      Welcome to the community! Generally, for a gluten challenge before celiac disease blood tests, Tylenol (acetaminophen) is considered safe and should not interfere with your antibody results. The medications you typically need to avoid are those like ibuprofen (Advil, Motrin) or naproxen (Aleve) that can cause intestinal irritation, which could potentially complicate the interpretation of an endoscopy if you were to have one. However, it is absolutely crucial that you confirm this with either your gastroenterologist or your surgeon before your procedure. They know the specifics of your case and can give you the definitive green light, ensuring your surgery is comfortable and your celiac testing remains accurate. Best of luck with your surgery tomorrow
    • Xravith
      Thank you for the advice. I’ve actually never checked for nutritional deficiencies, but for as long as I can remember, I’ve always taken vitamin and mineral supplements — otherwise my symptoms get worse. This week I stopped eating gluten to confirm whether my symptoms are really caused by it. Starting next week, I’ll reintroduce gluten — it’s sad to go back to how I was before — but at least I’ll be able to take the necessary tests properly. I think the diagnostic process will be long, but at least I’m happy that I finally decided to address this doubt I’ve had for years.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.