Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Tired Of This....


GlutenGuy36

Recommended Posts

GlutenGuy36 Contributor

It's bad enough that you have to scrutinize every ingredient in the things you eat but when you buy things that are SUPPOSED to be gluten free and you get glutened by them, it just makes me very irate.

I have only been eating glutino gluten free bagels, and hormels natural choice turkey lunch meat which clearly states no gluten and ditto for the bagels. I was fine with these then I bought some gluten free corn dogs and got sick a day later. Had abdominal pain and tons of mucus in my stool. (sorry tmi). I am so tired of this.

I watch everything that goes into my mouth. I live in a shared home so CC is a big concern. I have my own toaster and I wash off everyplate before I set something on it. I was actually starting to think I may have turned the corner starting December 11th as I actually had my first not so horrible day in over a year and 5 months and now this happenes. My stools had returned to solid but I still have alot of overall pains. When you try so hard to be careful and then you think you are buying safe product it just makes me very angry with this whole thing. I'm so tired if being sick. It seems like everything I put in my mouth makes me feel bad. Sorry for venting ..I'm just tired of it all.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ciavyn Contributor

Ugh - that is frustrating. I will say this though. You may want to consider eating less processed foods. I tried to do processed foods in the beginning. Oh my gosh, the misery just continued. Now I eat all whole foods and things I've made myself, and eat out very little, and I'm finally starting to feel better. Hang in there...this is very frustrating, but it's also going to be healthier for you over time...and hopefully, you'll discover things you like even better.

Korwyn Explorer
It's bad enough that you have to scrutinize every ingredient in the things you eat but when you buy things that are SUPPOSED to be gluten free and you get glutened by them, it just makes me very irate.

I have only been eating glutino gluten free bagels, and hormels natural choice turkey lunch meat which clearly states no gluten and ditto for the bagels. I was fine with these then I bought some gluten free corn dogs and got sick a day later. Had abdominal pain and tons of mucus in my stool. (sorry tmi). I am so tired of this.

I watch everything that goes into my mouth. I live in a shared home so CC is a big concern. I have my own toaster and I wash off everyplate before I set something on it. I was actually starting to think I may have turned the corner starting December 11th as I actually had my first not so horrible day in over a year and 5 months and now this happenes. My stools had returned to solid but I still have alot of overall pains. When you try so hard to be careful and then you think you are buying safe product it just makes me very angry with this whole thing. I'm so tired if being sick. It seems like everything I put in my mouth makes me feel bad. Sorry for venting ..I'm just tired of it all.

Hey GG, I have to say I have had the same experience and wound up in the same place Ciavyn has. I pretty much can't seem to handle any processed foods or ingredients. The more refined it is, the worse I react. A little here and a little there (some every few days) seems to be OK, but more than that and I start having various reactions. A perfect example of this for me is corn. Fresh (or frozen) corn is fine in any amount day after day. Ground corn (corn meal, corn chips) I can have some every two or three days in moderations, but daily and I start reacting. Corn starch and corn syrup are big no-nos. I have the same issue with most starchy carbs and grains. I can have some in small amounts spaced out over a couple days but any more and I react. If I have bread (home-made by me, so I KNOW there is no CC) more that three times in a week I start having issues.

We pretty much live on fresh veggies, fruits, natural sweeteners (raw honey, raw agave, and pure maple syrup) and protein (beef, lamb, pork, chicken, fish, eggs, etc) with some refined/processed foods occasionally. For me any refined sugars are out regardless of the source.

It wasn't until we started this way of eating that my system began to really heal and started showing serious long-term improvement. I still have some ups and downs (down right now which is why I'm typing this instead of sleeping) but significantly more ups.

dilettantesteph Collaborator

Me too. I got so tired of it that I also stopped eating almost all processed foods. It's the only way for us sensitives.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,544
    • Most Online (within 30 mins)
      7,748

    Jem68
    Newest Member
    Jem68
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Beverage
      I had a very rough month after diagnosis. No exaggeration, lost so much inflammatory weight, I looked like a bag of bones, underneath i had been literally starving to death. I did start feeling noticeably better after a month of very strict control of my kitchen and home. What are you eating for breakfast and lunch? I ignored my doc and ate oats, yes they were gluten free, but some brands are at the higher end of gluten free. Lots of celics can eat Bob's Red Mill gluten-free oats, but not me. I can now eat them, but they have to be grown and processed according to the "purity protocol" methods. I mail order them, Montana Gluten-Free brand. A food and symptoms and activities log can be helpful in tracking down issues. You might be totally aware, but I have to mention about the risk of airborne gluten. As the doc that diagnosed me warned . . Remember eyes, ears, nose, and mouth all lead to your stomach and intestines.  Are you getting any cross contamination? Airborne gluten? Any pets eating gluten (they eat it, lick themselves, you pet them...)? Any house remodeling? We live in an older home, always fixing something. I've gotten glutened from the dust from cutting into plaster walls, possibly also plywood (glues). The suggestions by many here on vitamin supplements also really helped me. I had some lingering allergies and asthma, which are now 99% gone. I was taking Albuterol inhaler every hour just to breathe, but thiamine in form of benfotiamine kicked that down to 1-2 times a day within a few days of starting it. Also, since cutting out inflammatory seed oils (canola, sunflower, grapeseed, etc) and cooking with real olive oil, avocado oil, ghee, and coconut oil, I have noticed even greater improvement overall and haven't used the inhaler in months! It takes time to weed out everything in your life that contains gluten, and it takes awhile to heal and rebuild your health. At first it's mentally exhausting, overwhelming, even obsessive, but it gets better and second nature.
    • Jsingh
      Hi,  I care for my seven year old daughter with Celiac. After watching her for months, I have figured out that she has problem with two kinds of fats- animal fat and cooking oils. It basically makes her intestine sore enough that she feels spasms when she is upset. It only happens on days when she has eaten more fat than her usual every day diet. (Her usual diet has chia seeds, flaxseeds, and avocado/ pumpkin seeds for fat and an occasional chicken breast.) I stopped using cooking oils last year, and when I reintroduced eggs and dairy, both of which I had held off for a few months thinking it was an issue of the protein like some Celiac patients habe mentioned to be the case, she has reacted in the same fashion as she does with excess fats. So now I wonder if her reaction to dairy and eggs is not really because of protein but fat.   I don't really have a question, just wondering if anyone finds this familiar and if it gets better with time.  Thank you. 
    • Chanda Richard
      Hello, My name is Chanda and you are not the only one that gose through the same things. I have found that what's easiest for me is finding a few meals each week that last. I have such severe reactions to gluten that it shuts my entire body down. I struggle everyday with i can't eat enough it feels like, when I eat more I lose more weight. Make sure that you look at medication, vitamins and shampoo and conditioner also. They have different things that are less expensive at Walmart. 
    • petitojou
      Thank you so much! I saw some tips around the forum to make a food diary and now that I know that the community also struggles with corn, egg and soy, the puzzle pieces came together! Just yesterday I tried eating eggs and yes, he’s guilty and charged. Those there are my 3 combo nausea troublemakers. I’m going to adjust my diet ☺️ Also thank you for the information about MCAS! I’m from South America and little it’s talked about it in here. It’s honestly such a game changer now for treatment and recovery. I know I’m free from SIBO and Candida since I’ve been tested for it, but I’m still going to make a endoscopy to test for H. Pylori and Eosinophilic esophagitis (EoE). Thank you again!! Have a blessed weekend 🤍
    • knitty kitty
      Yes, I, too, have osteoporosis from years of malabsorption, too.  Thiamine and magnesium are what keep the calcium in place in the bones.  If one is low in magnesium, boron, selenium, zinc, copper, and other trace minerals, ones bone heath can suffer.  We need more than just calcium and Vitamin D for strong bones.  Riboflavin B 2, Folate B 9 and Pyridoxine B 6 also contribute to bone formation and strength.   Have you had your thyroid checked?  The thyroid is important to bone health as well.  The thyroid uses lots of thiamine, so a poorly functioning thyroid will affect bone heath.  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.