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Microscopic Colitis?


LisaaaNoel

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LisaaaNoel Explorer

First let me say that I haven't been diagnosed officially when celiac. I just began a gluten-free trial less than a week ago. I was diagnosed with IBS about a year ago.

From my understanding, one of the classic symptoms of microscopic colitis is watery diarrhea, correct? I have experienced a pattern like this the past month or so:

-woke up with watery D a week before thanksgiving. I went to the bathroom a few times throughout the day (went once in the middle of the night) I took immodium and it seemed to clear it up.

-about a week later, woke up again with watery d. same pattern. took immodium and it took a couple of days to clear up completely.

-This time, 2 weeks later, I woke up with watery D. Went about 3 times. Cleared up with imodium and this time didn't go at all during the night.

The idea of the watery D makes me think it could be MC, but the pattern does not necessarily seem like MC.

If you have it, could you weigh in on this? Possibly tell me about your symptoms/patterns? What about treatment? What should I expect if I did have this?

I feel completely fine, otherwise. I'm worried though, because I know you must get a biopsie to be diagnosed. I do not have insurance so that would be difficult.


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ravenwoodglass Mentor

Whether this is a symptom of MC I don't know but I do know that for me it was a symptom of celiac. I was diagnosed with IBS years ago and it wasn't until after I was diagnosed celiac and remarked to my GI that I was so thankful to be done with the middle of the night D that he told me that IBS doesn't wake someone up from sleep. Unfortunately he never listened when I told him about it prediagnosis. He just looked at negative celiac blood tests and prescribed more pills. Have you had a colonoscopy or endo? I think it is the colonoscopy that would diagnose MC but they do need to take biopsies to examine if it is suspected. Like celiac it is not always noticeable with the naked eye.

Also since the watery D started abruptly do make sure they do stool tests to make sure you haven't picked up food poisoning or such. I had salmonella once and had to beg for 2 weeks for testing. I kept telling my GP that what I was experiencing wasn't anything like the IBS that I was diagnosed with but she wouldn't listen until I had lost over 20 lbs, almost a fifth of my weight over a two week period, that she finally tested and found me postive for salmonella.

Ahorsesoul Enthusiast

Are you taking any medication before bed not on a regular schedule or are you eating/drinking something at night that is causing this diarrhea to start during the night?

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      Hi, I am after some advice re my step daughter and her Coeliac Disease. She is 9 years old and had a very limited diet before being diagnosed (very fussy and very lenient parents), since being diagnosed it has become hard to find places out that will cater for her, but we manage.  History: She had been having severe tummy pains on and off every few months so had a bunch of tests and eventually was diagnosed with celiac disease a number of months ago. We was told that she is at a very high level and should avoid gluten for the rest of her lift, we was told that the gluten she has been eating has damaged the 'fingers' inside her and they will not replenish. We was informed that her body absorbs the gluten rather then rejecting it and that is why she doesnt react to the gluten straight away, it will be a build up and then the pains start. We was advised that by her not reacting straight away, it did not mean it wasnt harming her inside. We was given literature about buying a separate toaster and cutting board etc to avoid cross contamination and have been checking all food labels etc.  Problem: the issue is the novelty seems to have worn off with her Mum and we are now posed with a situation. They are going on holiday to Disneyland Paris for 3 nights and she phoned the hotel who said they cannot cater for gluten free. She phoned the GP and had a conversation and then told my partner that the GP had said it was fine for her to have gluten for the 3-4 days. He questioned it and she said no its fine, she hasnt had it for months so a few days wont hurt and she exposed to it anyway without knowing so it will be fine and shes not ruining her holiday etc.   My partner could see from the online notes that his ex wife had told the doctor that the child does not follow a strict gluten-free diet anyway - not true. At least not with us! My partner requested a call with the same doctor who told him that it is the mums discretion and that the child should be monitored for reactions - he explained that the issue is she doesnt react straight away. The GP said no its all mums discretion and she knows best. We are going to try to speak to the consultant at the hospital, but I just wanted to gauge some thoughts. It just seems bizarre to me that we can go from being told to avoid gluten for the rest of her life and how harmful it is to her body, to now it being ok for her to have it for a few days. Thanks in advance  
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