Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Out Of Body Sensation


OptimisticMom42

Recommended Posts

OptimisticMom42 Apprentice

Hello everyone,

Is there a vitamin or something of that nature that would explain an out of body sensation? This is during awake time not associated with sleeping.

Thanks RA


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ravenwoodglass Mentor

Can you explain more fully what you are experiencing? What supplements are you taking? Are you on any script meds?

gfp Enthusiast
Hello everyone,

Is there a vitamin or something of that nature that would explain an out of body sensation? This is during awake time not associated with sleeping.

Thanks RA

Depending on how you define 'out of body' I get a certain amount of this when glutened.

It's not like the TV/film 'experience' so much as a feeling I am watching myself and steering by a remote control with flaky batteries!

I often say things I don't mean, or more accurately things I do mean but shouldn't say ... and I know I shouldn't and try and stop myself but I just don't respond ...

When in this state, especially within group I often feel like I am almost sitting beside myself and almost watching myself.

Hope that helps?

TrillumHunter Enthusiast

I had that before gluten-free until I started getting b12 shots. I still get it as a precursor to a migraine.

OptimisticMom42 Apprentice

Thank you everyone.

My son says he has been experiencing this since age 8. Most recently at dinner yesterday. He felt that he watched himself get up and leave the table. He does not want to believe that gluten is causing this.

I will share your answers with him and ask him to begin taking B12 if it is available to him.

RA

dmurth01 Newbie

I think my biggest gluten-ing symptom falls somewhere between this "out of body" sensation and brain fog. It is like I cannot control my normal functions. It was the worst when I started work this fall and would go to business meetings and nearly FALL ASLEEP or barely form coherent sentences (at least that's what it felt like to me!)

So far on gluten-free I haven't gotten this as badly as when I was still on gluten. Of course I've been CC'ed here and there, but cutting out major gluten items has made a world of a difference. I assume you are already gluten-free though since you are asking about vitamins.

Good Luck!

OptimisticMom42 Apprentice

Yes, I'm gluten free, my son was diagnosed last summer but refuses to follow a gluten free diet. So when he tells me these things I say, "Stop eating gluten" He says nope and I look for some other answer. But it always comes back to gluten. He's 18 and doesn't live at home so........


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ianm Apprentice

That is what would happen to me when I would get very severe gluten induced brain fog. I haven't had any brain fog out-of-body experiences since quitting gluten. Some of the brain fog episodes were truly terrifying, especially while driving. It is a miracle that I didn't kill anybody.

hermitgirl Contributor

I had that frequently before I was diagnosed. I never knew when to expect it. I just remember the worst incident being when I couldn't wake myself up. It was really creepy. Kept looking at the clock screaming for help. My body wouldn't move yet I felt like I was moving. Not something I care to have occur again. Maybe a deficiency? Is he under a lot of stress? Maybe need to have some bloodwork checked?

bellis Rookie
Thank you everyone.

My son says he has been experiencing this since age 8. Most recently at dinner yesterday. He felt that he watched himself get up and leave the table. He does not want to believe that gluten is causing this.

I will share your answers with him and ask him to begin taking B12 if it is available to him.

RA

Possibly caused by something called wishful thinking. What was for dinner? Brussel sprouts and liver?

Please excuse me! just trying to lighten things up! Sounds strange to me, but i believe gluten can cause nearly any and every condition known to man.

Guest sueward

OptimisticMom42 Hello! I am new here myself and not sure quite how to navigate yet. lol Have suffered all my life and just now getting the MD and Rheumatologist to send me to the Gastrointerologist. He wants to do a endoscopy even though he said my blood work indicates celiac.

I was told that if we eat gluten when we are gluten intolerant that it can cause Osteoporosis, and other autoimmune diseases also. Don't know if that is correct but I do not want Osteoporosis. Have to quit being in denial and learn to eat right. Much better to be well and eat right. I hope your son decides to eat healthy. sueward

cmom Contributor

Yes, Sue, the part about causing osteoporosis is true. I have confirmed osteopenia due to not absorbing calcium caused by damaged intestines. I have not had a recent bone scan, but hope that things have improved since being gluten-free. :rolleyes:

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,782
    • Most Online (within 30 mins)
      7,748

    BH1951
    Newest Member
    BH1951
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):




  • Who's Online (See full list)

    • There are no registered users currently online

  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • nanny marley
      Hi I've been told I need a MRI on my bowels , I was booked for a colonoscopy, but because of my sever back issues and trapped nerve it can't be done , the nurse told me I will have to have a manitol drink a hour before the scan , I'm just a bit worried has I have issues with sweeteners like even a little,  I get a weird throat and ears and I've read it is a similar substance , not sure if anyone has had one of these scans or could give me some advise on the drink prep thanks in advance 😄
    • Colleen H
      Ok thank you.  Me either 
    • Colleen H
      Hi all ! Can a celiac attack be so intense that it causes your entire body to work in reverse? Meaning really bad pain,  neuropathy and muscle,  jaw pain,  the stomach issues , Horrible anxiety and confusion??  I had a Tums and you would think I ate poison. My jaw and stomach did not like it . Not the norm for me. Things that are simple are just out of control. Anyone ever have this happen??  I'm trying to figure out what I ate or did to bring on a celiac like attack. I had an idea before but yesterday I didn't have any gluten unless it was in a medication ?! Any positive suggestions ??  Thank you 
    • Scott Adams
      The following two lists are very helpful for anyone who is gluten sensitive and needs to avoid gluten when shopping. It's very important to learn to read labels and understand sources of hidden gluten, and to know some general information about product labelling--for example in the USA if wheat is a possible allergen it must be declared on a product's ingredient label like this: Allergens: Wheat.      
    • trents
      Tammy, in the food industry, "gluten free" doesn't mean the same thing as "no gluten". As Scott explained, the FDA (Food and Drug Administration) allows food companies to use the "gluten-free" label as long as the product does not contain more than 20 ppm (parts per million) of gluten. This number is based on studies the FDA did years ago to determine the reaction threshold for those with celiac disease. And the 20 ppm figure works for the majority of celiacs. There are those who are more sensitive, however, who still react to that amount. There is another, stricter standard known as "Certified Gluten Free" which was developed by a third party organization known as GFCO which requires not more than 10 ppm of gluten. So, when you see "GFCO" or "Certified Gluten Free" labels on food items you know they are manufactured with a stricter standard concerning gluten content. Having said all that, even though you may read the disclaimer on a food item that says the spices may contain wheat, barley or rye (the gluten grains), you should be able to trust that the amount of gluten the spices may contain is so small it allows the total product to meet the requirements of gluten free or certified gluten free labeling. I hope this helps.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.