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What Symptoms Other Than Gi Did You Have.....


NE Mom

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NE Mom Apprentice

I was dx'd with Fibromyalgia two years ago but am now thinking that I might have a gluten intolerance. I've read a lot about the GI issues that go with Celiac but I'm wondering about other common symptoms. My main symptoms have been overwhelming fatigue, joint pain, overall soreness in all limbs, brain fog, cold intolerance, feel like I'm 40 years older than I am, GI issues which seem to arise with any dairy consumption, tingling in limbs, and RLS.

I'm curious what symptoms overs have experienced and how many have been dx'd with Fibro??

Thanks,

Sam


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GottaSki Mentor
I was dx'd with Fibromyalgia two years ago but am now thinking that I might have a gluten intolerance. I've read a lot about the GI issues that go with Celiac but I'm wondering about other common symptoms. My main symptoms have been overwhelming fatigue, joint pain, overall soreness in all limbs, brain fog, cold intolerance, feel like I'm 40 years older than I am, GI issues which seem to arise with any dairy consumption, tingling in limbs, and RLS.

I'm curious what symptoms overs have experienced and how many have been dx'd with Fibro??

Thanks,

Sam

I had all the same symptoms you listed. I was dx'd with Celiac Disease in March of this year and Fibromyalgia in October after over 20years of these symptoms worsening with no diagnosis. My first months of gluten-free brought improvement to my bloating and other digestive issues, but none of the Fibro symptoms improved until just recently - I'm 9 months gluten-free and am supplementing with vitamins B, D, Calcium, Fish Oil, Malic Acid and some Essential Aminos.

I believe that the Fibromyalgia was a result of long term malnutrition from Celiac Disease. I'm 44 and have likely been Celiac my entire life.

ciavyn Contributor
I was dx'd with Fibromyalgia two years ago but am now thinking that I might have a gluten intolerance. I've read a lot about the GI issues that go with Celiac but I'm wondering about other common symptoms. My main symptoms have been overwhelming fatigue, joint pain, overall soreness in all limbs, brain fog, cold intolerance, feel like I'm 40 years older than I am, GI issues which seem to arise with any dairy consumption, tingling in limbs, and RLS.

I'm curious what symptoms overs have experienced and how many have been dx'd with Fibro??

Thanks,

Sam

I've had ongoing fatigue, joint and muscle pain, and brain fog. All of which are improved after a little over a month gluten free.

Ahorsesoul Enthusiast
I believe that the Fibromyalgia was a result of long term malnutrition from Celiac Disease. I'm 44 and have likely been Celiac my entire life.

I agree!!!

jerseyangel Proficient

I have not been diagnosed with Fibro--although I still experience muscle pain that is more or less constant.

As for the Celiac, in addition to digestive symptoms I had tingling and numbness, feelings of "burning" from the inside on my feet and face, anxiety, depression, fatigue, severe dizziness (from the anemia), brain fog, general achiness, and something that I can only describe as clumsiness/unsteady on my feet.

lizard00 Enthusiast

Overwhelming fatigue and pounding headaches were my two longest symptoms. The best we can figure, my pregnancy triggered my celiac, and I went gluten-free when my son was 2 1/2... so, I figure I caught it very early on. However, toward the end of my gluten filled journey, I was starting to have a lot of muscle aches, and somedays I felt beat up from the inside out. I think I was probably headed down a bad path, and thankfully caught a lot of stuff before it happened.

I am 2 years gluten-free, and I rarely have headaches, my fatigue is 100% better, and the unknown muscle aches are a thing of the past. I have a 4 yr old and an almost 4 month old who has just recently decided to sleep in a bed, and on some of my worst days, I still feel better than I did two years ago before I kicked the gluten. Hang in there! :)

NE Mom Apprentice

Thank you everyone for your replies.

I also think my second pregnancy may have somehow triggered my Fibro (if that is really what it is). I was unable to eat multiple during this pregnancy because they made me sick, my daughter was born with a low birth weight and a anaphylactic allergy to dairy. See now has a total of 11 food allergies that we know of with the possiblity of more. My health has never been the same since giving birth to her.

The tTg results were all normal but I'm still waiting on the AGA IgG. A week of gluten free eating has me feeling better than I have in a couple of years until the last two days. Now I have to figure out if it is the roasted almonds from Walmart or the Honey Kix than may have contibuted to the debilitating fatigue the last two days.

Sam


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    • AlwaysLearning
      Get tested for vitamin deficiencies.  Though neuropathy can be a symptom of celiac, it can also be caused by deficiencies due to poor digestion caused by celiac and could be easier to treat.
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      Thank you so much for your response  Yes it seems as though things get very painful as time goes on.  I'm not eating gluten as far as I know.  However, I'm not sure of cross contamination.  My system seems to weaken to hidden spices and other possibilities. ???  if cross contamination is possible...I am in a super sensitive mode of celiac disease.. Neuropathy from head to toes
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      EXACTLY! I was asked yesterday on my LAST video call with Standford and I stated exactly yes absolutely this is why I need the name! One, get proper care, two, not get worse.Im falling apart, stressed out, in pain and just opened email from Stanford stating I was rude ect.I want that video reviewed by higher ups and see if that women still has a job or not.Im saying this because I've been medically screwed and asking for help because bills don't pay itself. This could be malpratice siit but im not good at finding lawyers
    • AlwaysLearning
      We feel your pain. It took me 20+ years of regularly going to doctors desperate for answers only to be told there was nothing wrong with me … when I was 20 pounds underweight, suffering from severe nutritional deficiencies, and in a great deal of pain. I had to figure it out for myself. If you're in the U.S., not having an official diagnosis does mean you can't claim a tax deduction for the extra expense of gluten-free foods. But it can also be a good thing. Pre-existing conditions might be a reason why a health insurance company might reject your application or charge you more money. No official diagnosis means you don't have a pre-existing condition. I really hope you don't live in the U.S. and don't have these challenges. Do you need an official diagnosis for a specific reason? Else, I wouldn't worry about it. As long as you're diligent in remaining gluten free, your body should be healing as much as possible so there isn't much else you could do anyway. And there are plenty of us out here who never got that official diagnosis because we couldn't eat enough gluten to get tested. Now that the IL-2 test is available, I suppose I could take it, but I don't feel the need. Someone else not believing me really isn't my problem as long as I can stay in control of my own food.
    • AlwaysLearning
      If you're just starting out in being gluten free, I would expect it to take months before you learned enough about hidden sources of gluten before you stopped making major mistakes. Ice cream? Not safe unless they say it is gluten free. Spaghetti sauce? Not safe unless is says gluten-free. Natural ingredients? Who knows what's in there. You pretty much need to cook with whole ingredients yourself to avoid it completely. Most gluten-free products should be safe, but while you're in the hypersensitive phase right after going gluten free, you may notice that when something like a microwave meal seems to not be gluten-free … then you find out that it is produced in a shared facility where it can become contaminated. My reactions were much-more severe after going gluten free. The analogy that I use is that you had a whole army of soldiers waiting for some gluten to attack, and now that you took away their target, when the stragglers from the gluten army accidentally wander onto the battlefield, you still have your entire army going out and attacking them. Expect it to take two years before all of the training facilities that were producing your soldiers have fallen into disrepair and are no longer producing soldiers. But that is two years after you stop accidentally glutening yourself. Every time you do eat gluten, another training facility can be built and more soldiers will be waiting to attack. Good luck figuring things out.   
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