Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Introduction From Me In Salem, Oregon

Alice in Wheatland

Recommended Posts

Alice in Wheatland Newbie
Alice in Wheatland
Posted

Hello,

I have used this site for awhile but have never actually been a forum member. I used to just look up information when I needed it. I figured I'd join now and maybe I can meet some like-minded people as well as be helpful where possible.

My name is Debbie but my friends call me by my middle name, which is Mercy. I live in Salem, Or but spent 27 years as a native New Yorker and then some time in Callie's Bay Area before moving here.

I am a single mom and am a non-diagnosed Celiac. I was sick for a long time before they found out and a long time after until they found out about the casein.

I just thought I'd say hi...so "Hello!"

~Mercy~

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


mushroom Proficient
mushroom
Posted

Hello,

I have used this site for awhile but have never actually been a forum member. I used to just look up information when I needed it. I figured I'd join now and maybe I can meet some like-minded people as well as be helpful where possible.

My name is Debbie but my friends call me by my middle name, which is Mercy. I live in Salem, Or but spent 27 years as a native New Yorker and then some time in Callie's Bay Area before moving here.

I am a single mom and am a non-diagnosed Celiac. I was sick for a long time before they found out and a long time after until they found out about the casein.

I just thought I'd say hi...so "Hello!"

~Mercy~

Hello, Mercy, and welcome to the forum as a member. We look forward to your valuable contributions. You are not alone in having problems with casein as well as gluten, as you have no doubt found out. Nor are you alone in being undiagnosed :P That seems to be the fate of so many of use. Maybe the diagnostic criteria will change come the enlightenment :rolleyes:

Jestgar Rising Star
Jestgar
Posted

Welcome to the site....officially....

Glad you've found someplace to help you towards health.

Alice in Wheatland Newbie
Alice in Wheatland
Posted
  • Author

Hello, Mercy, and welcome to the forum as a member. We look forward to your valuable contributions. You are not alone in having problems with casein as well as gluten, as you have no doubt found out. Nor are you alone in being undiagnosed :P That seems to be the fate of so many of use. Maybe the diagnostic criteria will change come the enlightenment :rolleyes:

I want to thank you so much for the warm welcome. I am glad to be amongst people who understand that I am not mentally ill, depressed, a hypochondriac or any other of the weird stuff that has made me feel so alone.~M

BRUMI1968 Collaborator
BRUMI1968
Posted

I want to thank you so much for the warm welcome. I am glad to be amongst people who understand that I am not mentally ill, depressed, a hypochondriac or any other of the weird stuff that has made me feel so alone.~M

Welcome. I'm also in Oregon, though on the other side of the mountains near Sisters and Bend and Terrebonne and such. Glad to have you!

pamma Newbie
pamma
Posted

Hello Mercy. My name is Pamm and I am from Michigan. Today is day 5 of my gluten free journey. I do not think that I have Celiac disease, but I do believe that I am gluten intolerant or at least sensitive. I have been working with my chiropractor who is also a holistic practitioner since July. After realizing that none of her protocols for addressing my issues were working, she suggested that I try a gluten free diet. I received a juicer for Christmas and at that time became willing to do some research into being gluten free. I quickly realized that the symptoms I was most concerned about are the same as those with Celiac disease. So now I am giving it a try. I have struggled with sobiety for over 10 years now. It was interesting to realize that my drinking bouts also initiated cold/sinus issues. It is no wonder since I was ingesting even more gluten every time I drank. I thank God for putting people in my life to help me understand what was going on with my body, and the willingness to change and adopt a healthier lifestyle.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,989
    • Most Online (within 30 mins)
      7,748
    CharlotteCaroline
    Newest Member
    CharlotteCaroline
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Wheatwacked
      Outgrow celiac?

      By Wheatwacked · Posted

      Testing can't alone be trusted.  Else why would it take so many years of testing and retesting and misdiagnosis to finally be told, yes you have Celiac Disease. As to what to eat, I like pre 1950 style food.  Before the advent of TV dinners.  Fresh food is better for you, and cooking from scratch is cheaper.  Watch Rachel Ray's 30 Minute Meals for how to cook.  Keep in mind that she is not gluten free, but her techniques are awesome.  Just use something else instead of wheat, barley, rye. Dr Fuhrman is a ex cardiologist.  His book Eat to Live and Dr Davis' book Wheatbelly were instrumental in my survival.
    • Scott Adams
      Celiac and dermatitis herpetiformis has taken Me from Me

      By Scott Adams · Posted

      If you have DH you will likely also want to avoid iodine, which is common in seafoods and dairy products, as it can exacerbate symptoms in some people. This article may also be helpful as it offers various ways to relieve the itch--thanks for the tip about Dupixent, and I've added it to the article:  
    • Scott Adams
      New Celiac Mama in My 30s

      By Scott Adams · Posted

      I just want to clarify that what I posted is a category of research summaries we've done over the years, and nearly each one shows that there is definitely a connection to celiac disease and migraine headaches. The latest study said: "the study did indicate some potential causal associations between celiac disease and migraine with or without aura, as well as between migraine without aura and ulcerative colitis...this study did not find evidence of a shared genetic basis..." Anyway, there is definitely a connection, and you can go through more of the articles here if you're interested: https://www.celiac.com/celiac-disease/celiac-disease-amp-related-diseases-and-disorders/migraine-headaches-and-celiac-disease/
    • SusanJ
      Celiac and dermatitis herpetiformis has taken Me from Me

      By SusanJ · Posted

      Two months ago, I started taking Dupixent for dermatitis herpetiformis and it has completely cleared it up. I can't believe it! I have had a terrible painful, intensely itchy rash for over a year despite going fully gluten-free. See if your doctor will prescribe Dupixent. It can be expensive but I am getting it free. When the dermatitis herpetiformis was bad I could not do anything. I just lay in bed covered in ice packs to ease the pain/itching and using way too Clobetasol. Dapsone is also very good for dermatitis herpetiformis (and it is generic). It helped me and the results were immediate but it gave me severe anemia so the Dupixent is better for me. Not sure if it works for everyone. I cannot help with the cause of your stress but from experience I am sure the severe stress is making the celiac and dermatitis herpetiformis worse. Very difficult for you with having children to care for and you being so sick. Would this man be willing to see a family therapist with you? He may be angry at you or imagine that your illness is a psychosomatic excuse not to take care of him. A therapist might help even if he won't go with you. Also do you have any family that you could move in with (with the kids) for a short time to get away? A break may be good for you both.
    • knitty kitty
      New Celiac Mama in My 30s

      By knitty kitty · Posted

      @tiffanygosci, Thiamine deficiency is a thing in pregnancy for "normal" people, so it's exponentially more important for those with celiac disease and malabsorption issues. I studied nutrition before earning a degree in Microbiology because I was curious what the vitamins were doing inside the body.  See my blog.  Click on my name to go to my page, scroll to drop down menu "activities" and select blog.   So glad you're motivated to see the dietician!  We're always happy to help with questions.  Keep us posted on your progress! 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.