Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Must-Do

happygirl

By happygirl
in Coping with Celiac Disease

Recommended Posts

happygirl Collaborator
happygirl
Posted

This article was in the recent Living Without magazine. Its a great resource for newly diagnosed - and all - Celiacs and others with gluten intolerance.

Open Original Shared Link

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


jerseyangel Proficient
jerseyangel
Posted

This article was in the recent Living Without magazine. Its a great resource for newly diagnosed - and all - Celiacs and others with gluten intolerance.

Open Original Shared Link

Excellent article--thanks Happygirl ;)

CecilyF Rookie
CecilyF
Posted

After reading that article, I subscribed to the magazine! :D

jerseyangel Proficient
jerseyangel
Posted

After reading that article, I subscribed to the magazine! :D

It's a very good magazine--I think you'll enjoy it. :D

Lynayah Enthusiast
Lynayah
Posted

This article was in the recent Living Without magazine. Its a great resource for newly diagnosed - and all - Celiacs and others with gluten intolerance.

Open Original Shared Link

Hi, Happy Girl . . . happy new year to you!

Thanks for your post. I get the mag. and had read the article, but there is a wonderful video featured on your link, too. I enjoyed watching it. Much appreciated.

PS: For those who do not subscribe to LIVING WITHOUT, it is wonderful.

Takala Enthusiast
Takala
Posted

:ph34r: Uhm, what is that... scary thing that the woman is staring at in the accompanying photo ? It looks like compost on a plate.

Review of article.

Understand your disease. √

Build a Medical Team. "medical team?!" " nutritionist who specialize celiac disease ?!" uh oh, let's not go into that one as we don't have time for the saga today.

Join a support group. How about the internet as otherwise anything like this is too far away or just doesn't exist for many of us.

Check your pantry. √

Stock the basics. √ Okay, but as for using pre made mixes instead of from scratch, you have got to be kidding me.

Dust off your apron. No, WASH the apron. Wash the oven mitts. Throw out or give away some of your cookware, and buy new baking/cooking pans.

Buy a bread maker. Not unless you have all the allergies and intolerances figured out first, and even then, you may not need it. Your metabolism may not be geared for consuming high amounts of gluten free breads. Buy a 4" by 8" loaf pan.

Patronize local businesses. √ YES, with a caveat. Don't ever assume a big, name brand chain won't gluten you. A small local place, on the other hand, even without a gluten free menu, but with a smart, helpful waitstaff and chef, may be safer. If your local small grocery or health food store stocks gluten free items, praise them.

Don't settle. √ Of course our food is better. It's from scratch, and it tends to not have many additives.

Exhale. √ Yes.

happygirl Collaborator
happygirl
Posted
  • Author

Its a great magazine with lots of helpful, up-to-date information - I think you'll enjoy it, Cecily.

Happy New Year to you, Lynayah!

Hi Patti!!!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Lynayah Enthusiast
Lynayah
Posted

:ph34r: Uhm, what is that... scary thing that the woman is staring at in the accompanying photo ? It looks like compost on a plate.

LOL! Well, if it is REAL chocolate cake and not gluten-free, it sure as heck is compost waiting to happen!

mysecretcurse Contributor
mysecretcurse
Posted
Build a Medical Team. "medical team?!" " nutritionist who specialize celiac disease ?!" uh oh, let's not go into that one as we don't have time for the saga today.

Haha... I like your posts Takala... I read that and had the same thought... my mind just went UGH.. PLEASE. I'm iffy about the rest of that article but some of it is good. The bread maker thing is annoying to me also because like you said so many people haven't figured out what their other intolerances are after going gluten free. The article is okay but it doesn't seem to address that most of us are intolerant to a lot of stuff due to our leaky gut damage from celiac...also I've read that magazine before and it has some good stuff in it but nothing compared to these boards or the interwebs in general. I also dislike the title, LIVING WITHOUT... just sounds so damn negative. I don't feel I'm "living without" ANYTHING other than a poisonous death.. I would prefer to see it called living free or finally free or something like that. Maybe its just me. :D

lynnelise Apprentice
lynnelise
Posted

Haha... I like your posts Takala... I read that and had the same thought... my mind just went UGH.. PLEASE. I'm iffy about the rest of that article but some of it is good. The bread maker thing is annoying to me also because like you said so many people haven't figured out what their other intolerances are after going gluten free. The article is okay but it doesn't seem to address that most of us are intolerant to a lot of stuff due to our leaky gut damage from celiac...also I've read that magazine before and it has some good stuff in it but nothing compared to these boards or the interwebs in general. I also dislike the title, LIVING WITHOUT... just sounds so damn negative. I don't feel I'm "living without" ANYTHING other than a poisonous death.. I would prefer to see it called living free or finally free or something like that. Maybe its just me. :D

I definately enjoyed the article but I have always thought the title Living Without is depressing! lol!

New-To-This Rookie
New-To-This
Posted

This article was in the recent Living Without magazine. Its a great resource for newly diagnosed - and all - Celiacs and others with gluten intolerance.

Open Original Shared Link

Good article for someone just starting out. However it should have given a web site or something on how to locate a support group near your home. I live in the middle of no mans land and don't have a clue where to turn for a support group that isn't 2 or 3 hours away. So far this has been my support group and where I get some of my information. One other thing it missed was suggesting books like "The first year Celiac Disease and Living Gluten Free" by Jules E. Dowler Shepard It walks you through the first 7 days than next 3 weeks than monthly afterwards. I wish I had found it when we first started this, not by seeing it in a store and deciding I was going to check it out of the library first. Which gets to my next point. Do lots of research and ALWAYS check a cookbook out of the library before spending your hard earned money on a book that will only disappoint you. I am having a hard time finding a remake of my old faithful betty crocker cookbook and am finding tons of books with stuff I never ate before and my husband is say "You want me to eat what?!? to, lol! Needless to say I am fortunate enough to love to cook and resourcefull enough to find alternatives so I can alter our old favorites myself. I may even write a remake of the good old betty crocker cookbook type cookbook when I am a good long ways into altering my recipes, lol!

Best of luck to all those first starting and everyone else too. Your best resources are web sites like this one!

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,855
    • Most Online (within 30 mins)
      7,748
    Tara M
    Newest Member
    Tara M
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • cristiana
      Ibuprofen

      By cristiana · Posted

      @Colleen H   I am just curious,  when you were tested for coeliac disease, did the doctors find out if you had any deficiencies? Sometimes muscle pain can be caused by certain deficiencies, for example, magnesium, vitamin D, calcium, and potassium.   Might be worth looking into having some more tests.  Pins and needles can be neuropathy, again caused by deficiencies, such as iron and B12,  which can be reversed if these deficiencies are addressed. In the UK where I live we are usually only tested for iron, B12 and vitamin D deficiencies at diagnosis.   I was very iron anemic and supplementation made a big difference.  B12 was low normal, but in other countries the UK's low normal would be considered a deficiency.  My vitamin D was low normal, and I've been supplementing ever since (when I remember to take it!) My pins and needles definitely started to improve when my known deficiencies were addressed.  My nutritionist also gave me a broad spectrum supplement which really helped, because I suspect I wasn't just deficient in what I mention above but in many other vitamins and minerals.  But a word of warning, don't take iron unless blood tests reveal you actually need it, and if you are taking it your levels must be regularly monitored because too much can make you ill.  (And if you are currently taking iron, that might actually be making your stomach sore - it did mine, so my GP changed my iron supplementation to a gentler form, ferrous gluconate). Lastly, have you been trying to take anything to lessen the pain in your gut?  I get a sore stomach periodically, usually when I've had too much rich food, or when I have had to take an aspirin or certain antibiotics, or after glutening.  When this happens, I take for just a few days a small daily dose of OTC omeprazole.  I also follow a reflux or gastritis diet. There are lots online but the common denominators to these diets is you need to cut out caffeine, alcohol, rich, spicy, acidic food etc and eat small regularly spaced meals.   When I get a sore stomach, I also find it helpful to drink lots of water.  I also find hot water with a few slices of ginger very soothing to sip, or camomile tea.  A wedge pillow at night is good for reflux. Also,  best not to eat a meal 2-3 hours before going to bed. If the stomach pain is getting worse, though, it would be wise to see the doctor again. I hope some of this helps. Cristiana    
    • Me,Sue
      Knowing what to do when feeling unwell.

      By Me,Sue · Posted

      I was diagnosed with coeliac disease a couple of years ago [ish]. I love my food and a variety of food, so it's been hard, as it is with everyone. I try and ensure everything I eat doesn't contain gluten, but occasionally I think something must have got through that has gluten in. Mainly I know because I have to dash to the loo, but recently I have noticed that I feel nauseous after possibly being glutened. I think the thing that I have got better at is knowing what to do when I feel wiped out after a gluten 'episode'. I drink loads of water, and have just started drinking peppermint tea. I also have rehydration powders to drink. I don't feel like eating much, but eventually feel like I need to eat. Gluten free flapjacks, or gluten free cereal, or a small gluten free kids meal are my go to. I am retired, so luckily I can rest, sometimes even going to bed when nothing else works. So I feel that I am getting better at knowing how to try and get back on track. I am also trying to stick to a simpler menu and eat mostly at home so that I can be more confident about what I am eating. THANKS TO THOSE WHO REPLIED ABOUT THE NAUSEA .
    • Francis M
      The Happy Tart review

      By Francis M · Posted

      Thanks. Since the back and forth and promises of review and general stalling went on for more than six months, the credit company will no longer investigate. They have a cutoff of maybe six months.
    • Scott Adams
      The Happy Tart review

      By Scott Adams · Posted

      Is this the same restaurant? https://www.facebook.com/TheHappyTartFallsChurch/ Is it too late to take this up with your credit card company? Normally you have a few months to do a chargeback with them. It seems very odd that they are taking this approach with someone who is likely to be a regular customer--not a good business-minded way of handling things!
    • Scott Adams
      Stomach burning and neuropathy

      By Scott Adams · Posted

      Many people with celiac disease, especially those who are in the 0-2 year range of their recovery, have additional food intolerance issues which could be temporary. To figure this out you may need to keep a food diary and do an elimination diet over a few months. Some common food intolerance issues are dairy/casein, eggs, corn, oats, and soy. The good news is that after your gut heals (for most people who are 100% gluten-free this will take several months to two years) you may be able to slowly add some these items back into your diet after the damaged villi heal. This article may be helpful: The most common nutrient deficiencies associated with celiac disease that may lead to testing for the condition include iron, vitamin D, folate (vitamin B9), vitamin B12, calcium, zinc, and magnesium.  Unfortunately many doctors, including my own doctor at the time, don't do extensive follow up testing for a broad range of nutrient deficiencies, nor recommend that those just diagnosed with celiac disease take a broad spectrum vitamin/mineral supplement, which would greatly benefit most, if not all, newly diagnosed celiacs. Because of this it took me decades to overcome a few long-standing issues I had that were associated with gluten ataxia, for example numbness and tingling in my feet, and muscle knots--especially in my shoulders an neck. Only long term extensive supplementation has helped me to resolve these issues.        
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.