Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Travel For A Funeral

Googles

By Googles
in Coping with Celiac Disease

Recommended Posts

Googles Community Regular
Googles
Posted

I am probably soon going to be traveling to my grandfather's funeral. I am trying to figure out how to deal with food as I will not be able to travel easily on my own and I have no idea what will be happening with food and meals. I have a very large extended family and so meals will probably be at restaurants that will seat all of us. But until this happens I don't know what is going to happen. When we eat at my grandparent's house I wont be able to guarantee gluten free food or that I can make it to a grocery store (there isn't one close and everyone shares cars) to get food for myself. This will be my first time traveling for more than a day since I was diagnosed. I know there is going to be a lot of stress for everyone. I've never been through this before and then with trying to figure out the gluten free part of it just makes it worse. While some people know, I don't feel that I can do anything to suggest where we eat and what not. I really can't get sick because I will most likely be missing school already and can't take any more time off. Any advice would be much appreciated. I hate first times of doing things.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Wolicki Enthusiast
Wolicki
Posted

I am probably soon going to be traveling to my grandfather's funeral. I am trying to figure out how to deal with food as I will not be able to travel easily on my own and I have no idea what will be happening with food and meals. I have a very large extended family and so meals will probably be at restaurants that will seat all of us. But until this happens I don't know what is going to happen. When we eat at my grandparent's house I wont be able to guarantee gluten free food or that I can make it to a grocery store (there isn't one close and everyone shares cars) to get food for myself. This will be my first time traveling for more than a day since I was diagnosed. I know there is going to be a lot of stress for everyone. I've never been through this before and then with trying to figure out the gluten free part of it just makes it worse. While some people know, I don't feel that I can do anything to suggest where we eat and what not. I really can't get sick because I will most likely be missing school already and can't take any more time off. Any advice would be much appreciated. I hate first times of doing things.

ok, so prepare, prepare, prepare!

Go to your market and stock up on Lara Bars, apples, nuts, all kinds of potable snacks that you can take with you in an extra bag.

With extended family around, I am certain that someone could drive you to a local store to get some fresh produce: bannanas , grapes, etc to keep you going.

Research the gluten free dining options before you go:

google gluten free in xxx city, or post the city here and ask for suggestions.

Figure out who is going to be deciding where to eat. If they know of your issues, it shouldn;t be a big deal. The host can say "here are our choices....." That way, you know you can have a safe meal, and no one else is put out by having to do the research. Almost any restaurant should be able to accomodate a large family gathering.

Always have your snacks so you don't starve. You can always order a baked potato, then take some of those butter pats wrapped in foil with you. You can buy those at many markets. Then there's no risk of cc. Remember you can always ask for a plain piece of meat cooked in its own pan with salt and pepper.

Stay calm,be prepared and you'll be just fine. You may have a few peanut butter and banana meals, but you'll be spending quality time with family, remebering a loved one :P

Ahorsesoul Enthusiast
Ahorsesoul
Posted

Hopefully you've let the family and friends you will be staying with that you have to eat Gluten free. This is not the time to surprise them when you arrive.

ravenwoodglass Mentor
ravenwoodglass
Posted

I am sorry about the loss of your Grandfather. As stated prepare to bring as much as you can with you. If your traveling by car bring a cooler with a few frozen gluten-free dinners you can zap if needed. You might also want to do a search and see if there is a Health Food store nearby so you can give them a call and see what gluten-free stuff they might carry. I hope the trip goes smoothly for you. Traveling with celiac can be tricky but with a bit of preperation it should go okay.

lynnelise Apprentice
lynnelise
Posted

First off I'm sorry for your loss!

The other posters had great ideas. Larabars and Kind bars have saved me many times. Fruit is easily transported. Also I keep Thai Kitchen and A Taste of Thai entrees on hand for emergency travel. They don't require refrigeration and you can just add water and microwave! Of course they are low on protein so you might want to supplement lean meats, nuts, ect.

Googles Community Regular
Googles
Posted
  • Author

My grandmother knows about my celiac and actually has a friend who has it also. So she is not totally unaware of the requirements. However, I don't know how much of my extended family knows about it. I didn't tell them but my dad may have. Packing food is going to be hard as I will have to fly to get there. I find the ongoing stress hard of not knowing what is going to happen with his health and what will be happening with food. As I just got glutened from food that said gluten free on the box my tollerance for ambiguity in food is low. Thanks for all the support and I will use your suggestions as I can.

ravenwoodglass Mentor
ravenwoodglass
Posted

My grandmother knows about my celiac and actually has a friend who has it also. So she is not totally unaware of the requirements. However, I don't know how much of my extended family knows about it. I didn't tell them but my dad may have. Packing food is going to be hard as I will have to fly to get there. I find the ongoing stress hard of not knowing what is going to happen with his health and what will be happening with food. As I just got glutened from food that said gluten free on the box my tollerance for ambiguity in food is low. Thanks for all the support and I will use your suggestions as I can.

It sounds like your best bet may be scoping things out before you go. Perhaps if you tell us the city someone may live there or be able to find out safe stores and restaurants for you. I hope your grandfather takes a turn for better and his health improves.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. trents
      - trents replied to Sarah Grace's topic in Related Issues & Disorders
      26

      Headaches / Migraines and Hypoglycaemia

      This article does not address migraines at all. Yes, red wine and sulfites are often mentioned in connection with migraine triggers. With me, any kind of alcoholic beverage in very modest amounts will reliably produce a migraine. Nitrous oxide generators, which are vaso dialators, also will give me migraines reliably. So, I think most of my migraines...
    2. knitty kitty
      - knitty kitty replied to Sarah Grace's topic in Related Issues & Disorders
      26

      Headaches / Migraines and Hypoglycaemia

      Excessive dietary tyrosine can cause problems. Everything in moderation. Sulfites can also trigger migraines. Sulfites are found in fermented, pickled and aged foods, like cheese. Sulfites cause a high histamine release. High histamine levels are found in migraine. Following a low histamine diet like the low histamine Autoimmune Protocol diet,...
    3. trents
      - trents replied to Sarah Grace's topic in Related Issues & Disorders
      26

      Headaches / Migraines and Hypoglycaemia

      Then we would need to cut out all meat and fish as they are richer sources of tyrosine than nuts and cheese. Something else about certain tyrosine rich foods must be the actual culprit.
    4. Scott Adams
      - Scott Adams replied to Russ H's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      KAN-101 Treatment for Coeliac Disease

      I agree that KAN-101 looks promising, and hope the fast track is approved. From our article below: "KAN-101 shows promise as an immune tolerance therapy aiming to retrain the immune system, potentially allowing safe gluten exposure in the future, but more clinical data is needed to confirm long-term effects."
    5. Scott Adams
      - Scott Adams replied to miguel54b's topic in Related Issues & Disorders
      1

      Body dysmorphia experience

      Thank you so much for having the courage to share this incredibly vivid and personal experience; it's a powerful reminder of how physical ailments can disrupt our fundamental sense of self. What you're describing sounds less like a purely psychological body dysmorphia and more like a distinct neurological event, likely triggered by the immense physical stress...
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,156
    • Most Online (within 30 mins)
      7,748
    Shrub
    Newest Member
    Shrub
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • trents
      Headaches / Migraines and Hypoglycaemia

      By trents · Posted

      This article does not address migraines at all.  Yes, red wine and sulfites are often mentioned in connection with migraine triggers. With me, any kind of alcoholic beverage in very modest amounts will reliably produce a migraine. Nitrous oxide generators, which are vaso dialators, also will give me migraines reliably. So, I think most of my migraines are tied to fluctuations vascular tension and blood flow to the brain. That's why the sumatriptan works so well. It is a vaso constrictor. 
    • knitty kitty
      Headaches / Migraines and Hypoglycaemia

      By knitty kitty · Posted

      Excessive dietary tyrosine can cause problems.  Everything in moderation.   Sulfites can also trigger migraines. Sulfites are found in fermented, pickled and aged foods, like cheese.  Sulfites cause a high histamine release.  High histamine levels are found in migraine.  Following a low histamine diet like the low histamine Autoimmune Protocol diet, a Paleo diet, helps immensely.    Sulfites and other migraine trigger foods can cause changes in the gut microbiome.  These bad bacteria can increase the incidence of migraines, increasing histamine and inflammation leading to increased gut permeability (leaky gut), SIBO, and higher systemic inflammation.   A Ketogenic diet can reduce the incidence of migraine.  A Paleo diet like the AIP diet, that restricts carbohydrates (like from starchy vegetables) becomes a ketogenic diet.  This diet also changes the microbiome, eliminating the bad bacteria and SIBO that cause an increase in histamine, inflammation and migraine.  Fewer bad bacteria reduces inflammation, lowers migraine frequency, and improves leaky gut. Since I started following the low histamine ketogenic AIP paleo diet, I rarely get migraine.  Yes, I do eat carbs occasionally now, rice or potato, but still no migraines.  Feed your body right, feed your intestinal bacteria right, you'll feel better.  Good intestinal bacteria actually make your mental health better, too.  I had to decide to change my diet drastically in order to feel better all the time, not just to satisfy my taste buds.  I chose to eat so I would feel better all the time.  I do like dark chocolate (a migraine trigger), but now I can indulge occasionally without a migraine after.   Microbiota alterations are related to migraine food triggers and inflammatory markers in chronic migraine patients with medication overuse headache https://pmc.ncbi.nlm.nih.gov/articles/PMC11546420/  
    • trents
      Headaches / Migraines and Hypoglycaemia

      By trents · Posted

      Then we would need to cut out all meat and fish as they are richer sources of tyrosine than nuts and cheese. Something else about certain tyrosine rich foods must be the actual culprit. 
    • Scott Adams
      KAN-101 Treatment for Coeliac Disease

      By Scott Adams · Posted

      I agree that KAN-101 looks promising, and hope the fast track is approved. From our article below: "KAN-101 shows promise as an immune tolerance therapy aiming to retrain the immune system, potentially allowing safe gluten exposure in the future, but more clinical data is needed to confirm long-term effects."  
    • Scott Adams
      Body dysmorphia experience

      By Scott Adams · Posted

      Thank you so much for having the courage to share this incredibly vivid and personal experience; it's a powerful reminder of how physical ailments can disrupt our fundamental sense of self. What you're describing sounds less like a purely psychological body dysmorphia and more like a distinct neurological event, likely triggered by the immense physical stress and inflammation that uncontrolled celiac disease can inflict on the entire body, including the nervous system. It makes complete sense that the specific sensory input—the pressure points of your elbows on your knees—created a temporary, distorted body map in your brain, and the fact that it ceased once you adopted a gluten-free diet is a crucial detail. Your intuition to document this is absolutely right; it's not "crazy" but rather a significant anecdotal data point that underscores the mysterious and far-reaching ways gluten can affect individuals. Your theory about sensory triggers from the feet for others is also a thoughtful insight, and sharing this story could indeed be validating for others who have had similar, unexplainable sensory disturbances, helping them feel less alone in their journey.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.