Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Anyone Have Pancreatic Enzyme Deficiencies?

jasonD2

Recommended Posts

jasonD2 Experienced
jasonD2
Posted

My GI who is a celiac specialist game me some enzyme pills called Ultrase and feels that im not getting better because i am not digesting my food properly. She also thinks its why one of my liver enzymes is a bit elevated. Does anyone have similar problems?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Wolicki Enthusiast
Wolicki
Posted

My GI who is a celiac specialist game me some enzyme pills called Ultrase and feels that im not getting better because i am not digesting my food properly. She also thinks its why one of my liver enzymes is a bit elevated. Does anyone have similar problems?

Yes, Jason it is common. I have the same issue. I take enzymes with any remotely hard to digest foods, otherwise, they tend to come out looking exactly as they went in :blink: Take enzymes with every meal (I would think 3 caps each meal would be fine, that's what I took). Now I am down to only with harder to digest foods, 2 caps.

jasonD2 Experienced
jasonD2
Posted
  • Author

Thanks!

Can you ween off eventually or should we take them indefinitely? is there any long-term adverse effects associated with enzyme supplementation?

jasonD2 Experienced
jasonD2
Posted
  • Author

Also....can insufficient enzyme production prevent healing of leaky gut?

ravenwoodglass Mentor
ravenwoodglass
Posted

Thanks!

Can you ween off eventually or should we take them indefinitely? is there any long-term adverse effects associated with enzyme supplementation?

I had to take them after a bout with pancreatitis. They helped a lot. I only needed to use them for a couple of months. A couple weeks with every meal, then I took them just when I ate something heavy in fat or hard to digest and then was able to stop them. Talk to your doctor but you should be able to stop them after you have healed enough for your body to produce the enzymes again.

jasonD2 Experienced
jasonD2
Posted
  • Author

Thanks- that was very helpful! ;)

jasonD2 Experienced
jasonD2
Posted
  • Author

Do the supplements cause constipation? My colon is quite sensitive and whenever i start taking new things it goes into a spasm and my stools get really thin

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


mushroom Proficient
mushroom
Posted

I go on and off digestive enzymes. I'm back on them right now, with lactaid, as I'm trying out lactose again. They don't give me constipation; I take them because I'm having the big D and gas. I was diagnosed with insufficient pancreatic enzymes and took them for almost a year, consistently. Then was able to wean from them, but now I'm taking them consistently, at least with the evening meal. I am going to retest when I return to Nevada this summer and see where I'm at. Constipation has never been my problem :D

I too would urge you to have the lyme test with a LLMD. I even thought of doing it myself because I had had a tick bite but no rash.

jackay Enthusiast
jackay
Posted

I tested as having abnormally low pancreatic enzymes. My doctor put me on them and they made my stomach churn like crazy. Also, got worse D. My doctor told me to go off them for the time being. The D is now controlled. I do not know if my enzyme level is up. What I'm eliminating is looking more normal so I hope that is a good sign. I had blood work done for nutrients so once I get those results I should have an indication if my pancreatic enzyme level has come up. Sure hope so!

  • 2 weeks later...
BlueTaelon Rookie
BlueTaelon
Posted

My GI who is a celiac specialist game me some enzyme pills called Ultrase and feels that im not getting better because i am not digesting my food properly. She also thinks its why one of my liver enzymes is a bit elevated. Does anyone have similar problems?

Yes, I have the same issue and have been on Pancrease MT 20 (same thing as Ultrase just different brand name) for 3 years now. They actually did studies on it that you can Open Original Shared Link or google "celiac pancreatic exocrine insufficiency" it took about 2 weeks on the enzymes before I started feeling better but man, they really messed with my stomach the first couple weeks. They eat all the garbage thats been siting in your GI tract (I lost I think it was 3 lbs the 1st week) which may expose ulcers that can begin healing but it will get better.

BlueTaelon Rookie
BlueTaelon
Posted

Yes, Jason it is common. I have the same issue. I take enzymes with any remotely hard to digest foods, otherwise, they tend to come out looking exactly as they went in :blink: Take enzymes with every meal (I would think 3 caps each meal would be fine, that's what I took). Now I am down to only with harder to digest foods, 2 caps.

I think your talking about the OTC ones which are not nearly as powerful as the prescription ones the OP is talking about.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. SilkieFairy
      - SilkieFairy replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      6

      IBS-D vs Celiac

      I realized it is actually important to get an official diagnosis because then insurance can cover bone density testing and other lab work to see if any further damage has been done because of it. Also, if hospitalized for whatever reason, I have the right to gluten-free food if I am officially celiac. I guess it gives me some legal protections. Plus, I have...
    2. par18
      - par18 replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      6

      IBS-D vs Celiac

      Been off this forum for years. Is it that important that you get an official diagnosis of something? It appears like you had a trigger (wheat, gluten, whatever) and removing it has resolved your symptom. I can't speak for you, but I had known what my trigger was (gluten) years before my diagnosis I would just stay gluten-free and get on with my symptom free...
    3. Celiac.com Sponsored Post
      0

      An Inclusive Valentine's Day: Easy Tips for a Celebration Everyone Can Enjoy

    4. trents
      - trents replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      6

      IBS-D vs Celiac

      No coincidence. Recent revisions to gluten challenge guidelines call for the daily consumption of at least 10g of gluten (about the amount in 4-6 slices of wheat bread) for a minimum of 3 weeks. If possible, I would extend that two weeks to ensure valid testing.
    5. SilkieFairy
      - SilkieFairy replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      6

      IBS-D vs Celiac

      Thank you both for the replies. I decided to bring back gluten so I can do the blood test. Today is Day #2 of the Challenge. Yesterday I had about 3 slices of whole wheat bread and I woke up with urgent diarrhea this morning. It was orange, sandy and had the distinctive smell that I did not have when I was briefly gluten free. I don't know if it's a...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,340
    • Most Online (within 30 mins)
      7,748
    Abbyyoung417
    Newest Member
    Abbyyoung417
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • SilkieFairy
      IBS-D vs Celiac

      By SilkieFairy · Posted

      I realized it is actually important to get an official diagnosis because then insurance can cover bone density testing and other lab work to see if any further damage has been done because of it. Also, if hospitalized for whatever reason, I have the right to gluten-free food if I am officially celiac. I guess it gives me some legal protections. Plus, I have 4 kids, and I really want to know. If I really do have it then they may have increased risk. 
    • par18
      IBS-D vs Celiac

      By par18 · Posted

      Been off this forum for years. Is it that important that you get an official diagnosis of something? It appears like you had a trigger (wheat, gluten, whatever) and removing it has resolved your symptom. I can't speak for you, but I had known what my trigger was (gluten) years before my diagnosis I would just stay gluten-free and get on with my symptom free condition. I was diagnosed over 20 years ago and have been symptom free only excluding wheat, rye and barley. I tolerate all naturally gluten free whole foods including things like beans which actually helps to form the stools. 
    • trents
      IBS-D vs Celiac

      By trents · Posted

      No coincidence. Recent revisions to gluten challenge guidelines call for the daily consumption of at least 10g of gluten (about the amount in 4-6 slices of wheat bread) for a minimum of 3 weeks. If possible, I would extend that two weeks to ensure valid testing.
    • SilkieFairy
      IBS-D vs Celiac

      By SilkieFairy · Posted

      Thank you both for the replies. I decided to bring back gluten so I can do the blood test. Today is Day #2 of the Challenge. Yesterday I had about 3 slices of whole wheat bread and I woke up with urgent diarrhea this morning. It was orange, sandy and had the distinctive smell that I did not have when I was briefly gluten free. I don't know if it's a coincidence, but the brain fog is back and I feel very tired.   
    • knitty kitty
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By knitty kitty · Posted

      @Jane02, I hear you about the kale and collard greens.  I don't do dairy and must eat green leafies, too, to get sufficient calcium.  I must be very careful because some calcium supplements are made from ground up crustacean shells.  When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly.  This is safe and nontoxic.  Vitamin D level should be above 70 nmol/L.  Lifeguards and indigenous Pacific Islanders typically have levels between 80-100 nmol/L.   Levels lower than this are based on amount needed to prevent disease like rickets and osteomalacia. We need more thiamine when we're physically ill, emotionally and mentally stressed, and if we exercise like an athlete or laborer.  We need more thiamine if we eat a diet high in simple carbohydrates.  For every 500 kcal of carbohydrates, we need 500-1000 mg more of thiamine to process the carbs into energy.  If there's insufficient thiamine the carbs get stored as fat.  Again, recommended levels set for thiamine are based on minimum amounts needed to prevent disease.  This is often not adequate for optimum health, nor sufficient for people with absorption problems such as Celiac disease.  Gluten free processed foods are not enriched with vitamins like their gluten containing counterparts.  Adding a B Complex and additional thiamine improves health for Celiacs.  Thiamine is safe and nontoxic even in high doses.  Thiamine helps the mitochondria in cells to function.  Thiamine interacts with each of the other B vitamins.  They are all water soluble and easily excreted if not needed. Interesting Reading: Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/ Safety and effectiveness of vitamin D mega-dose: A systematic review https://pubmed.ncbi.nlm.nih.gov/34857184/ High dose dietary vitamin D allocates surplus calories to muscle and growth instead of fat via modulation of myostatin and leptin signaling https://pubmed.ncbi.nlm.nih.gov/38766160/ Safety of High-Dose Vitamin D Supplementation: Secondary Analysis of a Randomized Controlled Trial https://pubmed.ncbi.nlm.nih.gov/31746327/ Vitamins and Celiac Disease: Beyond Vitamin D https://pmc.ncbi.nlm.nih.gov/articles/PMC11857425/ Investigating the therapeutic potential of tryptophan and vitamin A in modulating immune responses in celiac disease: an experimental study https://pubmed.ncbi.nlm.nih.gov/40178602/ Investigating the Impact of Vitamin A and Amino Acids on Immune Responses in Celiac Disease Patients https://pmc.ncbi.nlm.nih.gov/articles/PMC10814138/
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.