Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Anyone Have Pancreatic Enzyme Deficiencies?


jasonD2

Recommended Posts

jasonD2 Experienced

My GI who is a celiac specialist game me some enzyme pills called Ultrase and feels that im not getting better because i am not digesting my food properly. She also thinks its why one of my liver enzymes is a bit elevated. Does anyone have similar problems?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Wolicki Enthusiast

My GI who is a celiac specialist game me some enzyme pills called Ultrase and feels that im not getting better because i am not digesting my food properly. She also thinks its why one of my liver enzymes is a bit elevated. Does anyone have similar problems?

Yes, Jason it is common. I have the same issue. I take enzymes with any remotely hard to digest foods, otherwise, they tend to come out looking exactly as they went in :blink: Take enzymes with every meal (I would think 3 caps each meal would be fine, that's what I took). Now I am down to only with harder to digest foods, 2 caps.

jasonD2 Experienced

Thanks!

Can you ween off eventually or should we take them indefinitely? is there any long-term adverse effects associated with enzyme supplementation?

jasonD2 Experienced

Also....can insufficient enzyme production prevent healing of leaky gut?

ravenwoodglass Mentor

Thanks!

Can you ween off eventually or should we take them indefinitely? is there any long-term adverse effects associated with enzyme supplementation?

I had to take them after a bout with pancreatitis. They helped a lot. I only needed to use them for a couple of months. A couple weeks with every meal, then I took them just when I ate something heavy in fat or hard to digest and then was able to stop them. Talk to your doctor but you should be able to stop them after you have healed enough for your body to produce the enzymes again.

jasonD2 Experienced

Thanks- that was very helpful! ;)

jasonD2 Experienced

Do the supplements cause constipation? My colon is quite sensitive and whenever i start taking new things it goes into a spasm and my stools get really thin


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



mushroom Proficient

I go on and off digestive enzymes. I'm back on them right now, with lactaid, as I'm trying out lactose again. They don't give me constipation; I take them because I'm having the big D and gas. I was diagnosed with insufficient pancreatic enzymes and took them for almost a year, consistently. Then was able to wean from them, but now I'm taking them consistently, at least with the evening meal. I am going to retest when I return to Nevada this summer and see where I'm at. Constipation has never been my problem :D

I too would urge you to have the lyme test with a LLMD. I even thought of doing it myself because I had had a tick bite but no rash.

jackay Enthusiast

I tested as having abnormally low pancreatic enzymes. My doctor put me on them and they made my stomach churn like crazy. Also, got worse D. My doctor told me to go off them for the time being. The D is now controlled. I do not know if my enzyme level is up. What I'm eliminating is looking more normal so I hope that is a good sign. I had blood work done for nutrients so once I get those results I should have an indication if my pancreatic enzyme level has come up. Sure hope so!

  • 2 weeks later...
BlueTaelon Rookie

My GI who is a celiac specialist game me some enzyme pills called Ultrase and feels that im not getting better because i am not digesting my food properly. She also thinks its why one of my liver enzymes is a bit elevated. Does anyone have similar problems?

Yes, I have the same issue and have been on Pancrease MT 20 (same thing as Ultrase just different brand name) for 3 years now. They actually did studies on it that you can Open Original Shared Link or google "celiac pancreatic exocrine insufficiency" it took about 2 weeks on the enzymes before I started feeling better but man, they really messed with my stomach the first couple weeks. They eat all the garbage thats been siting in your GI tract (I lost I think it was 3 lbs the 1st week) which may expose ulcers that can begin healing but it will get better.

BlueTaelon Rookie

Yes, Jason it is common. I have the same issue. I take enzymes with any remotely hard to digest foods, otherwise, they tend to come out looking exactly as they went in :blink: Take enzymes with every meal (I would think 3 caps each meal would be fine, that's what I took). Now I am down to only with harder to digest foods, 2 caps.

I think your talking about the OTC ones which are not nearly as powerful as the prescription ones the OP is talking about.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Wheatwacked replied to MauraBue's topic in Gluten-Free Foods, Products, Shopping & Medications
      4

      Have Tru Joy Sweets Choco Chews been discontinued??

    2. - Scott Adams replied to MauraBue's topic in Gluten-Free Foods, Products, Shopping & Medications
      4

      Have Tru Joy Sweets Choco Chews been discontinued??

    3. - Jmartes71 replied to chrish42's topic in Doctors
      7

      Doctors and Celiac.com

    4. - Wheatwacked replied to MauraBue's topic in Gluten-Free Foods, Products, Shopping & Medications
      4

      Have Tru Joy Sweets Choco Chews been discontinued??

    5. - Theresa2407 replied to chrish42's topic in Doctors
      7

      Doctors and Celiac.com

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,268
    • Most Online (within 30 mins)
      7,748

    MaryCan231
    Newest Member
    MaryCan231
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Wheatwacked
      They both do.  The peanuts add nutrients to the treat. Tootsie Roll: Sugar, Corn Syrup, Palm Oil, Condensed Skim Milk, Cocoa, Whey, Soy Lecithin, Artificial and Natural Flavors. M&M Peanut: milk chocolate (sugar, chocolate, skim milk, cocoa butter, lactose, milkfat, peanuts, soy lecithin, salt, natural flavor), peanuts, sugar, cornstarch; less than 1% of: palm oil, corn syrup, dextrin, colors (includes blue 2 lake, blue 1 lake, red 40, yellow 6 lake, yellow 5, yellow 6, blue 1, yelskim milk contains caseinlow 5 lake, blue 2, red 40 lake), carnauba wax, gum acacia. glycemic index of Tootsie Rolls ~83 gycemic index of M&M Peanuts ~33   The composition of non-fat solids of skim milk is: 52.15% lactose, 38.71% protein (31.18% casein, 7.53% whey protein), 1.08% fat, and 8.06% ash.   https://onlinelibrary.wiley.com/doi/10.1002/9781118810279.ch04  Milkfat carries the fat soluble vitamins A, D, E, and K. The solids-not-fat portion [of milk] consists of protein (primarily casein and lactalbumin), carbohydrates (primarily lactose), and minerals (including calcium and phosphorus). https://ansc.umd.edu/sites/ansc.umd.edu/files/files/documents/Extension/Milk-Definitions.pdf
    • Scott Adams
      But M&M's contain milk, and would not be at all like a Tootsie Roll.
    • Jmartes71
      I appreciate you validating me because medical is an issue and it's not ok at all they they do this. Some days I just want to call the news media and just call out these doctors especially when they are supposed to be specialist Downplaying when gluten-free when they should know gluten-free is false negative. Now dealing with other issues and still crickets for disability because I show no signs of celiac BECAUSE IM GLUTENFREE! Actively dealing with sibo and skin issues.Depression is the key because thats all they know, im depressed because medical has caused it because of my celiac and related issues. I should have never ever been employed as a bus driver.After 3 years still healing and ZERO income desperately trying to get better but no careteam for celiac other than stay away frim wheat! Now im having care because my head is affected either ms or meningioma in go in tomorrow again for more scans.I know im slowly dying and im looking like a disability chaser
    • Wheatwacked
      M&M Peanuts. About the same calories and sugar while M&M Peanuts have fiber, potassium, iron and protein that Tootsie Rolls ("We are currently producing more than 50 million Tootsie Rolls each day.") don't. Click the links to compare nutritional values.  Both are made with sugar, not high fructose corn syrup.  I use them as a gluten free substitute for a peanut butter sandwich.  Try her on grass fed, pasture fed milk. While I get heartburn at night from commercial dairy milk, I do not from 'grassmilk'.     
    • Theresa2407
      I see it everyday on my feeds.  They go out and buy gluten-free processed products and wonder why they can't heal their guts.  I don't think they take it as a serious immune disease. They pick up things off the internet which is so far out in left field.  Some days I would just like to scream.  So much better when we had support groups and being able to teach them properly. I just had an EMA blood test because I haven't had one since my Doctor moved away.  Got test results today, doctor ordered a D3 vitamin test.  Now you know what  type of doctors we have.  Now I will have to pay for this test because she just tested my D3 end of December, and still have no idea about my EMA.    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.