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Seems Almost Impossible To Stay Gluten Free


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sandsurfgirl Collaborator

I never assume others understand what celiac disease or gluten intolerance is. At our homeschooling group a few weeks ago, the kids were making cat and dog treats, and catnip pillows, for the local humane society. The mom in charge asked me to help the kids with the treats; I asked to see the recipe, and it called for flour. I told her I had celiac disease and shouldn't be near the flour, since wheat makes me sick. She said, "Oh, this is white flour, not wheat." I said, "if it's all-purpose flour, it's made of wheat." She said, "Really?!" Oh. My. Gosh. So I stationed myself at the catnip pillows table. :)

So I never assume a waitress will understand what I mean when I say, "I can't eat wheat." The waitress may have thought there's no way the soup had flour in it, and that as long as the croutons weren't on it, you were okay with it. Panera is such a bread-filled place, I don't eat there anymore because cross-contamination is so likely.

And about shampoos and lotions. For a looong time I thought i didn't need to worry about them. But I've had a bad rash on my forehead now for about two months, ever since I started using a new shampoo...and I just now read the label and it has wheat protein in it. I stopped using it, switched to a gluten-free shampoo and facial cleanser, and already my skin is getting better. It is possible for the wheat to irritate one's skin, or to cause an allergic reaction, if you have celiac. But it's not hard to find gluten-free products! Really. Dove will always list wheat, and Shikai makes nice shampoos and conditioners that are gluten free.

Lots of people don't know that white bread is made of wheat. A few days ago the In N Out manager was assuring me that there was no wheat in their buns. Oops.


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eliogabalo Newbie

Lots of people don't know that white bread is made of wheat. A few days ago the In N Out manager was assuring me that there was no wheat in their buns. Oops.

Sometimes I get people trying to convince me that there no wheat in brown bread since it's supposed to be healthy. I feel that there is simply not enough education on the topic. When I was in Italy almost all restaurants had facilities for celiac people. A guy also told me that if you're celiac the government pays for your gluten free food which is available in all pharmacies!!

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Feel my groove

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Reba32 Rookie

Perhaps we should all move to either Italy or Ireland! :) Both are extremely celiac disease friendly apparently.

DownWithGluten Explorer

Sometimes I get people trying to convince me that there no wheat in brown bread since it's supposed to be healthy. I feel that there is simply not enough education on the topic. When I was in Italy almost all restaurants had facilities for celiac people. A guy also told me that if you're celiac the government pays for your gluten free food which is available in all pharmacies!!

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Feel my groove

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Right. Whole wheat bread has no wheat. :mellow: Sorry but that's just ignorance.

kareng Grand Master

I emailed Panera & got a list of gluten free foods. However, at the end of the email, the guy said (in corporate talk) that he didn't think it was a good idea for me to even go into the restuarant as flour & bread crumbs are everywhere & could even get into a coffee cup. I loved Panera & appreciated the honesty. My glutenfull family will still go there.

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      Hi,  My 7 year daughter has complained of this in the past, which I thought were part of her glutening symptom, but more recently I have come to figure out it's part of her histamine overload symptom. This one symptom was part of her broader profile, which included irritability, extreme hunger, confusion, post-nasal drip. You might want to look up "histamine intolerance". I wish I had known of this at the time of her diagnosis, life would have been much easier.  I hope you are able to figure out. 
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    • trents
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    • Paulaannefthimiou
      Are Bobresmill gluten free oats ok for sensitive celiacs?
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