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90% Sure I Have It - Biopsy On Monday


wendysmiling

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wendysmiling Newbie

Hi,

I'm pretty sure I have celiac. I have dx or gastroparesis (gut paralysis) and IBS. I also get a blisty rash that peels the layers of my skin off on both palms when I get stressed. The bolded words are the symptoms I'm having and have had for about 5 years....some go back to childhood.

Classic symptoms include:

o Abdominal pain

o Anemia

o Cramping

o Intestinal gas (foul)

o Indigestion

o Distention - huge (over 10 inches).

o Bloating

o Constipation

o Diarrhea (chronic)

o Nausea

o Steatorrhea (fatty stools)

o Vomiting

o Weight gain

o Weight loss with large appetite

Other symptoms:

o Aphthous ulcers (canker sores)

o Bone or joint pain

o Dental enamel defects

o Depression

o Lack of concentration (foggy)

o Poor memory

o Fatigue, weakness and lack of energy

o Infertility (male and female)

o Irritable bowel syndrome

o Elevated liver enzymes

o [b]Migraines

o Muscle cramps

o Osteoporosis

o Panic attacks

o Peripheral neuropathy ?? (gastroparesis?)

o Rheumatoid conditions

o Vitamin Deficiencies in B12, D, and K.


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mushroom Proficient

Welcome, Wnedysmiling.

Yes, from your list of symptoms, I am pretty certain that you have "it" too. Whether that "it" turns out to be confirmed celiac disease or "merely" gluten intolerance, I think that you should try the gluten free diet right away, because the solution is the same for both conditions. Many people test negative for celiac even with these symptoms. They are either false negatives, or the person is non-celiac gluten intolerant/sensitive which is equally serious but not regarded so by many doctors. Many doctors will tell you if you don't have celiac you can continue to eat gluten. Don't listen to them. The only way you will know if gluten is causing your problems is to completely eliminate it from your household (see Bea's response to Chanterelle (I'm so Frustrated) on this page of the board).

Good luck with your biopsy results. It does help many people to have that definitive diagnosis, makes them more strict with the diet :o

But whichever it turns out to be you should be just as strict.

Neroli

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    • trents
      If you have been on a gluten-free diet for four years, all of the testing with the exception of the HLA one, was a waste of time. Not sure why your physician would have even considered it.  But that doesn't explain your ongoing celiac-like symptoms. It's beginning to look like they are being caused by some other medical issues unrelated to a gluten disorder. 
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      Thanks for the insight!  It has been a whirlwind...very overwhelming and frustrating at times.  But what you are saying makes sense to me. I have been on a Gluten Free diet for 4 years now Its been suggested to me to get a second opinion  
    • heart390
      THANKS again!!!
    • trents
      Sorry for rambling on so much. It was not clear to me from you first post that, although you have known for several years that gluten had been causing you distress, that you had already eliminated it from your diet.
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      Because a close friend has had Celiac for years - I've eliminated gluten after the ER said all I had was a huge pocket of gas several years ago.  The gluten will be my 4th autoimmune disease.  Thanks so much for all your input!!!
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