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90% Sure I Have It - Biopsy On Monday

wendysmiling

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wendysmiling Newbie
wendysmiling
Posted

Hi,

I'm pretty sure I have celiac. I have dx or gastroparesis (gut paralysis) and IBS. I also get a blisty rash that peels the layers of my skin off on both palms when I get stressed. The bolded words are the symptoms I'm having and have had for about 5 years....some go back to childhood.

Classic symptoms include:

o Abdominal pain

o Anemia

o Cramping

o Intestinal gas (foul)

o Indigestion

o Distention - huge (over 10 inches).

o Bloating

o Constipation

o Diarrhea (chronic)

o Nausea

o Steatorrhea (fatty stools)

o Vomiting

o Weight gain

o Weight loss with large appetite

Other symptoms:

o Aphthous ulcers (canker sores)

o Bone or joint pain

o Dental enamel defects

o Depression

o Lack of concentration (foggy)

o Poor memory

o Fatigue, weakness and lack of energy

o Infertility (male and female)

o Irritable bowel syndrome

o Elevated liver enzymes

o [b]Migraines

o Muscle cramps

o Osteoporosis

o Panic attacks

o Peripheral neuropathy ?? (gastroparesis?)

o Rheumatoid conditions

o Vitamin Deficiencies in B12, D, and K.

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mushroom Proficient
mushroom
Posted

Welcome, Wnedysmiling.

Yes, from your list of symptoms, I am pretty certain that you have "it" too. Whether that "it" turns out to be confirmed celiac disease or "merely" gluten intolerance, I think that you should try the gluten free diet right away, because the solution is the same for both conditions. Many people test negative for celiac even with these symptoms. They are either false negatives, or the person is non-celiac gluten intolerant/sensitive which is equally serious but not regarded so by many doctors. Many doctors will tell you if you don't have celiac you can continue to eat gluten. Don't listen to them. The only way you will know if gluten is causing your problems is to completely eliminate it from your household (see Bea's response to Chanterelle (I'm so Frustrated) on this page of the board).

Good luck with your biopsy results. It does help many people to have that definitive diagnosis, makes them more strict with the diet :o

But whichever it turns out to be you should be just as strict.

Neroli

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    • trents
      Sainsbury's Free From White Sliced Bread - Now Egg Free - Completely Ruined It

      By trents · Posted

      This is a common experience across the board with various brands of gluten-free bread products. Prices go up, size goes down. Removal of the egg component may be for the purpose of cost-cutting related to bird flu supply shortages or it may be catering to those with egg allergy/sensitivity, fairly common in the celiac community.
    • HAUS
      Sainsbury's Free From White Sliced Bread - Now Egg Free - Completely Ruined It

      By HAUS · Posted

      Living with Coeliac Disease since birth, Bread has always been an issue, never too nice, small slices and always overpriced, But Sainsbury's Free From White Sliced Bread seemed to me to be an exception with it's large uniform 12 x 12cm slices that had the bounce, texture and taste of white bread even after toasting with no issue that it was also Milk Free. Unfortunately Sainsbury's have changed the recipe and have made it 'Egg Free' too and it has lost everything that made the original loaf so unique. Now the loaf is unevenly risen with 8 x 8cm slices at best, having lost it's bounce with the texture dense and cake like after toasting resembling nothing like White Bread anymore. Unsure as to why they have had to make it 'Egg Free' as the price is the same at £1.90 a loaf. Anyone else experiencing the same issue with it? - also any recommendations for White Bread that isn't prescription? / Tesco's / Asda's are ok but Sainsbury's was superior.
    • Mari
      My only proof

      By Mari · Posted

      Years  ago a friend and I drove north into Canada hoping to find a ski resort open in late spring,We were in my VW and found a small ski area near a small town and started up this gravelled road up a mountain. We  got about halfway up and got stuck in the mud. We tried everything we could think of but an hour later we were still stuck. Finally a pickup came down the road, laughed at our situation, then pulled the VW free of the mud. We followed him back to the ski area where where he started up the rope ski lift and we had an enjoyable hour of skiing and gave us a shot of aquavit  before we left.It was a great rescue.  In some ways this reminds me of your situation. You are waiting for a rescue and you have chosen medical practitioners to do it now or as soon as possible. As you have found out the med. experts have not learned how to help you. You face years of continuing to feel horrible, frustrated searching for your rescuer to save you. You can break away from from this pattern of thinking and you have begun breaking  away by using some herbs and supplements from doTerra. Now you can start trying some of the suggestions thatother Celiacs have written to your original posts.  You live with other people who eat gluten foods. Cross contamination is very possible. Are you sure that their food is completely separate from their food. It  is not only the gluten grains you need to avoid (wheat, barley, rye) but possibly oats, cows milk also. Whenever you fall back into that angry and frustrated way of thinking get up and walk around for a whild. You will learn ways to break that way of thinking about your problems.  Best wishes for your future. May you enjpy a better life.  
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      Thanks for responding. I researched further and Lindt Lindor chocolate balls do contain barely malt powder which contains gluten. I was surprised at all of the conflicting information I found when I checked online.
    • trents
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      By trents · Posted

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