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90% Sure I Have It - Biopsy On Monday


wendysmiling

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wendysmiling Newbie

Hi,

I'm pretty sure I have celiac. I have dx or gastroparesis (gut paralysis) and IBS. I also get a blisty rash that peels the layers of my skin off on both palms when I get stressed. The bolded words are the symptoms I'm having and have had for about 5 years....some go back to childhood.

Classic symptoms include:

o Abdominal pain

o Anemia

o Cramping

o Intestinal gas (foul)

o Indigestion

o Distention - huge (over 10 inches).

o Bloating

o Constipation

o Diarrhea (chronic)

o Nausea

o Steatorrhea (fatty stools)

o Vomiting

o Weight gain

o Weight loss with large appetite

Other symptoms:

o Aphthous ulcers (canker sores)

o Bone or joint pain

o Dental enamel defects

o Depression

o Lack of concentration (foggy)

o Poor memory

o Fatigue, weakness and lack of energy

o Infertility (male and female)

o Irritable bowel syndrome

o Elevated liver enzymes

o [b]Migraines

o Muscle cramps

o Osteoporosis

o Panic attacks

o Peripheral neuropathy ?? (gastroparesis?)

o Rheumatoid conditions

o Vitamin Deficiencies in B12, D, and K.


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mushroom Proficient

Welcome, Wnedysmiling.

Yes, from your list of symptoms, I am pretty certain that you have "it" too. Whether that "it" turns out to be confirmed celiac disease or "merely" gluten intolerance, I think that you should try the gluten free diet right away, because the solution is the same for both conditions. Many people test negative for celiac even with these symptoms. They are either false negatives, or the person is non-celiac gluten intolerant/sensitive which is equally serious but not regarded so by many doctors. Many doctors will tell you if you don't have celiac you can continue to eat gluten. Don't listen to them. The only way you will know if gluten is causing your problems is to completely eliminate it from your household (see Bea's response to Chanterelle (I'm so Frustrated) on this page of the board).

Good luck with your biopsy results. It does help many people to have that definitive diagnosis, makes them more strict with the diet :o

But whichever it turns out to be you should be just as strict.

Neroli

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    • melthebell
      That's interesting - that's a lot of gluten! I'll be very curious to see how my son responds to the gluten. In some ways, I guess having a strong reaction would tell us something? It's tough navigating this as a parent and having it be not so clear cut ;\
    • trents
      Welcome to the celiac.com community, @JamieAnn!  Glad you had a good experience at your local Jersey Mike's.  In the town I live in all we have is Subway and they stopped offering gluten free buns. So, I can't eat there anymore. Oh, more recently there has come to our town a Firehouse sub shop and, according to the Internet, they offer gluten free buns but I haven't tried them yet. For super sensitive celiacs, cross-contamination in handling at these sub shops may also be a problem.
    • JamieAnn
      Today, in Uniontown, PA,  I ordered Jersey Mike’s Italian sub on gluten-free bread (paid extra for gluten-free) for my brother who hasn’t had a sub in yrs (neorological prob if consumes). He’s so happy! Their gluten-free bread is from a company that specializes in gluten-free products, some of which I’ve enjoyed before, so figured a sub would be good! Jersey Mike’s fast-food restaurant chain
    • cristiana
      Thank you @knitty kitty x
    • trents
      Most recent gluten challenge guidelines call for the consumption of at least 10g of gluten (about the amount in about 4-6 slices of wheat-based bread) for at least 2 weeks.  When celiacs have been on gluten free diets for long periods of time, they often find that when they consume a good amount of gluten, they react much more strongly than they did before going gluten free. They have lost all tolerance to the poison they had when consuming wheat products regularly. That is certainly the case with me. A couple of years ago I accidentally consumed a wheat biscuit my wife had made thinking it was a gluten free one and it made me violently ill. So, I mention that as I don't know if your son has started the gluten challenge yet.
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