Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Help

ragidyann

Recommended Posts

ragidyann Rookie
ragidyann
Posted

Someone please help me. I have been told for years that I have IBS. And then I had polups removed and the GI sad I have diverticulosus. Stay away from nuts and stuff. What ever. They didnt hurt me. I always noticed that bread and pasta made me bloat. So I wouldnt eat them if i went out .And forget beer oh God that was the worst.So anyways, finally I got really sick no bm for 5 days i coulnt stand up to long. thought this is it im dead. went to a Dr and she ran some blood work and I was low in b12. I get shots now. nothing else was said about the pain and the bloating and the weakness. So I put myself on the gluten-free diet and within 3 days wow I wasnt bloated anymore. i couldnt believe it. so 6 months after that i go back to the doc for more blood work and i had been having leg cramps. i was still low in b12 and now d. she did a test for celiac and it was neg. i think a range of 3. Although I have been on the diet for 6 months she said that was ok. But does recomind the biopsy. I dont know what to do I feel really tired and and does it really matter if im staying on the diet? And why dont drs tell You what do do? Im so fed up I just want to cry. The only good thing is that im not crying from pain. Just frustraited.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Wolicki Enthusiast
Wolicki
Posted

A biopsy after 6 months gluten free will not tell you anything. You probably have additional vitamin deficiencies. Can you ask your doc to run a vitamin panel?

GFinDC Veteran
GFinDC
Posted

If you have been gluten-free for 6 months don't waste your money on a biopsy or blood tests. You need to be actively eating gluten for 6 weeks or more for the blood antibodies to buildup to detectable levels. And the endoscopy is the same deal, probably not going to show anything at this point. At least that's what I've read. There is Enterolab testing which says it can work up to a year later. Your doc doesn't sound real familiar with celiac disease.

ragidyann Rookie
ragidyann
Posted
  • Author

Thanks. today was not a great day had d all morning and leg pain. does anyone else get leg pain or cramps in their calves or toes?

GFinDC Veteran
GFinDC
Posted

Thanks. today was not a great day had d all morning and leg pain. does anyone else get leg pain or cramps in their calves or toes?

There are people here who are told they have fibromyalgia or arthritis. So yeah, they get joint and muscle pain. My joints hurt from eating soy, so I don't do that no more. Celiac can cause malabsorption of vitamins and minerals. The resulting vitamin / mineral deficiencies have their own negative affects. It doesn't matter if you are taking vitamin pills or eating healthy food if your gut can't absorb it. your doc can test you for vitamin and mineral levels and that can help decide if there is something going on.

It sounds to me like you are not 100% totally gluten-free. Or you have another food intolerance in addition to gluten.

ragidyann Rookie
ragidyann
Posted
  • Author

Thanks i guess i can really watch what I eat even more. I dont do milk or soy we eat pretty healthy. I will try it though Thanks again for yalls help.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,540
    • Most Online (within 30 mins)
      7,748
    Barrie S
    Newest Member
    Barrie S
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • petitojou
      Frequent nausea after gluten-free diet

      By petitojou · Posted

      Thank you so much! I saw some tips around the forum to make a food diary and now that I know that the community also struggles with corn, egg and soy, the puzzle pieces came together! Just yesterday I tried eating eggs and yes, he’s guilty and charged. Those there are my 3 combo nausea troublemakers. I’m going to adjust my diet ☺️ Also thank you for the information about MCAS! I’m from South America and little it’s talked about it in here. It’s honestly such a game changer now for treatment and recovery. I know I’m free from SIBO and Candida since I’ve been tested for it, but I’m still going to make a endoscopy to test for H. Pylori and Eosinophilic esophagitis (EoE). Thank you again!! Have a blessed weekend 🤍
    • knitty kitty
      Unusual bright yellow but odourless discharge

      By knitty kitty · Posted

      Yes, I, too, have osteoporosis from years of malabsorption, too.  Thiamine and magnesium are what keep the calcium in place in the bones.  If one is low in magnesium, boron, selenium, zinc, copper, and other trace minerals, ones bone heath can suffer.  We need more than just calcium and Vitamin D for strong bones.  Riboflavin B 2, Folate B 9 and Pyridoxine B 6 also contribute to bone formation and strength.   Have you had your thyroid checked?  The thyroid is important to bone health as well.  The thyroid uses lots of thiamine, so a poorly functioning thyroid will affect bone heath.  
    • Celiac50
      Unusual bright yellow but odourless discharge

      By Celiac50 · Posted

      That sounds so very likely in my case! I will absolutely ask my doctor on my next bone check coming up in March... Thanks a lot! 
    • trents
      Unusual bright yellow but odourless discharge

      By trents · Posted

      Calcium levels as measured in the blood can be quite deceiving as the body will rob calcium from the bones to meet demands for it by other bodily functions. Also, supplementing with calcium can be counterproductive as it tends to raise gut pH and decrease absorption. More often than not, the problem is poor absorption to begin with rather than deficiency of intake amounts in the diet. Calcium needs an acidic environment to be absorbed. This is why so many people on PPIs develop osteoporosis. The PPIs raise gut pH. And some people have high gut PH for other reasons. Low pH equates to a more acidic environment whereas high pH equates to a more basic (less acidic) environment.
    • Celiac50
      Unusual bright yellow but odourless discharge

      By Celiac50 · Posted

      Kind thanks for all this valuable information! Since my Folate was/is low and also my Calcium, there IS a chance I am low in B vitamins... My doctor only measured the first two, oh and Zinc as I has twisted her arm and guess what, that was mega low too. So who knows, until I get myself tested properly, what else I am deficient in... I did a hair mineral test recently and it said to avoid All sources of Calcium. But this is confusing for me as my Ca is so low and I have osteoporosis because of this. It is my Adjusted Ca that is on the higher side and shouldn't be. So am not sure why the mineral test showed high Ca (well, it was medium in the test but relative to my lowish Magnesium, also via hair sample, it was high I was told). But anyway, thanks again for the VitB download, I will look into this most certainly!
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.