Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

I Don'T Know If I Can Do This...


Nightingale8472

Recommended Posts

eliogabalo Newbie

When I was waiting for my results I was almost terrorized by a gluten-free diet. So to beat the fear I tried to go gluten-free without even knowing if I was celiac. Well... it turned out it wasn't that bad at all. I felt better almost immediately and when I got the results, even if I was shaken, I was already prepared to face such a lifestyle change. And I have to say it's not that bad...


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



  • Replies 56
  • Created
  • Last Reply
Nightingale8472 Rookie

When I was waiting for my results I was almost terrorized by a gluten-free diet. So to beat the fear I tried to go gluten-free without even knowing if I was celiac. Well... it turned out it wasn't that bad at all. I felt better almost immediately and when I got the results, even if I was shaken, I was already prepared to face such a lifestyle change. And I have to say it's not that bad...

I probably should've done that... I called my doc this afternoon and they said the results are in. The doc should call me before 7:00 tonight. I'm sitting here eating wontons from Pick-Up-Stix because they're my favorite and I'm so afraid she's gonna tell me I can't ever have them again.

Reba32 Rookie

rather than think about all the foods you can't have, think about all the foods you CAN have. The latter far outweighs the former, I assure you :)

psawyer Proficient

rather than think about all the foods you can't have, think about all the foods you CAN have. The latter far outweighs the former, I assure you :)

This is good advice. There are SO MANY foods that you can eat. Focus on them. :)

sandsurfgirl Collaborator

I probably should've done that... I called my doc this afternoon and they said the results are in. The doc should call me before 7:00 tonight. I'm sitting here eating wontons from Pick-Up-Stix because they're my favorite and I'm so afraid she's gonna tell me I can't ever have them again.

So? What did they say? You've got us in suspense here! :lol:

Lesx2 Newbie

I know... In the last two weeks, migraines have kept me from poker games, wakeboarding, skydiving, helping a friend move, and getting work done. And that's just what I can think of in a few seconds.

How do you find time to cook? I feel like I don't even have time to shop... I get up at 5:30, commute to work, work, get home at 6:30, take care of the dog, do homework, and crash. I usually eat while I'm doing something else.

A crock pot!! It's my favorite kitchen appliance. Just bought a new one this weekend at Costco for $14.99 because I wore my old one out. ( You can order on line from Target very easily too). I too have a schedule like yours. In the morning (or sometimes overnight), just throw in some meat, pork or chicken, gluten-free broth, gluten-free spices, some vegies or potato/sweet potato wrapped in foil, when you get home a meal is ready and you can multi task away. I usually make enough for leftovers so I don'thave to cook every day.

There are tons on recipes on line or in books for cooking with the crock pot. I just purchased Crock Pot (brand name) Recipe Collection (in binder) recipe book that is chock full of easy recipes with items you have around the house (not a bunch of weird ingredients). Love the sections - 3 item meals and 5 ingredients or less. I make soups, stews, roasts, chili, etc. Today, I have a tri tip roast, carrots and baked potato cooking for the whole family. It will be ready when I get home from work. Took me less than 5 minutes to throw it all together. The leftover meat I'll make into sandwiches on my gluten-free bread for lunch at work and to be able to grab over the weekend.

Also on the weekends, I do make time (had to make some adjustments in my busy life, but this became a priority) to pre make some snacks and lunches for the week. I bake up granola bars, grill panini sandwiches, make tortilla soup (overnight in the crockpot), etc. and have for grab and go during the week. Usually takes me an hour or so to have things I can have throughout the week in the refrig to grab as needed.

Other items in my kitchen so I have prepared items to go.. ziplock bags, foil, Glad press and seal (wonderful invention) and Glad plasicware/pyrex glass wear in serving sizes. My husband was saying how quickly we are going through ziplocks, but then we thought about it... what I make at home (much healther) and that I am not buying prepackaged, presertative loaded processed food. is getting us ahead of the game both money wise and defintely health wise!

Take the time to invest in yourself to shop and prepare (it doesn't take much - maybe an hour a week and less than 10 minutes a day) and you will have more energy and feel better to take care of the dogs, the homework, and do better at work. It's amazing! You can do it!

PS) This week I rode my Harley on two great rides, participated in a girls night out, went to class, met friends for dinner, walked the dogs 2 x day and rocked at work. Get rid of the msg, the gluten and what ever causes you reactions and you won't have to miss out on things in life! Wakeboards - here we come!

Nightingale8472 Rookie

Doc says the blood test is normal.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



sandsurfgirl Collaborator

Doc says the blood test is normal.

Well now you have some big decisions. ALL the testing is somewhat unreliable and false negatives are common. Will you eat gluten and do a biopsy? That would be the next step.

I know you really do not want to have celiac or do this diet, but I urge you to keep looking and if all tests come up negative try the diet. It's not worth being sick for years on end.

sandsurfgirl Collaborator

Have you had regular allergy testing for food allergies? It's not that reliable either, but there are plenty of food allergies that do show up on it. Maybe you are allergic to something else.

jenngolightly Contributor

Doc says the blood test is normal.

My tests were normal, too (including endoscopy). But so many other clues were decidedly abnormal that my doc diagnosed Celiac anyway. I am soooo soooo much better without gluten. It was a no-brainer.

I didn't like leftovers either. I never took them home from restaurants and I'd never save them after meals because they'd just sit and rot in the refrigerator for weeks and weeks until I'd find them and wonder, "What is this green thing?" Then toss it out - sometimes with the Tupperware because it was so gross. I also never ate meat because it never appealed to me. Nor veggies. Now I pounce on the leftovers and mark them "Mom's!" so no one else eats them. And I have widened my repertoire of food, too. I eat MORE than I used to eat. Geesh. I thought I'd starve when I was first diagnosed. Right now I'm on a kick of finding one food a week that I've never tried before. Last week it was tofu. Blech.

Nightingale8472 Rookie

Have you had regular allergy testing for food allergies? It's not that reliable either, but there are plenty of food allergies that do show up on it. Maybe you are allergic to something else.

No. I'm seeing a GI tomorrow. We'll see what he suggests. Unfortunately, the food diary that the neuro had me keep was basically useless, because I get so many headaches that it pretty much indicated that, as the doc said, I get headaches from breathing. There's just no way to narrow it down beyond the things that really stood out, like the chocolate.

He's probably going to want to do an endo, but I think I'm probably going to argue for the pill-camera thing instead. The idea of an endo frightens me, and I don't like someone mucking about near my vocal cords. I also don't want to have to ask my friends or family to take a day off work to drive me to the doctor. That's not fair to them... my headaches already have a huge impact on their lives, so I try to keep everything I have to ask them to an absolute minimum.

AKcollegestudent Apprentice

The thing is, I get migraines about five days a week, so I usually just go on with my life despite having a migraine...part of it is that I'm used to it. I'm in pain more often than not, but the bigger thing is that if I gave in to the instinct to curl up in a dark room every time I had a headache, I'd never leave the house!

I kind of internally rate my headaches on a 1-10 scale and treat them accordingly:

My dad doesn't even bother to ask if I have a headache anymore, since I almost always do... he just asks "How's the head?" and I reply with a number, which tells him not only how bad it is, but what I've done to treat it.

That's exactly what I did--mine started when I was fifteen (about the same time as my appetite disappearing), but they got significantly worse freshman year of college. My pain scale when the tension headaches, migraines and rebound headaches finally went away was terrifying--one of my doctors has the "normal" pain scale hanging in his office. When we compared mine to his, his 9 was my 3.

I was still working and going to classes, but the joy was gone. Most days, I was drugged out of my mind trying to survive, and my friends would lose it. Apparently, living off of painkillers and migraine meds isn't acceptable. The jackhammer takes away everything and leaves nothing. So I empathize mightily with you.

And I know that it came back negative, but I'd suggest that, after the endoscopy, you sit down with an allergist, nutritionist or naturopath and see about an elimination diet. That was the route my neuro ended up prescribing because I'd gone through five different preventative medications with no obvious effect *and* the food journal revealed nothing. There's a couple comprehensive guides out there as to what foods commonly set of migraines--I think my original elimination diet removed something like 30 different types of foods, from gluten to tomatoes to dairy and legumes. Hell, I was living off of buffalo for a couple weeks while trying to add in other meats.

Reba32 Rookie

mmmm...buffalo :)

AKcollegestudent Apprentice

mmmm...buffalo :)

There are people out there who don't like buffalo, and I just cannot understand them. Give me buffalo, caribou, or moose any day of the week and I'll be a happy twenty-something. I still suspect that my parents were willing to start hunting themselves just so that there'd be game meats when I was a kid--I was a picky eater and moose was one of the few things I'd eat. Moose and salmon. They added buffalo on a trip to the contiguous US when I was five, and I've been hooked since.

sandsurfgirl Collaborator

An elimination diet might be a really good way to go. It's a pain for a couple of months but it really can pinpoint foods.

Reba32 Rookie

I LOOOOOOOOOOOOOOOOOOVE moose meat!

Of course I can't get any down here in the Southern US. My poor husband has never even seen a live moose. And the deer down here in North Carolina are spindly little things compared to back home in Ontario.

gail-gluten-corn Newbie

I was diagnosed with gluten intolerance so the biopsy was normal with me and all the blood work for celiac was normal . . . I went to an allergist / immunologist and she did scratch testing for allergies which came back normal.

I kept looking though since I have uncontrolled ulcerative colitis despite being on Remicade. Having to go to the bathroom anywhere from 5 - 30 times a day can put a damper on your life. I was talking with another UC patient one day and she said she had blood work for allergies though Alletess lab and found out she had a bunch of food intolerances. I decided to try it and low and behold I have 28 "food intolerances".

My GI is supportive and said I should remove them from my diet. The allergist/immunologist poo poo'd the tests and said they were experimental and couldn't be trusted. Well, I've been "living with my new food choices" since the beginning on December and I haven't felt this good in years. My life was so controlled by my fear of being more than 60 seconds away from a bathroom. I have to avoid gluten plus a bunch of other stuff including: soy, lactose, corn, walnuts, almonds, tomato, garlic, yeast, etc. But . . being able to have a social life and travel with my husband is so worth the changes I've had to make in my diet. I used to live on McDonald's and now I can say I hardly even think about it. Feeling better is so worth it.

So, keep looking until you figure it out. I tried a gluten-free diet a couple of years ago and it didn't seem to work - - but I was missing the extra puzzle pieces of corn, lactose, soy, yeast, etc.

laurie9141 Rookie

I know... In the last two weeks, migraines have kept me from poker games, wakeboarding, skydiving, helping a friend move, and getting work done. And that's just what I can think of in a few seconds.

How do you find time to cook? I feel like I don't even have time to shop... I get up at 5:30, commute to work, work, get home at 6:30, take care of the dog, do homework, and crash. I usually eat while I'm doing something else.

I agree, just wanna go thru a drive thru SOMETIMES and EAT.. I see lots of recipes from the people who find it "fun" or "easy" Im still mad about the diagnosis probably, but I have sensitivities to much of the "fun, easy" foods, like tomatoes, almonds, garlic, oats, yeast, milk, etc. OR HATE much of it.. and getting close to the last of my complaints :) is that they are SOOO expensive to screw up and then be hungry.. I think while people are trying to be supportive, I find it irritating to say "just do this or that" none of the foods sound good nor do I like to cook.

laurie9141 Rookie

A crock pot!! It's my favorite kitchen appliance. Just bought a new one this weekend at Costco for $14.99 because I wore my old one out. ( You can order on line from Target very easily too). I too have a schedule like yours. In the morning (or sometimes overnight), just throw in some meat, pork or chicken, gluten-free broth, gluten-free spices, some vegies or potato/sweet potato wrapped in foil, when you get home a meal is ready and you can multi task away. I usually make enough for leftovers so I don'thave to cook every day.

There are tons on recipes on line or in books for cooking with the crock pot. I just purchased Crock Pot (brand name) Recipe Collection (in binder) recipe book that is chock full of easy recipes with items you have around the house (not a bunch of weird ingredients). Love the sections - 3 item meals and 5 ingredients or less. I make soups, stews, roasts, chili, etc. Today, I have a tri tip roast, carrots and baked potato cooking for the whole family. It will be ready when I get home from work. Took me less than 5 minutes to throw it all together. The leftover meat I'll make into sandwiches on my gluten-free bread for lunch at work and to be able to grab over the weekend.

Also on the weekends, I do make time (had to make some adjustments in my busy life, but this became a priority) to pre make some snacks and lunches for the week. I bake up granola bars, grill panini sandwiches, make tortilla soup (overnight in the crockpot), etc. and have for grab and go during the week. Usually takes me an hour or so to have things I can have throughout the week in the refrig to grab as needed.

Other items in my kitchen so I have prepared items to go.. ziplock bags, foil, Glad press and seal (wonderful invention) and Glad plasicware/pyrex glass wear in serving sizes. My husband was saying how quickly we are going through ziplocks, but then we thought about it... what I make at home (much healther) and that I am not buying prepackaged, presertative loaded processed food. is getting us ahead of the game both money wise and defintely health wise!

Take the time to invest in yourself to shop and prepare (it doesn't take much - maybe an hour a week and less than 10 minutes a day) and you will have more energy and feel better to take care of the dogs, the homework, and do better at work. It's amazing! You can do it!

PS) This week I rode my Harley on two great rides, participated in a girls night out, went to class, met friends for dinner, walked the dogs 2 x day and rocked at work. Get rid of the msg, the gluten and what ever causes you reactions and you won't have to miss out on things in life! Wakeboards - here we come!

WHAT do you cook or prepare for the week in 10 mins or an hour of shopping? not to be smart or anything... or how is it less expensive? I'm seein 8 bucks for a bit of flour.. how does it keep all week? what books do you use? maybe I bought the wrong ones... they were expensive and had nuthin I have any interest in eating having tried some a few mos ago..have to take a several hour trip 2 moro w 2 toddlers.. cant imagine what to take to eat..OK, besides the obvious fresh fruits.. or where to stop to eat along the way..sitting in the car isnt any fun, not eating anything is my usual M.O. let me say, I hate this!

Nightingale8472 Rookie

Ok, I had the Migraine From Hell on Saturday...

I woke up at around 3:30 am with a jackhammer in my skull. It took an insane amount of medication plus anti-nausea meds to keep it under control, and it was only due to the anti-nausea meds that I didn't end up in the ER.

I'm wondering if this could've been caused by the sourdough cheese bread I had for dinner the night before (not with dinner... I had three slices FOR dinner around 8:00 pm).

Normally, most of the migraines I get are pretty mild compared to this. This was a "did anyone get the license number of that truck?" headache. This was "I spent the whole day on Norco and Zofran and still threw up twice" headache. It completely, totally, 100% sucked.

After spending the latter part of the night/first part of the morning in hell, I decided "what the heck, gluten free can't be as bad as THIS!"

Saturday night was bad, headache wise. I could not shake the headache, and I kept having to take more painkillers as the last dose wore off. I've had these god-awful 24-72 hour long migraines before, but they're pretty rare. I had a party to go to for my renaissance faire reenactment group, and being stubborn, refused to stay home, and I spent most of the night feeling dizzy, tired and very icky...the painkillers take away the pain but not the other migraine symptoms.

I was able to find some gluten free stuff to eat at the pot luck. Baked potato and roast beef for dinner and jello and chocolate mousse for dessert. I figured that I already had a headache so it wasn't like the chocolate was going to give me one. When I got home from the party, I refused to take more painkillers and just crawled into bed and let the headache come back. The cat was remarkably sympathetic.

I'm now on Day 3. My family has been very supportive, as they just want me to feel better. I had a family dinner yesterday and mom cooked my food in a separate dish with gluten free barbecue sauce from Trader Joes (and everyone decided they liked the gluten free sauce better!) and was very careful to keep everything separate... she even had a separate container of butter labelled "gluten-free". She's been doing some reading, I see. She even had gluten free chips and salsa, shrimp and gluten free cocktail sauce, and I brought cheese and glutino crackers, which were surprisingly good. Dad even commented that he liked the crackers, and I said "Dad, those are gluten free." and he replied "They-rrr?" around a mouth full of cracker. Unfortunately, my favoritest cheese in the world, lemon stilton, has gluten right on the label, so I consoled myself with a good gouda. For dessert, while everyone else had chocolate cake, I had a piece of gluten free apple pie from whole foods, and OMG it was probably the best apple pie I've ever had. My mom had a bite and said "I want that instead!" We all had Bryers All-Natural vanilla ice cream, because nothing on the label indicated gluten (milk, sugar, eggs, vanilla).

I had a bit of a headache yesterday and knocked it out with Relpax.

I didn't get my normal headache around 8:30 this morning... it's now almost noon and I have just a hint of a headache. Nothing I'm even considering medicating.

Maybe there's something to this. We'll see.

I'm keeping a headache diary and will compare it to the two diaries I kept in September and December. I was in a clinical trial and had to keep pretty careful notes, so I'll follow the same procedure now.

AKcollegestudent Apprentice

Ok, I had the Migraine From Hell on Saturday...

I'm keeping a headache diary and will compare it to the two diaries I kept in September and December. I was in a clinical trial and had to keep pretty careful notes, so I'll follow the same procedure now.

Good luck. However, if you are gluten intolerant or have celiac, there are other issues that are often discovered as you heal--especially dairy intolerance and soy intolerance. Those are the two most common; other issues include nuts, yeast, and/or nightshades.

Obviously, the first step is to see if this works for you. (And it might not, realistically.) But there might be other things that crop up later on, and you should probably know that now.

Lesx2 Newbie

WHAT do you cook or prepare for the week in 10 mins or an hour of shopping? not to be smart or anything... or how is it less expensive? I'm seein 8 bucks for a bit of flour.. how does it keep all week? what books do you use? maybe I bought the wrong ones... they were expensive and had nuthin I have any interest in eating having tried some a few mos ago..have to take a several hour trip 2 moro w 2 toddlers.. cant imagine what to take to eat..OK, besides the obvious fresh fruits.. or where to stop to eat along the way..sitting in the car isnt any fun, not eating anything is my usual M.O. let me say, I hate this!

Ok, here goes... First,

I cook things overnight or during the day in the crockpot. It usually takes 5-10 minutes to throw things in the pot and away you go. In the crock pot I made chicken tortilla soup (and then put in glad plastic containers, freeze some, put some in refrig. Just microwave for 1 minute when you want to eat. Also make other soups and chili sometimes.

Last week I made a stew (put in those disposable plastics)and a roast.

In an hour one morning over the weekend,

With the roast, I made 4 grilled cheese/meat sandiwches (on gluten-free bread), wrapped in foil,put in fridge. Just grabbed one tonight, nuked it and ate in the car on way to class.

Put gluten-free potato chips in snack bags.

Baked granola bars (you can also buy gluten-free granola and sanck bars pre made and these are easy to tuck in purse). Baked gluten-free muffins from mix (great to grab for breakfast).

Cut up some cheese put in snack bags with gluten-free crackers to grab as needed.

Found some gluten-free popcorn and put in snack bags

Salad in those glad disposables with gluten-free dressing in a little plastic container to go. With premade gluten-free croutons. Sometimes I'll add grilled shrimp or meat from whatever I made in crockpot.

Cut up vegies in snack bags

anyways you get the idea. Use what foods you like, change how you make them so they are gluten-free. I am not a good cook nor do I make very much from scratch. I don't have the time.

Never said it was less expensive, although suprising to me, I am not eating out as much and that is zaving money, I am not eating as much cuz I am not hungry all the time (food cravings are now gone) .I usually shop once every two weeks. I am lucky to have a Whole Foods nearby and they have alot of gluten-free to pick from. I also mail order some items.

As for books, I don't use the gluten-free cookbooks as you have to make too many things from stratch. I use my CrockPot recipe book and just use gluten-free indregients. For example, for pulled pork, I use a gluten-free bbque sauce and gluten-free spices. Easy! For tuna casserole, I use gluten-free noodles, etc. For muffins, cookies, etc. I either buy the pakaged ones or buy a gluten-free box mix. I don't even understand what all those flours are yet!

Good luck you can do it.

sandsurfgirl Collaborator

I am so happy for you that you are doing this! I think it's way cool that you are into skydiving, wakeboarding AND in a Ren Faire group. Can't wait until it comes again this year. Still Irwindale right?

Easy dinners can be a meat, a starch and a veggie. Get some Lawry's and Lemon Pepper and shake them on steaks or pork chops and they taste great. Tonight I put a little bit of Lawry's on chicken breasts and pan friend them with some Pam spray. Then you can put BBQ sauce on, or make honey mustard with some honey and mustard mixed together. So there's 3 nights for you, chicken, pork chops, steak.

A rice cooker will be a big help. They have them at Costco for $30. There is a steamer basket to put veggies in above the rice.

The only gluten free cookbooks you would need are for baking and I don't think you are the baking type from what you've said. ;):lol:

Tacos are an easy meal. Get some taco seasoning (read to make sure it's gluten free.) Then cook up your beef and heat some corn tortillas. Then the next day make a burrito with a rice tortilla and that's 2 meals.

There are so many foods that don't say gluten free but they are gluten free. Lucille's BBQ sauce has no gluten in it and it's amazing. So don't feel like you have to buy special gluten free condiments.

You might make some time to do some label reading at the grocery store and then also read the forums on here for restaurants and products.

McDonald's and Wendy's have allergen info sheets you can print up from their website. Carl's has a gluten free info thingy on their site. In N Out is easy because the only gluten in the whole store is the bun so you can order protein style burgers wrapped in lettuce and get fries and even a shake.

Hope this helps!

gena Newbie

I know how you feel! I had severe stomach pain for over 8 years and i went from doctor to doctor desperate for an answer...the pain really controlled my life! I found my current doctor and she told me that it sounded like a gluten allergy and she told me to eliminate gluten from my life for a while and see what happened. She gave me some information packets and i read them that night and cried for hours! I love food how can i let it all go?! I didnt follow the diet at first(i was afrraid it would work proving i had celiac)eventually the pain got so bad i finally decided to give it a try and the results were AMAZING!!!! I had twice as much energy, my skin cleared up and i could think so much more clearly! As for the food, while eating out can be very tricky,(i would advise researching restaurants with gluten free menu's before hand)you dont have to give up most of your favorite foods you just have to rethink them a little! I found a food store near me that has gluten free donuts, chicken nuggets, chips, noodles and many other things that i thought i was going to have to say good bye to forever! Yes, you will have to plan your meals a little more and you will have to do more cooking bacause fast-and-easy does not go hand-in-hand with gluten free, but its not so bad. I always hated cooking but when i have the time and the motivation to cook i will cook 3 or 4 different things and 2 or 3 servings of each and freeze them for another day. Research grocery stores that carry gluten free products or web pages that will deliver products to you. If you cant find a particutlar food you want find a recipe so you can make it yourself. Support is key! Temptation is everywhere and it can be especially hard if your whole family does not have to follow the diet. I know that if it wasnt for the help of support groups and my friends and step mom it would be a lot harder. Everyone here knows how you feel and what you are going through and we would all love to help as much as we can! Just ask. If i can do this so can you! Trust me it gets better and when you start to see and feel the differences it will all be more than worth it! (Oh yeah a trick that helps me at meal time is to think about the meal in advance and have the meat or whatever i need thawed and ready to cook and when or before my parents start cooking the family meal i start cooking mine. I find that it helps keep me distracted from their food and focused on mine so that i will not be upset by not being able to eat their food.)

Nightingale8472 Rookie

Ok, I've been doing this gluten-free thing for eleven days now.

During that time, I've had less than half of my usual headaches. Last night, I got ambulance lights full in my face, which would normally mean a sure migraine, and nothing. No headache at all. I've only needed headache meds about four times, two were in the first two days, and the other two I can pinpoint exactly what caused it (two nights of almost no sleep, and one day of extreme dehydration). I don't seem to be getting the random "I have no idea why I have a headache" headaches anymore.

I only got five hours of sleep last night because I had choir til late, but I woke up with more energy than I've had since high school. I don't remember the last time I felt this good.

The only thing I've changed is my diet. I've made sure not to change ANYTHING else. No new/altered meds, sleep patterns, or even nutrition... I'm mostly even eating gluten-free versions of the same junk food.

So, overall, I'm feeling better. I'm not totally ready to attribute this to the diet, because I do know the power of placebo effect and just wanting this to work. The brain does amazing things. So, I'm going to stick with it and see if the current trend continues.

Friends and family have been remarkably supportive. They just want me to feel better. Went to a barbecue at my parents' house Monday and Mom made the entire meal gluten-free! This weekend when my friends and I were roaming around Long Beach looking for somewhere to have dinner, we saw Outback, and I mentioned they had a gluten-free menu, and everyone said "Ok, we're going to Outback." I protested that I could probably find something wherever we went, but they wanted to go somewhere that was easy for me. I really appreciate it and told them so.

The staff at Outback was wonderful. They brought me the gluten-free menu, and even brought out my salad early, when everyone else was enjoying bread, so I wouldn't be the only one not eating. I was really impressed and will be going back there.

I'm still eating out a lot. In-N-Out has become my new favorite restaurant. The first time I went there and said I had a wheat allergy (my brother is a restaurant manager and told me to "use the A-Word...we all know what that means and people pay attention" so far he's been right), the cashier typed in "WHEAT ALLERGY" on the ticket, and the cook himself brought out my food and told me that he'd cleaned the grill and tools and kept everything separate and well away from the buns.

I brought my own soy sauce to my favorite sushi place. The sushi chef didn't even look at me weird when I ordered everything with no sauce, and I usually pretty much only get the fishbits on rice anyway. The San-J soy sauce was kinda bland, though. I ordered some Karry-Out soy sauce online. Hopefully that will be better.

Johnny Reb's was really difficult. They had no idea if their BBQ sauce had gluten, or what anything was cooked in. This was a group dinner, so I didn't have a choice as to where to eat. I called them around 3:00 hoping they wouldn't be too busy, but they didn't seem to want to bother. I ended up with a plain steak and salad, which I think was okay, and I think the server understood the importance of keeping it separate and told the cook, but I'm not likely to go back there.

This weekend I'll probably be going to Amazon one night and Rib Trader another.

So, I can still eat out and do most everything I was doing before. I just have to do more planning, which is taking some getting used to, and I end up stopping to check things on my blackberry a lot, but overall, this isn't so bad, and if I keep feeling this good, totally worth doing.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      results from 13 day gluten challenge - does this mean I can't have celiac?

    2. - knitty kitty replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      49

      Supplements for those Diagnosed with Celiac Disease

    3. - Florence Lillian replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      11

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    4. - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      results from 13 day gluten challenge - does this mean I can't have celiac?

    5. - cristiana replied to hjayne19's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      21

      Insomnia help

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,355
    • Most Online (within 30 mins)
      7,748

    Amy Immerman
    Newest Member
    Amy Immerman
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • knitty kitty
      @catnapt, Wheat germ has very little gluten in it.  Gluten is  the carbohydrate storage protein, what the flour is made from, the fluffy part.  Just like with beans, there's the baby plant that will germinate  ("germ"-inate) if sprouted, and the bean part is the carbohydrate storage protein.   Wheat germ is the baby plant inside a kernel of wheat, and bran is the protective covering of the kernel.   Little to no gluten there.   Large amounts of lectins are in wheat germ and can cause digestive upsets, but not enough Gluten to provoke antibody production in the small intestines. Luckily you still have time to do a proper gluten challenge (10 grams of gluten per day for a minimum of two weeks) before your next appointment when you can be retested.    
    • knitty kitty
      Hello, @asaT, I'm curious to know whether you are taking other B vitamins like Thiamine B1 and Niacin B3.  Malabsorption in Celiac disease affects all the water soluble B vitamins and Vitamin C.  Thiamine and Niacin are required to produce energy for all the homocysteine lowering reactions provided by Folate, Cobalamine and Pyridoxine.   Weight gain with a voracious appetite is something I experienced while malnourished.  It's symptomatic of Thiamine B1 deficiency.   Conversely, some people with thiamine deficiency lose their appetite altogether, and suffer from anorexia.  At different periods on my lifelong journey, I suffered this, too.   When the body doesn't have sufficient thiamine to turn food, especially carbohydrates, into energy (for growth and repair), the body rations what little thiamine it has available, and turns the carbs into fat, and stores it mostly in the abdomen.  Consuming a high carbohydrate diet requires additional thiamine to process the carbs into energy.  Simple carbohydrates (sugar, white rice, etc.) don't contain thiamine, so the body easily depletes its stores of Thiamine processing the carbs into fat.  The digestive system communicates with the brain to keep eating in order to consume more thiamine and other nutrients it's not absorbing.   One can have a subclinical thiamine insufficiency for years.  A twenty percent increase in dietary thiamine causes an eighty percent increase in brain function, so the symptoms can wax and wane mysteriously.  Symptoms of Thiamine insufficiency include stunted growth, chronic fatigue, and Gastrointestinal Beriberi (diarrhea, abdominal pain), heart attack, Alzheimer's, stroke, and cancer.   Thiamine improves bone turnover.  Thiamine insufficiency can also affect the thyroid.  The thyroid is important in bone metabolism.  The thyroid also influences hormones, like estrogen and progesterone, and menopause.  Vitamin D, at optimal levels, can act as a hormone and can influence the thyroid, as well as being important to bone health, and regulating the immune system.  Vitamin A is important to bone health, too, and is necessary for intestinal health, as well.   I don't do dairy because I react to Casein, the protein in dairy that resembles gluten and causes a reaction the same as if I'd been exposed to gluten, including high tTg IgA.  I found adding mineral water containing calcium and other minerals helpful in increasing my calcium intake.   Malabsorption of Celiac affects all the vitamins and minerals.  I do hope you'll talk to your doctor and dietician about supplementing all eight B vitamins and the four fat soluble vitamins because they all work together interconnectedly.  
    • Florence Lillian
      Hi Jane: You may want to try the D3 I now take. I have reactions to fillers and many additives. Sports Research, it is based in the USA and I have had no bad reactions with this brand. The D3 does have coconut oil but it is non GMO, it is Gluten free, Soy free, Soybean free and Safflower oil free.  I have a cupboard full of supplements that did not agree with me -  I just keep trying and have finally settled on Sports Research. I take NAKA Women's Multi full spectrum, and have not felt sick after taking 2 capsules per day -  it is a Canadian company. I buy both from Amazon. I wish you well in your searching, I know how discouraging it all is. Florence.  
    • catnapt
      highly unlikely  NOTHING and I mean NOTHING else has ever caused me these kinds of symptoms I have no problem with dates, they are a large part of my diet In fact, I eat a very high fiber, very high vegetable and bean diet and have for many years now. It's considered a whole foods plant based or plant forward diet (I do now eat some lean ground turkey but not much) I was off dairy for years but recently had to add back plain yogurt to meet calcium needs that I am not allowed to get from supplements (I have not had any problem with the yogurt)   I eat almost no processed foods. I don't eat out. almost everything I eat, I cook myself I am going to keep a food diary but to be honest, I already know that it's wheat products and also barley that are the problem, which is why I gradually stopped eating and buying them. When I was eating them, like back in early 2024, when I was in the middle of moving and ate out (always had bread or toast or rolls or a sub or pizza) I felt terrible but at that time was so busy and exhausted that I never stopped to think it was the food. Once I was in my new place, I continued to have bread from time to time and had such horrible joint pain that I was preparing for 2 total knee replacements as well as one hip! The surgery could not go forward as I was (and still am) actively losing calcium from my bones. That problem has yet to be properly diagnosed and treated   anyway over time I realized that I felt better when I stopped eating bread. Back at least 3 yrs ago I noticed that regular pasta made me sick so I switched to brown rice pasta and even though it costs a lot more, I really like it.   so gradually I just stopped buying and eating foods with gluten. I stopped getting raisin bran when I was constipated because it made me bloated and it didn't help the constipation any more (used to be a sure bet that it would in the past)   I made cookies and brownies using beans and rolled oats and dates and tahini and I LOVE them and have zero issues eating those I eat 1 or more cans of beans per day easily can eat a pound of broccoli - no problem! Brussels sprouts the same thing.   so yeh it's bread and related foods that are clearly the problem  there is zero doubt in my mind    
    • cristiana
      Thank you for your post, @nanny marley It is interesting what you say about 'It's OK not to sleep'. Worrying about sleeping only makes it much harder to sleep.  One of my relatives is an insomniac and I am sure that is part of the problem.  Whereas I once had a neighbour who, if she couldn't sleep, would simply get up again, make a cup of tea, read, do a sudoku or some other small task, and then go back to bed when she felt sleepy again.  I can't think it did her any harm - she lived  well into her nineties. Last week I decided to try a Floradix Magnesium supplement which seems to be helping me to sleep better.  It is a liquid magnesium supplement, so easy to take.  It is gluten free (unlike the Floradix iron supplement).  Might be worth a try.        
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.