Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

I Don'T Know If I Can Do This...


Nightingale8472

Recommended Posts

Bobbijo6681 Apprentice

I think it is AWESOME that you are seeing results and finding the "light" at the end of the tunnel. It took me a couple of weeks to get over the initial shock. I am SOOOOO not perfect yet, but I am starting to see the positive side of this and am really ok with it now.

I hope everything continues to go well for you!!!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



  • Replies 56
  • Created
  • Last Reply
ravenwoodglass Mentor

Nightingale, It is great to hear things are going well. It great that you have had so many good restaurant experiences. It is wonderful when those migraines go away!

AKcollegestudent Apprentice

I am really, really glad that it looks like it's working. Hopefully, it keeps working.

sandsurfgirl Collaborator

Wow that's so great!! I'll have to write all these restaurants down as you post. ;)

In N Out is very accomodating. I called their corporate office and they were wonderful on the phone.

We haven't eaten out that much yet. I wonder if the Yard House has any gluten free beer??? With all the ones they have on tap there has to be something right?

CHARBEEGOOD Newbie

You might not be able to have Guinness, but as I recall, most pubs have cider, and nobody will look at you weird for ordering it or asking for it. The bartenders there suggested it to me often, because in their experience, the "yanks" knew about guinness, but the cider was something new to share!

Bulmers is one of the more popular brands, and they confirm on their website that the pear cider is gluten free... they don't mention the others (the pear is new, so their FAQ is all about it), but various places on the web say it's gluten free.

* Bulmers Original Cider

* Bulmers Pear Cider

* Bulmers Mid-Strength

* Bulmers Light

* Linden Village Cider

* Strongbow Cider

* Samsons Cider

* Ritz Crisp Dry Perry

They're sold outside Ireland under the brand name Magners. I can confirm that the original, the pear, and Strongbow are all really good! A lot of the pubs here in the US carry Strongbow cider.

Also, cider sold under then name Bulmer outside Ireland (the name is owned by Heineken outside Ireland...Bulmers Ireland uses Magners outside IE) in original and pear is gluten free.

I guess when my friends are all having a beer I'll have to have cider instead. I'm a skydiver...that's going to be tough for me. Beer is part of our culture. Whenever you do something for the first time (get your license, have a parachute malfunction and use your reserve, do something really cool), we say you "owe beer", which means you bring beer for all your friends so you can all sit around the bonfire and share the beer and the story. My headaches have pretty much kept me on the ground for the last few years. Maybe going gluten free will get my butt back up in the air. I'll just have to be sure to keep some cider in the cooler.

Thank you for the cider information. It had completely slipped my mind. I have been a wine, gluten-free beer, margarita or rum drinker since starting my "diet exploration". This just gives me another option and the fun of find the one I like the best..

Going Gluten Free does not mean missing out! You will find that many no-gluten-free persons have not tried all the things you will. Ground Wheat flour is easy "sorghum" rice or almond flour is branching out trying new things and some really tasty treats as well.

Reba32 Rookie

that's great that you're not feeling all deprived and that you're still getting out.

Normally I don't prefer Outback (I think they're very overpriced!) but heck, if they have a gluten free menu, I might just put them back on the list of places to eat.

My Australian friends think its funny though. It's not really Australian food. ;)

Nightingale8472 Rookie

that's great that you're not feeling all deprived and that you're still getting out.

Normally I don't prefer Outback (I think they're very overpriced!) but heck, if they have a gluten free menu, I might just put them back on the list of places to eat.

My Australian friends think its funny though. It's not really Australian food. ;)

Their gluten-free menu is about five pages long! There's tons of choices! It mostly tells how to modify the regular menu items, like:

"Victoria Filet Mignon, 7 or 9 oz. gluten-free- Avoid bleu cheese or horseradish crumb crust"

Or points out which items are gluten-free to begin with, like the dessert with the flourless chocolate brownie and ice cream.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - ShariW commented on Scott Adams's article in Frequently Asked Questions About Celiac Disease
      4

      What are Celiac Disease Symptoms?

    2. - klmgarland replied to klmgarland's topic in Dermatitis Herpetiformis
      2

      Help I’m cross contaminating myself,

    3. - Scott Adams replied to klmgarland's topic in Dermatitis Herpetiformis
      2

      Help I’m cross contaminating myself,

    4. - Scott Adams replied to Jmartes71's topic in Coping with Celiac Disease
      1

      My only proof

    5. - Scott Adams replied to Colleen H's topic in Related Issues & Disorders
      1

      Methylprednisone treatment for inflammation?


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,908
    • Most Online (within 30 mins)
      7,748

    ebrown
    Newest Member
    ebrown
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Who's Online (See full list)

    • There are no registered users currently online
  • Upcoming Events

  • Posts

    • klmgarland
      Thank you so very much Scott.  Just having someone understand my situation is so very helpful.  If I have one more family member ask me how my little itchy skin thing is going and can't you just take a pill and it will go away and just a little bit of gluten can't hurt you!!!! I think I will scream!!
    • Scott Adams
      It is difficult to do the detective work of tracking down hidden sources of cross-contamination. The scenarios you described—the kiss, the dish towel, the toaster, the grandbaby's fingers—are all classic ways those with dermatitis herpetiformis might get glutened, and it's a brutal learning curve that the medical world rarely prepares you for. It is difficult to have to deal with such hyper-vigilance. The fact that you have made your entire home environment, from makeup to cleaners, gluten-free is a big achievement, but it's clear the external world and shared spaces remain a minefield. Considering Dapsone is a logical and often necessary step for many with DH to break the cycle of itching and allow the skin to heal while you continue your detective work; it is a powerful tool to give you back your quality of life and sleep. You are not failing; you are fighting an incredibly steep battle. For a more specific direction, connecting with a dedicated celiac support group (online or locally) can be invaluable, as members exchange the most current, real-world tips for avoiding cross-contamination that you simply won't find in a pamphlet. You have already done the hardest part by getting a correct diagnosis. Now, the community can help you navigate the rest. If you have DH you will likely also want to avoid iodine, which is common in seafoods and dairy products, as it can exacerbate symptoms in some people. This article may also be helpful as it offers various ways to relieve the itch:  
    • Scott Adams
      It's very frustrating to be dismissed by medical professionals, especially when you are the one living with the reality of your condition every day. Having to be your own advocate and "fight" for a doctor who will listen is an exhausting burden that no one should have to carry. While that 1998 brochure is a crucial piece of your personal history, it's infuriating that the medical system often requires more contemporary, formal documentation to take a condition seriously. It's a common and deeply unfair situation for those who were diagnosed decades ago, before current record-keeping and testing were standard. You are not alone in this struggle.
    • Scott Adams
      Methylprednisolone is sometimes prescribed for significant inflammation of the stomach and intestines, particularly for conditions like Crohn's disease, certain types of severe colitis, or autoimmune-related gastrointestinal inflammation. As a corticosteroid, it works by powerfully and quickly suppressing the immune system's inflammatory response. For many people, it can be very effective at reducing inflammation and providing rapid relief from symptoms like pain, diarrhea, and bleeding, often serving as a short-term "rescue" treatment to bring a severe flare under control. However, experiences can vary, and its effectiveness depends heavily on the specific cause of the inflammation. It's also important to be aware that while it can work well, it comes with potential side effects, especially with longer-term use, so it's typically used for the shortest duration possible under close medical supervision. It's always best to discuss the potential benefits and risks specific to your situation with your gastroenterologist.
    • Scott Adams
      Based on what you've described, it is absolutely possible you are dealing with non-celiac gluten sensitivity (NCGS).  Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS.   Your situation is a classic presentation: a negative celiac panel but a clear, recurring pattern of symptoms triggered by gluten. The symptoms you listed—particularly the extreme fatigue, bloating, neurological-psychiatric symptoms like depression and anxiety, and even the skin manifestations like facial flushing—are all well-documented in research on NCGS. It's important to know that you are not alone in experiencing this specific combination of physical and emotional reactions. The only way to know for sure is to commit to a strict, 100% gluten-free diet under the guidance of a doctor or dietitian for a period of several weeks to see if your symptoms significantly improve. It is also crucial to rule out other potential causes, so discussing these symptoms with a gastroenterologist is a very important next step.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.