Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Congratulations To Me!


cdford

Recommended Posts

cdford Contributor

I am so excited...I am able to walk a little around my house again! As long as I am barefoot and don't try to do too much, I have been able to move around my house some. If I try to put shoes on, I can't lift that left leg enough to move it without stumbling, but maybe I will get there. Right now, just being out of that wheelchair a little is feeling pretty wonderful.

To those of you out there with neuropathy, spasticity, FMS, etc. there is hope. Now my biggest challenge may be to take it slowly enough so I don't put myself back into it full time again.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



jenvan Collaborator

Donna-

So glad to hear about your victory :) You are always in my prayers. Hopefully someone will keep you accountable on not too doing much... How's the wedding coming? What day is it?

"Give up the nonsensical and punishing quest for perfection that dogs too many of us through too much of our lives. It is a quest that causes us to doubt and denigrate ourselves, our true selves, our quirks and foibles and great leaps into the unknown, and that is bad enough." -Anna Quindlen

Emme999 Enthusiast

Congratulations Donna :) You deserve every victory you get ;)

rmmadden Contributor

Congratulations and best wishes for continued success!

Cleveland Bob B)

celiac3270 Collaborator

Yay! :D My sincere congratulations. That's such a great step! ;)

Guest BERNESES

Donna- That's so great! Now don't overdo it! Treat yourself well, but God you must feel so happy! Yeah! Beverly

KaitiUSA Enthusiast

Donna-that's wonderful news!!! Congrats!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Canadian Karen Community Regular

Donna, that is such wonderful news!!!! :)

Take one day at a time, that's all we can ask ourselves to do......

Hugs.

Karen

cdford Contributor

I knew that you guys, of all people, would understand my small but important victory. I have been stuck in this wheelchair since 1998. I had just begun to move around a little last year when I got glutened by a restaurant. It has been nine months of gradual and painful effort to get back to this point. I do so want to be able to get around at least using a walker again. The docs are talking about maybe letting me get another AFO to help that left foot lift up. I could once again have the problem of needing a size 8 women's right shoe and a size 8 men's left shoe--and I could get excited about such a problem!

The wedding is June 3. I am trying right now to work out the logistics of the deli meat. Did you all know that several of Kroger's Private Selection deli meats are gluten-free if you don't get them from the deli? (Cross contamination) 60lbs of deli meat is a lot of meat! Oh yeah, I need to add this info to the other post don't I. I am so overwhelmed right now.

For those of you who pray, keep me in them this next few days. Tomorrow is home school day at Six Flags, Saturday my youngest has to be on the ball field by 9:30 a.m. and then my mom is coming in from out of town, and Sunday is another wedding shower. My fatigue levels are going to skyrocket and we are in the last few weeks of school for the year and a wedding is almost upon us. My biggest fear now is that I will overdo it and set myself back again. Needless to say my kids, husband, mom, and friends are all on my case to be careful. They would not even let me go to church Wednesday night for fear I won't make it through this weekend. The last time I took my kids to Six Flags, they remember me walking around with them. They are really excited about tomorrow. Jenn's reaction to our most recent accidental glutening has finally kicked in so she has had "loads of fun" (facetious, not sarcastic) this last week. (Look it up if you aren't sure of the difference! The teacher in me kicks in regularly around here...yesterday it was a discussion of the word genre and its appropriate usage.) She is bound and determined to make it tomorrow, so she has been extra good this week.

jenvan Collaborator

Donna-

Prayers for you... I hope you will not have a sense of dread, but be able to have a sense of joy and anticipation at what's ahead these next few days. Some verses for you...

The Sovereign LORD is my strength; he makes my feet like the feet of a deer, he enables me to go on the heights. Hab 3:19 (I would love for you to have this feeling of going on the heights!!)

O LORD, be gracious to us; we long for you. Be our strength every morning, our salvation in time of distress. Isaiah 33: 2

And he said unto me, My grace is sufficient for thee: for my strength is made perfect in weakness. "Most gladly therefore will I rather glory in my infirmities, that the power of Christ may rest upon me." 2 Corinthians 12:9

cdford Contributor

Thank you, Jen, for those verses. I am halfway through the weekend. I am stuttering and jerking and tired, but am making it. Can't write more. Too hard.

celiac3270 Collaborator

Okay, go rest up! ;) We're thinking of you :)

Guest nini

Donna, glad to hear you are moving a little better. Please don't overdo it. You are in my thoughts sweets. :D

cdford Contributor

I made it through. I am tired ("that" tired, you knwo what imean). Sent eerybody else to church without me. Time for bed, biut I think i will be okay with someee sleep.

celiac3270 Collaborator

I can tell from your post... :) Rest up! ;)

YOU ==> -_- , lol

Canadian Karen Community Regular

Don't overdo it, Donna! Don't reverse all the recent new accomplishments by overdoing it. Take it easy!!!! That's an order! ;)

Karen

cdford Contributor

A 24-hour nap later...

I am back in the land of the living (and writing after seeing that last post of mine). It was a wild and hectic weekend, but it is completed now. It will probably take a few days for me to feel rested, but at least I am back in the saddle a little. Thank you all for your encouragement and support.

jenvan Collaborator

Glad to hear you are well Donna !

Guest BERNESES

You deserve it Donna- Congratulations! By the way Jen - I LOVE your photograph! It's hilarious. Beverly

celiac3270 Collaborator

Yay! Anything we can do to "help you" through it. I am sincerely thrilled for you...I can't imagine not being able to walk, so this is must be an amazing victory for you. Glad you got through the weekend ;)

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,608
    • Most Online (within 30 mins)
      7,748

    lorrasmama
    Newest Member
    lorrasmama
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      It seems like you have two choices--do a proper gluten challenge and get re-tested, or just go gluten-free because you already know that it is gluten that is causing your symptoms. In order to screen someone for celiac disease they need to be eating gluten daily, a lot of it--they usually recommend at least 2 slices of wheat bread daily for 6-8 weeks before a blood screening, and at least 2 weeks before an endoscopy (a colonoscopy is no used to diagnose celiac disease). Normally the blood panel is your first step, and if you have ANY positive results there for celiac disease the next step would be to take biopsies of your villi via an endoscopy given by a gastroenterologist.  More info on the blood tests and the gluten challenge beforehand is below: The article includes the "Mayo Clinic Protocol," which is the best overall protocol for results to be ~98% accurate. Here is more info about how to do a gluten challenge for a celiac disease blood panel, or for an endoscopy: and this recent study recommends 4-6 slices of wheat bread per day:   Not to discourage you from a formal diagnosis, but once you are diagnosed it may lead to higher life and medical insurance rates (things will be changing quickly in the USA with the ACA starting in 2026), as well as the need to disclose it on job applications. While I do think it's best to know for sure--especially because all of your first degree relatives should also get screened for it--I also want to disclose some negative possibilities around a formal diagnosis that you may want to also consider.  
    • Wheatwacked
      Yes.  Now, if you hit your finger with a hammer once, wouldn't you do your best not to do it again?  You have identified a direct connection between gluten and pain.  Gluten is your hammer.  Now you have to decide if you need a medical diagnosis.  Some countries have aid benefits tgat you can get if you have the diagnosis, but you must continue eating a gluten-normal diet while pursuing the diagnosis. Otherwise the only reason to continue eating gluten is social. There are over 200 symptoms that could be a result of celiac disease.. Celiac Disease and Non Celiac Gluten Sensitivity  both cause multiple vitamin and mineral deficiency.  Dealing with that should help your recovery, even while eating gluten.  Phosphatidyl Choline supplements can help your gut if digesting fats is a problem,  Consider that any medications you take could be causing some of the symptoms, aside from gluten.        
    • trents
      Welcome to the forum, @Ben98! If you have been consciously or unconsciously avoiding gluten because of the discomfort it produces then it is likely that your blood antibody testing for celiac disease has been rendered invalid. Valid testing requires regular consumption of generous amounts of gluten. The other strong possibility is that you have NCGS (Non Celiac Gluten Sensitivity) which shares many of the same symptoms with celiac disease but does not have the autoimmune component and thus does not damage the small bowel lining. It is 10x mor common than celiac disease. There is currently no test for NCGS. Celiac disease must first be ruled out. Some experts in the field believe it can be a precursor to the development of celiac disease. Having one or both of the primary genes for developing celiac disease does not imply that you will develop active celiac disease. It simply establishes the potential for it. About 40% of the population has the genetic potential but only about 1% develop active celiac disease. 
    • Ben98
      TTG blood test and total IGA tested on many occasions which have always remained normal, upper GI pain under my ribs since 2022. I had an endoscopy in 2023 which showed moderate gastritis. no biopsy’s were taken unfortunately. genetic test was positive for HLADQ2. extreme bloating after eating gluten, it’ll feel like I’ve got bricks in my stomach so uncomfortably full. the pain is like a dull ache under the upper left almost like a stitch feeling after a long walk. I am just wanting some advice has anyone here experienced gastritis with a gluten issue before? thank you  
    • Wheatwacked
      "Conclusions: The urinary iodine level was significantly lower in women with postmenopausal osteoporosis, and iodine replacement may be important in preventing osteoporosis"  Body iodine status in women with postmenopausal osteoporosis Low iodine can cause thyroid problems, but Iodine deficiency will not show up in thyroid tests.  Iodine is important for healing, its job is to kill off defective and aging cells (Apoptosis). Skin, brain fog, nails, muscle tone all inproved when I started taking 600 mcg (RDA 150 - 1000 mcg) of Liquid Iodine drops. Some with dermatitis herpetiformis, Iodine exacerbates the rash.  I started at 1 drop (50 mcg) and worked up to 12 drops, but I don't have dermatitis herpetiformis.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.