Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Soy And Celiac ?

beksmom

Recommended Posts

beksmom Apprentice
beksmom
Posted

I'm a little confused. . My gastro dr said NO Gluten,Wheat,Soy,or Barley. Are these all celiac no no's or is it just gluten. I have noticed in the gluten free mall that some of the foods contain soy in the ingredients. Please help me on these ingredients are any of them or not ?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


mushroom Proficient
mushroom
Posted

I'm a little confused. . My gastro dr said NO Gluten,Wheat,Soy,or Barley. Are these all celiac no no's or is it just gluten. I have noticed in the gluten free mall that some of the foods contain soy in the ingredients. Please help me on these ingredients are any of them or not ?

The three gluten-containing grains are wheat, RYE and barley. Most oats are also cross-contaminated unless they are certified gluten-free oats.

If he mentioned to avoid soy, that is a separate intolerance that many celiacs have. I know I do. Did they test you for soy? Maybe they actually told you wheat, rye and barley.

StephanieSD Apprentice
StephanieSD
Posted

The gluten is in wheat, rye, and barley. Lots of soy products have gluten in them, though, like most soy sauces. So the doctor may have misspoke, but it's a reminder to check those ingredients lists on everything. It's probably worth a phone call to confirm if soy was tested for separately for some reason.

beksmom Apprentice
beksmom
Posted
  • Author

The gluten is in wheat, rye, and barley. Lots of soy products have gluten in them, though, like most soy sauces. So the doctor may have misspoke, but it's a reminder to check those ingredients lists on everything. It's probably worth a phone call to confirm if soy was tested for separately for some reason.

Thank you Neroli you are probably right because i don't think i'm allergic to soy so it was a reminder that some soy foods have gluten in them.

Do you Know which soys have gluten, or just need to read, read, read ? ha ha Also is soybean the sameas soy? Please don't laugh but i'm just getting a little causious. Debbie

freeatlast Collaborator
freeatlast
Posted

Always read the labels on everything. Some manufacturers change ingredients quite frequently, and their labels should reflect this. A product may be gluten-free one week, but not the next. It just all depends. Getting used to what to avoid is the first step. Sounds like you're headed in the right direction :)

beksmom Apprentice
beksmom
Posted
  • Author

Always read the labels on everything. Some manufacturers change ingredients quite frequently, and their labels should reflect this. A product may be gluten-free one week, but not the next. It just all depends. Getting used to what to avoid is the first step. Sounds like you're headed in the right direction :)

TANKS FOR THE TIP FREEATLAST I APPRECIATE ALL THE HELP i CAN GET.

:)p

mushroom Proficient
mushroom
Posted

Thank you Neroli you are probably right because i don't think i'm allergic to soy so it was a reminder that some soy foods have gluten in them.

Do you Know which soys have gluten, or just need to read, read, read ? ha ha Also is soybean the sameas soy? Please don't laugh but i'm just getting a little causious. Debbie

Most soy sauces contain gluten. Those labelled Tamari usually don't, but Read the Label. Soybeans and soybean oil are soy, although some soy intolerants can tolerate the oil. I avoid it. Since I don't do soy, as soon as I see that on the label I read no further so I am no expert on this. The only one I know for sure that contains gluten is soy sauce. I have the problem that many gluten free processed foods contain soy (or potato, or citric acid, or corn) and so I don't eat a lot of processed food. :rolleyes:

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. trents
      - trents replied to barb simkin's topic in Related Issues & Disorders
      8

      celiac, chocolate and alcohol

      So, you had both and endoscopy with biopsy and a colonoscopy. That helps me understand what you were trying to communicate. No, no! It never occurred to me that you were trying to mislead me. It's just that we get a lot of posters on the forum who are misinformed about what celiac disease is and how it is diagnosed so I need some clarification from you which...
    2. barb simkin
      - barb simkin replied to barb simkin's topic in Related Issues & Disorders
      8

      celiac, chocolate and alcohol

      I had both the genetic genes for celiac. My gastroenologist advised he also took a biopsy during one of my colonoscopies and endoscopy and advised I had celiac disease, along with stomach ulcers from my esophagus stomach down to my small bowel. I was shown the ulcers on the catscan and endoscopy report. I also had polyps in 3 places throughout my large...
    3. trents
      - trents replied to barb simkin's topic in Related Issues & Disorders
      8

      celiac, chocolate and alcohol

      So, I'm a little confused here. I understand you to say that you have not been officially diagnosed with celiac disease. Is this correct? You have had genetic testing done to check for the potential for developing celiac disease and that was positive. Is this correct? I think you meant to type "gluten sensitivity" but you typed "gluten insensitivity...
    4. pweidema
      - pweidema commented on Scott Adams's article in Autumn 2025 Issue
      1

      The Unexpected Gluten Traps in International Snacks: What Not to Bring Back From Vacation

      Very informative. Thank you!
    5. barb simkin
      - barb simkin replied to barb simkin's topic in Related Issues & Disorders
      8

      celiac, chocolate and alcohol

      I did nor read the chocolate pkg as it was of fered to me and I ate 2 pcs. I do know that only very dark chocolate and and a very few others are gluten free. Most alcohols contain gluten. I have several yrs of not knowing my celiac condition as docs would not do the test. After looking on the internet about my sufferings I insisted on the gene trsting...
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,335
    • Most Online (within 30 mins)
      7,748
    DME
    Newest Member
    DME
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • trents
      celiac, chocolate and alcohol

      By trents · Posted

      So, you had both and endoscopy with biopsy and a colonoscopy. That helps me understand what you were trying to communicate. No, no! It never occurred to me that you were trying to mislead me. It's just that we get a lot of posters on the forum who are misinformed about what celiac disease is and how it is diagnosed so I need some clarification from you which you were so gracious to give.
    • barb simkin
      celiac, chocolate and alcohol

      By barb simkin · Posted

      I had both the genetic genes for celiac.  My gastroenologist advised he also took a biopsy during one of my colonoscopies and endoscopy and advised I had celiac disease, along with stomach ulcers from my esophagus stomach down to my small bowel. I was shown the ulcers on the catscan and endoscopy report.  I also had polyps in 3 places throughout my large bowel. I was on a strict diet for months following.  I am sorry if I didnt define how I was diagnosed with celiac disease.  I am sorry if you think I was misleading you. I also had to pay $150.00 for the genetic testing.
    • trents
      celiac, chocolate and alcohol

      By trents · Posted

      So, I'm a little confused here. I understand you to say that you have not been officially diagnosed with celiac disease. Is this correct?  You have had genetic testing done to check for the potential for developing celiac disease and that was positive. Is this correct? I think you meant to type "gluten sensitivity" but you typed "gluten insensitivity". Just so we are clear about the terminology, there is celiac disease and there is NCGS (Non Celiac Gluten Sensitivity). They are not the same but they have overlapping symptoms. Celiac disease causes damage to the small bowel lining but NCGS does not. NCGS is often referred to in short form as gluten sensitivity. However, people often use the terms celiac disease and gluten sensitivity interchangeably so it can be unclear which disease they are referring to. Genetic testing cannot be used to diagnose celiac disease but it can be used to establish the potential to develop active celiac disease. About 40% of the general population has one or both of  the genes that have been most strongly connected with the potential to develop active celiac disease but only about 1% of the population actually develops active celiac disease. This makes the genetic test useful for ruling out celiac disease but not for diagnosing it. A colonoscopy cannot be used to diagnose celiac disease because it doesn't permit the scope to go up into the small bowel where celiac disease does the damage. They use an endoscopy ("upper GI) for checking the small bowel lining for celiac damage.
    • barb simkin
      celiac, chocolate and alcohol

      By barb simkin · Posted

      I did nor read the chocolate pkg as it was of fered to me and I ate 2 pcs. I do know that only very dark chocolate and and a very few others are gluten free. Most alcohols contain gluten. I have several yrs of not knowing my celiac condition as docs would not do the test. After looking on the internet about my sufferings I insisted on the gene trsting which showed positive for gluten insensitivity and a biopsy on my next colonoscopy that also showed positive which could not help the damage done to my small bowel. So I very rarely have a glass of wine
    • trents
      celiac, chocolate and alcohol

      By trents · Posted

      @barb simkin, are you sure the chocolate products are gluten-free and not "manufactured on equipment that also handles wheat products and tree nuts", i.e., cross-contamination? And what kind of alcoholic beverages are we talking about? Most beers are made from gluten-containing grains. Just checking.
×
×
  • Create New...