Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Newbie


JustLovely9216

Recommended Posts

JustLovely9216 Rookie

Hello!

My name is Brooke and I


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



tarnalberry Community Regular

Yes, not getting enough food can make you tired.

You may also want to be tested for vitamin deficiencies, particularly iron and B-12.

Talk to your doctor about your fatigue (in terms of impact to your life).

iamgf Newbie

Hello Brooke:

  • Your GI doctor is most likely going to suggest that you stay on gluten until after he/she completes the tests for Celiac. They will most likely want to do a blood test and endoscopy.
    Note: false negatives are possible with these tests, and also note that Celiac is just one form on gluten-intolerance.

  • If you do have Celiac, it will take time for your body to heal and fully recover. Hense, it will take time for all of your symptoms to go away. Once you are 100% gluten-free, you can expect a 6-month minimum for healing time, depending on how extensive the intestinal damage is.

  • Fatigue is a very common symptom of Celiac. Yes, it can be lack of caloric consumption but more than likely it is because your body is not able to use the nutrients you are feeding it, if you have Celiac (remember the healing time I mentioned above?). However, I think everyone should pay attention to what they eat, so I would suggest tracking to see what your calorie intake is, and if it is contributing (i.e. your not getting enough of the right foods). Try the Open Original Shared Link web site. Their "daily plate" feature lets you track your food and suggests daily caloric intake for you. It also provides a pie chart to show you if you need more protein, complex carbs, or healthy fats.

  • You can up your fiber by eating raw fruits and veggies. I would suggest adding a snack between breakfast and lunch. An apple and 11 pecans halves, for example. Always combine complex carbs (the apple) with protein (the nuts) and a bit of healthy fat (the nuts). Having a small healthy salad (try using balsamic vinegar for dressing) as your carb at lunch and diner, versus fries - which are seldom gluten-free anyway - potato, or rice, will also help.

  • Fiber will help you feel more full, but for energy you want to focus on complex carbs (which contain fiber) and lean protein. Both are used by our bodies for energy. If you are working out with weights (even light weights) you really need to be sure you are getting enough protein.

  • After going gluten-free (gluten-free) I found that following the Open Original Shared Link works perfectly for staying gluten-free, energized and healthy.

  • You will find master lists in loads of places. Here is the one that Celiac.com published

  • Check out my web site Open Original Shared Link as a great starting point. In the resources tab we have a list of very helpful websites.

Best of luck and if you need help again just holler.

Happy gluten-free Eating!

DeAnna

Hello!

My name is Brooke and I

orchid1 Newbie

Hello!

My name is Brooke and I

Reba32 Rookie

for fibre I use ground or milled flax meal. You can make bread, or muffins, or 'cereal' with it.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,904
    • Most Online (within 30 mins)
      7,748

    AnneSN
    Newest Member
    AnneSN
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Xravith
      Yes, you are right. Indeed, I’ve been feeling anemic since the beginning of this week, and today I felt horrible during a lecture at the university, I was trembling a lot and felt all my body incredibly heavy, so I had to come back home. I’ll do a blood test tomorrow, but I’m just worried about the possibility of it coming back negative. I’ve been eating two cookies in the morning as my only source of gluten over the past two weeks—could that affect the final result?
    • trents
      Welcome to the forum, @Judy M! Yes, he definitely needs to continue eating gluten until the day of the endoscopy. Not sure why the GI doc advised otherwise but it was a bum steer.  Celiac disease has a genetic component but also an "epigenetic" component. Let me explain. There are two main genes that have been identified as providing the "potential" to develop "active" celiac disease. We know them as HLA-DQ 2.5 (aka, HLA-DQ 2) and HLA-DQ8. Without one or both of these genes it is highly unlikely that a person will develop celiac disease at some point in their life. About 40% of the general population carry one or both of these two genes but only about 1% of the population develops active celiac disease. Thus, possessing the genetic potential for celiac disease is far less than deterministic. Most who have the potential never develop the disease. In order for the potential to develop celiac disease to turn into active celiac disease, some triggering stress event or events must "turn on" the latent genes. This triggering stress event can be a viral infection, some other medical event, or even prolonged psychological/emotional trauma. This part of the equation is difficult to quantify but this is the epigenetic dimension of the disease. Epigenetics has to do with the influence that environmental factors and things not coded into the DNA itself have to do in "turning on" susceptible genes. And this is why celiac disease can develop at any stage of life. Celiac disease is an autoimmune condition (not a food allergy) that causes inflammation in the lining of the small bowel. The ingestion of gluten causes the body to attack the cells of this lining which, over time, damages and destroys them, impairing the body's ability to absorb nutrients since this is the part of the intestinal track responsible for nutrient absorption and also causing numerous other food sensitivities such as dairy/lactose intolerance. There is another gluten-related disorder known as NCGS (Non Celiac Gluten Sensitivity or just, "gluten sensitivity") that is not autoimmune in nature and which does not damage the small bowel lining. However, NCGS shares many of the same symptoms with celiac disease such as gas, bloating, and diarrhea. It is also much more common than celiac disease. There is no test for NCGS so, because they share common symptoms, celiac disease must first be ruled out through formal testing for celiac disease. This is where your husband is right now. It should also be said that some experts believe NCGS can transition into celiac disease. I hope this helps.
    • Judy M
      My husband has had lactose intolerance for his entire life (he's 68 yo).  So, he's used to gastro issues. But for the past year he's been experiencing bouts of diarrhea that last for hours.  He finally went to his gastroenterologist ... several blood tests ruled out other maladies, but his celiac results are suspect.  He is scheduled for an endoscopy and colonoscopy in 2 weeks.  He was told to eat "gluten free" until the tests!!!  I, and he know nothing about this "diet" much less how to navigate his in daily life!! The more I read, the more my head is spinning.  So I guess I have 2 questions.  First, I read on this website that prior to testing, eat gluten so as not to compromise the testing!  Is that true? His primary care doctor told him to eat gluten free prior to testing!  I'm so confused.  Second, I read that celiac disease is genetic or caused by other ways such as surgery.  No family history but Gall bladder removal 7 years ago, maybe?  But how in God's name does something like this crop up and now is so awful he can't go a day without worrying.  He still works in Manhattan and considers himself lucky if he gets there without incident!  Advice from those who know would be appreciated!!!!!!!!!!!!
    • Scott Adams
      You've done an excellent job of meticulously tracking the rash's unpredictable behavior, from its symmetrical spread and stubborn scabbing to the potential triggers you've identified, like the asthma medication and dietary changes. It's particularly telling that the rash seems to flare with wheat consumption, even though your initial blood test was negative—as you've noted, being off wheat before a test can sometimes lead to a false negative, and your description of the other symptoms—joint pain, brain fog, stomach issues—is very compelling. The symmetry of the rash is a crucial detail that often points toward an internal cause, such as an autoimmune response or a systemic reaction, rather than just an external irritant like a plant or mites. I hope your doctor tomorrow takes the time to listen carefully to all of this evidence you've gathered and works with you to find some real answers and effective relief. Don't be discouraged if the rash fluctuates; your detailed history is the most valuable tool you have for getting an accurate diagnosis.
    • Scott Adams
      In this case the beer is excellent, but for those who are super sensitive it is likely better to go the full gluten-free beer route. Lakefront Brewery (another sponsor!) has good gluten-free beer made without any gluten ingredients.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.