Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Anyone In Florida?

simplyconfused

Recommended Posts

simplyconfused Newbie
simplyconfused
Posted

hi im sarah from lake mary florida im 20 years old. anyone else in florida with celiac disease?

  • 2 weeks later...
Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


K.Darling Rookie
K.Darling
Posted

hi, i live in florida and im 20 and very confused as well? have you been diagnosed?

twe0708 Community Regular
twe0708
Posted

I live in Tampa and was diagnosed about 6 months ago.

laurelfla Enthusiast
laurelfla
Posted

I was in Florida but have moved. There is a great support group in Orlando! Look them up and try to go to a meeting, if you can. :)

  • 1 month later...
taylor- Rookie
taylor-
Posted

Hey! I know this was posted last month..but I haven't been on here in awhile. I'm 21 and I live in Florida! I'm from the Tampa Bay area originally but live in Tallahassee now for school. I've had Celiac Disease for 19...almost 20 years :) don't worry it gets better. If you have any questions feel free to ask.

  • 1 month later...
RideAllWays Enthusiast
RideAllWays
Posted

Sarasota has an amazing gluten free bakery!

GF Traveling Dude Newbie
GF Traveling Dude
Posted

I'm moving to Florida in a couple years; seeking friends in the meantime. I'm 30 and travel there often.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


  • 5 months later...
glutenfreemamax2 Enthusiast
glutenfreemamax2
Posted

HI! I"m 28 in the Daytona Beach area. Have a 3 year old, and a 5 year old. Waiting on test results to come back next week. Have been gluten-free for 2 weeks now. Was also on Dr. Phil in Sept, and if it wasn't for all his show has done for me, I would have NEVER known!

I can't find any support groups in the area and thinking about starting one.

  • 2 months later...
jparsick84 Rookie
jparsick84
Posted

I'm 26 and I live in Orlando. Has anyone tried dating after being diagnosed? I've heard horror stories about kissing a guy after he had a few beers and then being sick...I'm unsure how paranoid I need to be in that aspect. Any tips?

Also, if anyone has any questions about eating out in the Orlando area, especially Disney, please don't hesitate to contact me! I've been living here for almost 2 years now, so I've had a good chance to scope out some favorite restaurants. :)

cO-ol Explorer
cO-ol
Posted

Hey! I know this was posted last month..but I haven't been on here in awhile. I'm 21 and I live in Florida! I'm from the Tampa Bay area originally but live in Tallahassee now for school. I've had Celiac Disease for 19...almost 20 years :) don't worry it gets better. If you have any questions feel free to ask.

I'm from the Tampa Bay area too! Still live here as well. :)

  • 1 month later...
laurelfla Enthusiast
laurelfla
Posted

jparsick84, you don't have to be that paranoid in my opinion -- of course, we all have differing levels of sensitivity and you will hear of people that do not worry about such things and people that would never dream of kissing someone who had had a beer. I make my husband rinse his mouth out after beer, and brush his teeth after eating gluten. I haven't ever gotten sick from kissing him. :)

  • 4 weeks later...
scuzy Rookie
scuzy
Posted

I'm 26 and I live in Orlando. Has anyone tried dating after being diagnosed? I've heard horror stories about kissing a guy after he had a few beers and then being sick...I'm unsure how paranoid I need to be in that aspect. Any tips?

I can vouch for the kissing thing, IT SUCKS!!!!!!!!!!!!, I guess everyone is different though, but one night I kissed a guy after he had eaten pizza a few hours earlier and I still got glutened... I read in a book somewhere that if you are dating a not gluten free person make sure they brush there teeth before you ever kiss them to avoid the horrible consequences.

  • 1 month later...
NolesChick Newbie
NolesChick
Posted

I'm Christy, from the Tallahassee area and have been gluten free since September of 2010. I was diagnosed a few years after a family member found out she had it. Just wanted to say hello!

  • 3 weeks later...
taylor- Rookie
taylor-
Posted

I'm Christy, from the Tallahassee area and have been gluten free since September of 2010. I was diagnosed a few years after a family member found out she had it. Just wanted to say hello!

Hey Christy! I live in Tallahassee too! Welcome :)

  • 8 months later...
lsteward68 Newbie
lsteward68
Posted

Hi, My name is Laura I live in Cocoa Fl. My Son who is 14 almost died of type 1 Diabetes, I went to the library to get info on Diabetes and a cook book, in the same area I found a book for ADHD & Autism cookbook going gluten free and casein free which my second son is very hyper with low concentration? So I picked up that book too, to my realization all the symtoms that were described in the book was what I myself was feeling... So being un-employed with no insurance I went on an internet scout of my own and found some very interesting and scary facts about type 1 Diabetes and Celiac Disease. After a day of information overload, I went to my cabinet and filled three boxes full of food and frozen foods that I imediately gave away went to the store to see what I and my family can eat. I bought bread flour and all the other things that I could imediately eat and fix for dinner. From that day on which has been two weeks now, I can get out of bed without feeling bad and I have eaten food that does not make my stomach hurt, and I do remember things now. Not sure if I am Coeliac or not but the whole Me is much better. I told my ex to take my oldest son to the Dr. to get the test ( he has insurance for him ) hopefully he will, have not heard or not. Thanks for the vent session. If there is anyone out there with input or more info that will help feel free to let me know...

Mike Menkes Newbie
Mike Menkes
Posted

hi im sarah from lake mary florida im 20 years old. anyone else in florida with celiac disease?

I have lived in Florida off and on since 1970. I have found gluten-free foods to be more accessible than ever.

Mike Menkes Newbie
Mike Menkes
Posted

I'm 26 and I live in Orlando. Has anyone tried dating after being diagnosed? I've heard horror stories about kissing a guy after he had a few beers and then being sick...I'm unsure how paranoid I need to be in that aspect. Any tips?

Also, if anyone has any questions about eating out in the Orlando area, especially Disney, please don't hesitate to contact me! I've been living here for almost 2 years now, so I've had a good chance to scope out some favorite restaurants. :)

"Better a night alone than a night with bad company"

PS: How many is a few beers and why so many??

IrishHeart Veteran
IrishHeart
Posted

"Better a night alone than a night with bad company"

PS: How many is a few beers and why so many??

Just so you know, you are replying to a post that is old---(Dec. 2010) and the person may not see your reply.

  • 2 weeks later...
TravelnVal Newbie
TravelnVal
Posted

Has anyone been to the gluten-free expos held in West Palm Beach, Fl??? Heading that way next weekend, will it be worth my time to check out the different products???

IrishHeart Veteran
IrishHeart
Posted

Has anyone been to the gluten-free expos held in West Palm Beach, Fl??? Heading that way next weekend, will it be worth my time to check out the different products???

MarilynR mentioned it to me. PM her! :)

kareng Grand Master
kareng
Posted

Has anyone been to the gluten-free expos held in West Palm Beach, Fl??? Heading that way next weekend, will it be worth my time to check out the different products???

Looks like several forum members will be there:

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. SamAlvi
      - SamAlvi replied to SamAlvi's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      4

      High TTG-IgG and Normal TTG-IgA

      Thank you for the clarification and for taking the time to explain the terminology so clearly. I really appreciate your insight, especially the distinction between celiac disease and NCGS and how anemia can point more toward celiac. This was very helpful for me.
    2. Jsingh
      - Jsingh replied to lizzie42's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      Son's legs shaking

      Hi, My 7 year daughter has complained of this in the past, which I thought were part of her glutening symptom, but more recently I have come to figure out it's part of her histamine overload symptom. This one symptom was part of her broader profile, which included irritability, extreme hunger, confusion, post-nasal drip. You might want to look up "histamine...
    3. lizzie42
      - lizzie42 posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      Son's legs shaking

      My 5yo was diagnosed with celiac last year by being tested after his sister was diagnosed. We are very strict on the gluten-free diet, but unsure what his reactions are as he was diagnosed without many symptoms other than low ferritin. He had a school party where his teacher made gluten-free gingerbread men. I almost said no because she made it in her...
    4. trents
      - trents replied to Paulaannefthimiou's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Bob red mill gluten free oats

      Not necessarily. The "Gluten Free" label means not more than 20ppm of gluten in the product which is often not enough for super sensitive celiacs. You would need to be looking for "Certified Gluten Free" (GFCO endorsed) which means no more than 10ppm of gluten. Having said that, "Gluten Free" doesn't mean that there will necessarily be more gluten than "Certified...
    5. trents
      - trents replied to jenniber's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      10

      Disaccharide deficient, confusing biopsy results, no blood test

      I think it is wise to seek a second opinion from a GI doc and to go on a gluten free diet in the meantime. The GI doc may look at all the evidence, including the biopsy report, and conclude you don't need anything else to reach a dx of celiac disease and so, there would be no need for a gluten challenge. But if the GI doc does want to do more testing, you...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      132,867
    • Most Online (within 30 mins)
      7,748
    mark847
    Newest Member
    mark847
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • SamAlvi
      High TTG-IgG and Normal TTG-IgA

      By SamAlvi · Posted

      Thank you for the clarification and for taking the time to explain the terminology so clearly. I really appreciate your insight, especially the distinction between celiac disease and NCGS and how anemia can point more toward celiac. This was very helpful for me.
    • Jsingh
      Son's legs shaking

      By Jsingh · Posted

      Hi,  My 7 year daughter has complained of this in the past, which I thought were part of her glutening symptom, but more recently I have come to figure out it's part of her histamine overload symptom. This one symptom was part of her broader profile, which included irritability, extreme hunger, confusion, post-nasal drip. You might want to look up "histamine intolerance". I wish I had known of this at the time of her diagnosis, life would have been much easier.  I hope you are able to figure out. 
    • lizzie42
      Son's legs shaking

      By lizzie42 · Posted

      My 5yo was diagnosed with celiac last year by being tested after his sister was diagnosed. We are very strict on the gluten-free diet, but unsure what his reactions are as he was diagnosed without many symptoms other than low ferritin.  He had a school party where his teacher made gluten-free gingerbread men. I almost said no because she made it in her kitchen but I thought it would be ok.  Next day and for a few after his behavior is awful. Hitting, rude, disrespectful. Mainly he kept saying his legs were shaking. Is this a gluten exposure symptom that anyone else gets? Also the bad behavior? 
    • trents
      Bob red mill gluten free oats

      By trents · Posted

      Not necessarily. The "Gluten Free" label means not more than 20ppm of gluten in the product which is often not enough for super sensitive celiacs. You would need to be looking for "Certified Gluten Free" (GFCO endorsed) which means no more than 10ppm of gluten. Having said that, "Gluten Free" doesn't mean that there will necessarily be more gluten than "Certified Gluten" in any given batch run. It just means there could be. 
    • trents
      Disaccharide deficient, confusing biopsy results, no blood test

      By trents · Posted

      I think it is wise to seek a second opinion from a GI doc and to go on a gluten free diet in the meantime. The GI doc may look at all the evidence, including the biopsy report, and conclude you don't need anything else to reach a dx of celiac disease and so, there would be no need for a gluten challenge. But if the GI doc does want to do more testing, you can worry about the gluten challenge at that time. But between now and the time of the appointment, if your symptoms improve on a gluten free diet, that is more evidence. Just keep in mind that if a gluten challenge is called for, the bare minimum challenge length is two weeks of the daily consumption of at least 10g of gluten, which is about the amount found in 4-6 slices of wheat bread. But, I would count on giving it four weeks to be sure.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.