Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Wondering If This Could Be A Neurologic Symptom


katg

Recommended Posts

katg Newbie

My eight year old has been having episodes of fast motion feelings (everything around her moving super fast) or her hands feeling very large, puffy and even heavy. It seems to happen in the mornings mostly and only about once a week lasting about 1 to 5 minutes. We have taken her to her pediatrician who says he has heard of this before but it one of those unexplained things that we should not worry about. My daughter will start crying because she doesn't like when this happens and I'm try to do some reasearch on my own to see if maybe it has to do with her diet. Has any one had these experiences as a child? I typed in fast forward feelings and did come across a chat discussing the exact same thing my daughter has experienced but no one has a reason as to why and it appears to go away as the person has gotten older. She also complains that her stomach aches after she eats some times and often doesn't want to get involved in after school activities because she says she is tired. She also had a huge issue with cavaties this past year and had to have eight fillings. We couldn't believe it. It's like her teeth are very pitted or soft.

Kind of fell in to the idea that she might have a gluten problem as I did a cleanse type thing with the gym I attend where I was eating very cleanly for 10 days. After that I started feeling all bloated again and am wondering if I myself have an issue with wheat and I started looking into it. Now wondering if my daughter actually is having symptoms from gluten.

Any feedback would be really appreciated. Thanks!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



GF Traveling Dude Newbie

Neuro symptoms could be. They are very difficult for an adult to describe, let alone an 8 year old. I would describe celiac neuro symptoms as just not feeling with it; your nerves don't accurately respond to stimuli around you; would be felt most acutely in a busy setting where all your senses were activated at once. Thus, you see how everything around you would feel like it was moving too quickly if you couldn't keep up.

My eight year old has been having episodes of fast motion feelings (everything around her moving super fast) or her hands feeling very large, puffy and even heavy. It seems to happen in the mornings mostly and only about once a week lasting about 1 to 5 minutes. We have taken her to her pediatrician who says he has heard of this before but it one of those unexplained things that we should not worry about. My daughter will start crying because she doesn't like when this happens and I'm try to do some reasearch on my own to see if maybe it has to do with her diet. Has any one had these experiences as a child? I typed in fast forward feelings and did come across a chat discussing the exact same thing my daughter has experienced but no one has a reason as to why and it appears to go away as the person has gotten older. She also complains that her stomach aches after she eats some times and often doesn't want to get involved in after school activities because she says she is tired. She also had a huge issue with cavaties this past year and had to have eight fillings. We couldn't believe it. It's like her teeth are very pitted or soft.

Kind of fell in to the idea that she might have a gluten problem as I did a cleanse type thing with the gym I attend where I was eating very cleanly for 10 days. After that I started feeling all bloated again and am wondering if I myself have an issue with wheat and I started looking into it. Now wondering if my daughter actually is having symptoms from gluten.

Any feedback would be really appreciated. Thanks!

MovieMaker Newbie

wow... I am blown away! I have just recently discovered every symptom I've had my whole life fits into the Celiacs Disease. Had my blood work done on Thursday, I should know by Tuesday for sure. But I don't need blood work to tell me I have this I've never been so sure of anything in my life. I am a 22 year old female and when I was about 10 or so, these " fast forward" feelings you describe terrified me when I was younger. Normally they occurred in the middle of the night, mostly when I would wake up from a nightmare. I was pace around my hallway to this really fast "rhythm" I would describe it sometimes it would take my a while to shake it and now that I'm older I have grown use to it, so I'll do my business in the middle of the night with "fast forward" movements and then go back to sleep. I share the same symptoms you daughter does. I hope that this information has helped.

Best of Luck

katg Newbie

wow... I am blown away! I have just recently discovered every symptom I've had my whole life fits into the Celiacs Disease. Had my blood work done on Thursday, I should know by Tuesday for sure. But I don't need blood work to tell me I have this I've never been so sure of anything in my life. I am a 22 year old female and when I was about 10 or so, these " fast forward" feelings you describe terrified me when I was younger. Normally they occurred in the middle of the night, mostly when I would wake up from a nightmare. I was pace around my hallway to this really fast "rhythm" I would describe it sometimes it would take my a while to shake it and now that I'm older I have grown use to it, so I'll do my business in the middle of the night with "fast forward" movements and then go back to sleep. I share the same symptoms you daughter does. I hope that this information has helped.

Best of Luck

I can't believe this. It's so nice to hear that someone else has experienced what my daughter is. Could you please let us know how your tests turn out. Very grateful for your reply. This is really confirming that I am on the right track here. Thanks

georgie Enthusiast

These Youtube videos show what celiac can do re neuro symptoms....

Open Original Shared Link

Open Original Shared Link

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Jmartes71 commented on Scott Adams's article in Multiple Sclerosis and Celiac Disease
      4

      Gluten-Free Diet Linked to Reduced Inflammation and Improved Outcomes in Multiple Sclerosis (+Video)

    2. - Scott Adams commented on Scott Adams's article in Product Labeling Regulations
      2

      FDA Moves to Improve Gluten Labeling—What It Means for People With Celiac Disease

    3. - Scott Adams replied to wellthatsfun's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      5

      nothing has changed

    4. - Scott Adams replied to Woodster991's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      12

      Is it gluten?

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,351
    • Most Online (within 30 mins)
      7,748

    giuseppe gamerra
    Newest Member
    giuseppe gamerra
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • par18
      Thanks for the reply. 
    • Scott Adams
      What you’re describing is actually very common, and unfortunately the timing of the biopsy likely explains the confusion. Yes, it is absolutely possible for the small intestine to heal enough in three months on a strict gluten-free diet to produce a normal or near-normal biopsy, especially when damage was mild to begin with. In contrast, celiac antibodies can stay elevated for many months or even years after gluten removal, so persistently high antibody levels alongside the celiac genes and clear nutrient deficiencies strongly point to celiac disease, even if you don’t feel symptoms. Many people with celiac are asymptomatic but still develop iron and vitamin deficiencies and silent intestinal damage. The lack of immediate symptoms makes it harder emotionally, but it doesn’t mean gluten isn’t harming you. Most specialists would consider this a case of celiac disease with a false-negative biopsy due to early healing rather than “something else,” and staying consistently gluten-free is what protects you long-term—even when your body doesn’t protest right away.
    • Scott Adams
      Yes, I meant if you had celiac disease but went gluten-free before screening, your results would end up false-negative. As @trents mentioned, this can also happen when a total IGA test isn't done.
    • Seaperky
      I found at Disney springs and Disney they have specialist that when told about dietary restrictions they come and talk to you ,explain cross contamination measures tsken and work with you on choices. Its the one place I dont worry once I've explained I have celiac disease.  Thier gluten free options are awesome.
    • Churley
      Have you tried Pure Encapsulations supplements? This is a brand my doctor recommends for me. I have no issues with this brand.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.