Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Previously Wheat Intolerant - Now Boom!


AlysounRI

Recommended Posts

AlysounRI Contributor

Hello All:

I am new to the forum.

About 5 years ago, I was diagnosed as wheat intolerant, and now I am a full fledged gluten intolerant person.

I kinda knew that. I feel tons better, I am not experiencing any problems with IBS like I did before and my energy levels

are very strong.

I am happy to embrace the new lifestyle and I was already conversant with and eating lots of alternative grains.

And I do a lot of asian cooking, esp. Indian cooking at home which is relatively gluten free aside from the breads.

So I am not devastated.

But I have a question.

With a lot of the alternative grains, esp. the breads, I am quite gassy and that was not a problem I really had before.

When I eat gluten-free bread, it tends to be rice bread but I also love buckwheat pasta or just straight basmati rice.

But the gassiness is a new thing.

I know that guar gum can have laxative properties but can xanthan gum do the same thing. I had not read anything like that.

I am thinking that some of you might be able to tell me if you had experienced anything like this before.

If you did, did it go away.

And how did you manage to make it go away if it did not go away on its own.

I am a great proponent of Indian cooking as one is able to really avoid gluten.

I am in the process of adapting my beloved chapatis (normally whole wheat flour and gram (ie. chick pea) flour to be buckwheat instead of wheat.

And when I have the recipe and proportions right I will add it to the recipe section.

In the meantime, it's very nice to be here among you all and if anyone is also in Rhode Island and would like to compare notes and likes to bake,

I am happy to reciprocate with some of the gluten-free things I like to make cause I am not a baker, esp. if it contains yeast!!

~Allison


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



GF Traveling Dude Newbie

Try germinated brown rice. Its the only grain I can eat. Regular brown rice is problematic for some reason.

Hello All:

I am new to the forum.

About 5 years ago, I was diagnosed as wheat intolerant, and now I am a full fledged gluten intolerant person.

I kinda knew that. I feel tons better, I am not experiencing any problems with IBS like I did before and my energy levels

are very strong.

I am happy to embrace the new lifestyle and I was already conversant with and eating lots of alternative grains.

And I do a lot of asian cooking, esp. Indian cooking at home which is relatively gluten free aside from the breads.

So I am not devastated.

But I have a question.

With a lot of the alternative grains, esp. the breads, I am quite gassy and that was not a problem I really had before.

When I eat gluten-free bread, it tends to be rice bread but I also love buckwheat pasta or just straight basmati rice.

But the gassiness is a new thing.

I know that guar gum can have laxative properties but can xanthan gum do the same thing. I had not read anything like that.

I am thinking that some of you might be able to tell me if you had experienced anything like this before.

If you did, did it go away.

And how did you manage to make it go away if it did not go away on its own.

I am a great proponent of Indian cooking as one is able to really avoid gluten.

I am in the process of adapting my beloved chapatis (normally whole wheat flour and gram (ie. chick pea) flour to be buckwheat instead of wheat.

And when I have the recipe and proportions right I will add it to the recipe section.

In the meantime, it's very nice to be here among you all and if anyone is also in Rhode Island and would like to compare notes and likes to bake,

I am happy to reciprocate with some of the gluten-free things I like to make cause I am not a baker, esp. if it contains yeast!!

~Allison

AlysounRI Contributor

Try germinated brown rice. Its the only grain I can eat. Regular brown rice is problematic for some reason.

I can certainly try that.

When I eat just rice, I am just fine, somehow I think it could be the gums that is causing that.

But you know sometimes you just want a sandwich with (gluten-free) bread :)

Ahorsesoul Enthusiast

I know that guar gum can have laxative properties but can xanthan gum do the same thing. I had not read anything like that~Allison

Yes xanthan gum can cause the same problems.

Roda Rising Star

Is your buckwheat pasta 100% buckwheat? I have seen them in the store and they have wheat ingredients with them.

AlysounRI Contributor

Hi Roda:

Yes, my buckwheat noodles and gluten-free.

I made sure of that before I bought them.

I much prefer them to rice pasta and I like the nuttiness of the flavor too.

Thank you for asking.

~Allison

Raleigh333 Newbie

Hi Roda:

Yes, my buckwheat noodles and gluten-free.

I made sure of that before I bought them.

I much prefer them to rice pasta and I like the nuttiness of the flavor too.

Thank you for asking.

~Allison

Do you use the Eden Organics 100% Buckwheat Pasta? I haven't found any other brand that is 100% and the package just went from $7 to $8 at whole foods. They're so much better tasting than they look but literally quadruple the price.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Roda Rising Star

Hi Roda:

Yes, my buckwheat noodles and gluten-free.

I made sure of that before I bought them.

I much prefer them to rice pasta and I like the nuttiness of the flavor too.

Thank you for asking.

~Allison

What brand? I want to try some, but can't find any that are gluten free.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Mari replied to Jmartes71's topic in Related Issues & Disorders
      15

      My only proof

    2. - Rejoicephd commented on Jefferson Adams's article in Gluten-Free Cooking
      1

      Your Complete Gluten-Free Thanksgiving Plan: Recipes, Tips & Holiday Favorites

    3. - marion wheaton replied to marion wheaton's topic in Gluten-Free Foods, Products, Shopping & Medications
      3

      Are Lindt chocolate balls gluten free?

    4. - trents replied to marion wheaton's topic in Gluten-Free Foods, Products, Shopping & Medications
      3

      Are Lindt chocolate balls gluten free?


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,421
    • Most Online (within 30 mins)
      7,748

    john rands
    Newest Member
    john rands
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Mari
      Years  ago a friend and I drove north into Canada hoping to find a ski resort open in late spring,We were in my VW and found a small ski area near a small town and started up this gravelled road up a mountain. We  got about halfway up and got stuck in the mud. We tried everything we could think of but an hour later we were still stuck. Finally a pickup came down the road, laughed at our situation, then pulled the VW free of the mud. We followed him back to the ski area where where he started up the rope ski lift and we had an enjoyable hour of skiing and gave us a shot of aquavit  before we left.It was a great rescue.  In some ways this reminds me of your situation. You are waiting for a rescue and you have chosen medical practitioners to do it now or as soon as possible. As you have found out the med. experts have not learned how to help you. You face years of continuing to feel horrible, frustrated searching for your rescuer to save you. You can break away from from this pattern of thinking and you have begun breaking  away by using some herbs and supplements from doTerra. Now you can start trying some of the suggestions thatother Celiacs have written to your original posts.  You live with other people who eat gluten foods. Cross contamination is very possible. Are you sure that their food is completely separate from their food. It  is not only the gluten grains you need to avoid (wheat, barley, rye) but possibly oats, cows milk also. Whenever you fall back into that angry and frustrated way of thinking get up and walk around for a whild. You will learn ways to break that way of thinking about your problems.  Best wishes for your future. May you enjpy a better life.  
    • marion wheaton
      Thanks for responding. I researched further and Lindt Lindor chocolate balls do contain barely malt powder which contains gluten. I was surprised at all of the conflicting information I found when I checked online.
    • trents
      @BlessedinBoston, it is possible that in Canada the product in question is formulated differently than in the USA or at least processed in in a facility that precludes cross contamination. I assume from your user name that you are in the USA. And it is also possible that the product meets the FDA requirement of not more than 20ppm of gluten but you are a super sensitive celiac for whom that standard is insufficient. 
    • BlessedinBoston
      No,Lindt is not gluten free no matter what they say on their website. I found out the hard way when I was newly diagnosed in 2000. At that time the Lindt truffles were just becoming popular and were only sold in small specialty shops at the mall. You couldn't buy them in any stores like today and I was obsessed with them 😁. Took me a while to get around to checking them and was heartbroken when I saw they were absolutely not gluten free 😔. Felt the same when I realized Twizzlers weren't either. Took me a while to get my diet on order after being diagnosed. I was diagnosed with small bowel non Hodgkins lymphoma at the same time. So it was a very stressful time to say the least. Hope this helps 😁.
    • knitty kitty
      @Jmartes71, I understand your frustration and anger.  I've been in a similar situation where no doctor took me seriously, accused me of making things up, and eventually sent me home to suffer alone.   My doctors did not recognize nutritional deficiencies.  Doctors are trained in medical learning institutions that are funded by pharmaceutical companies.  They are taught which medications cover up which symptoms.  Doctors are required to take twenty  hours of nutritional education in seven years of medical training.  (They can earn nine hours in Nutrition by taking a three day weekend seminar.)  They are taught nutritional deficiencies are passe' and don't happen in our well fed Western society any more.  In Celiac Disease, the autoimmune response and inflammation affects the absorption of ALL the essential vitamins and minerals.  Correcting nutritional deficiencies caused by malabsorption is essential!  I begged my doctor to check my Vitamin D level, which he did only after making sure my insurance would cover it.  When my Vitamin D came back extremely low, my doctor was very surprised, but refused to test for further nutritional deficiencies because he "couldn't make money prescribing vitamins.". I believe it was beyond his knowledge, so he blamed me for making stuff up, and stormed out of the exam room.  I had studied Nutrition before earning a degree in Microbiology.  I switched because I was curious what vitamins from our food were doing in our bodies.  Vitamins are substances that our bodies cannot manufacture, so we must ingest them every day.  Without them, our bodies cannot manufacture life sustaining enzymes and we sicken and die.   At home alone, I could feel myself dying.  It's an unnerving feeling, to say the least, and, so, with nothing left to lose, I relied in my education in nutrition.  My symptoms of Thiamine deficiency were the worst, so I began taking high dose Thiamine.  I had health improvement within an hour.  It was magical.  I continued taking high dose thiamine with a B Complex, magnesium. and other essential nutrients.  The health improvements continued for months.  High doses of thiamine are required to correct a thiamine deficiency because thiamine affects every cell and mitochondria in our bodies.    A twenty percent increase in dietary thiamine causes an eighty percent increase in brain function.  The cerebellum of the brain is most affected.  The cerebellum controls things we don't have to consciously have to think about, like digestion, balance, breathing, blood pressure, heart rate, hormone regulation, and many more.  Thiamine is absorbed from the digestive tract and sent to the most important organs like the brain and the heart.  This leaves the digestive tract depleted of Thiamine and symptoms of Gastrointestinal Beriberi, a thiamine deficiency localized in the digestive system, begin to appear.  Symptoms of Gastrointestinal Beriberi include anxiety, depression, chronic fatigue, headaches, Gerd, acid reflux, gas, slow stomach emptying, gastroparesis, bloating, diarrhea and/or constipation, incontinence, abdominal pain, IBS,  SIBO, POTS, high blood pressure, heart rate changes like tachycardia, difficulty swallowing, Barrett's Esophagus, peripheral neuropathy, and more. Doctors are only taught about thiamine deficiency in alcoholism and look for the classic triad of symptoms (changes in gait, mental function, and nystagmus) but fail to realize that gastrointestinal symptoms can precede these symptoms by months.  All three classic triad of symptoms only appear in fifteen percent of patients, with most patients being diagnosed with thiamine deficiency post mortem.  I had all three but swore I didn't drink, so I was dismissed as "crazy" and sent home to die basically.   Yes, I understand how frustrating no answers from doctors can be.  I took OTC Thiamine Hydrochloride, and later thiamine in the forms TTFD (tetrahydrofurfuryl disulfide) and Benfotiamine to correct my thiamine deficiency.  I also took magnesium, needed by thiamine to make those life sustaining enzymes.  Thiamine interacts with each of the other B vitamins, so the other B vitamins must be supplemented as well.  Thiamine is safe and nontoxic even in high doses.   A doctor can administer high dose thiamine by IV along with the other B vitamins.  Again, Thiamine is safe and nontoxic even in high doses.  Thiamine should be given if only to rule Gastrointestinal Beriberi out as a cause of your symptoms.  If no improvement, no harm is done. Share the following link with your doctors.  Section Three is especially informative.  They need to be expand their knowledge about Thiamine and nutrition in Celiac Disease.  Ask for an Erythrocyte Transketolace Activity test for thiamine deficiency.  This test is more reliable than a blood test. Thiamine, gastrointestinal beriberi and acetylcholine signaling.  https://pmc.ncbi.nlm.nih.gov/articles/PMC12014454/ Best wishes!
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.