Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Melatronin


Lz-erk

Recommended Posts

Lz-erk Newbie

I quit smoking about... 24 hours and forty-five minutes ago, so this ain't gonna be my smartest post. I couldn't find it on searches of the site though. Sorry if this's in the wrong section.

I have symptoms of Non-24-hour sleep/wake disorder. That's usually treated with melatonin, like DSPD. [Melatonin is also great at knocking out the irritation that comes with being awake during smokfing cessation.]

I get abdominal pains after taking melatonin, every time, and I don't feel well at all for a while after.

The hypothesis is that melatonin can give problems to people with celiac disease, but information to back it up has been difficult to obtain. At least for me at this time. :P Anyone else have this problem?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



lovegrov Collaborator

Never heard of melatonin causing problems specifically for people with celiac. Didn't cause me any problems when I took it.

richard

Chrisco Apprentice

I haven't had any problems with melatonin either. I used to work at a vitamin store and we did sell a lot of melatonin. I never got any negative feedback. Melatonin is a hormone that the brain produces that regulates your sleep cycle so it shouldn't cause digestive upset. Could it be that the brand of melatonin that you are taking may have wheat in it?

Lz-erk Newbie

It's been reliably causing abdominal pain. The dose was .5mg of a marked gluten-free brand of melatonin; it's a little old, but nothing in the ingredients raises any sort of suspicions from me. There might be some constipation and odd-smelling blackish stool associated also [i don't know what else could have done it]. It reminds me of the symptoms that mostly cleared up after I went gluten-free. I'm discontinuing it.

This has also been an issue for me since I look like an obvious candidate for Non-24, yet can't comfortably participate in its typical treatment: I'm glad to leave this informational footprint here even if nothing comes of it.

  • 2 months later...
Blondie Apprentice

I quit smoking about... 24 hours and forty-five minutes ago, so this ain't gonna be my smartest post. I couldn't find it on searches of the site though. Sorry if this's in the wrong section.

I have symptoms of Non-24-hour sleep/wake disorder. That's usually treated with melatonin, like DSPD. [Melatonin is also great at knocking out the irritation that comes with being awake during smokfing cessation.]

I get abdominal pains after taking melatonin, every time, and I don't feel well at all for a while after.

The hypothesis is that melatonin can give problems to people with celiac disease, but information to back it up has been difficult to obtain. At least for me at this time. :P Anyone else have this problem?

Are you lactose intolerant?

The melatonin brand I just got from my pharmacy contains lactose, maybe yours does too.

Black Sheep Apprentice

You could try a sublingual melatonin. I just bought one a few days ago, as my chronic insomnia which had originally improved after going g.f. decided to pay me a few visits again. :angry: I like the sublingual much better than the other kind; not that the other bothered my stomach, but the sublingual works really, really, fast. Tastes good, too.

sandsurfgirl Collaborator

I have insomnia now and I just asked my mother in law who is an allergist about melatonin. She was adamant that I do NOT take it. She said it's bad for anybody with an autoimmune disease or any immune system problem. She's pretty good with natural stuff, so if she doesn't like something natural I generally listen to her.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



DonaldandAlanda Evans Apprentice

Melatonin strengthens the immune system. So if you have active antibodies in your system, the theory is they will be stronger.

jackay Enthusiast

You could try a sublingual melatonin. I just bought one a few days ago, as my chronic insomnia which had originally improved after going g.f. decided to pay me a few visits again. :angry: I like the sublingual much better than the other kind; not that the other bothered my stomach, but the sublingual works really, really, fast. Tastes good, too.

Please provide the brand of liquid melatonin. That sounds like a good product for me.

Thanks!

VegasGuy10 Newbie

I have insomnia now and I just asked my mother in law who is an allergist about melatonin. She was adamant that I do NOT take it. She said it's bad for anybody with an autoimmune disease or any immune system problem. She's pretty good with natural stuff, so if she doesn't like something natural I generally listen to her.

I recently was diagnosed with celiac disease after 67 years of suffering with many symptoms. I too take melatonin for aromotase inhibition. It is doing a great job with no problems. Since I stopped eating gluten containing foods I can take a lot of things and get more out of them than at anytime in my life, that includes melatonin.

Black Sheep Apprentice

Please provide the brand of liquid melatonin. That sounds like a good product for me.

Thanks!

I got it at my local GNC (General Nutrition Centers) store...do they have those where you are? So of course it's the GNC brand. But lots of health food stores sell sublingual melatonin. This one I have is not a liquid, it's a very small, cherry-flavored tablet that slowly dissolves under the tongue. The label also specifies g.f.! This GNC brand sublingual comes in 1 or 3 mg., I believe. I got the 1 mg., thinking that if I needed 2 I could just take 2....I had some others that were 3 and they were just too much.

Black Sheep Apprentice

I have insomnia now and I just asked my mother in law who is an allergist about melatonin. She was adamant that I do NOT take it. She said it's bad for anybody with an autoimmune disease or any immune system problem. She's pretty good with natural stuff, so if she doesn't like something natural I generally listen to her.

Did she say what it is about it that makes it bad for anyone with an a.i. disease? I think I remember reading other comments in this thread about it not being good for us, too....just wondering about the "why's" of it. :)

jackay Enthusiast

I got it at my local GNC (General Nutrition Centers) store...do they have those where you are? So of course it's the GNC brand. But lots of health food stores sell sublingual melatonin. This one I have is not a liquid, it's a very small, cherry-flavored tablet that slowly dissolves under the tongue. The label also specifies g.f.! This GNC brand sublingual comes in 1 or 3 mg., I believe. I got the 1 mg., thinking that if I needed 2 I could just take 2....I had some others that were 3 and they were just too much.

There is a GNC about 30 miles from me. Will need to make a trip over there one of these days. Thanks for the info:)

Black Sheep Apprentice

Well, melatonin's so common, you could probably find the sublingual's in any health food store, or even a pharmacy that sells vitamins, herbs, etc. But I know what it's like to have to drive 30 miles, or to the next town at least (about 12) to get certain supplements or g.f. food! Heck, my little town doesn't even have a health food store anymore! There's a couple of grocery stores with health food sections, but one only has food, no supplements (and not much g.f. food), and the one with supplements charges an arm and a leg! They're so ridiculous, it's way cheaper to drive to the next town to a Super Supplements, who are quite reasonable (unless you're buying agave nectar). The only reason I went to GNC for the melatonin was I was too tired to drive to the other place! :lol: Because for the most part, their selection (at my local one, anyway)is abysmal and most of the employees aren't too knowledgeable.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    2. - Jane02 replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    3. - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    4. 0

      Penobscot Bay, Maine: Nurturing Gluten-Free Wellness Retreat with expert celiac dietitian, Melinda Dennis

    5. - Scott Adams replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,331
    • Most Online (within 30 mins)
      7,748

    Kristy2026
    Newest Member
    Kristy2026
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

    • There are no registered users currently online
  • Upcoming Events

  • Posts

    • knitty kitty
      @Jane02, I hear you about the kale and collard greens.  I don't do dairy and must eat green leafies, too, to get sufficient calcium.  I must be very careful because some calcium supplements are made from ground up crustacean shells.  When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly.  This is safe and nontoxic.  Vitamin D level should be above 70 nmol/L.  Lifeguards and indigenous Pacific Islanders typically have levels between 80-100 nmol/L.   Levels lower than this are based on amount needed to prevent disease like rickets and osteomalacia. We need more thiamine when we're physically ill, emotionally and mentally stressed, and if we exercise like an athlete or laborer.  We need more thiamine if we eat a diet high in simple carbohydrates.  For every 500 kcal of carbohydrates, we need 500-1000 mg more of thiamine to process the carbs into energy.  If there's insufficient thiamine the carbs get stored as fat.  Again, recommended levels set for thiamine are based on minimum amounts needed to prevent disease.  This is often not adequate for optimum health, nor sufficient for people with absorption problems such as Celiac disease.  Gluten free processed foods are not enriched with vitamins like their gluten containing counterparts.  Adding a B Complex and additional thiamine improves health for Celiacs.  Thiamine is safe and nontoxic even in high doses.  Thiamine helps the mitochondria in cells to function.  Thiamine interacts with each of the other B vitamins.  They are all water soluble and easily excreted if not needed. Interesting Reading: Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/ Safety and effectiveness of vitamin D mega-dose: A systematic review https://pubmed.ncbi.nlm.nih.gov/34857184/ High dose dietary vitamin D allocates surplus calories to muscle and growth instead of fat via modulation of myostatin and leptin signaling https://pubmed.ncbi.nlm.nih.gov/38766160/ Safety of High-Dose Vitamin D Supplementation: Secondary Analysis of a Randomized Controlled Trial https://pubmed.ncbi.nlm.nih.gov/31746327/ Vitamins and Celiac Disease: Beyond Vitamin D https://pmc.ncbi.nlm.nih.gov/articles/PMC11857425/ Investigating the therapeutic potential of tryptophan and vitamin A in modulating immune responses in celiac disease: an experimental study https://pubmed.ncbi.nlm.nih.gov/40178602/ Investigating the Impact of Vitamin A and Amino Acids on Immune Responses in Celiac Disease Patients https://pmc.ncbi.nlm.nih.gov/articles/PMC10814138/
    • Jane02
      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency.  I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently meet from my diet is vitamin D. Calcium is a hit and miss as I rely on vegetables, dark leafy greens as a major source, for my calcium intake. I'm able to meet it when I either eat or juice a bundle of kale or collard greens daily haha. My thiamine intake is roughly 120% of my needs, although I do recognize that I may not be absorbing all of these nutrients consistently with intermittent unintentional exposures to gluten.  My vitamin A intake is roughly 900% (~6400 mcg/d) of my needs as I eat a lot of sweet potato, although since it's plant-derived vitamin A (beta-carotene) apparently it's not likely to cause toxicity.  Thanks again! 
    • knitty kitty
      Hello, @Jane02,  I take Naturewise D 3.  It contains olive oil.   Some Vitamin D supplements, like D Drops, are made with fractionated coconut oil which can cause digestive upsets.  Fractionated coconut oil is not the same as coconut oil used for cooking.  Fractionated coconut oil has been treated for longer shelf life, so it won't go bad in the jar, and thus may be irritating to the digestive system. I avoid supplements made with soy because many people with Celiac Disease also react to soy.  Mixed tocopherols, an ingredient in Thornes Vitamin D, may be sourced from soy oil.  Kirkland's has soy on its ingredient list. I avoid things that might contain or be exposed to crustaceans, like Metagenics says on its label.  I have a crustacean/shellfish/fish allergy.  I like Life Extension Bioactive Complete B Complex.  I take additional Thiamine B 1 in the form Benfotiamine which helps the intestines heal, Life Extension MegaBenfotiamine. Thiamine is needed to activate Vitamin D.   Low thiamine can make one feel like they are getting glutened after a meal containing lots of simple carbohydrates like white rice, or processed gluten free foods like cookies and pasta.   It's rare to have a single vitamin deficiency.  The water soluble B Complex vitamins should be supplemented together with additional Thiamine in the form Benfotiamine and Thiamine TTFD (tetrahydrofurfuryl disulfide) to correct subclinical deficiencies that don't show up on blood tests.  These are subclinical deficiencies within organs and tissues.  Blood is a transportation system.  The body will deplete tissues and organs in order to keep a supply of thiamine in the bloodstream going to the brain and heart.   If you're low in Vitamin D, you may well be low in other fat soluble vitamins like Vitamin A and Vitamin K. Have you seen a dietician?
    • Scott Adams
      I do not know this, but since they are labelled gluten-free, and are not really a product that could easily be contaminated when making them (there would be not flour in the air of such a facility, for example), I don't really see contamination as something to be concerned about for this type of product. 
    • trents
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.