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Desperate For Help.

hazeleyez682

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hazeleyez682 Apprentice
hazeleyez682
Posted

Hello all. I need some advice as i am kind of freaking out a bit. In october i went to my PCP with complaints of constant soft stool or diarreah. I had also been getting sick alot and look horribly unhealthy. After tests she advised i go gluten-free. Which of course i did. Since then my symtoms have not gotten much better and i have lost 30lbs over a little less than a year! I'm seeing the doc again nexxt Monday, but maybe you guys can give insight and ease my mind. Thanks all

gluten-free/DF since October 09

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Lisa Mentor
Lisa
Posted

Hello all. I need some advice as i am kind of freaking out a bit. In october i went to my PCP with complaints of constant soft stool or diarreah. I had also been getting sick alot and look horribly unhealthy. After tests she advised i go gluten-free. Which of course i did. Since then my symtoms have not gotten much better and i have lost 30lbs over a little less than a year! I'm seeing the doc again nexxt Monday, but maybe you guys can give insight and ease my mind. Thanks all

gluten-free/DF since October 09

Can you tell us what kind of tests you had?

hazeleyez682 Apprentice
hazeleyez682
Posted
  • Author

Can you tell us what kind of tests you had?

the only test she gave me was the blood test.

Wolicki Enthusiast
Wolicki
Posted

the only test she gave me was the blood test.

Based on the limited info you provided, my guess would be you have some secondary food intolerances. ARe you keeping a food diary? Also, are you taking enzymes and probiotics? These seem to aid in healing.

Most Celiacs have secondary food intolerances, and thankfully, most of them go away after a period of keeping your diet free of those foods.

Can you describe your symptoms in more detail?

tarnalberry Community Regular
tarnalberry
Posted

I would also ask if you've checked for hidden sources of gluten and/or cross contamination - soy sauce, salad dressings, "rice" cereals with barley malt, shared toasters or cutting boards, toothpaste, etc.

hazeleyez682 Apprentice
hazeleyez682
Posted
  • Author

I have secondary food intolorances to milk and dairy an eggs seem to be an issue as well as they give me a terrible stomache ache! I take a probiotic ( acidopolus) calcium, vit c, Vit E, grapeseed extract, and a daily multi. All gluten-free DF lables.

Toothpaste i always use crest? Is that a gluten-free lable?? Which is best?

CC- I threw out my toaster , cutting board, strainers, and any cracked damaged pans. I always line pans with foil, or wax paper to prevent CC. My boyfiend who lives with me agreed to keeping a gluten-free kitchen and i worry little about him bringing in things. But in case i designante a shelf for him as well as dishtowels and sponges for washing any non gluten-free dishes. I feel like i covered so many bases, what could i be missing?

Oh nad cereals, Always Chex gluten-free brand and Puffins gluten-free rice cereal all gluten-free right on lable, use silk soy milk.

Reba32 Rookie
Reba32
Posted

I believe all toothpastes in North America are gluten free.

Sounds like you're pretty thorough and that your boyfriend is very supportive, lucky you ;)

If you are overly sensitive, you might want to consider checking the labels on your soaps, cosmetics, shampoos etc. And pet foods if you have pets. Some people think it's a bit overkill, but it's up to you.

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GFinDC Veteran
GFinDC
Posted

Oh nad cereals, Always Chex gluten-free brand and Puffins gluten-free rice cereal all gluten-free right on lable, use silk soy milk.

I suggest you get rid of all the soy in your diet. There are non-soy milk alternatives available. Also, just because your vitamins are gluten free, doesn't mean they are safe for you. You could have additional intolerances besides gluten that are causing problems. If one of your vitamins has that item in it, then you would be dosing your self with an irritant. So taking a break from all your vitamins for 2 weeks might be good idea. That would probably be enough time to see if it made any difference. Multivitamins would be the most likely to cause a problem since they have so many ingredients.

hazeleyez682 Apprentice
hazeleyez682
Posted
  • Author

Thanks for the advice. I will give the vitamins a break. Out of curosity could i also be intolorant of corn. As a snack i often have Santatitas corn chips made by lays. Stated is gluten-free,DF,casine free?

Reba32 Rookie
Reba32
Posted

corn and soy are probably the other most common intolerances/allergies after wheat and dairy. I can't even smell corn from the other side of the room without feeling nauseous.

hazeleyez682 Apprentice
hazeleyez682
Posted
  • Author

corn and soy are probably the other most common intolerances/allergies after wheat and dairy. I can't even smell corn from the other side of the room without feeling nauseous.

ok, thanks im going to eliminate corn and soy. Lets see what happens. Thanks again.

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    • knitty kitty
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By knitty kitty · Posted

      @Jane02, I hear you about the kale and collard greens.  I don't do dairy and must eat green leafies, too, to get sufficient calcium.  I must be very careful because some calcium supplements are made from ground up crustacean shells.  When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly.  This is safe and nontoxic.  Vitamin D level should be above 70 nmol/L.  Lifeguards and indigenous Pacific Islanders typically have levels between 80-100 nmol/L.   Levels lower than this are based on amount needed to prevent disease like rickets and osteomalacia. We need more thiamine when we're physically ill, emotionally and mentally stressed, and if we exercise like an athlete or laborer.  We need more thiamine if we eat a diet high in simple carbohydrates.  For every 500 kcal of carbohydrates, we need 500-1000 mg more of thiamine to process the carbs into energy.  If there's insufficient thiamine the carbs get stored as fat.  Again, recommended levels set for thiamine are based on minimum amounts needed to prevent disease.  This is often not adequate for optimum health, nor sufficient for people with absorption problems such as Celiac disease.  Gluten free processed foods are not enriched with vitamins like their gluten containing counterparts.  Adding a B Complex and additional thiamine improves health for Celiacs.  Thiamine is safe and nontoxic even in high doses.  Thiamine helps the mitochondria in cells to function.  Thiamine interacts with each of the other B vitamins.  They are all water soluble and easily excreted if not needed. Interesting Reading: Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/ Safety and effectiveness of vitamin D mega-dose: A systematic review https://pubmed.ncbi.nlm.nih.gov/34857184/ High dose dietary vitamin D allocates surplus calories to muscle and growth instead of fat via modulation of myostatin and leptin signaling https://pubmed.ncbi.nlm.nih.gov/38766160/ Safety of High-Dose Vitamin D Supplementation: Secondary Analysis of a Randomized Controlled Trial https://pubmed.ncbi.nlm.nih.gov/31746327/ Vitamins and Celiac Disease: Beyond Vitamin D https://pmc.ncbi.nlm.nih.gov/articles/PMC11857425/ Investigating the therapeutic potential of tryptophan and vitamin A in modulating immune responses in celiac disease: an experimental study https://pubmed.ncbi.nlm.nih.gov/40178602/ Investigating the Impact of Vitamin A and Amino Acids on Immune Responses in Celiac Disease Patients https://pmc.ncbi.nlm.nih.gov/articles/PMC10814138/
    • Jane02
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Jane02 · Posted

      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency.  I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently meet from my diet is vitamin D. Calcium is a hit and miss as I rely on vegetables, dark leafy greens as a major source, for my calcium intake. I'm able to meet it when I either eat or juice a bundle of kale or collard greens daily haha. My thiamine intake is roughly 120% of my needs, although I do recognize that I may not be absorbing all of these nutrients consistently with intermittent unintentional exposures to gluten.  My vitamin A intake is roughly 900% (~6400 mcg/d) of my needs as I eat a lot of sweet potato, although since it's plant-derived vitamin A (beta-carotene) apparently it's not likely to cause toxicity.  Thanks again! 
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    • Scott Adams
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

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      I do not know this, but since they are labelled gluten-free, and are not really a product that could easily be contaminated when making them (there would be not flour in the air of such a facility, for example), I don't really see contamination as something to be concerned about for this type of product. 
    • trents
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

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      Contact them.
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