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Specific Carbohydrate Diet?

PreOptMegs

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danikali Enthusiast
danikali
Posted
I have questions:

Is there anywhere on-line where there is a list of safe/legal probiotic brands to use?

Does anyone know what the special instructions are for cooking the dried legal beans?

Open Original Shared Link

That is the website where you can buy the probiotics offline. That's where I got mine. They are about the same price as buying them in the store.

Anyway, Christine, you are lucky that you can tolerate all of those things. I can't have bananas, it seems like I have a problem with any kind of fruit. My main problem is bloating and heartburn at night. Anytime I eat the smallest amount of something that my body doesn't like, I blow up like a balloon and stay that way for a while. It's soooooooooooooooo f'in annoying. (Sorry, but it really is). I'm sick of feeling like I'm not in my own body when I look in the mirror. It's very depressing.

I just feel like I'm never going to be able to tolerate anything besides meat and veggies. I'm getting really depressed again. Is there anyone out there who had problems with foods for a while and can eat them now like a normal person? (SCD legal of course). I'm just really frustrated, really hungry, and really craving my beloved almond butter with rasins.

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cornbread Explorer
cornbread
Posted
Open Original Shared Link

Anytime I eat the smallest amount of something that my body doesn't like, I blow up like a balloon and stay that way for a while. It's soooooooooooooooo f'in annoying. (Sorry, but it really is). I'm sick of feeling like I'm not in my own body when I look in the mirror. It's very depressing.

Dani, I know exactly how you feel. I hate being bloated. I'm a size 2. Looks so ridiculous to wear my regular size clothes but have this pot belly sticking out!

corinne Apprentice
corinne
Posted

I've been adding just one food every 3 or 4 days. I react to a lot (well it seems most foods) so I've had to go really slow. So far it's just canned fruit, squash, beets, carrots, meat and eggs. All very well cooked. I got impatient at first, but felt sick so decided I needed to go slow.

Guest greengirl
Guest greengirl
Posted
Anyway, Christine, you are lucky that you can tolerate all of those things. I can't have bananas, it seems like I have a problem with any kind of fruit. My main problem is bloating and heartburn at night. Anytime I eat the smallest amount of something that my body doesn't like, I blow up like a balloon and stay that way for a while. It's soooooooooooooooo f'in annoying. (Sorry, but it really is). I'm sick of feeling like I'm not in my own body when I look in the mirror. It's very depressing.

Dani,

I'm sorry you're having such a hard time! I don't know if I am tolerating all the foods either since I have this burning in my intestines, but I don't know what to cut out.

You've only been on the diet for 5 weeks, which probably seems like forever, but in the whole scheme of things it's still early on and perfectly understandable that fruits would cause a problem. Sometimes I'll cook strawberries with honey for a smoothie instead of just adding them raw. I'm trying to stay away from most fruits at this point unless they're cooked.

I'm starting to realize, though, that there isn't one answer that works for everyone. Everyone's body seems to have its own unique way of responding to foods. I, too, keep searching for answers, and, yes, it does get depressing not knowing whether we're on the right track. I think it's just going to take time. Going slow is probably the best bet.

Have you tried some medication for the heartburn? I take protonix once a day and it helps a lot with acid reflux.

Christine

PreOptMegs Explorer
PreOptMegs
Posted
  • Author

Honestly, here is how I added things in. Yes, I started out very strict on the diet, but since it is fresh fruit season, I have to have some fruit. Basically, I eat the fruit even if I think it is going to cause problems, just to get the craving out. If I get gas later, then I know I wasn't ready for it. Basically, I take out one day on a weekend to eat and try out the foods I want. For the rest of the week, I stick to meats, eggs, cheese, yogurt, and cooked veggies. After about a month of this, I have healed so much that even the fresh fruit doesn't bother me. For me there just comes a time when I have to have my raisins, no matter if my body was ready or not. I can eat them now, but in the beginning I just had to suffer through the gas.

danikali Enthusiast
danikali
Posted

Okay, so at least I'm not alone on this. That's good news. Yesterday and today, all I've had is carrots and meat, no juice even. I'm making the yogurt (it's at home cooking right now), so I will try that either tomorrow or Friday. But I guess it makes me feel a lot better to know that even if I have the foods that are 'legal' but still bother me, it doesn't stop the healing. For example, preptomegs, you said that once a week you try things like fruit, even if you know they bother you, but eventually, you can tolerate the fruit, even though once a week you give into your cravings. That's very good news. I try not to take any meds for my pain, so last night I took baking soda instead of real med. It doesn't work as well, but I think it helps a little. And yeah, my worst problem is the bloating, and some back pain and heartburn. I would say mostly the bloating though because there are times where I am just really bloated but don't have any pain anywhere. For example, if I have too much nut butter, which is my downfall, I'll have a huge stomach but it doesn't necessarily hurt me. Who knows. But I am wondering how this goat yogurt is going to taste without adding fruit to it......anyone eat it like that? It looked good this morning when I checked on it. I'm excited to see how it turns out.

dlp252 Apprentice
dlp252
Posted
But I am wondering how this goat yogurt is going to taste without adding fruit to it......anyone eat it like that? It looked good this morning when I checked on it. I'm excited to see how it turns out.

Think of it as something like sour cream. I used to buy the store bought goat yogurt, and I thought it was a little more tart than a normal unsweetened yogurt--I almost always added some type of sweetener, but I didn't think it was too bad plain either.

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danikali Enthusiast
danikali
Posted
Think of it as something like sour cream. I used to buy the store bought goat yogurt, and I thought it was a little more tart than a normal unsweetened yogurt--I almost always added some type of sweetener, but I didn't think it was too bad plain either.

Okay, thanks. So I can eat it without adding anything to it and it is still edible...? I hope I can tolerate it, considering I have the whole casein problem. But Donna, you do too, right? And it doesn't bother you? I bought a yogurt machine and just got it on Monday, so I finally get to make it. Everyone keeps talking about the advantages of it, so I thought I better try it if it can help speed up to process of the healing. And it will also be great to add something sweet and different besides having mostly meat and veggies. Right now I can't really tolerate fructose, and I can only have small amounts of almond butter at a time. But I guess that's how nut butter should be eaten! hahah, I just get carried away because I love nut butters!

dlp252 Apprentice
dlp252
Posted
Okay, thanks. So I can eat it without adding anything to it and it is still edible...? I hope I can tolerate it, considering I have the whole casein problem. But Donna, you do too, right? And it doesn't bother you? I bought a yogurt machine and just got it on Monday, so I finally get to make it. Everyone keeps talking about the advantages of it, so I thought I better try it if it can help speed up to process of the healing. And it will also be great to add something sweet and different besides having mostly meat and veggies. Right now I can't really tolerate fructose, and I can only have small amounts of almond butter at a time. But I guess that's how nut butter should be eaten! hahah, I just get carried away because I love nut butters!

Oh, I LOVE nut butters as well...I can eat a whole jar in a week by myself. I haven't had any goat yogurt since I found out I was intolerant to casein...I keep thinking I want to try it, but I'm afraid, lol. If I make my own (and I DID buy a yogurt maker), I was going to try it with coconut milk and a non-dairy yogurt starter. I think if I knew for certain eating it wouldn't damage my intestines I'd eat it in a minute and just live with any discomfort, lol.

Rachel--24 Collaborator
Rachel--24
Posted
Oh, I LOVE nut butters as well...I can eat a whole jar in a week by myself.

I can eat a whole jar in one hour by myself. :blink:

I think there is something just WRONG with my eating habits. No wonder I got myself sick. <_<

Dani,

I used to make the yogurt out of goats milk...it tasted good to me and I ate it plain. I dont know if I'm the best judge though because I seriously eat almost anything and like it...except sushi. I tried it once and spit it out into my napkin. Gross.

dlp252 Apprentice
dlp252
Posted
I can eat a whole jar in one hour by myself. :blink:

I was originally going to say something close to that because I seriously CAN eat that much in a day, lol.

danikali Enthusiast
danikali
Posted

I agree with both of you. I have been known to eat a whole jar of nut butter in a day too. When I love something (and I love most foods), I can just keep on going, and going and going......That probably is why our digestive systems are so messed up.

Okay, well I made the goat yogurt and I tried a little bit this morning but it was SOOOOOOOOOOOOOOOOOOOOOOOOOOOOOO BITTER! I mean, BITTER! And it wasn't really that thick. Did I do something wrong, or is it supposed to be like this? ANd I have a problem with casein too, but I keep hearing that for most people with casein problems, they can have the goats milk. And my stomach is so bloated everyday of my life, I feel like maybe this would help it? Who knows. Hopefully because I have found no cure for the bloating yet. Maybe I'll go out and get digestive enzymes today or something......anyone have any good results with those?

dlp252 Apprentice
dlp252
Posted
Okay, well I made the goat yogurt and I tried a little bit this morning but it was SOOOOOOOOOOOOOOOOOOOOOOOOOOOOOO BITTER! I mean, BITTER! And it wasn't really that thick. Did I do something wrong, or is it supposed to be like this? ANd I have a problem with casein too, but I keep hearing that for most people with casein problems, they can have the goats milk. And my stomach is so bloated everyday of my life, I feel like maybe this would help it? Who knows. Hopefully because I have found no cure for the bloating yet. Maybe I'll go out and get digestive enzymes today or something......anyone have any good results with those?

Don't know about the bitter...I found the goat milk to be way more bitter than soy milk for instance...the goat yogurt was more tart than normal unsweetened yogurt, but I don't know if I'd call it bitter. I bought Stoneybrook Farms (I think) goat yogurt and it was runnier than normal yogurt...I kind of like mine really thick, but it was okay if I added lots of stuff to it. I sometimes would strain it through cheesecloth to separate the liquid from the more solid stuff...that takes a few hours or overnight though.

I was eating both goat yogurt and greek yogurt for the few months before I sent in my Enterolab tests, so I'm not sure if the antibiodies would have been from the regular or the goat yogurt. I know my allergist (before he retired) told me he though goat milk or yogurt would be okay since over my lifetime I probably hadn't had that much of it to build up antibodies...I don't know though...I ate quite a bit of it in the last 4 years.

danikali Enthusiast
danikali
Posted
Don't know about the bitter...I found the goat milk to be way more bitter than soy milk for instance...the goat yogurt was more tart than normal unsweetened yogurt, but I don't know if I'd call it bitter. I bought Stoneybrook Farms (I think) goat yogurt and it was runnier than normal yogurt...I kind of like mine really thick, but it was okay if I added lots of stuff to it. I sometimes would strain it through cheesecloth to separate the liquid from the more solid stuff...that takes a few hours or overnight though.

I was eating both goat yogurt and greek yogurt for the few months before I sent in my Enterolab tests, so I'm not sure if the antibiodies would have been from the regular or the goat yogurt. I know my allergist (before he retired) told me he though goat milk or yogurt would be okay since over my lifetime I probably hadn't had that much of it to build up antibodies...I don't know though...I ate quite a bit of it in the last 4 years.

Yeah, I guess I would call it tart. It was verrrrry tart! For example, did you ever have those white sugar sticks that comes with the pure sugar powder in different colors? Well, you know the taste that you would get after stick a bunch of that sugar in your mouth? That's what it tastes like. I'm kind of trying to wait on adding fruit back to my diet, but I don't know how I'll be able to eat this yogurt plain. It's so sweet! You said sour cream before, and that's what I imagined I was eating when I tasted it. I could never eat sour cream straight, so I don't know how I'm going to manage this. But if it will help me system, I have to figure out SOME way!

dperk Rookie
dperk
Posted

I have been on a gluten free diet for a 18 months, and I have been on the SCD diet for a year. I wasn't able to eat all of the foods that were legal, and kept losing more foods instead of gaining them. I hardly made it past the intro diet. I couldn't tolerate raw fruit, some nuts or yogurt - and lots more. Than almonds started bother me - and that was really bad news. I know that this diet helps, but I was at a stand still - and maybe sliding backwards. So I looked into other things that might help. I found this website - Open Original Shared Link - and have been doing the liver cleanses and parasitic cleanses. I was desperate - I had to try something, anything. Well, after 4 liver cleanses, I can say that it was like the icing on the cake. I can now eat things I haven't been able to eat in a year. I'm able to eat bananas, avacado, tahini, pecans, walnuts and even goats milk yogurt and cheese. It's amazing. So any of you that are still having trouble after doing the diet, please look into the liver cleanse. It really, really worked for me. I will slowly get off the SCD diet now - if this keeps up.

Hope this helps others out there.

Debbie

danikali Enthusiast
danikali
Posted
I have been on a gluten free diet for a 18 months, and I have been on the SCD diet for a year. I wasn't able to eat all of the foods that were legal, and kept losing more foods instead of gaining them. I hardly made it past the intro diet. I couldn't tolerate raw fruit, some nuts or yogurt - and lots more. Than almonds started bother me - and that was really bad news. I know that this diet helps, but I was at a stand still - and maybe sliding backwards. So I looked into other things that might help. I found this website - Open Original Shared Link - and have been doing the liver cleanses and parasitic cleanses. I was desperate - I had to try something, anything. Well, after 4 liver cleanses, I can say that it was like the icing on the cake. I can now eat things I haven't been able to eat in a year. I'm able to eat bananas, avacado, tahini, pecans, walnuts and even goats milk yogurt and cheese. It's amazing. So any of you that are still having trouble after doing the diet, please look into the liver cleanse. It really, really worked for me. I will slowly get off the SCD diet now - if this keeps up.

Hope this helps others out there.

Debbie

Debbie, please tell me more about this. I just went to your website and looked at it. I will def. give it a try. I had the goats yogurt on Friday and was okay at first, but later that night until now, I am sicker than anything and can't tolerate anything at all. Where did you hear about this? Could I get sick from this? Do you only do it once with four doses in the two days?? If you want to e-mail me, please do. I'm so desperate. I feel like eventually I won't be able to eat anything without getting sick and I feel so depressed right now. My e-mail is Danikali22@hotmail.com.

"Zap daily the week before and complete the parasite killing program before attempting a liver cleanse."

I would like to do this this coming Saturday, but what does this quote mean? What should I be doing this week before I do my first clense?

Thank you.

danikali Enthusiast
danikali
Posted

OKay, I just realized what this zapper was, and I can't afford that right now, for one and for two, it seems like a scam and I'm sick of being scammed. Also, I have to do this other clense program for a while first? I can't and won't pay for that stuff, did you Debbie?

Rachel--24 Collaborator
Rachel--24
Posted

Dani,

I used to do all that stuff you read about on CureZone and I can tell you that it didnt help me one bit. I did coffee enemas and cleanses and all that stuff....it didn't work. Thats just my experience though. I'm getting better since I eliminated all corn and I've gained 10 lbs. in one week. I'm able to eat alot more stuff now. I'm recognizing that when I get "corned" I start reacting to other foods again and eating becomes "scary" because of the symptoms but once the reaction subsides things settle down and my tolerance improves again. I guess its pretty much the same as getting glutened but corn is much harder to avoid. I can drink milk now so I'm not really casein intolerant...it was just that all the milk and dairy products had corn derivatives in them. I got the one brand of corn-free milk and I get no reactions from it!! I'm a little paranoid that I'll become intolerant to casein if I drink the milk regularly so I'll probably chill out on it but at least I can make yogurt now! All the store bought kinds have corn so I'll make my own...don't know where I'll get my starter from though. <_<

Hmmm...I'll have to put some thought into that.

nikki-uk Enthusiast
nikki-uk
Posted

Rachel,

I've been following your progress and I'm glad to see things have picked up for you and that you've put some weight on-and that you can tolerate a little dairy!!

Hope your progress (and all others) continues :)

danikali Enthusiast
danikali
Posted

Hi everyone,

Rachel, I'm so extremely happy for you. The fact that you gained 10lbs is amazing and is def. proof that your body is starting to work the way it should. I figured that cleanse wouldn't work when I read about all the other crap you have to buy with it. And I'm glad you reminded me that EVERYTHING will bother you when you eat something that doesn't agree. For example, last night I had carrots and all night last night I was sick. I'm actually taking off of work today because I just feel 100% lousy.

I just talked to someone on SCD who is like an expert, and she reminded me how extremely powerful the goat yogurt is and I should have had as little as 1/8 of a teaspoon to start off with. I had a small bowl of it, so I created whats called a herxheimer reaction, or a die off reaction in my body that was bigger than it had to be, so my symptoms were worse.

For now it's back to meat, and after that, when I add things in, it's going to be extremely extremely slow. I HAVE TO DO THIS. I NEED TO GET BETTER.

miamia Rookie
miamia
Posted

Rachel-

I ahve been following your posts on the corn issue. I can't even tell you how similar your situation sounds to mine. The candida, leaky gut, malabsorbtion inability to gain weight, etc. I have tried everything and have not gotten better - if anything worse. I ahd never seriously thought about the corn thing before but since you brought it up I have been doing a ton of research. I think i might really try to eliminate it. -I have nothing to lose at this point. I am so happy and hopeful to hear how you have improved. What have you been eating- brushing yur teeth with. God i thought soy was in everything but corn definitly takes the cake.

Any advice would be helpful and pleases please keep posting your progress.

Miamia

Dani,

I used to do all that stuff you read about on CureZone and I can tell you that it didnt help me one bit. I did coffee enemas and cleanses and all that stuff....it didn't work. Thats just my experience though. I'm getting better since I eliminated all corn and I've gained 10 lbs. in one week. I'm able to eat alot more stuff now. I'm recognizing that when I get "corned" I start reacting to other foods again and eating becomes "scary" because of the symptoms but once the reaction subsides things settle down and my tolerance improves again. I guess its pretty much the same as getting glutened but corn is much harder to avoid. I can drink milk now so I'm not really casein intolerant...it was just that all the milk and dairy products had corn derivatives in them. I got the one brand of corn-free milk and I get no reactions from it!! I'm a little paranoid that I'll become intolerant to casein if I drink the milk regularly so I'll probably chill out on it but at least I can make yogurt now! All the store bought kinds have corn so I'll make my own...don't know where I'll get my starter from though. <_<

Hmmm...I'll have to put some thought into that.

dlp252 Apprentice
dlp252
Posted

Gosh Dani, I'm so sorry you are sick again!!!!

Rachel, I'm so happy you aren't sick again!!!!

dperk Rookie
dperk
Posted

I think the bottom line is :

Everyone is an individual - and we need to keep searching until we find the right combination that helps us.

For me, I tried a lot of things. It helped to go gluten free. It helped to follow the SCD diet. But I still couldn't eat many foods. There were more foods that were making me sick, and I wasn't able to gain any foods back. I was afraid that if this kept up, I wouldn't be able to eat anything without feeling sick. I was desperate - I had to try something.

I didn't buy the zapper (not sure about that one). I just did the wormwood, walnut hull tincture and cloves for two weeks, then went straight to the liver flush (cleanse). I've done 4 of them now - so I'm no expert.

I can't tell you how excited I am now that I can eat food again. Corn is not my trouble - I've been able to eat fritos again with no problems at all. I'm like a kid in a candy store - I just want to eat food............. After not eating Fritos and tahini for a year - they taste pretty good. And strawberries again, yhea......

I don't want to diminish SCD - I think it did help me to stay on it for a year. It just wasn't all I needed to do - I needed more. And cleaning out my gallbladder and liver was what my system needed, I guess.

Debbie

ON the issue of corn:

I haven't done corn in a year - no diary at all. All I could eat was fresh veggies, canned pears, applesauce, almonds and meat. No corn at all.

And I still had malabsortion, couldn't gain weight, leaky gut - plus a host of others if I tried to add anything else. It wasn't the problem for me.

Rachel--24 Collaborator
Rachel--24
Posted
ON the issue of corn:

I haven't done corn in a year - no diary at all. All I could eat was fresh veggies, canned pears, applesauce, almonds and meat. No corn at all.

And I still had malabsortion, couldn't gain weight, leaky gut - plus a host of others if I tried to add anything else. It wasn't the problem for me.

Debbie,

I was on a similar diet for several months. I was on a very strict candida diet so only ate organic meat, fish and the allowed vegetables. I ate no fruits at all and definately no corn. There was no reason for me to suspect that corn was a problem because I hadnt eaten any. However corn is in pretty much ALL supplements, medications, toothpaste, etc. My thyroid medication contains corn starch...theres really no way to avoid corn 100% unless you're trying to and being very diligent about it. All frozen and canned fruits and veggies contain corn, applesauce contains corn, iodized salt is from corn, vegetables and fruits are cleaned with a corn wash and the wax on them is derived from corn whether its organic or not. I had reactions to baby peeled organic carrots so figured I was intolerant to carrots but now I've learned those also are not safe for someone who's intolerant to corn. Heck....I thought I was intolerant to everything. I not only reacted to everything I ate but also to the chemicals in my environment...especially perfumes. My leaky gut wasnt getting better, I was still underweight and I still had malabsorption...despite doing all the cleanses, enemas, candida diet, probiotics, gluten free, etc...I tried it all.

This is all getting better just from one week corn-free (mostly). If you were taking supplements, vitamins or medications of any kind...I guarantee you were not corn-free. The majority of my problems came from supplements because my diet was so strict. I didnt eat anything from a can...it was all fresh and I peeled everything because I knew the skins bothered me....I just didnt know why at the time. Corn is most definately the hardest thing to eliminate from your diet. Gluten and dairy are easy in comparison.

danikali Enthusiast
danikali
Posted

Rachel,

those little baby carrots have corn on them? And applesauce that just says 'apples' in it? Can you give me a list of all of things, just so I can see if I too need to eliminate that? I'm so desperate and scared. I'm really scared.

what about salt that says naturally occuring iodine? what about if my supplements say 'corn free' does that mean 100%?

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      Son's legs shaking

      By knitty kitty · Posted

      @lizzie42, You're being a good mom, seeking answers for your son.  Cheers! Subclinical thiamine deficiency commonly occurs with anemia.  An outright Thiamine deficiency can be precipitated by the consumption of a high carbohydrate meal.   Symptoms of Thiamine deficiency include feeling shakey or wobbly in the legs, muscle weakness or cramps, as well as aggression and irritability, confusion, mood swings and behavior changes.  Thiamine is essential to the production of neurotransmitters like serotonin and dopamine which keep us calm and rational.   @Jsingh, histamine intolerance is also a symptom of Thiamine deficiency.  Thiamine is needed to prevent mast cells from releasing histamine at the slightest provocation as is seen in histamine intolerance.  Thiamine and the other B vitamins and Vitamin C are needed to clear histamine from the body.  Without sufficient thiamine and other B vitamins to clear it, the histamine builds up.  High histamine levels can change behavior, too.  High histamine levels are found in the brains of patients with schizophrenia.  Thiamine deficiency can also cause extreme hunger or conversely anorexia.   High carbohydrate meals can precipitate thiamine deficiency because additional thiamine is required to process carbohydrates for the body to use as fuel.  The more carbohydrates one eats daily, the more one needs additional thiamine above the RDA.  Thiamine is water soluble, safe and nontoxic even in high doses. Keep in mind that gluten-free processed foods like cookies and such are not required to be fortified and enriched with vitamins and minerals like their gluten containing counterparts are.  Limit processed gluten-free foods.  They are often full of empty calories and unhealthy saturated fats and additives, and are high in histamine or histamine release triggers.  It's time you bought your own vitamins to supplement what is not being absorbed due to malabsorption of Celiac disease.  Benfotiamine is a form of Thiamine that has been shown to improve intestinal health as well as brain function. Do talk to your doctors and dieticians about supplementing with the essential vitamins and minerals while your children are growing up gluten free.  Serve nutritionally dense foods.  Meats and liver are great sources of B vitamins and minerals. Hope this helps!  Keep us posted on your progress!
    • Scott Adams
      Bob red mill gluten free oats

      By Scott Adams · Posted

      Oats naturally contain a protein called avenin, which is similar to the gluten proteins found in wheat, barley, and rye. While avenin is generally considered safe for most people with celiac disease, some individuals, around 5-10% of celiacs, may also have sensitivity to avenin, leading to symptoms similar to gluten exposure. You may fall into this category, and eliminating them is the best way to figure this out. Some people substitute gluten-free quinoa flakes for oats if they want a hot cereal substitute. If you are interested in summaries of scientific publications on the topic of oats and celiac disease, we have an entire category dedicated to it which is here: https://www.celiac.com/celiac-disease/oats-and-celiac-disease-are-they-gluten-free/   
    • knitty kitty
      High TTG-IgG and Normal TTG-IgA

      By knitty kitty · Posted

      @SamAlvi, It's common with anemia to have a lower tTg IgA antibodies than DGP IgG ones, but your high DGP IgG scores still point to Celiac disease.   Since a gluten challenge would pose further health damage, you may want to ask for a DNA test to see if you have any of the commonly known genes for Celiac disease.  Though having the genes for Celiac is not diagnostic in and of itself, taken with the antibody tests, the anemia and your reaction to gluten, it may be a confirmation you have Celiac disease.   Do discuss Gastrointestinal Beriberi with your doctors.  In Celiac disease, Gastrointestinal Beriberi is frequently overlooked by doctors.  The digestive system can be affected by localized Thiamine deficiency which causes symptoms consistent with yours.  Correction of nutritional deficiencies quickly is beneficial.  Benfotiamine, a form of thiamine, helps improve intestinal health.  All eight B vitamins, including Thiamine (Benfotiamine), should be supplemented because they all work together.   The B vitamins are needed in addition to iron to correct anemia.   Hope this helps!  Keep us posted on your progress!
    • trents
      High TTG-IgG and Normal TTG-IgA

      By trents · Posted

      Currently, there are no tests for NCGS. Celiac disease must first be ruled out and we do have testing for celiac disease. There are two primary test modalities for diagnosing celiac disease. One involves checking for antibodies in the blood. For the person with celiac disease, when gluten is ingested, it produces an autoimmune response in the lining of the small bowel which generates specific kinds of antibodies. Some people are IGA deficient and such that the IGA antibody tests done for celiac disease will have skewed results and cannot be trusted. In that case, there are IGG tests that can be ordered though, they aren't quite as specific for celiac disease as the IGA tests. But the possibility of IGA deficiency is why a "total IGA" test should always be ordered along with the TTG-IGA. The other modality is an endoscopy (scoping of the upper GI track) with a biopsy of the small bowel lining. The aforementioned autoimmune response produces inflammation in the small bowel lining which, over time, damages the structure of the lining. The biopsy is sent to a lab and microscopically analyzed for signs of this damage. If the damage is severe enough, it can often be spotted during the scoping itself. The endoscopy/biopsy is used as confirmation when the antibody results are positive, since there is a small chance that elevated antibody test scores can be caused by things other than celiac disease, particularly when the antibody test numbers are not particularly high. If the antibody test numbers are 10x normal or higher, physicians will sometimes declare an official diagnosis of celiac disease without an endoscopy/biopsy, particularly in the U.K. Some practitioners use stool tests to detect celiac disease but this modality is not widely recognized in the medical community as valid. Both celiac testing modalities outlined above require that you have been consuming generous amounts of gluten for weeks/months ahead of time. Many people make the mistake of experimenting with the gluten free diet or even reducing their gluten intake prior to testing. By doing so, they invalidate the testing because antibodies stop being produced, disappear from the blood and the lining of the small bowel begins to heal. So, then they are stuck in no man's land, wondering if they have celiac disease or NCGS. To resume gluten consumption, i.e., to undertake a "gluten challenge" is out of the question because their reaction to gluten is so strong that it would endanger their health. The lining of the small bowel is the place where all of the nutrition in the food we consume is absorbed. This lining is made up of billions of microscopically tiny fingerlike projections that create a tremendous nutrient absorption surface area. The inflammation caused by celiac disease wears down these fingers and greatly reduces the surface area needed for nutrient absorption. Thus, people with celiac disease often develop iron deficiency anemia and a host of other vitamin and mineral deficiencies. It is likely that many more people who have issues with gluten suffer from NCGS than from celiac disease. We actually know much more about the mechanism of celiac disease than we do about NCGS but some experts believe NCGS can transition into celiac disease.
    • SamAlvi
      High TTG-IgG and Normal TTG-IgA

      By SamAlvi · Posted

      Thank you for the clarification and for taking the time to explain the terminology so clearly. I really appreciate your insight, especially the distinction between celiac disease and NCGS and how anemia can point more toward celiac. This was very helpful for me.
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