Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Sensitivity To Dairy Too?

MamaMeagan

Recommended Posts

MamaMeagan Apprentice
MamaMeagan
Posted

When I first gave up gluten I was already off dairy and soy for my 7 month old daughter I am nursing. It seems when I first gave it up my symptoms esepcially the nausea that I had so bad got better right away. I decided to add dairy back after a week or so, now 3 weeks later I am not feeling as good as I did at first. I am having the nausea and stomach problems, which I thought was when i would miss gluten. Now I am thinking maybe it's related to the dairy??

I just wish I had some clear cut answers :(. I had positive IgG and IgA, negative scope, but was so desperate I decided to try the diet. My doctor is doing a gene test, saying I still could have celiacs or it could be an intolerance. I just feel crazy not knowing, having no proof. I've thought about doing some enterolab, but I am not sure what test would tell me something I don't know?? I doesn't help I had a stroke that they don't know why and also am having some joint pain with a positive ana, but nothing but the Celiac Panel showed anything, but I still don't have proof that it is Celiacs. It's just frustrating!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


newgfcali Rookie
newgfcali
Posted

I had positive IgG and IgA, negative scope, but was so desperate I decided to try the diet. My doctor is doing a gene test, saying I still could have celiacs or it could be an intolerance. I just feel crazy not knowing, having no proof. I've thought about doing some enterolab, but I am not sure what test would tell me something I don't know?? I doesn't help I had a stroke that they don't know why and also am having some joint pain with a positive ana, but nothing but the Celiac Panel showed anything, but I still don't have proof that it is Celiacs. It's just frustrating!

For me the definitive answers (the PROOF) came from Enterolabs. They can test you for gluten, malabsorption, casein (dairy), soy, eggs, yeast. They can also do the gene testing, but you've got that in the works already. I think their pricing is reasonable and their customer service is really great, too. I like being in control of what tests are run and getting the answers directly, not filtered through the medical establishment.

Whether you have Celiac or gluten intolerance, the end result is the same-- you've got to eliminate gluten from your life before you'll feel better. So does it really matter if your doctor says you're Celiac or not? I think we get hung up on putting a label on things. But I can totally relate to your frustration level. Until I had the test results, I felt like I was working in the dark.

GFinDC Veteran
GFinDC
Posted

I just wish I had some clear cut answers :(. I had positive IgG and IgA, negative scope, but was so desperate I decided to try the diet. My doctor is doing a gene test, saying I still could have celiacs or it could be an intolerance. I just feel crazy not knowing, having no proof. I've thought about doing some enterolab, but I am not sure what test would tell me something I don't know?? I doesn't help I had a stroke that they don't know why and also am having some joint pain with a positive ana, but nothing but the Celiac Panel showed anything, but I still don't have proof that it is Celiacs. It's just frustrating!

Hmmm, the positive antibody indicates a reaction to gliaden right? The endoscopy is not a reliable indicator except when it is positive. If the endoscopy is negative that does not mean anything except they didn't find anything.

The simple answer is to stop eating dairy again and see if your symptoms clear up. Unfortunately celiac testing just plain isn't perfect. It is not uncommon for celiacs to have lactose intolerance. It might clear up after a while but there is no guarantee it will. It is also possible to have casein intolerance which is apparently less likely to go away.

MamaMeagan Apprentice
MamaMeagan
Posted
  • Author

For me the definitive answers (the PROOF) came from Enterolabs. They can test you for gluten, malabsorption, casein (dairy), soy, eggs, yeast. They can also do the gene testing, but you've got that in the works already. I think their pricing is reasonable and their customer service is really great, too. I like being in control of what tests are run and getting the answers directly, not filtered through the medical establishment.

Whether you have Celiac or gluten intolerance, the end result is the same-- you've got to eliminate gluten from your life before you'll feel better. So does it really matter if your doctor says you're Celiac or not? I think we get hung up on putting a label on things. But I can totally relate to your frustration level. Until I had the test results, I felt like I was working in the dark.

You are right it doesn't really matter. So for me what tests would you reccomend from Enterolab?? I think I will wait until next week when i get my gene test back if that would matter or not??

Hmmm, the positive antibody indicates a reaction to gliaden right? The endoscopy is not a reliable indicator except when it is positive. If the endoscopy is negative that does not mean anything except they didn't find anything.

The simple answer is to stop eating dairy again and see if your symptoms clear up. Unfortunately celiac testing just plain isn't perfect. It is not uncommon for celiacs to have lactose intolerance. It might clear up after a while but there is no guarantee it will. It is also possible to have casein intolerance which is apparently less likely to go away.

Yes my gliadin was positive, not super crazy high but positive.

A high ANA is normally NOT Celaic though right??

GFinDC Veteran
GFinDC
Posted

Yes my gliadin was positive, not super crazy high but positive.

A high ANA is normally NOT Celiac though right??

Right, I don't think the ANA tests have anything to do with gluten. That being said though some people have posted here that they had high ANA readings. The way I understand it an ANA test results is kind of a general indicator of possible autoimmune disease, and not a definite indicator of any particular disease. And sometimes it doesn't mean a whole lot of anything.

newgfcali Rookie
newgfcali
Posted

You are right it doesn't really matter. So for me what tests would you reccomend from Enterolab?? I think I will wait until next week when i get my gene test back if that would matter or not??

I would get casein tested for sure, and soy, yeast and eggs to cover all bases. Might as well get the whole story, right? Regardless of your genes, if you're reacting to one or more food groups, you need to know which ones to cut out of your diet.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Colleen H
      - Colleen H replied to Colleen H's topic in Gluten-Free Foods, Products, Shopping & Medications
      15

      Ibuprofen

      Yes thyroid was tested.. negative Iron ...I'm. Not sure ... Would that fall under red blood count? If so I was ok Thank you for the detailed response..☺️
    2. Colleen H
      - Colleen H posted a topic in Coping with Celiac Disease
      0

      Methylprednisone treatment for inflammation?

      Hi all !! Did anyone ever get prescribed methylprednisone steroids for inflammation of stomach and intestines? Did it work ?? Thank you !!
    3. cristiana
      - cristiana replied to Colleen H's topic in Gluten-Free Foods, Products, Shopping & Medications
      15

      Ibuprofen

      Hi Colleen Are you supplementing B12/having injections? I have learned recently that sometimes when you start addressing a B12 deficiency, it can temporarily make your symptoms worse. But it is important not to stop the treatment. Regarding your problems with anxiety, again that is another symptom of a B12 deficiency. I didn't know...
    4. Jmartes71
      - Jmartes71 posted a topic in Coping with Celiac Disease
      0

      My only proof

      Hello still dancing around my celiac disease and not getting medically backed up considering Ive been glutenfree since 1994.All my ailments are the core issue of my ghost disease aka celiac disease. Im angery because the "celiac specialist " basically lightly dismissed me.Im extremely angery and fighting for a new primary care physician which is hard to do...
    5. Scott Adams
      - Scott Adams replied to wellthatsfun's topic in Coping with Celiac Disease
      1

      still struggling with cravings

      I totally get this. It's absolutely a grieving process, and it's okay to feel gutted about the loss of those simple joys, especially at 18. Your feelings are completely valid—it's not about being ungrateful for your amazing boyfriend, it's about mourning the life you thought you'd have. That "tortured by the smell" feeling is so real. It does get easier, ...
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,871
    • Most Online (within 30 mins)
      7,748
    GR82BNTX
    Newest Member
    GR82BNTX
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Colleen H
      Ibuprofen

      By Colleen H · Posted

      Yes thyroid was tested.. negative  Iron ...I'm. Not sure ... Would that fall under red blood count?  If so I was ok  Thank you for the detailed response..☺️
    • Colleen H
      Methylprednisone treatment for inflammation?

      By Colleen H · Posted

      Hi all !! Did anyone ever get prescribed methylprednisone steroids for inflammation of stomach and intestines?  Did it work ??  Thank you !! 
    • cristiana
      Ibuprofen

      By cristiana · Posted

      Hi Colleen Are you supplementing B12/having injections? I have learned recently that sometimes when you start addressing a B12 deficiency, it can temporarily make your symptoms worse.  But it is important not to stop the treatment.  Regarding your problems with anxiety, again that is another symptom of a B12 deficiency.   I didn't know what anxiety was until it hit me like a train several months before gastrointestinal issues began, so I can certainly relate.   Two books which helped me hugely were At Last A Life by Paul David (there is a website you can look up) and The Depression Cure: The Six-Step Programme to Beat Depression Without Drugs by Dr Steve Llardi.  Although his book is aimed at people who have depression, following the principals he sets out was so helpful in lessening my anxiety.  Llardi suggests we need to focus on getting enough: - physical exercise - omega-3 fatty acids - natural sunlight exposure - restorative sleep - social connectedness - meaningful, engaging activity   ... and we should feel a lot better. That is not to stay you must stop taking medication for depression or anxiety if you have been prescribed it, but adopting the changes Dr Llardi sets out in the book should really help. Can I just ask two more questions:  1) you say that you are B12 deficient, did they test your iron levels too?  If not, you really ought to be checked for deficiency and, 2) did they check your thyroid function, as an overactive thyroid can be cause rapid heartbeat and a lot of coeliacs have thyroid issues? Cristiana        
    • Jmartes71
      My only proof

      By Jmartes71 · Posted

      Hello still dancing around my celiac disease and not getting medically backed up considering Ive been glutenfree since 1994.All my ailments are the core issue of my ghost disease aka celiac disease. Im angery because the "celiac specialist " basically lightly dismissed me.Im extremely angery and fighting for a new primary care physician which is hard to do in Northern Cali.So currently without and looking.Im angery that its lightly taken when its extremely serious to the one who has it.My only evidence is a brochure back in the days when I got news letters when I lived at my parents.It was published in 1998.I was diagnosed before any foods eliminated from my diet. Angery doctors don't take seriously when Im clearly speaking.I did write to the medicine of congress and have case number.
    • Scott Adams
      still struggling with cravings

      By Scott Adams · Posted

      I totally get this. It's absolutely a grieving process, and it's okay to feel gutted about the loss of those simple joys, especially at 18. Your feelings are completely valid—it's not about being ungrateful for your amazing boyfriend, it's about mourning the life you thought you'd have. That "tortured by the smell" feeling is so real. It does get easier, I promise, but it's okay to sit in the sadness and just vent about how much it stings right now. Thanks for sharing that. Celiac.com has published a book on our site by Jean Duane PhD called Gluten-Centric Culture, which covers many of the social aspects of having celiac disease: This chapter in particular covers issues around eating with family and others - Gluten-Centric Culture: Chapter 5 - Grabbing A Bite Together:    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.