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shepgs

I Did Not Expect To Feel Worse!

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I started this gluten-free diet three weeks ago as a result of family history of health issues and Enterolab results, not because I was having any significant ones of my own, especially not digestive issues. However, I have noticed increased digestive problems... bloating, gas pains, etc. with today being the worst. What is going on? I didn't have intestinal damage to begin with so why the upset?

I know this probably gets asked alot by newbies...sorry. But what do I do?

Thanks so much!


Wife to very supportive husband/Mom to 4 wonderful kids, ages 3 to 17

Enterolab: elevated antigliadin = gluten sensitivity; gene test = double DQB1 linked to gluten sensitivity

Family history:

maternal grandmother - life-threatening food allergies

mother - severe rheumatoid arthritis

cousin - type 1 diabetes

father & sister - peripheral neuropathy

son 1 - asthma, eczema; positive Enterolab 3/26/10

son - life-threatening food allergies

All this has led me to be gluten-free as of 2/1/2010.

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I had bloating and gas pains and cramping from lactose, long before I was aware of any gluten problem. Try giving up lactose or all dairy and see if it makes a difference.


Neroli

"Everything that can be counted does not necessarily count; everything that counts cannot necessarily be counted." - Albert Einstein

"Life is not weathering the storm; it is learning to dance in the rain"

"Whatever the question, the answer is always chocolate." Nigella Lawson

------------

Caffeine free 1973

Lactose free 1990

(Mis)diagnosed IBS, fibromyalgia '80's and '90's

Diagnosed psoriatic arthritis 2004

Self-diagnosed gluten intolerant, gluten-free Nov. 2007

Soy free March 2008

Nightshade free Feb 2009

Citric acid free June 2009

Potato starch free July 2009

(Totally) corn free Nov. 2009

Legume free March 2010

Now tolerant of lactose

Celiac.com - Celiac Disease Board Moderator

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I started this gluten-free diet three weeks ago as a result of family history of health issues and Enterolab results, not because I was having any significant ones of my own, especially not digestive issues. However, I have noticed increased digestive problems... bloating, gas pains, etc. with today being the worst. What is going on? I didn't have intestinal damage to begin with so why the upset?

I know this probably gets asked alot by newbies...sorry. But what do I do?

Thanks so much!

How do you know you didn't have intestinal damage? Some people have silent celiac where they don't have GI symptoms but they are still being damaged. Personally I think people go through an adjustment phase where their gut bacteria balance changes due to the different foods they are eating. Things that might help: staying strictly gluten free, eating no sugar or sugary drinks, taking a dairy-free probiotic, getting more fiber in your diet, and time. I know I had gut spasms for weeks after going gluten-free as my intestines were healing. You may also find you have additional food intolerances to root out. Any of the top 8 allergens are a good starting point for things to eliminate if you don't start feeling better after a while. Keep trucking on the diet, it takes time to adjust and to get better. I am a little over 2 years in and have gotten quite a bit better just this year after eliminating soy completely.


Proverbs 25:16 "Hast thou found honey? eat so much as is sufficient for thee, lest thou be filled therewith, and vomit it."

Job 30:27 My bowels boiled, and rested not: the days of affliction prevented me.

Thyroid cyst and nodules, Lactose / casein intolerant. Diet positive, gene test pos, symptoms confirmed by Dr-head. My current bad list is: gluten, dairy, sulfites, coffee (the devil's brew), tea, Bug's Bunnies carrots, garbanzo beans of pain, soy- no joy, terrible turnips, tomatoes, peppers, potatoes, eggplant, celery, strawberries, pistachios, and hard work. Have a good day! 🙂 Paul

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I'm just going off my Enterolab results. My ttg level was in the normal range, as was the malabsorption part. It was just the IgA that was elevated. Does all that mean there wasn't any damage? I'm still new to figuring that stuff out. Also, my casein level was normal. I am realizing as I type that that's different than lactose issues, though.

I haven't been adding any beans or bean flours, trying to avoid digestive issues others relate and, frankly, I'm just not a bean fan, tastewise. I've been using sorghum, millet, and brown rice flours, along with the requisite starches...and xanthan gum.

I think after today (son's birthday) I'll take a hiatus from baking (too stressful) and stick to plain, naturally gluten free foods. Hopefully, that will help. I only thought of true celiac (not gluten sensitive) patients as dealing with this part.

Any more input is welcome. Thank you!


Wife to very supportive husband/Mom to 4 wonderful kids, ages 3 to 17

Enterolab: elevated antigliadin = gluten sensitivity; gene test = double DQB1 linked to gluten sensitivity

Family history:

maternal grandmother - life-threatening food allergies

mother - severe rheumatoid arthritis

cousin - type 1 diabetes

father & sister - peripheral neuropathy

son 1 - asthma, eczema; positive Enterolab 3/26/10

son - life-threatening food allergies

All this has led me to be gluten-free as of 2/1/2010.

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the only sure way to know if you have intestinal damage is to have the endoscopy and biopsy. Blood tests cannot see damage to the villi, and as previously noted, some Celiacs do not have noticable gastric distress symptoms.

Try just whole natural foods for a while, rather than going nuts with the baking and prepackaged gluten free alternatives. There's no gluten in broccoli or steak. :) Thank goodness!

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