Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

How Long Does It Take To Heal?


GluFREEthatsME

Recommended Posts

GluFREEthatsME Newbie

Hey all,

I've been gluten free for a month now. I've been overweight for quite some time and have heard that people with gluten intolerance are usually underweight. That's a little confusing for me, but I have lost 12 pounds in a month. I'm eating very healthily - 80% organic fruits and veggies, gluten free, dairy free, soy free, low salt, sugar free (except some cane, honey, real maple syrup as sweeteners), no crappy processed foods.

Anyway - I had been suffering for quite some time (stomach pain, digestive problems, acid reflux, etc.) All of that has just about melted away, but wondering how long it REALLY takes to heal. I was diagnosed with CFS/FM in 2003, and suffer a LOT of pain, daily. I'm hoping that this may eventually dissipate, but as yet, I don't feel any better in that department.

Just wondering if there are others like me out there who have actually reversed FM pain through gluten (and other) free diets.

Glad to have found this group and thanks for listening :)


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Wolicki Enthusiast

Time to heal is different for everyone. I, too, had chronic pain. Pleurisy, joint pain, muscle pain, daily for 10 years. Most of the pains went away within a month. I still have occasional joint pain, but it seems to be related to specific foods. I have been gluten free for 7 months. I still have a ways to go with healing intesinal damage, but it is so much better than it was. As long as you stick to the diet, you will continue to improve. My rheumatologist is amazed at the difference. My pain was so bad I was taking prednisone at least 3 times a month! Haven't had any steroids at all since going gluten free.

luvs2eat Collaborator

I don't have FM pain, or any pain really. My symptoms were/are all digestive. I can tell you that it took the better part of a YEAR (as I realized I was making a lot of mistakes) before I decided my bowels had returned to "normal."

sandsurfgirl Collaborator

Unfortunately for some of us celiac causes us to gain weight instead of lose it. Your body is malnourished so it slows your metabolism and hangs on for dear life to every single calorie you eat. Also it will raise your appetite so you take in too many calories to compensate for the lack of nutrition.

It's a myth that cost me 7 years of my life in illness and 2 horrific pregnancies because a GI doc told me my weight gain assured him that there was no way I could have celiac disease.

GluFREEthatsME Newbie

Thanks for your responses! OMG - I believe I may have had this all of my life! Unfortunately, I guess it CAN go undetected, depending on the severity of the symptoms. Honestly, this is the first time I am eating food that I don't get a stomach ache from. How did I get used to those stomach aches to the point where I thought they were normal after eating. If I were nauseous, I might have suspecting something, but a burning sensation and some discomfort was just annoying.

I didn't know the difference, until I cut out ALL gluten. Wow - now I know what it feels like to eat and not have that discomfort. Man - I feel pretty stupid, but I wonder how many people go through this and not realize.

Thanks Sandsurfgirl - I'm glad to hear that the weight thing is not necessarily a given. You had horrific pregnancies and I couldn't get pregnant at ALL, and had an early menopause at 41. I recently read that Celiac can cause infertility and early menopause. NOW YA TELL ME! I'm kinda angry that doctors still don't realize the kind of damage this can cause and make sure their patients are thoroughly tested for this if there are signs of any digestive problems!

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - asaT replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      48

      Supplements for those Diagnosed with Celiac Disease

    2. - asaT replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      48

      Supplements for those Diagnosed with Celiac Disease

    3. - nanny marley replied to hjayne19's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      20

      Insomnia help

    4. - David Blake commented on Scott Adams's article in Product Labeling Regulations
      1

      FDA Moves to Improve Gluten Labeling—What It Means for People With Celiac Disease

    5. - nanny marley replied to wellthatsfun's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      4

      nothing has changed

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,343
    • Most Online (within 30 mins)
      7,748

    emoryprose
    Newest Member
    emoryprose
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • asaT
      plant sources of calcium, such as spinach, have calcium bound to oxalates, which is not good. best source of calcium is unfortunately dairy, do you tolerate dairy? fermented dairy like kefir is good and or a little hard cheese. i do eat dairy, i can only take so much dietary restriction and gluten is hard enough! but i guess some people do have bad reactions to it, so different for everyone.  
    • asaT
      i take b12, folate, b2, b6, glycine, Nac, zinc, vk2 mk4, magnesium, coq10, pqq, tmg, creatine, omega 3, molybdnem (sp) and just started vit d. quite a list i know.  I have high homocysteine (last checked it was 19, but is always high and i finally decided to do something about it) and very low vitamin d, 10. have been opposed to this supp in the past, but going to try it at 5k units a day. having a pth test on friday, which is suspect will be high. my homocysteine has come down to around 9 with 3 weeks of these supplements and expect it to go down further. i also started on estrogen/progesterone. I have osteoporosis too, so that is why the hormones.  anyway, i think all celiacs should have homocysteine checked and treated if needed (easy enough with b vit, tmg). homocysteine very bad thing to be high for a whole host of reasons. all the bad ones, heart attack , stroke, alzi, cancer..... one of the most annoying things about celiacs (and there are so many!) is the weight gain. i guess i stayed thin all those years being undiagnosed because i was under absorbing everything including calories. going gluten-free and the weight gain has been terrible, 30#, but i'm sure a lot more went into that (hip replacement - and years of hip pain leading to inactivity when i was previously very active, probably all related to celiacs, menopause) yada yada. i seemed to lose appetite control, like there was low glp, or leptin or whatever all those hormones are that tell you that you are full and to stop eating. my appetite is immense and i'm never full. i guess decades or more ( i think i have had celiacs since at least my teens - was hospitalized for abdominal pain and diarrhea for which spastic colon was eventually diagnosed and had many episodes of diarrhea/abdominal pain through my 20's. but that symptom seemed to go away and i related it to dairy much more so than gluten. Also my growth was stunted, i'm the only shorty in my family. anyway, decades of malabsorption and maldigestion led to constant hunger, at least thats my theory. then when i started absorbing normally, wham!! FAT!!!    
    • nanny marley
      Great advise there I agree with the aniexty part, and the aura migraine has I suffer both, I've also read some great books that have helped I'm going too look the one you mentioned up too thankyou for that, I find a camomile tea just a small one and a gentle wind down before bed has helped me too, I suffer from restless leg syndrome and nerve pain hence I don't always sleep well at the best of times , racing mind catches up I have decorated my whole house in one night in my mind before 🤣 diet changes mindset really help , although I have to say it never just disappears, I find once I came to terms with who I am I managed a lot better  , a misconception is for many to change , that means to heal but that's not always the case , understanding and finding your coping mechanisms are vital tools , it's more productive to find that because there is no failure then no pressure to become something else , it's ok to be sad it's ok to not sleep , it's ok to worry , just try to see it has a journey not a task 🤗
    • nanny marley
      I agree there I've tryed this myself to prove I can't eat gluten or lactose and it sets me back for about a month till I have to go back to being very strict to settle again 
    • trents
      You may also need to supplement with B12 as this vitamin is also involved in iron assimilation and is often deficient in long-term undiagnosed celiac disease.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.