Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

How Careful Do I Have To Be?


Kategrad7

Recommended Posts

Kategrad7 Newbie

Hi!

I was just diagnosed last week, have gone through the cabinets and handed over all of the gluten containing groceries to my housemates and now am wondering, just how careful do I have to be? I am a graduate student living in the middle of nowhere in up-state New York and as a graduate student I am relatively poor. I have read some sites that indicate that I should buy my own cooking supplies (pans, cooking spoons, colanders) but I really don't want to go that extra step unless its really necessary. I have very few intestinal symptoms, most of mine being that I get tired or disorientated, so knowing when something is effecting me is going to be a bit of an issue. How hurtful can environmental gluten be? If I don't have blatant symptoms does that mean that I don't have to be as super careful as some sites are suggesting?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



vintagegyrl Rookie

I am wondering this same thing. My issues are mostly ones that seem unrelated. FMS, CFS, Hypoglycemia, exhaustion, weakness.

I am trying to figure out how to keep gluten free in a shared household myself. I will be cooking some gluten items for DH but mostly his things are just snacks or sandwiches, etc.

jackay Enthusiast

I am trying to figure out how to keep gluten free in a shared household myself. I will be cooking some gluten items for DH but mostly his things are just snacks or sandwiches, etc.

Sounds like the same situation here as far as cooking goes. I just don't know how careful I have to be because I am still having health issues.

I am intolerant to so many foods that I don't know if I am reacting to something else or still gluten. I've eliminated all the foods I tested intolerant to and some days feel better and other days I don't. I get an extremely sore back, insomnia and depression.

I was extremely anxious before giving up gluten so made one step in the right direction. Also had diarrhea almost every day. The anxiety is much better and most days the diarrhea is.

I am thinking of intentionally eating gluten one day to see how I react. I really don't want to go through the pain it will cause but want to find out if I am doing enough to eliminate gluten contamination.

Bobbijo6681 Apprentice

I had an appointment with the dietician last week and asked her these questions. I fortunately live by myself, but just before diagnosis bought brand new Pampered Chef stainless steel pans, and REFUSE to throw them out or buy new. She told me that as long as they are not scratched and are washed very thoroughly after a gluten item, then I should be fine. Things like wooden spoons and soft plastic (rubber scrapers etc.) should be replaced if possible. She also recommended just washing everything in the dishwasher multiple times to ensure that all gluten has been removed.

I only have mild GI symptoms, so it is hard to say if I am healing properly or not. I can say that I feel better and don't run to the bathroom after eating so I have shown signs of improvement.

I hope that this helps!

tarnalberry Community Regular

Hi!

I was just diagnosed last week, have gone through the cabinets and handed over all of the gluten containing groceries to my housemates and now am wondering, just how careful do I have to be? I am a graduate student living in the middle of nowhere in up-state New York and as a graduate student I am relatively poor. I have read some sites that indicate that I should buy my own cooking supplies (pans, cooking spoons, colanders) but I really don't want to go that extra step unless its really necessary. I have very few intestinal symptoms, most of mine being that I get tired or disorientated, so knowing when something is effecting me is going to be a bit of an issue. How hurtful can environmental gluten be? If I don't have blatant symptoms does that mean that I don't have to be as super careful as some sites are suggesting?

It's quite important. Not all celiacs have strong symptoms, but they are still damaging their intestines, increasing inflammation in the digestive system, and increasing their risk for long term complications. Cross contamination is a definite concern for celiacs.

There are some things you can share in a kitchen - stainless steel pots and pans that are WELL cleaned after using and stainless steel eating utensils, for instance. Cast iron and non-stick pans should not be shared, as cast iron has many small crevices that can hide gluten, and non-stick pans have the same problem the moment a single scratch appears. Colanders need to be unique to gluten free items because it's next to impossible to wash the inner edge of every hole on a colander - and that can be a hiding place for gluten to not be completely removed when washed, even in a dishwasher. Wooden spoons should also not be shared (the are porous, and there's no way to get rid of every bit of gluten in ever last crack), but metal spoons and silicon spatulas (that haven't been torn/scratched/shredded) should be fine to share (I wouldn't share plastic spatulas that scratch more easily than the silicone). Toasters should absolutely NOT be shared, but microwaves can, as long as everyone always uses a plate (and covers splattery food). You can make do with just one of each of these, though - it doesn't have to be a big expenditure.

plantime Contributor

Tiffany posted the same thing I go by. I am afraid of hidden gluten, so stainless steel is the way I go for pans and utensils. It only takes a tiny bit of gluten to make me sick, though, so I can feel when I get contaminated. Try buying your pans one at time, or go to Wal-Mart for an inexpensive set. You don't need a lot of dishes, just one of each.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - JoJo0611 replied to JoJo0611's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      4

      CT with contrast.

    2. - Scott Adams replied to Ginger38's topic in Related Issues & Disorders
      2

      Shingles - Could It Be Related to Gluten/ Celiac


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,398
    • Most Online (within 30 mins)
      7,748

    Megannnnn
    Newest Member
    Megannnnn
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • JoJo0611
      I didn’t know there were different types of CT. I’m not sure which I had. It just said CT scan with contrast. 
    • Scott Adams
    • Scott Adams
      I had the same thing happen to me at around your age, and to this day it's the most painful experience I've ever had. For me it was the right side of my head, above my ear, running from my nerves in my neck. For years before my outbreak I felt a tingling sensation shooting along the exact nerves that ended up exactly where the shingles blisters appeared. I highly recommend the two shot shingles vaccine as soon as your turn 50--I did this because I started to get the same tingling sensations in the same area, and after the vaccines I've never felt that again.  As you likely know, shingles is caused by chicken pox, which was once though of as one of those harmless childhood viruses that everyone should catch in the wild--little did they know that it can stay in your nervous system for your entire life, and cause major issues as you age.
    • trents
    • Clear2me
      Thanks for the info. I recently moved to CA from Wyoming and in that western region the Costco and Sam's /Walmart Brands have many nuts and more products that are labeled gluten free. I was told it's because those products are packaged and processed  in different  plants. Some plants can be labeled  gluten free because the plant does not also package gluten products and they know that for example the trucks, containers equipment are not used to handle wheat, barely or Rye. The Walmart butter in the western region says gluten free but not here. Most of The Kirkland and Members Mark brands in CA say they are from Vietnam. That's not the case in Wyoming and Colorado. I've spoken to customer service at the stores here in California. They were not helpful. I check labels every time I go to the store. The stores where I am are a Sh*tshow. The Magalopoly grocery chain Vons/Safeway/Albertsons, etc. are the same. Fishers and Planters brands no longer say gluten free. It could be regional. There are nuts with sugar coatings and fruit and nut mixes at the big chains that are labeled gluten free but I don't want the fruit or sugar.  It's so difficult I am considering moving again. I thought it would be easier to find safe food in a more populated area. It's actually worse.  I was undiagnosed for most of my life but not because I didn't try to figure it out. So I have had all the complications possible. I don't have any spare organs left.  No a little gluten will hurt you. The autoimmune process continues to destroy your organs though you may not feel it. If you are getting a little all the time and as much as we try we probably all are and so the damage is happening. Now the FDA has pretty much abandoned celiacs. There are no requirements for labeling for common allergens on medications. All the generic drugs made outside the US are not regulated for common allergens and the FDA is taking the last gluten free porcine Thyroid med, NP Thyroid, off the market in 2026. I was being glutened by a generic levothyroxin. The insurance wouldn't pay for the gluten free brand any longer because the FDA took them all off their approved formulary. So now I am paying $147 out of pocket for NP Thyroid but shortly I will have no safe choice. Other people with allergies should be aware that these foreign generic pharmaceutical producers are using ground shellfish shell as pill coatings and anti-desicants. The FDA knows this but  now just waits for consumers to complain or die. The take over of Wholefoods by Amazon destroyed a very reliable source of good high quality food for people with allergies and for people who wanted good reliably organic food. Bezos thought  he could make a fortune off people who were paying alot for organic and allergen free food by substituting cheap brands from Thailand. He didn't understand who the customers were who were willing to pay more for that food and why. I went from spending hundreds to nothing because Bezo removed every single trusted brand that I was buying. Now they are closing Whole foods stores across the country. In CA, Mill Valley store (closed July 2025) and the National Blvd. store in West Los Angeles (closed October 2025). The Cupertino store will close.  In recent years I have learned to be careful and trust no one. I have been deleberately glutened in a restaurant that was my favorite (a new employee). The Chef owner was not in the kitchen that night. I've had  a metal scouring pad cut up over my food.The chain offered gluten free dishes but it only takes one crazy who thinks you're a problem as a food fadist. Good thing I always look. Good thing they didn't do that to food going to a child with a busy mom.  I give big tips and apologize for having to ask in restaurants but mental illness seem to be rampant. I've learn the hard way.          I don't buy any processed food that doesn't say gluten free.  I am a life long Catholic. I worked for the Church while at college. I don't go to Church anymore because the men at the top decided Jesus is gluten. The special hosts are gluten less not gluten free. No I can't drink wine after people with gluten in their mouth and a variety of deadly germs. I have been abandoned and excluded by my Church/Family.  Having nearly died several times, safe food is paramount. If your immune system collapses as mine did, you get sepsis. It can kill you very quickly. I spent 5 days unconscious and had to have my appendix and gall bladder removed because they were necrotic. I was 25. They didn't figure out I had celiac till I was 53. No one will take the time to tell you what can happen when your immune system gets overwhelmed from its constant fighting the gluten and just stops. It is miserable that our food is processed so carelessly. Our food in many aspects is not safe. And the merging of all the grocery chains has made it far worse. Its a disaster. Krogers also recently purchased Vitacost where I was getting the products I could no longer get at Whole Foods. Kroger is eliminating those products from Vitacost just a Bezos did from WF. I am looking for reliable and certified sources for nuts. I have lived the worst consequences of the disease and being exposed unknowingly and maliciously. Once I was diagnosed I learned way more than anyone should have to about the food industry.  I don't do gray areas. And now I dont eat out except very rarely.  I have not eaten fast food for 30 years before the celiac diagnosis. Gluten aside..... It's not food and it's not safe.  No one has got our backs. Sharing safe food sources is one thing we can do to try to be safe.        
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.