Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

My First Gluten Free Torture


sandsurfgirl

Recommended Posts

sandsurfgirl Collaborator

We live by a cute little beachtown with a Main street that has all those adorable shops, etc. So of course there is an amazing little family owned bakery.

I haven't been in there since I got diagnosed, and today my kids wanted cookies. The smell in there is DIVINE. They have the best cupcakes and cinnamon rolls ever ever ever.

I haven't felt deprived so far, but today was definitely a knuckle biter. That smell is heavenly!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



kareng Grand Master

I've been gluten-free about 3 weeks. Last Sat, 17 yr old son said "let's get pizza!" Then I think he realized what he was saying because he got a sheepish look & looked at the floor. Weather was bad but Dad said "we can go out boys." Fortunately, I thought of gluten-free Godfathers so all were happy. Then he was going to get burger & fries from local favorite greaseburger place & asked if he needed to eat it there or could bring home. 14 year old hiding stuff like pretzels so I won't want them. After they've been in a 14 year old boys room, would you want them?

Anyway: the point is: I feel you. My guys try but sometimes its hard. I think it will get easier when I don't remember how glutenous stuff tastes.

ravenwoodglass Mentor

It won't be too long before you find great gluten free versions of your favorite 'junk' foods. Gluten Free Pantry makes great cake mixes and has a French Bread mix that makes great pizza dough. Gluten free pretzels surprisingly taste very much like wheat ones. Glutino makes some good ones and I love the Wylde pretzels because they don't have soy and taste great.

If you keep gluten free versions of the treats your family enjoys it can make it easier to feel less deprived.

sandsurfgirl Collaborator

It won't be too long before you find great gluten free versions of your favorite 'junk' foods. Gluten Free Pantry makes great cake mixes and has a French Bread mix that makes great pizza dough. Gluten free pretzels surprisingly taste very much like wheat ones. Glutino makes some good ones and I love the Wylde pretzels because they don't have soy and taste great.

If you keep gluten free versions of the treats your family enjoys it can make it easier to feel less deprived.

Yeah I know. It's a lot about the experience too. It's that particular bakery, at the beach, etc. KWIM? You see couples all the time sitting on the little bench sharing a cinnamon roll on a cold night type of thing. It's romantic and sweet and fun.

Kategrad7 Newbie

We live by a cute little beachtown with a Main street that has all those adorable shops, etc. So of course there is an amazing little family owned bakery.

I haven't been in there since I got diagnosed, and today my kids wanted cookies. The smell in there is DIVINE. They have the best cupcakes and cinnamon rolls ever ever ever.

I haven't felt deprived so far, but today was definitely a knuckle biter. That smell is heavenly!

I am with you! I am not very far into my gluten-free diet but I can already see the social repercussions. I think that is going to be the hardest part. Im still in school, so what do I do when a bunch of friends want to go out for pizza, sit there with nothing to eat? That just makes them feel awkward. I feel like this disease is going to cause social isolation. "Its just food!" That is what I keep telling myself, but really our society bases so many social interactions around food, that its hard not to think of a gluten free diet as social suicide.

lizard00 Enthusiast

I am with you! I am not very far into my gluten-free diet but I can already see the social repercussions. I think that is going to be the hardest part. Im still in school, so what do I do when a bunch of friends want to go out for pizza, sit there with nothing to eat? That just makes them feel awkward. I feel like this disease is going to cause social isolation. "Its just food!" That is what I keep telling myself, but really our society bases so many social interactions around food, that its hard not to think of a gluten free diet as social suicide.

I felt the same way, too, in the beginning. I'm not in school, but I had the same feeling that oh no! I can't go out with my friends to restaurants... but I'm a little over 2 yrs into this. What I've learned: you explain it quickly, in a way that makes sense, and don't make a big deal out of it. Eat before you go, have a drink with them or whatever, and enjoy being with your friends. Which is really what it's about, not eating pizza. Right? In my experience, the less of a deal you make out of it, the less it freaks out your friends. My friends and family know that I will not eat anything that I can't be sure is gluten-free, no matter where I am or what we are doing. So be firm, but don't let it be your focus. Enjoy hanging out with your friends.

Shannonlass Apprentice

This happened me last week. I was only a few days into my gluten-free diet and trying my hardest when into the staff lunch room arrives a huge black forest gateau, a chocolate cake and a box of dunkin' donuts. I felt really sorry for myself but I didn't give in but boy it was tough. Prior to my positive diagnosis I'd have had all 3!!!

I felt the same way, too, in the beginning. I'm not in school, but I had the same feeling that oh no! I can't go out with my friends to restaurants... but I'm a little over 2 yrs into this. What I've learned: you explain it quickly, in a way that makes sense, and don't make a big deal out of it. Eat before you go, have a drink with them or whatever, and enjoy being with your friends. Which is really what it's about, not eating pizza. Right? In my experience, the less of a deal you make out of it, the less it freaks out your friends. My friends and family know that I will not eat anything that I can't be sure is gluten-free, no matter where I am or what we are doing. So be firm, but don't let it be your focus. Enjoy hanging out with your friends.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ravenwoodglass Mentor

Yeah I know. It's a lot about the experience too. It's that particular bakery, at the beach, etc. KWIM? You see couples all the time sitting on the little bench sharing a cinnamon roll on a cold night type of thing. It's romantic and sweet and fun.

Yea I do know what you mean. It is hard but it will hopefully get better in time. It is great to feel better but I do think we go through a 'mourning' period when we realize how much is having to change in everything we do. My DD is getting married soon and when I asked her if she had asked about gluten free options for me at the reception she said no. I was really hurt at first until she explained that as sensitive as I am she would not trust the place not to CC me. I still feel a little sad that I won't even be able to taste a piece of her wedding cake. Maybe I will bring a little gluten-free cake for myself but it just won't be the same.

Roadki11 Newbie

You could always ask if they do any gluten free stuff! A local butcher does gluten-free sausages to order (done at the start of the day on a clean machine with the standard rusk filled sausages done later minimum 5Kg order). Although I imagine controlling the contamination in a bakers would be far trickier than in the butchers.

plantime Contributor

I tell my family and friends not to worry about what I will eat, just tell me where we are going and when. Then I take care of/make arrangements for myself. I feel better knowing that I have control, and they have one less thing to worry about. Sometimes it means carrying my food with me, sometimes not. You will go through the mourning period, and it will get easier.

Until then, {{{hugs}}}

Nightingale8472 Rookie

I am with you! I am not very far into my gluten-free diet but I can already see the social repercussions. I think that is going to be the hardest part. Im still in school, so what do I do when a bunch of friends want to go out for pizza, sit there with nothing to eat? That just makes them feel awkward. I feel like this disease is going to cause social isolation. "Its just food!" That is what I keep telling myself, but really our society bases so many social interactions around food, that its hard not to think of a gluten free diet as social suicide.

Most pizza places have salad...what about a green salad with just oil and vinegar, or bring your own salad dressing?

Something I've noticed when eating out with my friends is that they tend to feel less uncomfortable digging into the rolls or bread basket at the table if I've ordered a salad and asked the waiter to bring it at the same time as the bread. As a society, we've been conditioned that it's polite not to eat unless everyone has their food, so it's awkward when one person isn't eating anything, especially if people know it isn't because you don't want to, it's because you can't.

jenngolightly Contributor

Sprouts has mini salad dressing packets that you can throw in your bag for times like these. I love them. I used to carry around the spritz kind of salad dressing, but it was so inconvenient and my checkbook smelled like balsamic vinaigrette all the time. Almost all the places that friends/coworkers suggest we eat on the spur of the moment have lettuce, so if I can't order something gluten-free, I just order a plain salad and whip out my handy-dandy salad dressing packet. I also whip out craisins, nuts, and other goodies that I ALWAYS carry. They either act as snacks, or they go into my salad to spice it up a little. My bag is like a mini shopping bag with tuna (the bag kind) and fork, craisins, salad dressing, nuts, energy bars, Glutino pretzels, orange (they don't bruise like an apple does), dry herb mixes(for when the restaurant insists on making your meal absolutely plain because they don't know how else to alter a recipe that's got gluten in it - I just sprinkle the herbs over my food to jazz up the flavor)...

I'm always ready for an impromptu lunch meeting! And I'm always happy with what I have to eat.

newgfcali Rookie

Sprouts has mini salad dressing packets that you can throw in your bag for times like these.

All great ideas!

I've been looking for salad dressing packets but can't find any locally. What brand does Sprouts carry? Maybe I can find them online.

Nightingale8472 Rookie

All great ideas!

I've been looking for salad dressing packets but can't find any locally. What brand does Sprouts carry? Maybe I can find them online.

Most of the dressings at Carl's Jr. are gluten free. I ask my friends to grab me some when they eat there. Some McDonalds have Newman's Own dressings that are gluten free (specifically the Newman's Own

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,894
    • Most Online (within 30 mins)
      7,748

    Lostcha
    Newest Member
    Lostcha
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      You've done an excellent job of meticulously tracking the rash's unpredictable behavior, from its symmetrical spread and stubborn scabbing to the potential triggers you've identified, like the asthma medication and dietary changes. It's particularly telling that the rash seems to flare with wheat consumption, even though your initial blood test was negative—as you've noted, being off wheat before a test can sometimes lead to a false negative, and your description of the other symptoms—joint pain, brain fog, stomach issues—is very compelling. The symmetry of the rash is a crucial detail that often points toward an internal cause, such as an autoimmune response or a systemic reaction, rather than just an external irritant like a plant or mites. I hope your doctor tomorrow takes the time to listen carefully to all of this evidence you've gathered and works with you to find some real answers and effective relief. Don't be discouraged if the rash fluctuates; your detailed history is the most valuable tool you have for getting an accurate diagnosis.
    • Scott Adams
      In this case the beer is excellent, but for those who are super sensitive it is likely better to go the full gluten-free beer route. Lakefront Brewery (another sponsor!) has good gluten-free beer made without any gluten ingredients.
    • trents
      Welcome to the forum, @catsrlife! Celiac disease can be diagnosed without committing to a full-blown "gluten challenge" if you get a skin biopsy done during an active outbreak of dermatitis herpetiformis, assuming that is what is causing the rash. There is no other known cause for dermatitis herpetiformis so it is definitive for celiac disease. You would need to find a dermatologist who is familiar with doing the biopsy correctly, however. The samples need to be taken next to the pustules, not on them . . . a mistake many dermatologists make when biopsying for dermatitis herpetiformis. 
    • trents
      You state in an earlier post that you don't have celiac disease. Here in this post you state you will "be doing another test". What will this test be looking for? What kind of celiac disease testing have you had done? If you have used a Entero Labs it sounds like you have had stool testing done for celiac disease which is not widely accepted as a valid celiac disease diagnostic testing method. Have you had blood antibody testing for celiac disease done and do you realize that for antibody testing to be valid you must have been eating generous amounts of gluten for a period of weeks/months? 
    • Gigi2025
      No, I've not been diagnosed as celiac.  Despite Entero Labs being relocated to Switzerland/Greece, I'll be doing another test. After eating wheat products in Greece for 4 weeks, there wasn't any reaction.  However, avoiding it here in the states.   Thanks everyone for your responses.  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.