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Going About Things The Wrong Way?

coconut12

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coconut12 Newbie
coconut12
Posted

Hi!

I was wondering if anyone here has skipped the blood test and biopsy and gone straight to the enterolabs test?

I'm considering doing this because I went to a dr. who suggested celiac and told me to go gluten-free. I did about 10 days ago, and am no longer bloated and gassy and have only had ONE migraine since! I had been having migraines almost daily.

Now that I'm off gluten and have seen such an improvement, I'm reluctant to go back on it. I don't want to go back to the migraines at all.

So, I was wondering if I can stay gluten-free, take the enterolabs test and still get accurate results?

Thanks for any help.

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tarnalberry Community Regular
tarnalberry
Posted

Enterolabs says they can detect antibodies for a little while after going gluten free.

But you already have a very positive test - dietary response. You can, if you want, choose to stay gluten free based just on that. Enterolab doesn't diagnose celiac disease (just gluten intolerance) because it's not an intestinal biopsy. But the diet requires no prescription.

coconut12 Newbie
coconut12
Posted
  • Author

Enterolabs says they can detect antibodies for a little while after going gluten free.

But you already have a very positive test - dietary response. You can, if you want, choose to stay gluten free based just on that. Enterolab doesn't diagnose celiac disease (just gluten intolerance) because it's not an intestinal biopsy. But the diet requires no prescription.

Thanks for your response!

I'm thinking that I'm just going to forget getting an accurate test. I went back on gluten so that I could have the bloodwork done and maybe a biopsy, and I'm feeling like I'm dying. I know that's an exaggeration when I think about it logically, but that's how I feel.

I can't believe how bad I feel. I feel like it's hard to breathe and my whole body hurts. My vision is blurry. I have no interest in doing anything.

I'm really frustrated because I have been going to my family doctor for about a year telling her that something was really wrong, then I went to a neurologist for migraines and was diagnosed with peripheral neuropathy and even that didn't get a reaction from her. I went to an integrative medicine doctor a few weeks ago and he suggested celiac and to go gluten-free. I did, and had an immediate return of my interest in things and some improvement in the numbness in my toes (maybe due to the magnesium and b vitamins he put me on)--not to mention, I only had one migraine during the time I was gluten-free. But I know if I don't get a firm diagnosis my family doctor is not going to believe me.

I'm confused about what I should do. But I don't think I can continue to eat gluten in order to get a diagnosis. Am I just being a wimp?

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    • knitty kitty
      My only proof

      By knitty kitty · Posted

      You're right, doctors usually only test Vitamin D and B12.  Both are really important, but they're not good indicators of deficiencies in the other B vitamins.  Our bodies are able to store Vitamin B12 and Vitamin D in the liver for up to a year or longer.  The other B vitamins can only be stored for much shorter periods of time.  Pyridoxine B 6 can be stored for several months, but the others only a month or two at the longest.  Thiamine stores can be depleted in as little as three days.  There's no correlation between B12 levels and the other B vitamins' levels.  Blood tests can't measure the amount of vitamins stored inside cells where they are used.  There's disagreement as to what optimal vitamin levels are.  The Recommended Daily Allowance is based on the minimum daily amount needed to prevent disease set back in the forties when people ate a totally different diet and gruesome experiments were done on people.  Folate  requirements had to be updated in the nineties after spina bifida increased and synthetic folic acid was mandated to be added to grain products.  Vitamin D requirements have been updated only in the past few years.   Doctors aren't required to take as many hours of nutritional education as in the past.  They're educated in learning institutions funded by pharmaceutical corporations.  Natural substances like vitamins can't be patented, so there's more money to be made prescribing pharmaceuticals than vitamins.   Also, look into the Autoimmune Protocol Diet, developed by Dr. Sarah Ballantyne, a Celiac herself.  Her book The Paleo Approach has been most helpful to me.  You're very welcome.  I'm glad I can help you around some stumbling blocks while on this journey.    Keep me posted on your progress!  Best wishes! P.S.  interesting reading: Thiamine, gastrointestinal beriberi and acetylcholine signaling https://pmc.ncbi.nlm.nih.gov/articles/PMC12014454/
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    • knitty kitty
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      Segments of the protein Casein are the same as segments of the protein strands of gluten, the 33-mer segment.   The cow's body builds that Casein protein.  It doesn't come from wheat.   Casein can trigger the same reaction as being exposed to gluten in some people.   This is not a dairy allergy (IGE mediated response).  It is not lactose intolerance.  
    • trents
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      By trents · Posted

      Wheatwacked, what exactly did you intend when you stated that wheat is incorporated into the milk of cows fed wheat? Obviously, the gluten would be broken down by digestion and is too large a molecule anyway to cross the intestinal membrane and get into the bloodstream of the cow. What is it from the wheat that you are saying becomes incorporated into the milk protein?
    • Scott Adams
      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?

      By Scott Adams · Posted

      Wheat in cow feed would not equal gluten in the milk, @Wheatwacked, please back up extraordinary claims like this with some scientific backing, as I've never heard that cow's milk could contain gluten due to what the cow eats.
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