Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Going About Things The Wrong Way?

coconut12

Recommended Posts

coconut12 Newbie
coconut12
Posted

Hi!

I was wondering if anyone here has skipped the blood test and biopsy and gone straight to the enterolabs test?

I'm considering doing this because I went to a dr. who suggested celiac and told me to go gluten-free. I did about 10 days ago, and am no longer bloated and gassy and have only had ONE migraine since! I had been having migraines almost daily.

Now that I'm off gluten and have seen such an improvement, I'm reluctant to go back on it. I don't want to go back to the migraines at all.

So, I was wondering if I can stay gluten-free, take the enterolabs test and still get accurate results?

Thanks for any help.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


tarnalberry Community Regular
tarnalberry
Posted

Enterolabs says they can detect antibodies for a little while after going gluten free.

But you already have a very positive test - dietary response. You can, if you want, choose to stay gluten free based just on that. Enterolab doesn't diagnose celiac disease (just gluten intolerance) because it's not an intestinal biopsy. But the diet requires no prescription.

coconut12 Newbie
coconut12
Posted
  • Author

Enterolabs says they can detect antibodies for a little while after going gluten free.

But you already have a very positive test - dietary response. You can, if you want, choose to stay gluten free based just on that. Enterolab doesn't diagnose celiac disease (just gluten intolerance) because it's not an intestinal biopsy. But the diet requires no prescription.

Thanks for your response!

I'm thinking that I'm just going to forget getting an accurate test. I went back on gluten so that I could have the bloodwork done and maybe a biopsy, and I'm feeling like I'm dying. I know that's an exaggeration when I think about it logically, but that's how I feel.

I can't believe how bad I feel. I feel like it's hard to breathe and my whole body hurts. My vision is blurry. I have no interest in doing anything.

I'm really frustrated because I have been going to my family doctor for about a year telling her that something was really wrong, then I went to a neurologist for migraines and was diagnosed with peripheral neuropathy and even that didn't get a reaction from her. I went to an integrative medicine doctor a few weeks ago and he suggested celiac and to go gluten-free. I did, and had an immediate return of my interest in things and some improvement in the numbness in my toes (maybe due to the magnesium and b vitamins he put me on)--not to mention, I only had one migraine during the time I was gluten-free. But I know if I don't get a firm diagnosis my family doctor is not going to believe me.

I'm confused about what I should do. But I don't think I can continue to eat gluten in order to get a diagnosis. Am I just being a wimp?

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Kit Kellison
      - Kit Kellison commented on Jefferson Adams's article in Gluten-Free Foods & Beverages
      6

      Oreo Debuts New Gluten-Free Mint Oreo Cookies

      Glutinos are eay better. The filling tastes more like homemade icing and the cookies are crisper. Great dunked in milk.
    2. Scott Adams
      0

      Fluffy Coconut Banana Pancake—Baked, Gluten-Free, and Family-Style

    3. Scott Adams
      0

      Gluten-Free Foods in Mexico: A Study Raises Safety and Labeling Concerns

    4. trents
      - trents commented on Amiah's blog entry in Amiah
      1

      Help!!

      Welcome to the celiac.com community, @Amiah! First of all, you would do well to post your question in one of the appropriate community forums rather than in a blog. It will get more attention that way. Now as to your question, there are some other things that can cause elevated igg antibodies besides celiac disease. Various infections, mostly. For...
    5. Amiah
      1

      Help!!

  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,627
    • Most Online (within 30 mins)
      7,748
    sailingsun1
    Newest Member
    sailingsun1
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • Florence Lillian
      Gluten-Mimicking Proteins that can affect some Celiac individuals.

      By Florence Lillian · Posted

      Hi Scott: A wonderful, thoughtful explanation. Controlled human studies would be very interesting and quite informative. I have been eliminating certain foods and have narrowed it down considerably. Having other autoimmune diseases along with Celiac has become rather challenging. I appreciate your input, thank you. All the best, Florence
    • trents
      Terrible Neurological Symptoms

      By trents · Posted

      Hector, have you had a follow-up biopsy to check the progress of small bowel villous lining recovery after going gluten free?
    • knitty kitty
      Terrible Neurological Symptoms

      By knitty kitty · Posted

      @HectorConvector, Please try adding Niacin to your supplements.  Low Niacin has a connection with suicidal ideation.  Been here, done that.  Niacin made me feel better mentally and physically.  Omega Three fats will help, too. For pain, Thiamine, B12 and, Pyridoxine B6 have been shown to have analgesic effects when taken together.  I know this works because I've cracked some vertebrae and this combination relieves the pain.  I was prescribed opioids, but couldn't function or poop, so... I can highly recommend these vitamins for pain relief.   I adopted a paleo diet, the Autoimmune Protocol Diet which has been shown to improve intestinal health.  Improving intestinal health improves mental health because of the gut brain-axis.  Important neurotransmitter Serotonin is made in the digestive system.   Please Read... Association between dietary niacin intake and suicidal ideation: mediating role of C-reactive protein https://pubmed.ncbi.nlm.nih.gov/40859220/ Mechanisms of action of vitamin B1 (thiamine), B6 (pyridoxine), and B12 (cobalamin) in pain: a narrative review https://pubmed.ncbi.nlm.nih.gov/35156556/
    • Scott Adams
      Gluten-Mimicking Proteins that can affect some Celiac individuals.

      By Scott Adams · Posted

      Hi Florence, thank you for clarifying — and no worries at all about late-night writing. I appreciate you explaining that you’re specifically asking about gluten cross-reactivity, particularly the proposed immune cross-reaction between alpha-gliadin and certain non-gluten foods on a gluten-free diet. It’s an interesting and often confusing topic. The Vojdani & Tarash paper you mentioned did report antibody cross-reactivity in laboratory settings, which has led to a lot of discussion in the gluten-free community. However, it’s important to note that in-vitro antibody reactions (in a lab dish) don’t always translate into clinically meaningful reactions inside the human body. At this point, major celiac research centers generally conclude that true immune cross-reactivity to non-gluten foods in people with celiac disease hasn’t been clearly demonstrated in well-controlled human studies. That said, many individuals do report symptoms with foods like corn, dairy, oats, or others, and those reactions can absolutely be real — they just may involve different mechanisms, such as food intolerance, FODMAP sensitivity, separate immune responses, or individual gut permeability differences rather than molecular mimicry of gliadin specifically. If certain foods consistently trigger symptoms for you, keeping a structured food and symptom log and discussing it with a knowledgeable gastroenterologist or dietitian may help clarify patterns. It’s a nuanced area, and your question is thoughtful — we just have to separate what’s biologically plausible in theory from what’s been conclusively demonstrated in patients.
    • Scott Adams
      Terrible Neurological Symptoms

      By Scott Adams · Posted

      I’m really sorry you’re dealing with such intense burning pain right now. When symptoms get that overwhelming, it can feel unbearable and even trigger really dark thoughts, and that’s a sign of just how much you’ve been carrying — not a sign of weakness. It makes sense that you’d want to go back to a lower-carb, meat-and-vegetable approach if that’s helped reduce symptoms before; sometimes dialing things back to simple, whole foods can calm inflammation or gut irritation. At the same time, your safety and mental health matter just as much as the physical symptoms. If the suicidal thoughts are feeling strong or hard to control, please consider reaching out for immediate support — in the U.S., you can call or text 988 for the Suicide & Crisis Lifeline, or go to the nearest emergency room if you feel at risk. You don’t have to handle this alone. It may also be worth checking in with your doctor soon to review what’s changed and see if there are adjustments or treatments that could ease the burning pain more effectively. You deserve relief, and you deserve support while you figure this out.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.