Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Going About Things The Wrong Way?

coconut12

Recommended Posts

coconut12 Newbie
coconut12
Posted

Hi!

I was wondering if anyone here has skipped the blood test and biopsy and gone straight to the enterolabs test?

I'm considering doing this because I went to a dr. who suggested celiac and told me to go gluten-free. I did about 10 days ago, and am no longer bloated and gassy and have only had ONE migraine since! I had been having migraines almost daily.

Now that I'm off gluten and have seen such an improvement, I'm reluctant to go back on it. I don't want to go back to the migraines at all.

So, I was wondering if I can stay gluten-free, take the enterolabs test and still get accurate results?

Thanks for any help.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


tarnalberry Community Regular
tarnalberry
Posted

Enterolabs says they can detect antibodies for a little while after going gluten free.

But you already have a very positive test - dietary response. You can, if you want, choose to stay gluten free based just on that. Enterolab doesn't diagnose celiac disease (just gluten intolerance) because it's not an intestinal biopsy. But the diet requires no prescription.

coconut12 Newbie
coconut12
Posted
  • Author

Enterolabs says they can detect antibodies for a little while after going gluten free.

But you already have a very positive test - dietary response. You can, if you want, choose to stay gluten free based just on that. Enterolab doesn't diagnose celiac disease (just gluten intolerance) because it's not an intestinal biopsy. But the diet requires no prescription.

Thanks for your response!

I'm thinking that I'm just going to forget getting an accurate test. I went back on gluten so that I could have the bloodwork done and maybe a biopsy, and I'm feeling like I'm dying. I know that's an exaggeration when I think about it logically, but that's how I feel.

I can't believe how bad I feel. I feel like it's hard to breathe and my whole body hurts. My vision is blurry. I have no interest in doing anything.

I'm really frustrated because I have been going to my family doctor for about a year telling her that something was really wrong, then I went to a neurologist for migraines and was diagnosed with peripheral neuropathy and even that didn't get a reaction from her. I went to an integrative medicine doctor a few weeks ago and he suggested celiac and to go gluten-free. I did, and had an immediate return of my interest in things and some improvement in the numbness in my toes (maybe due to the magnesium and b vitamins he put me on)--not to mention, I only had one migraine during the time I was gluten-free. But I know if I don't get a firm diagnosis my family doctor is not going to believe me.

I'm confused about what I should do. But I don't think I can continue to eat gluten in order to get a diagnosis. Am I just being a wimp?

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,516
    • Most Online (within 30 mins)
      7,748
    Lizie
    Newest Member
    Lizie
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • trents
      What should I expect from a UK restaurant advertising / offering "Gluten Free" food

      By trents · Posted

      @cristiana, I'm thinking the intensity of our response to the same amount of gluten can vary from time to time. Our bodies are a dynamic entity. 
    • Scott Adams
      Jersey Mike’s option: Gluten-free bread

      By Scott Adams · Posted

      I'm going to try Jersey Mike's soon--we have one nearby. Thanks for sharing!
    • cristiana
      What should I expect from a UK restaurant advertising / offering "Gluten Free" food

      By cristiana · Posted

      Hi @trents Two things can happen:  1/ For a very small gluten hit, I will get a slightly sore stomach for a few days, maybe a day or two following the glutening, and (TMI warning) maybe slightly loose BMs with mucus  for a couple of days.  2/ For a substantial glutening, and thankfully it's only happened once in recent years,  I get bad chills, followed by vomiting, and my heartbeat is all over the place and I can hardly stand.  It's pretty extreme.  That happens within about 2 hours of eating the gluten.  I might feel slightly dizzy for a couple of days after the glutening episode. Interestingly I've just been out to a cafe which hitherto has made a big thing about how their french fries are cooked in a separate fryer.  I shared some with a friend and they were served with chilli sauce, jalapenos, cheddar cheese and fried onions.  Definitely not health food!  Anyway,  I'd eaten half when I realised I'd not checked the menu to ensure that this dish is still gluten-free - and it turns out it isn't!!!  They've changed the ingredients and the fried onions are now cooked with wheat.   I came home expecting to feel dreadful as I had no idea how much gluten I have consumed but so far if anything I feel just little queasy.  I think I'd have thrown up by now had there been a lot of gluten in the onions.  
    • trents
      Persistent isolated high DGP-IGG in child despite gluten-free diet

      By trents · Posted

      It might be wise to start him on small amounts and work up to 10g. Monitor how he reacts. Some people simply cannot complete the gluten challenge because it makes them too ill. By the way, you can buy powdered gluten in health food stores, at least here in the states you can. With a food scale, it would be easy to measure the amount being consumed in a day. I'm not sure what the intensity of reaction to gluten tells you about what's actually going on with regard to celiac disease. I mean there are some celiacs like me who don't seem to react to minor exposure amounts but who get violently ill with larger exposures. Then there are celiacs who get some kind of reaction to even the tiniest amount of exposure but don't necessarily get violently ill. And how the reaction manifests itself is very different for different people. Some, like me, experience emesis and diarrhea. Others just get brain fog. Others get joint pain. It's all over the map.
    • melthebell
      Persistent isolated high DGP-IGG in child despite gluten-free diet

      By melthebell · Posted

      That's interesting - that's a lot of gluten! I'll be very curious to see how my son responds to the gluten. In some ways, I guess having a strong reaction would tell us something? It's tough navigating this as a parent and having it be not so clear cut ;\
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.