Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Losing Muscle Mass


beijing

Recommended Posts

beijing Newbie

hello everyone!! hoping u guys can help me out, i've been gluten free for about 3 months..for the past 3 weeks ive been noticing i've been losing a lot of muscle mass especially in my lower body which used to be my strong point..i workout 6 days a week ive cut back drastically on cardio and i do a lot of weight lifting (P90X)..i cant seem to make any more gains i'm actually going backwards..i'm drinking biochem whey protein shake, i eat ALOT!! mostly fuits veggies and steak (ribeye, which is high in calories)with potatoes and rice i never get full and i am always hungry!! Please help i dont know what to do anymore i take in a lot of calories daily and now i dont even have the energy to get a good workout...i dont want to stop working out because i feel like thats what gets my belly going..does anyone have any advice for me??? should i take in more protein shakes?? or is it that the shake i'm taking right now isnt very good?? before i went gluten free i was drinking syntha 6 but that one is not gluten free...please help i'm losing all my gains and I never get full!!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Glamour Explorer

How old are you? Menopause can wreak havoc on skin and muscle tone. I am 51 and losing lots of weight and some muscle. I realized I was not getting enough protein from FOOD. As I was deleting gluten, I was not getting enough good balanced nutrition.

You can also overdo working out, both cardio and weight training. Make sure you are letting muscles recover, otherwise you just tear them down. If you work out as much as you indicate, you should already know this - read up about this.

Reba32 Rookie

fats and protiens! They'll keep you sated, and will prevent you losing muscle mass.

beijing Newbie

I am 32 years old...I alternate between muscle groups allowing 2-3 days recovery depending on the muscle groups I worked...I've been doing it consistently for 4 years, with and without personal trainers...this is not the norm for me I've never had any trouble sustaining it, I was just wondering if perhaps there is some kind of vitamin deficiency or some other kind of deficiency, like I said Ive cut down on the cardio because I am not trying to lose weight, Im trying to gain good weight (low reps high weight)...at first going gluten free was a breeze for me but I've found that the more time that passes the harder its getting!! shouldn't it be the other way around???..also I still ocassionaly have the distended belly issue....could i be getting accidentally glutened..or does it take time for all that to go away..and the rashes too..when does that go away could someone give me an approx. time line when do u feel normal again or do you ever??

kenlove Rising Star

Get your hormones checked. When I finally got diagnosed 5 years ago I had lost 60 some pounds, all my testostorne and another hormone in the parathyroid glands. To get back required much more than diet and exercise but also a fair amount of B's and other vitamins as well as hormone injections. There are a lot of variables but its good to keep an eye on the hormones.

good luck

ken

I am 32 years old...I alternate between muscle groups allowing 2-3 days recovery depending on the muscle groups I worked...I've been doing it consistently for 4 years, with and without personal trainers...this is not the norm for me I've never had any trouble sustaining it, I was just wondering if perhaps there is some kind of vitamin deficiency or some other kind of deficiency, like I said Ive cut down on the cardio because I am not trying to lose weight, Im trying to gain good weight (low reps high weight)...at first going gluten free was a breeze for me but I've found that the more time that passes the harder its getting!! shouldn't it be the other way around???..also I still ocassionaly have the distended belly issue....could i be getting accidentally glutened..or does it take time for all that to go away..and the rashes too..when does that go away could someone give me an approx. time line when do u feel normal again or do you ever??

GFinDC Veteran

I am 32 years old...I alternate between muscle groups allowing 2-3 days recovery depending on the muscle groups I worked...I've been doing it consistently for 4 years, with and without personal trainers...this is not the norm for me I've never had any trouble sustaining it, I was just wondering if perhaps there is some kind of vitamin deficiency or some other kind of deficiency, like I said Ive cut down on the cardio because I am not trying to lose weight, Im trying to gain good weight (low reps high weight)...at first going gluten free was a breeze for me but I've found that the more time that passes the harder its getting!! shouldn't it be the other way around???..also I still ocassionaly have the distended belly issue....could i be getting accidentally glutened..or does it take time for all that to go away..and the rashes too..when does that go away could someone give me an approx. time line when do u feel normal again or do you ever??

It sounds like you are having reactions to something in your diet. Rashes and a distended belly are the symptoms I think indicate that. Did you change anything in your diet around the time the problem showed up? You might want to try an elimination diet to see if you can identify a problem food.

Erin Elberson Newbie

I would suggest you first follow up with your doc to get tested for any other food intolerances, parasites, and also to have some levels checked-ferritin, Vit D, B vitamins, and your regular blood panel, and hormone levels as Ken stated. You may also want to meet with a nutritionist if you have deficiencies.

Aside from that, the weight training and adequate protein intake are crucial for maintaining muscle mass. Perhaps track your protein intake in grams for a few days to see where you're at-optimal would be about 1-1.5 g/lb of protein.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



  • 2 weeks later...
Reba32 Rookie

have you ever had your thyroid levels checked? There are 2 autoimmine thyroid diseases that commonly go in tandem (one or the other) with Celiac disease.

Hashimoto's thyroiditis causes hypo-thyroid.

Grave's disease causes hyper-thyroid. I had Grave's disease (currently in remission) and suffered quite a lot of muscle wasting because of it.

I don't know that anyone with Celiac woudl ever feel "normal" but after a few weeks you should certainly notice some improvement. If you're not, then it is possible you have other health issues that need to b determined. Either other food intolerances, or possibly other in-tandem autoimmune diseases.

beijing Newbie

Thank you everyone for your help!! I certainly will go get checked for the thyroid issue...BTW i wanted to share a website that I found its called gluten free fitness, I'm not done navigating through the website but it has a link to a pretty cool food and calorie tracker...Thank you again ev1

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Pamp8 replied to Pamp8's topic in Dermatitis Herpetiformis
      6

      Dermatitis Herpetiformis

    2. - MagsM replied to MagsM's topic in Related Issues & Disorders
      8

      Inflammation and Menier’s disease link?

    3. - Jacki Espo replied to Pamp8's topic in Dermatitis Herpetiformis
      6

      Dermatitis Herpetiformis

    4. - trents replied to Pamp8's topic in Dermatitis Herpetiformis
      6

      Dermatitis Herpetiformis

    5. - knitty kitty replied to Pamp8's topic in Dermatitis Herpetiformis
      6

      Dermatitis Herpetiformis


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      129,953
    • Most Online (within 30 mins)
      7,748

    slaglelikebagel
    Newest Member
    slaglelikebagel
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.3k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Pamp8
      Thank you for all of these helpful answers!  I really appreciate them. I typically eat 2 eggs every morning, so I'm going to stop those, in case the iodine is an issue. And, I'm checking all of my medications and supplements for gluten. I will try some of these other suggestions, too. Thank you all. I feel like I have a little bit of hope that this can get better soon.
    • MagsM
      Hi Leenora, thanks so much for sharing your journey. Yes, I am based in Ireland and I think the primary care docs should know better here. Like yourself my IGA was undetectable.  I do not have any major GI symptoms as a result my doc would only order total IGA as the next step and not IGG - so frustrating. I am ready to start a gluten free diet which will hopefully help with nutrient absorption and ultimately overall health. As someone who has already gone through a breast cancer journey I would like to be assured that my immune system is working optimally. My big concern is around Alzheimers as my Mom was diagnosed with Meniers at my age and developed memory decline in her mid 70s. She has an Alzheimer's diagnosis but her neurologist thinks it is more short term memory loss. Since neurological health is a concern of mine I have ordered the B vitamins recommended by kitty kitty on this thread. I have upped my VitD supplements and haven't had a vertigo attack in 2 weeks. I agree with your observation that these things are all connected - they likely are very much connected with gut health. I am also planning on ordering germline genetic testing to check my pre-dispositions. 
    • Jacki Espo
      I would not be surprised if that is the case. I briefly took doxycycline and it cleared up but I also stopped eating oats at the same time so hard to say what did it. And I understand doxy is nasty stuff. I had to take it with yogurt because it messed up my stomach so badly. 
    • trents
      I would hesitate to recommend tetracycline or any antibiotic as a long term therapy option because of the negative impact it has on the gut biome. I took it for years as a teenager for acne and I'm convinced it was a contributing factor in my having developed celiac disease.
    • knitty kitty
      Welcome to the forum, @Pamp8, I stopped foods high in iodine, like dairy and eggs, kelp and iodized salt.   I take Niacinamide also called Nicotinamide or Vitamin B3.  I haven't taken the tetracycline with it.   It seems to make the blisters disappear quicker. I also use tallow balm, a cream made from beef fat, which has been used for thousands of years.  It is absorbed into the skin better than creams made from plants.  It helps prevent or lesson scarring.  See the study below. Two Cases of Dermatitis Herpetiformis Successfully Treated with Tetracycline and Niacinamide "The combination of tetracycline and nicotinamide can be recommended as a useful therapy for patients where dapsone is not available or for patients who do not tolerate dapsone." https://pubmed.ncbi.nlm.nih.gov/30390734/
×
×
  • Create New...