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Celiac & Teens


J4K

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J4K Newbie

I'm finding from most of the comments from other moms that their kids are diagnosed as small children or at least preteens. My daughter was just diagnosed at 14. I think I'm having a harder time adjusting than she is but maybe I'm just fooling myself. She just knows she feels better (just three weeks in). Wondering if anyone knows of a book addressed to celiac teens? I know as time goes on she will have more questions and will at some point will be leaving the safe haven of home. For now, I'm cooking everything. I can't seem to get her interested in learning how to cook it for herself. Again this is all new. Any suggestions?


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ryebaby0 Enthusiast

My son is 16 (dx at 10). Just a few things off the top of my head: it's pretty typical to feel good and optomistic, and then feel overwhelmed and grieving -- so be ready for that, with her and with yourself. It's really important to keep a positive outlook. It's important you never, ever condone cheating.(She'll cheat. It will make her so sick, she'll never do it again) Resist the urge to feel sorry for her. (I remind myself that no matter how inconvenient, isolating, or hard a gluten-free diet can be -- parents of children lost to leukemia, kidney disease, etc. would have given ANYTHING to have a disease that you can survive and manage)

Summer vacation is a good time to work on slowly building cooking skills. You are correct -- she needs to know how to cook, in order to go out in the world without you. Start with simple stuff like pasta, eggs, maybe one or two great cookies (the Good Eats guy on Food Network has THE BEST gluten-free choc chip cookie recipe!). There's lots of time. Invite her friends over for a fancy dress-up dinner party. Assume many mistakes will be made! But what a great way to encourage adventure, independance, and novelty.

Encourage her to join one of the many teen-oriented celiac lists. There's a whole thread here for celiac teens, too; more out there to be found. Someone else might have a teen-specific book but I don't know of one. There's a project for somebody!!

Good luck, and hang in there

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      Please read the original post--they are looking for a gluten and milk-free treat to replace Tootsie Rolls for their child who loves Tootsie Rolls, but can no longer have them due to a dairy issue--they are not looking for M&M's.
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      They both do.  The peanuts add nutrients to the treat. Tootsie Roll: Sugar, Corn Syrup, Palm Oil, Condensed Skim Milk, Cocoa, Whey, Soy Lecithin, Artificial and Natural Flavors. M&M Peanut: milk chocolate (sugar, chocolate, skim milk, cocoa butter, lactose, milkfat, peanuts, soy lecithin, salt, natural flavor), peanuts, sugar, cornstarch; less than 1% of: palm oil, corn syrup, dextrin, colors (includes blue 2 lake, blue 1 lake, red 40, yellow 6 lake, yellow 5, yellow 6, blue 1, yelskim milk contains caseinlow 5 lake, blue 2, red 40 lake), carnauba wax, gum acacia. glycemic index of Tootsie Rolls ~83 gycemic index of M&M Peanuts ~33   The composition of non-fat solids of skim milk is: 52.15% lactose, 38.71% protein (31.18% casein, 7.53% whey protein), 1.08% fat, and 8.06% ash.   https://onlinelibrary.wiley.com/doi/10.1002/9781118810279.ch04  Milkfat carries the fat soluble vitamins A, D, E, and K. The solids-not-fat portion [of milk] consists of protein (primarily casein and lactalbumin), carbohydrates (primarily lactose), and minerals (including calcium and phosphorus). https://ansc.umd.edu/sites/ansc.umd.edu/files/files/documents/Extension/Milk-Definitions.pdf
    • Scott Adams
      But M&M's contain milk, and would not be at all like a Tootsie Roll.
    • Jmartes71
      I appreciate you validating me because medical is an issue and it's not ok at all they they do this. Some days I just want to call the news media and just call out these doctors especially when they are supposed to be specialist Downplaying when gluten-free when they should know gluten-free is false negative. Now dealing with other issues and still crickets for disability because I show no signs of celiac BECAUSE IM GLUTENFREE! Actively dealing with sibo and skin issues.Depression is the key because thats all they know, im depressed because medical has caused it because of my celiac and related issues. I should have never ever been employed as a bus driver.After 3 years still healing and ZERO income desperately trying to get better but no careteam for celiac other than stay away frim wheat! Now im having care because my head is affected either ms or meningioma in go in tomorrow again for more scans.I know im slowly dying and im looking like a disability chaser
    • Wheatwacked
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