Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

1 Month Gluten Free Things Aren't That Much Better


serenajane

Recommended Posts

serenajane Apprentice

I have been gluten free 1 month I have been careful about ready and finding out the hidden glutens in all our food.

Has anyone been sensitive to apples or bananas?

I have had cheese and corn so it is hard to tell if I am sensitive to one or the other. I never used to have a problem with cheese or any dairy product. I have used a recipe that I got for gluten free bars it has gluten free everything possibly to rich for my system not healed enough????? I am going to start keeping a food diary.

should I see an allergist to find hidden triggers?

I appreciate all the support I receive here thanks a bunch....


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



mamaw Community Regular

Hello

Here's a couple of things to mill around. First, 1 month being gluten-free does not give your body time enough to heal. For some feeling better comes sooner than others. Then for others three or four years isn't enough time. We are unique in that we all or most share celiac but that is about as far as it goes. We all don't heal the same, we all can't eat all the same foods as the next person. Some are more sensitive at the begiining of their journey, while others become more sensitive to other things as time goes on.

You have a good idea of keeping a food journal. Many of us have done an elimanation diet to try to figure out what would help us to feel better.You also stated you made gluten-free bars with all gluten-free items. By chance did the bars contain oats? Even if the oats are gluten-free , that could be the problem. Most doctors tell celiac people not to partake of oats until at least a year & then in small amounts. Fiber can also play havoc with our delicate systems. We need to add fiber & protein to our gluten-free food but again maybe this is something to look at. The bars could have alot of fiber & your body just isn't healed enough to handle ....

Also many of us find that we become more aware of our own bodies & notice things that we never paid attention to before our dx's. For example corn--- maybe before when someone ate alot of corn they would get the big D or else feel a rumble of the stomach. We would put that off thinking I always get that ..now we notice it as a concern & a problem.

Don't give up it will get better. In time you too will find a happy, healthy life without gluten.

blessings

mamaw

kayo Explorer

I second the food diary idea. I kept one when I began my gluten-free diet and it helped so much. Anytime I seem to be having a flare up I go back to keeping a diary for a few days and re-read labels. I can usually narrow down the suspects then. When you have multiple allergies or suspect that you do this can help you figure it out.

I also found that I felt better and worse at different times. Sort of an ebb and flow as my body adjusted.

I tried gluten-free oats in the beginning of the diet and they caused me some grief so I packed them up and stored them. It was a good 6 months before I dared to try them again and then even in small amounts. I figure they're just too rough for my system while it heels. Same goes for gluten-free breads. Some tend to make a quick journey through my system that is a bit more harsh than I want :-)

No issues with bananas or apples but it's possible the fiber or the fructose is a bit much for you at this time.

mushroom Proficient

I second (third :) ) the avoidance of oats for now. Also, you are very new into healing, and fibrous foods are hard for the digestive system to handle. You could be having problems with the apple skin, but not the apple, so you could try peeling it. Corn also has a tough outer skin, as well as being potentially allergenic itself. Likewise, tomato skins are hard, especially today's commercial varieties. Even the cruciferous vegetables like broccoli and cabbage are hard to digest.

Give your digestive system as easy a time as possible to start with until you have done some good healing. Also, it is best to avoid eating the top eight allergens during this time, and to not consume at least lactose (milk, cream, ice cream, etc.) until you find out your tolerance to dairy.

serenajane Apprentice

Hello

Here's a couple of things to mill around. First, 1 month being gluten-free does not give your body time enough to heal. For some feeling better comes sooner than others. Then for others three or four years isn't enough time. We are unique in that we all or most share celiac but that is about as far as it goes. We all don't heal the same, we all can't eat all the same foods as the next person. Some are more sensitive at the begiining of their journey, while others become more sensitive to other things as time goes on.

You have a good idea of keeping a food journal. Many of us have done an elimanation diet to try to figure out what would help us to feel better.You also stated you made gluten-free bars with all gluten-free items. By chance did the bars contain oats? Even if the oats are gluten-free , that could be the problem. Most doctors tell celiac people not to partake of oats until at least a year & then in small amounts. Fiber can also play havoc with our delicate systems. We need to add fiber & protein to our gluten-free food but again maybe this is something to look at. The bars could have alot of fiber & your body just isn't healed enough to handle ....

Also many of us find that we become more aware of our own bodies & notice things that we never paid attention to before our dx's. For example corn--- maybe before when someone ate alot of corn they would get the big D or else feel a rumble of the stomach. We would put that off thinking I always get that ..now we notice it as a concern & a problem.

Don't give up it will get better. In time you too will find a happy, healthy life without gluten.

blessings

mamaw

Thank you it always helps to talk to others just to see if something stands out that I am not seeing.

The bars that I made didn't contain oats I have been holding off trying them. The GI doc said that I could have multi symptoms and pretty much told me just because I have celiac doesn't mean I don't have IBS as well.

It is odd that I was feeling better in the first 2 weeks of gluten free. I did have corn chex for breakfast a few days ago. But I also had milk in them.

any idea if pepto bismol is helpful or gluten free I read somewhere that tums aren't safe

thanks again

sandsurfgirl Collaborator

I am nearing week 8. I didn't start feeling good until about week 6. I did have relief of daily anxiety and shortness of breath but GI symptoms worsened for awhile. For 2 weeks everything I ate bothered me. I chalk it up to my gut healing and being oversensitive because that giant healing army is working way too hard to also have to focus on digesting complex foods.

I am still on a relatively simple diet and many things are bothering me. I am off dairy and soy and I'm not eating gluten free replacement products. I am making my own bread that has simple ingredients. I found I can't do tapioca right now, too.

Hang in there and try going to whole foods for awhile. Rice, veggies, fruits, meats. You can make pancakes out of brown rice flour, potato starch. I use almond milk for any milk type needs and I've gotten used to it and like it now.

It will get better!!!

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      how much gluten do I need to eat before blood tests?

    2. - catnapt posted a topic in Related Issues & Disorders
      0

      anyone here diagnosed with a PARAthyroid disorder? (NOT the thyroid) the calcium controlling glands

    3. - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      how much gluten do I need to eat before blood tests?

    4. - Jmartes71 posted a topic in Coping with Celiac Disease
      0

      Curious question

    5. - Amy Barnett posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      0

      Question

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,322
    • Most Online (within 30 mins)
      7,748

    avery144
    Newest Member
    avery144
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • trents
      Under the circumstances, your decision to have the testing done on day 14 sounds very reasonable. But I think by now you know for certain that you either have celiac disease or NCGS and either way you absolutely need to eliminate gluten from your diet. I don't think you have to have an official diagnosis of celiac disease to leverage gluten free service in hospitals or institutional care and I'm guessing your physician would be willing to grant you a diagnosis of gluten sensitivity (NCGS) even if your celiac testing comes up negative. Also, you need to be aware that oats (even gluten free oats) is a common cross reactor in the celiac community. Oat protein (avenin) is similar to gluten. You might want to look at some other gluten free hot  breakfast cereal alternatives.
    • catnapt
      learned I had a high PTH level in 2022 suspected to be due to low vit D  got my vit D level up a bit but still have high PTH   I am 70 yrs old (today in fact) I am looking for someone who also has hyperparathyroidism that might be caused by malabsorption    
    • catnapt
      I am on day 13 of eating gluten  and have decided to have the celiac panel done tomorrow instead of Wed. (and instead of extending it a few more weeks) because I am SO incredibly sick. I have almost no appetite and am not able to consume the required daily intake of calcium to try to keep up with the loss of calcium from the high parathyroid hormone and/or the renal calcium leak.    I have spent the past 15 years working hard to improve my health. I lost 50lbs, got off handfuls of medications, lowered my cholesterol to enviable levels, and in spite of having end stage osteoarthritis in both knees, with a good diet and keeping active I have NO pain in those joints- til now.  Almost all of my joints hurt now I feel like someone has repeatedly punched me all over my torso- even my ribs hurt- I have nausea, gas, bloating, headache, mood swings, irritability, horrid flatulence (afraid to leave the house or be in any enclosed spaces with other people- the smell would knock them off their feet) I was so sure that I wanted a firm diagnosis but now- I'm asking myself is THIS worth it? esp over the past 2 yrs I have been feeling better and better the more I adjusted my diet to exclude highly refined grains and processed foods. I didn't purposely avoid gluten, but it just happened that not eating gluten has made me feel better.   I don't know what I would have to gain by getting a definitive diagnosis. I think possibly the only advantage to a DX would be that I could insist on gluten-free foods in settings where I am unable to have access to foods of my choice (hospital, rehab, nursing home)  and maybe having a medical reason to see a dietician?   please let me know if it's reasonable to just go back to the way I was eating.  Actually I do plan to buy certified gluten-free oats as that is the only grain I consume (and really like) so there will be some minor tweaks I hope and pray that I heal quickly from any possible damage that may have been done from 13 days of eating gluten.    
    • Jmartes71
      So I've been dealing with chasing the name celiac because of my body actively dealing with health issues related to celiac though not eating. Diagnosed in 1994 before foods eliminated from diet. After 25 years with former pcp I googled celiac specialist and she wasn't because of what ive been through. I wanted my results to be sent to my pcp but nothing was sent.I have email copies.I did one zoom call with np with team member from celiac specialist in Nov 2025 and she asked me why I wanted to know why I wanted the celiac diagnosis so bad, I sad I don't, its my life and I need revalidaion because its affecting me.KB stated well it shows you are.I asked then why am I going through all this.I was labeled unruly. Its been a celiac circus and medical has caused anxiety and depression no fault to my own other than being born with bad genetics. How is it legal for medical professionals to gaslight patients that are with an ailment coming for help to be downplayed? KB put in my records that she personally spent 120min with me and I think the zoom call was discussing celiac 80 min ONE ZOOM call.SHE is responsible for not explaining to my pcp about celiac disease am I right?
    • Amy Barnett
      What is the best liquid multivitamin for celiac disease?
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.